Vent about Permanent Neuropathy

Minus, that sounds like the doc got a sales call for some pharm rep!  I have gotten stuff like that from the doc that I just left~~I could give you a list of meds.  Like you, I do not fill those sorts of things.

Well my feet are feeling a tad better this morning, gave myself a foot massage last night and also do not take my statin.  Thinking though that a pedicure is on the list of things to do.  I have a massage set for tomorrow just because~~

km---well I went for massage last night on my tootsies and do think it helped. No ice as I followed the thoughts here.  Last night I did my own massage but did treat myself today to a massage from real gal

feet are feeling better, I keep an extra comforter on the end of my bed so it covers my feet and seems to help there

also stopped the Lipitor and planning a conversation with doc on next visit

dang all this junk!

no ice cream, big glass of wine!

just for the record, i did try filling a dishpan with a little water & ice cubes & alternating my feet (couldn't take more than one at a time) it did seem to make them feel better for a bit - but ice cream is a lot less work....and so...

lol! i meant the icing ! 

I may need to do an ice cream run, did a bunch of walking today, massaged the feet, bit better but ice cream would be better

works for me!  massaging my own feet does seem to help so now, it will be part of my after workout routine! wonder if the snack bar has ice cream?

Acupuncture worked wonders for me.  

I had three sessions of acupuncture & did not get relief - tho It could very well depend on who you go to - I found I couldn't really relax during the sessions - in fact the opposite - i felt tense. I did feel better in general afterward - but not my feet. She also was doing a pretty intense massage to my toes which actually kind of hurt - maybe because i have arthritis as well? the last session i asked her to skip the massage - she said she would take a different approach & put more needles in my back...

i am sooo tired of the foot pain - i feel it is traveling up my left leg as well...I have started the Gabapentin - how long be4 I can tell if it's working??

kmmd, I think he was just being a spiteful idiot.  His treatment failed to help the pain (not this CIPN) that I was going there for, and I had told him I wasn't coming in again.  They don't like when the wizard curtain gets pulled back.  He was just a spiteful man with a few needles.

Hello ladies....

I read drinking sour cherry juice can help with insomnia, I have been eating cherries everyday and seem to be sleeping better.  Will be sad when they go out of season. 

I am apprehensive about going to an  Acupuncturist that is just awful what he said to you Elimar.  Shame on him. 

I believe my feet are getting better s-l-o-w-l-y.  Now I am having muscle spasms in my feet that are not painful like a Charlie horse but weird none the less.  Unsure if they are related to nerves or taking Tamoxifen.  I know if I asked my MO he won't know anything about it or say it is unrelated.

Healing hugs and thoughts to everyone.

Peggy:  You might start with water aerobics.  It's less stressful on the body & I find it much easier to re-learn balance in the water.

We organized a banquet last night and I was testing the water temp in the warming trays. I did the finger dip method ( I know, not the smartest way).   I held my finger in the water and declared that it was barely luke warm.  My friend did the same and pulled her finger our while yelling in pain.  So did the next friend. They wondered how I didn't notice. I suddenly remembered, oh yeah, I have neuropathy.  

Didn't realize how bad it has become.  

This is an interesting thread.....I think that I have neuropathy after reading what everyone has to say. I knew that anastrozole was supposed to cause joint pain, so I assumed what I was experiencing was just that. During chemo, I developed small blisters on my toes. Since chemo, I lost several toenails....all have grown back except my big toes. My podiatrist told me that the nails on those will not grow back. When I begin to walk after sitting, it is very painful....my feet do not want to bend. It is the worst upon waking in the morning. I walk 3 to 6 miles five days a week, but it doesn't seem to alleviate the problem. I did not have this problem before chemo. Has anyone had luck with vitamin B infusions?

Denise, sorry about the bum toe~~

I hit my toes all the time and only realize I bumped them after the fact when I see some red bruising on the dang thing.

wish I knew a solution, although, my trainer suggested massaging the feet and it does help a bit

Thimbleberry - Welcome but sorry you have to join us.  I've never heard of toenails not ever growing back due to chemo.  I do know if there is an injury or infection to the nail bed you can lose the nail permanently.  Adriamycin can cause blistering.  Look up "Hand & Foot Syndrome" to see side effects and ways to treat.  I took B-6 and B-12 all through treatment and added Biotin for my hair & nails once chemo & rads were done.  Still taking all three.  MY PCP recommended putting Tea Tree Oil on my nails at least once a day.  My nails are still brittle & lift some back towards the cuticle but I'm not surprised since I'm still getting Herceptin infusions.  I don't think the B vitamins are helping the neuropathy.