Starting Chemo, November 2013 Group

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  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited July 2014

    phebe: I am glad you enjoyed your trip with your grandkids. 

    I think I am staying home for a while not untill I feel back to myself again. 

    I called my RO today because I am having quite a bit of internal soreness, swelling and inflammation along my trachea and lungs. It feels like something heavy is pressing on it.

    I am 6 weeks PFR and still having a lot of SE like fatigue, weakness, lightheadedness and shoulder muscle pain. The rads skin looks and feels a lot better, but as I mentioned it's the internal soreness that bothers me now more.

    Here is my weekly hair growth and radiated skin update ar 6 weeks PFR and 14 weeks PCF. My hubby's latest comment about my hair was that I need to start combing it! Lol

    image

    image

  • Phebe38
    Phebe38 Member Posts: 197
    edited July 2014

    we did go through a lot, now the process of recovery is what's taking place, we need patience as we go through with it

  • Carrie61
    Carrie61 Member Posts: 56
    edited August 2014

    image

    image

    Hi chemo sisters...just thought I would Post by hair pictures.  I am 6 months Pfc and this is what my hair looks like.  

    Carrie

  • lisa137
    lisa137 Member Posts: 569
    edited August 2014
  • Bec65
    Bec65 Member Posts: 312
    edited August 2014

    I agree...it looks wonderful!  I like the color and how much curl/body it has!  

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited August 2014

    Yes, it does look good. 

    BTW, is this thread still 'alive'?

  • lisa137
    lisa137 Member Posts: 569
    edited August 2014

    Well, it is today, anyway. :P  I get e-mail when it gets updated.

  • smrlvr
    smrlvr Member Posts: 422
    edited August 2014

    Carrie, love the hair!  Hello, everyone!

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited August 2014
  • lisa137
    lisa137 Member Posts: 569
    edited August 2014
  • NorthwindsGS
    NorthwindsGS Member Posts: 128
    edited March 2015

    Anyone here anymore?

    Just wanted to check in and see how everyone is doing. Hope all are well and moving forward with life. I have lost a couple friends I met due to this awful beast called cancer. Also had a couple mentors progress. Guess I am just looking for someone to talk to that knows how I feel.

    TY

    Northwinds

  • inks
    inks Member Posts: 746
    edited March 2015

    Hi Northwinds I was just recently thinking about you and how you Interferon treatment went. I have had 4 people I knew that were diagnosed after me pass as well from different cancers. It's very hard not to get discouraged when something like that happens. A few of us are on Facebook in a small group if you would like to join us. Hugs!

  • lisa137
    lisa137 Member Posts: 569
    edited March 2015

    Hey Northwinds! I've thought of you often and wondered how you were doing. As inks said, you should definitely join our Facebook group. But, we're still here--somewhat--as well, and yeah, we do know how you feel.You can send a private message to smrlvr and she can help you get into the FB group, also.


  • inks
    inks Member Posts: 746
    edited March 2015

    I hope you don't think that I am a creep put I still think and worry about Paulette also.....

  • lisa137
    lisa137 Member Posts: 569
    edited March 2015

    No, I think about Paulette, too. Our ray of sunshine.

  • Bec65
    Bec65 Member Posts: 312
    edited March 2015

    Northwinds! It's so good hear from you! I too hope you'll join us over on FB...we'll get you all caught up in no time, and we want to be there for you too.

    I tried to find info on Paulette a while back. She was going through so many other things in addition to all that we had in common, and she was just so dang positive all the time.

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited March 2015

    northwinds: I am glad that you are here and posting!

    We missed you and want you to join out FB group where we started to hang around and support each other.

    We miss others as well and hope they can let us know how they are doing.

  • smrlvr
    smrlvr Member Posts: 422
    edited March 2015

    Northwinds, it is nice to hear from you! We are all.still thinking about you. We have quite an active facebook group and if you would like to join please PM me. Hugs, smrlv

  • NorthwindsGS
    NorthwindsGS Member Posts: 128
    edited April 2015

    Thanks Ladies!

    I sent a pm to Smrlvr. Hope to join you guys on Facebook! I don't get the chance to stop in as much as I used to. We are now guardians for our granddaughter and she sure keeps me busy. Can't wait to catch up with everyone!

    Pam


  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited May 2015

    What is the FB group? My neurpathy this week is horrible. I hope all is doing well.

  • inks
    inks Member Posts: 746
    edited June 2015

    FairyDogMother - So good to see you! Send a PM to smrlvr and she can add you. The more the merrier!

  • kimie06
    kimie06 Member Posts: 215
    edited August 2015

    POKE....POKE hope all is well ladies !! been awhile since I visited your forum but it kept us december gals in check !!

    hugs

    Kim

  • Bec65
    Bec65 Member Posts: 312
    edited August 2015

    Thanks for the kind words, kimie06! I'm doing well -- aches, and pains here and there, but better than the alternative! This four week period marks two years since I was diagnosed and began treatment...WOW! LIfe has gone on, and mine is better in a lot of ways than it was before BC. I am grateful on an hourly basis for the friendships and support I found here. These women are my lifeline. I hope your group is thriving as well!

  • BanR
    BanR Member Posts: 289
    edited September 2015

    lovely to see all ''old faces' here..

    amazon, northwinds, smrlvr, lisa, fairy..and so many more

    please post the fb link here!

    northwinds..happy to see that even you are from wisconsin.


    love and hugs to everyone!!


  • smrlvr
    smrlvr Member Posts: 422
    edited September 2015

    can you tell me how to post a fb link? Otherwise PM me and I can add you to,the group

  • lisa137
    lisa137 Member Posts: 569
    edited September 2015

    It's a closed and secret group, so I think that sending a PM to smrlvr is the only way to get in.

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited November 2015

    There is a FB group? I can't find them. I'm doing okay. Ran my 2nd half marathon this year, my first year from treatments 2015! I have a stress fracture again. I wonder if its from chemo treatments.

  • lisa137
    lisa137 Member Posts: 569
    edited November 2015

    FairyDogMother, you won't be able to find the Facebook group because it is a secret group and so doesn't show up in any searches or directories. If you'll send a private message to smrlvr though, she can add you to the group.

    Stress fracture sounds like it hurts. We were actually discussing in the FB group the issue of bone density and how the AI drugs we are on can affect it. Have you had a bone density scan?

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