Test Results Are In!
Comments
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I have not been on this site for awhile and just found that this thread had been created for those of us with "non-cancer" diagnosis and am distressed to see that someone thinks we should not be on this forum after diagnosis and treatment.
I have been a member of this forum since 2009 when I had my prophylactic bi-lateral mastectomies. Mostly I am on the reconstruction thread. People have been very kind and I like to think that I have been helpful to people.
Someone told me that to undergo a prophylactic mastectomy is sometimes more stressful, emotionally, than for someone with a cancer diagnosis. When it is cancer, yes you have a choice of lumpectomy, mastectomy or just chemotherapy or radiation therapy or sometimes it ends up being everything. While deciding to undergo a prophylactic procedure, there is always that second guessing about should I do this?; will it really turn to cancer or when?. It can be an emotional gamble and many people cannot understand why one would cut off seemingly healthy body parts. I made the decision as I had risk factors and papillomas that were growing and so numerous it was difficult to follow and had had way too many biopsies prior. Pathologists recommended a diagnosis to allow for prophy mast and breast surgeon agreed, but it was my decision to make. I have been at peace with my decision and last year developed a new lump as not all tissue is taken. I was distressed until it was subsequently removed and found to be some scar tissue, but it was painful and large and could have been worse outcome.
I hope those who visit and post here can feel welcomed and that they can ask questions and have a dialogue and feel that people care. It is easier to empathize with those who have to go through far more discomfort than I and I feel fortunate and try to be helpful and understanding to them. My sister-in-law is going through a 2nd round of breast cancer and is facing reconstruction following her chemotherapy which has been successful in shrinking her aggressive tumor.
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I had ADH removed last year. My BS called it an excision and lumpectomy. Recent tests again and the doctor laughs because he "...can't see ANYTHING in there!" (Extremely dense) I wasn't laughing. Still waiting to see what this lesion is on my sternum that the MRI reported.
I found this newly added forum for those with benign breast conditions and all I see are a bunch of ridiculous posts! Why the hateful banter?? Let someone post a question. Stop judging.
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Don't worry about posting on this board it's all good. Keep in mind that some of these posts were moved from the "Waiting for Results" board after a few women started acting like others weren't welcome. The mods made it clear that all women with breast concerns benign or not are. This board was a further step to give us a place to figure out what is best for us.
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hi Everyone,
Hope I'm ok to post here. Back in August/13 had a reg mammogram where microcalcifications were found in right breast. That lead to core biopsies where 12 tissue samples were taken. Diagnosis was ADH in 2 areas. Then had a lumpectomy ( I guess really called excisional biopsy to rule out DCIS or IBC.
In April I found a lump in left breast but was to afraid to tell my dr. But did tell him June 18 & after he too felt the lump, I was sent for a mammogram & an ultrasound. Those tests came back normal but being that I'm high risk due to ADH & strong family history, etx, I just had my first MRI & 3D Mammogram which my dr has pointed out that I'd there is indeed something in my left breast, it would surely be picked up by these 2 tests. I'm trying to be very positive but am pretty scared right now. 3 sisters with breast cancer & a niece. Also I have fibrocystic breast disease so my dr says that's a other good reason why the high risk testing is good for me to have. Comments anyone? Thank you. Jen
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Hi Jen,
You can post anywhere you like. That issue's been settled.
Waiting is awful, and I think everyone can sympathize with you. You've been through a lot lately with your breasts....
Has anyone suggested genetic counseling? With 3 sisters being diagnosed, it seems like it would be beneficial for you. It will also give you a good idea as to how "high risk" you really are. It'll provide some additional information to be used in your decision making process.
Good luck with your MRI results.
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Yes issue settled. Thank godness
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