MBC - Your thoughts and feelings?

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barsco1963
barsco1963 Member Posts: 2,119
edited March 2017 in Male Breast Cancer


I am organizing a fundraiser for awareness and education of metastatic bc with all proceeds going to Metavivor. As mbc has been referred to as the elephant in the room, the elephant has become the symbol for this event named "Dancing with Elephants"


I will have elephant shapes posted all over the walls with the facts of mbc. I also have some quotes and thoughts from some of the women on the stage iv boards on what it is like living with mbc.


I am hoping that I can also get a male perspective as to how their lives are affected by mbc. I will write the quote on the shape and would like to include a first name so that it is more personal. If you would like to participate, please either post here or send me a private message.


I appreciate your help to get the word out about mbc.


Barb

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Comments

  • 1NippledBandit
    1NippledBandit Member Posts: 78
    edited October 2013


    I was 37 when I was diagnosed. I'm now 41. It is constantly in the back of my mind. I am still alive, but I had a disease that can kill you! A disease that I didn't even know existed for men. As time goes on, the fear/anxiety/doubt fade, but they are all brought back into full force whenever I have a weird pain or change in my body as I grow older. It is something that I will have to live with for the rest of my life, but I cannot let it control me. That is a path that leads to sadness, loneliness, and misery. I choose to live each day with a positive outlook and to enjoy my blessings!


    Brent



    PS. I don't know if that is what you are looking for. Let me know if you need something different.

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited October 2013


    Hi Brent - thanks for responding. I was looking for stage iv replies, but since men's bc seems to be as talked about as metastatic bc, I may just incorporate men at any stage. Your post is just the type of thing I am looking for.


    Love your attitude! "positive outlook and enjoy my blessings"


    Stay well


    Barb

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited October 2013


    Barsco ... could you please add the name Mike Eanes to the MBC list. He was a regular poster on this site for a long time. He died on January 1st of extensive mets a few years ago. I would love to see him be remembered. He lived in my town and we became friends. I still miss him. He helped so many on this site. I was able to attend his service and met his lovely twin daughters. They were so grateful for all the friends he made on BCO.


    Thanks,


    Bren

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  • Bounce
    Bounce Member Posts: 574
    edited October 2013


    Hi Brent


    I too thought MBC referred to male breast cancer. I would like to thank you for describing your feelings. It really is a help to me to understand that what I am feeling is not neurotic or foolish or just me but a normal reaction to a stressful situation.


    I think a lot of ladies may be showing your post to their partners when we are told "Why worry? Anything can happen to anyone at any time."


    Incidently the fact that my male cousin had breast cancer a few years ago alerted me to the fact of how genetic cancer was in my family and probably kept me having my annual check up year after year.


    Lots of people speak about coming to terms with the "new normal" and your philosophy is great. I can't control what happens to me in life but I can choose how I react to it. At first I was filled with fear and dread but slowly I am realizing that "a positive outlook and to enjoy my blessings" is a possibility too.

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  • Francois74
    Francois74 Member Posts: 1
    edited August 2014

    Good Day Barb 

    My Name is Francois and I am 40 years old. And I have MBC. I am scared to death.

    Is the any other males out there that do have MBC.

    Regards

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2014

    Dear Francois, welcome to the BCO community. We're sorry you have to be here, but glad you found us!

    As you noted this thread has not been active in
    awhile and that may impact your receiving responses. Perhaps you might consider
    starting your own topic under this same forum. You have to go to the title of the forum above this page and then click on "Start a new topic". Add your title, your comment and then click on "Submit" to publish your post.

    Good luck, The Mods

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  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited August 2014

    Francois if you are on Facebook, my friend Bill Becker has MBC and has a page for men with BC. See 

    https://www.facebook.com/BreastCancerBrothers

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  • cliff
    cliff Member Posts: 290
    edited March 2017

    how about both, mbc, male breast cancer, and IDC stage 4 (metastatic)? unfortunately high number of guys get that far due to medical profession not knowing about male breast cancer.

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