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Doona
Doona Member Posts: 16
edited September 2014 in Just Diagnosed

Got results yesterday .Positive lymph node and invasive ductal carcinoma grade 3.

Shell shocked and waiting to hear from surgeon .Has anyone else with the same diagnosis got a story they are willing to share with me ,as i don't know what to expect from now on .I'm so overwhelmed and can't stop crying (

Comments

  • Maureen1
    Maureen1 Member Posts: 614
    edited August 2014

    (((Doona))) I'm so sorry that you have been blind sided by this beast...I know how shocked and scared I felt when I got my path report...it gets better as time goes on ànd having a plan helped me feel more in control and hopeful. I hope your surgeon and medical team can give you support and reassurrence...take care, (((hugs))) Maureen

  • vbishop
    vbishop Member Posts: 616
    edited August 2014

    Sorry you have to be here...but you are in the right place.  Regardless of the diagnosis, things should move at a pretty good pace from here on out.  And it can be a bit overwhelming.  Doctors appointments and tests every time you turn around.  Some tips to help along the way:

    1.  If you can, try to take someone with you on the appointments with the surgeon, oncologist, and plastic surgeon (if there is a plastic surgeon in your future).  They need to take notes or even record the conversation.  Almost all of us can only absorb so much, especially when talking about you and cancer in the same sentence.  You will want to go back and review the notes or recording at a later date.

    2.  Although you see the surgeon first, the oncologist drives this bus.  Be sure you are comfortable with your medical team....and yes, cancer is a team sport, or it should be.  Hopefully, your experience will be similar to mine in that all my doctors chatted with each other...and still do....when it came to my care and treatment.

    3.  Your doctor may or may not order additional tests, such as a PET scan or MRI. 

    4.  Stay off the internet.  Much of the information out there is outdated or just plan wrong.  John Hopkins, Mayo Clinic, American Cancer Society are all good resources or just hang here.....lots of good resources and supportive women here.

    5.  Breathe.  Take one day at a time.  It's okay to be scared, angry, upset, etc.  But save that energy to kick cancer's butt.  Don't give it any more of your time or attention than you have to.  If you need help with sleeping or anxiety during these early weeks, please do not hesitate to ask for medication. 

    6.  Hang in there!  This is a great place to be.  There are women of all ages and all stages.  We are here for each other and we are here for you! 

    Others with a diagnosis closer to yours will be along soon.  I just wanted to give you some food for thought while we wait for the others to chime in. 

    Hugs!  Let us know how you are doing!!

  • Doona
    Doona Member Posts: 16
    edited August 2014

    thankyou ladies ,its all i can think of at the moment ,can't seem to function and I'm usually so strong  xxx

  • Meadow
    Meadow Member Posts: 2,007
    edited August 2014

    Doona, I am so sorry you recieved bad news. Cancer just plain sucks. I am so glad you wrote that you are strong...that strength will return soon and you will think more clearly.  Do you have a treatment plan yet? Again so sorry you are going through this.

  • Doona
    Doona Member Posts: 16
    edited August 2014

    No treatment plan as yet ,waiting for an appointment at Brisbane mater (I'm in Australia )to come through.Might feel more in control when i know what I'm up against .thankyou ladies x

  • sandcastle
    sandcastle Member Posts: 587
    edited August 2014

    Doona......SHOCK!! All of us had that reaction......the only thing I can tell YOU is do it YOUR way.....all of this is a Choice....Listen to what they tell you.....Digest it and get your game plan.....Liz

  • elleredux
    elleredux Member Posts: 45
    edited August 2014

    Doona,

    The initial shock is so hard...all the unknowns and apprehension.  Ask your doctor for something to help you relax and sleep. Doing that helped me so much. And the ladies on this board are wonderful. I read way more than I post, but this board has been very grounding for me and such a good support. I had positive lymph nodes and am only almost 2 years out and doing well - and there are many others on the board who are doing well many years out. (((Hugs)))

  • msphil
    msphil Member Posts: 1,536
    edited August 2014

    we all have been where u are sweetie, things will settled down when plans are in placewith docs, so I know about crying and overwhelmed I was planning my 2nd wedding to man I had prayed for when I found the lump,I am now a 20 yr SURVIVOR(Praise GOD) and I use my long term survival to INSPIRE others like u to have HOPE and stay Positive, get your cry out, it,s ok. Hang in there. msphil(idc,stage2, L mast, 0/3 nodes, chemo and rads and 5 yrs on tamoxifen) God bless. 

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    I know that shock feeling all too well as I was just diagnosed in June.  I immediately asked my primary for Xanax and then my MO gave me ativan.  It helped and as others have said you are in the hardest part.  I'm still shocked but not like I was.  Hang in there.  I hope you and I and everybody else with BC can be like msphil

  • Meow13
    Meow13 Member Posts: 4,859
    edited August 2014

    I was taking lorazepam I was shaking crying and my mind couldn't stop. I was constantly looking for the answer. A couple months later mind finally pushed the cancer to the back burner and let me continue with my life.

    It will get better I promise you that.

  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited August 2014

    Hi Doona

    So sorry you've had to join us.  You will feel more in control when you know what to expect and what your treatment plan will be. 

    There's an Australian Sisters thread you might want to join in here: https://community.breastcancer.org/forum/138/topic/762058?page=1

    There are a few girls in Brisbane who are regulars on the thread, and the rest of us are from all over Oz. Treatment in Oz is very similar to the US, but there are a few quirky things that are a bit different.

    Remember to breathe, you will come through this, and we'll help you every step of the way.
    Trish

    xoxo

  • Kalina
    Kalina Member Posts: 8
    edited August 2014

    Aloha Doona,

    I was diagnosed with IDC, Grade 3, on June 18th. The lumpectomy on July 1st confirmed the node involvement. I'm so sorry you've joined the club, however it's a great place to start. Since we have the same diagnosis, I can certainly appreciate what you're going through. All of us have our own way to respond to these life changing events. It personally took me 3 days to get outside of the sheer panic and terror and claw back to my life. Nancy2581 and I both connected with our MO to get the additional help we needed.  I also took them up on the offer for sleep aids.

    So, today was actually my 2nd chemotherapy treatment. It's certainly not something to get excited about - but it is doable. The thing I tend to focus on is day to day living. It's the fear of the unknown that keeps me uptight, so I try to stay as present as possible. I know your overwhelmed right now, but you'll start to feel better when you realize how much there is out there to kick this thing. Life became a great deal 'easier' when I had my treatment in place. 

    My understanding is that there are 14 MILLION cancer survivors. That's nothing to sneeze at. Rest assured Doona, you'll get through this, even though there times when it looks the most bleak. 

    Hugs from the Hawaiian Islands.

    PS: Cancer is a condition - it is NOT an outcome!

    Kalina

  • mandymoo
    mandymoo Member Posts: 815
    edited August 2014

    Doona, do you know if the cancer is hormone positive or hormone negative. This information may be given at your next appointment and will also determine what kind of treatment plan will be right for you. 

  • Doona
    Doona Member Posts: 16
    edited August 2014

    thankyou ladies  , no Mandy I'm not sure of that at the moment , have had punch biopsy of lump and FNA of lymph node when I had ultra sound . 

  • Lin43
    Lin43 Member Posts: 108
    edited August 2014

    Doona,

    I am exactly two years out from a very similar pathology and I just saw my medical oncologist this week for routine checks that went fine. But I can totally relate to that initial shock, fear, and tears. Lorazepam ("Ativan") helped to calm me during those times and, as some other ladies have said, I also felt better overall once all the tests were done and I had a treatment plan. 

    I worked my way through chemo, surgery, and radiation with the help of good friends/family, a good medical team, and the wonderful ladies on this forum. I initially felt so alone and afraid, but that diminished as I moved into treatment and participated on this board. 

    It is your time to receive all the love and support the universe has to offer. Some days will be harder than others, but it does get easier overall. Surround yourself with whatever/whomever helps you to feel better. Be gentle on yourself and never hesitate to ask for help. 

    Sending warm thoughts your way,

    Linda 

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited September 2014

    Doona

    I was just diagnosed on 8/13/14. IDC. It's a whirlwind of confusion and stress. I'm still going through the remainder of evaluations. I had a MRI on 8/22 and a Full body CT scan and appt with the plastic surgeon is next 9/3. My breast specialist has recommended a double mastectomy. I have not met my oncologist yet. After two weeks of inconsolable crying I finally saw my general practitioner who prescribed Ativan. It's a super low dose but helps me avoid meltdowns when needed.  I'll be here with you every step of the way. We will get through this.  

    Michelle

  • Doona
    Doona Member Posts: 16
    edited September 2014

    I can't tell you how humbled I am to have met you ladies , I will keep you informed , I see the surgeon this week . Bless all of you , I am woman hear me roar , I think that's a fitting motto 

  • Doona
    Doona Member Posts: 16
    edited September 2014

    saw the surgeon yesterday , have a full body and bone scan booked for mon and have the op the following mon . Surgeon seems to think lumpectomy with removal of lymph nodes , will be ok but has left the decision re mastectomy up to me ,will have 6 months of chemo afterwards . If i choose mastectomy he would like to do a double one , however he said there was very little difference in the reoccurrence rates . How do people decide , I keep changing my mind 

  • Solen
    Solen Member Posts: 146
    edited September 2014

    just letting you know, I was listening to NPR today, and they talked about decisions made in panic.  You have time to make a decision.  Research, ask questions, do not make decision out of panic about mastectomy.  This comes from someone who had a double mastectomy and am happy with my decision for me. ( bRCA 2 second instance of breast cancer, at that point, no brainier!)'  But it shouldn't be a knee jerk reaction to the diagnosis.  One of the expert commentators on NPR stated that it is so great that there are so many choices for women now in terms of treatment, but it is a burden for the patient that there are choices.  Remember, you can always go back and do more surgery later.....  Hang in there, I am here 13 years later to tell you it is not a death sentence,   So very sorry you find yourself here....I know how it feels, as do the other women here, but here we are supporting you.....we get through it somehow and one of the pieces that gets us here is all the other women who have traveled this road before us. You are not alone.

  • SouthernBling
    SouthernBling Member Posts: 63
    edited September 2014

    Doona,

    Popping in from the December 2013 Chemo thread. I was diagnosed with IDC, Grade 3, also. No lymph node involvement, but I gave the MO and radiologist a scare on that one. MO said he was not surprised my IDC was Grade 3 because of my "young" age of 44 at diagnosis. The Grade 3 has concerned me more than anything, but at final mastectomy, they changed it to Grade 2. MO said it could just be the pathologist's reading.

    Because of the Grade 3, I had chemo first - 4 rounds of Cytoxan/Taxotere. I worked the entire time during chemo, but I can understand how difficult it could be for some women not to work. I chose a double mastectomy, but I can understand why some women choose a lumpectomy. There are some great resources on here (Beesie, I think for one) to help guide you in your decision. It truly is a personal one. But you will make the right one for you.

    I am scheduled for my final (I hope) surgery on October 6 for implant exchange. Some days it seems like yesterday that I started this journey, and some days it seems like an eternity. 

    Sending you a hug and lots of prayers! You can do this!!!

  • Doona
    Doona Member Posts: 16
    edited September 2014

    well ,I've had surgery ,margins were all clear ,results are ,

    invasive ductal carcinoma 20mm,basoloid features

    histology grade3/3

    focal adjacent high grade DCIS 1mm

    triple negative .Cant work out if its good or bad .

    start chemo in a week 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Dear Doona - 

    Glad to hear the surgery's behind you and you got clean margins - you can tick that box. 

    Good luck with your chemo. There are different fora for those using specific chemo regimens, if you would like to connect with other who are using whatever you'll be on. 

    Take good care of yourself and keep us posted.

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