Any California girls out there starting chemo in the summer?

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Laurais50
Laurais50 Member Posts: 71
edited August 2014 in Stage II Breast Cancer


I was just hoping to connect with some of you that are a little closer to home. I just started chemo May 30, It's going to be a long hot summer. I feel so alone out there, and just wanted to connect. All my good friends live so far away from me, so I don't have really anyone to visit with or do things with, My BF of 6 years is great, but works long hard hours in construction and is super tired when he gets home. I just wish I could have someone to sit with, or help me around the house...Anyway, any ideas, tip, support would be great.

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  • Pandabear
    Pandabear Member Posts: 25
    edited June 2014

    Hi. I am in Ca too but in SoCal! It doesn't seem like there are too many Cali girls on the board. 

    I just got dx with a recuurence a and will have a masectomy soon. If I have chemo, it will be late summer. I just wanted to post and wish you well. I can totally understand how you feel. My hubby worksong hard hours and he isn't home a lot so it's lonely. And then i feel guilty asking him to help me when I am laid up (from foot surgies). Do you have any pets? They are a great comfort. 

    Are you feeling ok from chemo? It must be hard in this heat. Seems like CA has been one extended summer with no end in sight. 

    I wish I was closer to help you out or visit with you. We can  become Internet pals and bitch about how hot it is in CA ;)

    Wishing you the very best and I hope you are feeling well. 

  • Laurais50
    Laurais50 Member Posts: 71
    edited June 2014


    Hi Pandabear, would love to talk, My brother lives in Woodland Hills. Do you have facebook? I made a private page on there to talk about my cancer to faraway family and friends. Chemo so far sucks. And I'm only into my first infusion. Are you doing reconstruction after your ma? I did I have a TE in there with 480cc of saline and I totally regret it right now, I wish I would have waited. I also got a port o cath, I'm glad I got it more than not, even though it bugs me. I also shaved my head before chemo takes my hair. I now want to shave it all the way off. Anyway, let's stay in touch.Happy

  • Pandabear
    Pandabear Member Posts: 25
    edited June 2014

    oh no! I am very sorry :( I hope you feel better. Are you like really nauseous? Or tired?

    I don't think I am going to have reconstruction - at least not right away. Was the surgery really painful? I am nervous for the surgery. 

    I will send you a pm with my email address so you can. "Friend" me. I don't understand FB but I set up an account for my fantasy football league :)

    Feel better!

  • Laurais50
    Laurais50 Member Posts: 71
    edited June 2014


    Hey Pandabear, the surgery really wasn't that bad, but the TE is bothersome and tight I just wish I would have waited because it's uncomfortable. I am tired and a bit  nauseous, the  nauseous part is not as bad as I thought it would be. Like I said though first fusion down 15 left to go we will see. Have a good night. And thank you to all..

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited June 2014

    Laurais, I just wanted to reach out to you and say hello and to tell you that I have been where you are.  I'm almost 5 years out now.  I did chemo (taxotere, carboplaitin and herceptin).  Days 5 and 6 were really hard for me but after a few days it would get better.  2nd week was better and 3rd week was even better.  You mentioned that you have nausea--my onc told me to take my nausea meds before I was nauseated and I did just what he said.  I never had nausea.  Are you having the neulasta shot the day after chemo?

    BTW, I was born in Sacramento and grew up in Woodland.  I miss the valley.

    You are in my thoughts and know that it will get better.

    Liz

  • Laurais50
    Laurais50 Member Posts: 71
    edited June 2014


    Hello Cowgirl, thanking for chiming in. I did not get the neulasta shot, never heard of until here. I go in on Friday for blood levels checked. I will ask about it. As for week 2 and 3 you did better, but then you had to go in again and start all over, right? Did it get easier or tougher each round you went and got? Do you ever come to Sac for visits? I sure wish I was closer to the ocean air while going through this. Thank you.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited June 2014

    Laurais, unfortunately the cycle starts again when you have the next infusion but the 2 weeks where you feel better and then more better really help.  I don't know if anyone has mentioned drinking lots of water but I did every day religiously.  I think it was 2 quarts a day.  I really wanted to flush out the chemo.

    You should definitely find out about the neulasta shot.  I had one after every chemo....it helps to keep your blood numbers where they should be, which can help prevent infection or low platelets.  

    Where are you receiving your treatments?  Do they have a breast cancer support group?  My facility did and it really helped me through this journey.  I also posted/read a lot of the Triple Positive Group.  They are such a great group and so knowledgeable about treatment.  

    I don't get up your way very often except for a couple of times a year....wish I could get there more often.

    Take care and let me know how you are doing.

    Liz

  • Laurais50
    Laurais50 Member Posts: 71
    edited June 2014

    Hi Cowgirl., I'm starting the 2nd week of my first infusion. Go back on the 20th for my 2nd. I will go in today for a blood level check and ask about the neulasta. I know I need to drink more water, It has always been hard for me to drink fluids. I am going to Mercy San Juan (Dignity Health). It's right down the road from me. The idea of going out scares me, I don't want to catch anything from anyone, but yes they do have a support group. I know I should go. I love the bay area and in this household we are big 49ner fans. I even told my bf.. Football season starts right around the time I'm almost done, LOL He's like that's a long time, I'm like thanks Loopy Anyway you take care,

    Laura

  • Laurais50
    Laurais50 Member Posts: 71
    edited July 2014


    Just checking in and seeing how everyone is doing? Hope you are having a good summer.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2014

    HI I am about to start chemo tomorrow - ugh.  I live in San Diego and just noticed this thread thought I'd stop in and say hi to the Cali ladies.  I used to live in the bay area (Concord), but that was years ago.  My daughter is at UC Davis.  I hope your treatments are going well.  

    Nancy

  • Laurais50
    Laurais50 Member Posts: 71
    edited July 2014


    Hi Nancy, good luck with your first. The first one is scary.  Try to ride through it. Come over to the June chemo tread too lots of info and good people on there.

    Aug 1 will be my last A/C and then I start Taxol. The se suck, but not as bad as I thought they would be. You will lose your hair, are you going to shave it off first? I bought a wig, but have never used it. So you may want to wait to buy one. Well let us know how it goes for you. I check daily so ask away on anything you are thinking or feeling. Some one will have some kind of input. Good luck tomorrow Nancy. Hugzzzz

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2014

    thanks Laura.  No, I didn't shave off my hair.  I was going to, but my hubby said no as did my daughter as did my hairstylist LOL.  I did buy two expensive wigs (yes, I am very vain and losing my hair is a biggie for me).  They look better than my own hair - hope I like them as I have heard of a lot of people that hate them.  They are very lightweight.  I just don't want to look like a cancer patient you know.  There are people I want to tell and I will tell them, but the whole blasted world doesn't need to know ha ha.  

    Thanks for the warm welcome.

    Nancy

  • Laurais50
    Laurais50 Member Posts: 71
    edited July 2014


    Hey Nancy how are you doing? How did your first treatment go? How are you feeling? Just know the scond one gets easier? Did you get a port?

    At first thats how I felt, and now I really don't care what people think or say, but that is just me. You take care.

  • Lissee
    Lissee Member Posts: 40
    edited July 2014


    I live in the I.E. (So. Cal).  It was summer 2009 when I went through chemo and radiation.  In June 2014 my doctor told me that the cancer was in remission.  I nearly fell to my knees to cry.  For the first time in five years, I felt hope for a future beyond a couple of years.  My doctor told me something I will never forget, during my oncology consult. She said " I cannot help you if you don't make up your mind to fight this. People who have a strong desire to fight, and survive always do better, don't let  yourself be a victim"   She is a smart women, and although at that time, I didn't want to hear what she said, (much easier to be a victim) I embraced this new path for my life.  

    For those of you just starting your new path, I can tell you it will be a challenge like no other you can image. But a challenge that you can overcome. I look back now and think about the diagnosis DCIS IIA, as a part of my life, and that part is over. 

  • Laurais50
    Laurais50 Member Posts: 71
    edited July 2014


    Lissee your post haunted me all last night, in a good way. I'm glad I found it again. I was just saying the other day that I felt like a victim and that when this is all over I can call myself a survior. You are a very wonderful woman, thank you for sharing. I have been going through this since march. And have been feeling sorry for myself. It's time to change. Thank you.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2014

    Hi Laura thanks for checking in.  Chemo was uneventful and I was doing ok until today.  Kind of feel like I got hit by a truck, but I am working through it.  I now know days 3 and 4 won't be great days but hopefully I will start to feel better.  This certainly isn't fun but it's doable.  Only 5 more to go lol

  • Laurais50
    Laurais50 Member Posts: 71
    edited August 2014


    Hi Nancy just checking on you hope all is well. I hope you are not getting to many SE. Are you going to get a port?  I just got my last A/C treatment yesterday, I am so glad. I start on taxol Aug 22, 12 weeks of  that and should be done with chemo. Gotta go get my Nulasta shot on Monday, that always makes me feel crummy for about 3-4 days. Won't need those on Taxol. Well I will check back and see how you are doing.

     

  • HockeyCat
    HockeyCat Member Posts: 222
    edited August 2014

    I'm new here. Starting my chemo (TC) on 9/3. I'm nervous how my body reacts to it.... 

  • Laurais50
    Laurais50 Member Posts: 71
    edited August 2014

    Hello ladies hope all is well for you.

    HockeyCat hope you find this site helpful. Search around and you will find the right spot. It's okay to be nervous, that is one of the things you will face with treatments. Hope it goes okay for you.

  • HockeyCat
    HockeyCat Member Posts: 222
    edited August 2014

    Thanks Laurais. This site is very helpful! I connected with two ladies who starting 1st chemo on the same day. All of my girlfriends are very supportive but it's great to talk to someone going through this long hard journey. Thank you for your support! I'll keep you posted. 

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2014

    Hello from Ventura County!  I'll be three years out in October and I'm scrambling to get all the nips and tucks of my flap reconstruction finished this year.  I'm happy, healthy, work at a fulfilling job full-time, and ga-ga over my year-old granddaughter. 

    In October 2011 I worried myself sick over what the future held.  Or if I HAD a future.  California sisters, it's been a big speed bump, but it's over, and it was over before I knew it.  It will be for you, too.

    Sure, I wish I could wave a magic wand and proclaim "this cancer will never raise its ugly head again!"  But yes, I could find myself dealing with breast cancer again in my life--I hope NOT, but if I do, we'll deal with it one day at a time.  Just like we dealt with it the first time. 

    Turn up the air conditioning and just get through it.  You'll get through chemo, surgeries, rads, recon, whatever, and before you know it, all of this will be in your rear-view mirror.  There's hope.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    hi Laura

    Sorry I didn't get back sooner.  My treatment changed.  No more TAC (taxotere).  Didn't handle it well and my WBC dropped to .7 eek.  My onco immediately changed me to AC + Taxol (weekly) So just had AC still no walk in the park but better than TAC.  I thought I would handle the TAC well um no.  Glad you are on taxol now is it better?  Are you using l- glutamine?

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