Survivor Guilt?

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Momine
Momine Member Posts: 7,859
edited October 2014 in Stage III Breast Cancer

I am 3 years out. Last week, I had blood work, liver ultrasound, lung X-ray as follow-up. Everything is clean, so yay me. 

The same week, Barbie Ritzco (one of the Scar Project ladies), who was DXed around the same time as me, also stage 3B, went to the ICU due to recently diagnosed liver mets. 

I should be happy, overjoyed even, to be NED and somewhere I am, but mostly I find myself sad and angry for all the women who are dealing with recurrence.

Does anyone else struggle with this? Any words of wisdom?

Comments

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited August 2014

    Oh, yes.  I've lost a number of friends who were diagnosed with different cancers around the same time that I was diagnosed in 2011.  Bladder/prostate cancer, pancreatic cancer, breast cancer.  And, then, my wonderful, gifted surgeon, suddenly passed away two months ago at the age of 56.  I attended the wakes of all of these people; standing room only.  The one for my surgeon was attended by over 800 people, many of whom were patients who's lives he saved.

    And, yet... here I am.  I'm not special nor particularly gifted.  I'll never light the world on fire.  I doubt that I'd have a dozen people at my wake.  But for some reason, I'm still here, doing well and feeling well, currently NED.  It doesn't make sense, in many ways, that I'm still here and they are not.  It's hard to get my head around it sometimes.

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Selena, thanks. It just seems so unfair and most definitely is horrible that vibrant young people have to suffer and die from this disease. 

    I am a regular Miss Sunshine today, huh?

    Doesn't help that I just argued with someone about pink-washing (in the comments): http://nymag.com/thecut/2014/08/avoiding-the-breast-cancer-warrior-trap.html?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Momine, Yesterday I got a clear result on my bone scan and while I was happy to receive the news, I couldn't help but feel guilty too.

    A very wise BCO sister pointed out that we need to celebrate the good news because there is enough bad news on these boards.

    The day that we can all have good news will truly be a day to CELEBRATE.

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2014

    "Guilty"?  Why should anyone feel 'guilty' for being alive?  I don't and never will.  Each of us have our individual journey through life.  The journey is very different and unique to each.  If I were to drive impared and injured/killed someone, I would feel (and be) guilty BUT because someone else's journey is different than mine does not make me 'guilty' of anything.  There are time when I do wonder why some young/younger person is taken (no matter the cause - not just BC) while I am still here at 68 - I don't know but they were for some unknown reason, it's what happened.  Not my fault!  


  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Slow:  AMEN !!!!  

    Momine:  Yes I feel like you do -- I lost a friend just 41 years old last year & she was originally stage 2.  I have also lost a cousin less than 40 but this was many years ago to BC.  I can't say I feel "guilt" for still being here, because I don't feel like a survivor in any sense of that word.  I struggle daily with the "elephant in the room" --just some days better than others.  But I also hate to read so many deaths due to cancer (all types).  I think we've been poisoning our environment and our food which only contributes to the steady rise in cancer cases.  Thank goodness we can all connect here on BC.org.

  • nihahi
    nihahi Member Posts: 3,841
    edited August 2014

    Momine...I'm not a Stage III, but I can totally relate to your "survivor guilt" emotions. I was dx'd and treated back in the "dark ages" of bc (at least it feels like it was, compared to now), and yet....here I stand, while others, treated with much more "knowledge and tools", have had more difficult and sometimes unsuccessful outcomes. I try to be encouraging to the "newer" ones, that life does get better, when they are struggling with treatment/emotional issues....but then often feel guilty about doing so, because I know that's not "where they're at", and they may never get there. 

    I've got no answers for you....just wanted to reach out and acknowledge that I get where you're coming from.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    ooops....Please forgive me. I didn't realize I was posting to a stage 3 thread. Excuse the intrusion!

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    SlowDeep, no worries.

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Kicks, it is not "guilt" in the normal sense. Mainly I feel slightly depressed, when I should logically be happy. 

    SlowDeep, that is a good way to look at it.

    Shelly, thanks and I know what you mean about that darn (pink ;D ) elephant.

    Nihahi, wow! I am glad that you have remained healthy all these years. 

  • kar123
    kar123 Member Posts: 273
    edited August 2014

    Momine, Depressed yes.  I don't think guilty, but most definitely sad. What I do feel guilty about is when I hear about someone recurring, I always turn over every stone trying to figure out what their treatment was;  like it would make all the difference if they had 28 vs 33 radiation treatments.  I know deep down inside it doesn't matter and we all have done what was best for our particular cancers.  It's a crap shoot (I hate that phrase!!!).  PS Regarding the pinkwashing-That was the most polite argument I've ever seen!

  • Annette_U
    Annette_U Member Posts: 111
    edited August 2014

    I am so happy to be NED but yes! I do feel incredible sadness for our friends who become stage IV and at that it may also happen to me. I try now to think of the past year of heavy treatment as a blur.  I feel pretty darn good right now and will just keep truckin' with a smile and enjoy everyday. I'm planning to do much travel over the next few years and hope I stay cancer free for many years to come. That's all we can do! 

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2014

    I do not (nor will I ever) feel guilt (or guilty) for something I never had anything to do with.  I can only be guilty for what I do.  That is not to say that I do not feel saddnes for others journey and what tney are experiencing - I do.  BUT I have done nothing (guilt) to cause their bumps on their journey through life just as no one else has any guilt for me.  Thoughts, good 'vibes', prayers - any and all are greatly appreciated.  And I do send to others though they often never know it.  Guilt - I will never dwell there for something that I did not negatively cause.

    I do feel  so sad for all who are taken before we think it is their time or are having difficult times.  Not just those who have dealt with BC but ALL.  For all of us, our journey does have an end.


  • mary625
    mary625 Member Posts: 1,056
    edited August 2014

    Momine--Another woman from these forums and I both decided to go to an onc in another state where we could get scans.  Both of us were Stage III.  I got to walk out and come home as a Stage III.  She had to stay and start treatment as a newly diagnosed Stage IV.  I felt so bad, but she said to me "never feel bad about not having cancer!"

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2014

    Momine, since I 'know' you from other threads, I will sneak in a comment even though this is a stage III forum. Along with wonderful ladies on BCO, I've lost several really good friends to cancer, including a one who was diagnosed at the same time as me; same stats, same treatments, everything, we pretty much went through treatment together....but she had a recurrence 2 years later and has since then died. I think about her and the others a lot, and it makes me very sad because I know how very much they wanted to live and how badly they are missed. But it also makes me realize just how lucky I have been, and it makes me appreciate life even more. My take on it is: people should do whatever is medically recommended (and whatever lifestyle changes they need to make too), and after that you just have to leave the rest to God, fate, luck.....there is no need to feel guilty, it is out of your hands.

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Kar, lol, it is NY Magazine after all, gotta keep a certain tone. Kidding aside, I never found screaming at people, or the online equivalent, very useful. 

    Mary, your friend was both wise and kind, but what a difficult trip that must have been.

    I agree with the rest of you, and I used the term "survivor guilt," because it is a commonly used phrase to describe the difficult feelings experiences by survivors. The main feeling though, as with most of you, is one of sadness. After posting here, I saw that Linda, another woman DXed with me and one of the first people I "met" on BCO, died a few days ago.

  • rozem
    rozem Member Posts: 1,375
    edited August 2014

    Momine...when I was diagnosed I knew 3 other women (2 personally, 3rd was a friend of a friend) who were also diagnosed within 3 months of me.   2 breast,  one ovarian.  I am the only one still here.  When one the BC ladies friends asked me how I was doing and I said great (her friend had just been diagnosed with mets) she said "well consider yourself really lucky" - and I did and still do.

    all three of these ladies were in their 40's and left behind young children, I think about them all the time.  We don't know why some will succumb to this horrible disease (even with a 'good' diagnosis) - that is the mystery of cancer. 

    yes the losses are so hard - hugs to you my friend! 

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited August 2014

    I broke down at a funeral for one of the priests at my old church and hugged the former Rector, and my friend the Bishop (Melissa Skelton) and said "why did I get to live" so know exactly what you mean. The priest had died of prostate cancer. A guy very dear to me died earlier this year from pancreatic cancer. I just lost a former male colleague to breast cancer. This one I really wonder about because guys aren't trained to be suspicious of breast lumps.

    I use this experience to fuel the work I do for the brain tumor nonprofit. So take my experience to make a difference in the lives of others and give more hope into their lives. And I give Thanksgiving every single day that I get to go on to enjoy my life and do my best work ever.

    I faced all this in my 20s when the youngest child in three of the families where I lived growing up in Vermont all died, including my youngest sister. Why I never could feel sorry for myself going through treatment.

    Agree with Ruth that you do the treatment, follow your doctor's advice (well, not on the substituting popcorn for sweets stuff on my after visit summary....not the same thing at all) and live my life. Which really is all you can do.

    But you do always wonder "why". - Claire

    p.s. My friend the Bishop started down the road to a church career when she lost her five year old daughter to leukemia. So God does work in mysterious ways. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Well, now that I'm not the only non stage 3 weighing in, I don't feel so bad. :)

    Momine, I think my feelings also came from losing Linda this past week.

    She was a frequent poster on a thread I post too and it was a difficult loss.

    It made me feel sort of weird receiving and sharing my good news when we were mourning her.

    You started this thread just as I was having the same thoughts.

    This thread has helped me work through those feelings. Thank you.

    Edited for typo.

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Rozem, thanks and it really is a mystery. That may be part of why it bothers me so much. Usually when I find a mystery, I unravel it.

    Claire, good points all and thanks.

  • hopefour
    hopefour Member Posts: 459
    edited August 2014

    So many touching comments written here. I don't have any great wisdom to share, but have noticed personally that I truly mourn/grieve with those that are suffering /in sorrow. I always thought I was sensitive to others and what they were going through, but I have found after BC ( as well as some other sorrows) I have empathy which takes my mourning/grieveing for others to a whole new deeper level. 

    Even though there is joy in my life and a gratefulness for each day...I deeply grieve when I hear of others suffering such as a reoccurrence or passing from BC...we're sisters, we know the horror, the fear, the desire to live, to celebrate life with our families...we grieve when it's taken from anyone of us...its called empathy!

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Hopefour, that is another god point. I have had the same experience. My tolerance for suffering has gone way down since cancer. I notice the suffering of others more and it touches me more severely.

  • Katarina
    Katarina Member Posts: 386
    edited August 2014

    I do too. I actually look for the suffering so maybe I can help them. It takes me out of me. 

    I lost a co-worked recently to IBC. It was a recurrence for her. I'll never forget hearing her husband say "At least I got 8 years more".  Those words are a blessing and yet make you really feel the loss for those loved ones left behind.

    Hugs

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    Katarina, thanks, and I know what you mean about looking for the suffering, but I really try not to do that. 

  • Momine
    Momine Member Posts: 7,859
    edited August 2014

    I am slowly but surely regaining my equilibrium. Thanks to everyone who offered their thoughts. It really helps to get different perspectives.

  • wintersocks
    wintersocks Member Posts: 922
    edited October 2014

    Hi girls,

    I heard today that a friend has had significant progression. We had similar dx's. It's hard to take in and even harder to understand.   

  • hopefour
    hopefour Member Posts: 459
    edited October 2014

    Sorry winter socks...when friends progress we grieve for them as well as experience a fresh new wave of fear. Hope you can be an encouragemnet to her and maybe walking with her through this will ease your own fears.... as hopefully you see there is still hope!! 

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    I'm sorry, Wintersocks.  It's so hard.  Why her and not me?  And when...me?  Time to use the mental delete button!  

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