New diagnosis

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Ilovecoasters
Ilovecoasters Member Posts: 199
edited August 2014 in Just Diagnosed

I've just been diagnosed with invasive ductal carcinoma. Still waiting on remainder of biopsy labs and MRI is scheduled for next week. Still in shock after having brac analysis done and no concerns were noted plus 20 years of mammograms. I skipped one year and bam. 

I am 44, my grandmother died at 28 of breast cancer after she refused treatment. I am petrified of what is to come and how this will impact my family and job. 

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  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    I'm so sorry. I know how you are feeling right now, I was just there myself in June. Did everything right....mamos, ultrasounds, ate clean,, worked out even had BRACA test before DX and then BAMMM! I'm 49 and my mother died from breast cancer at 60.   I too was a bit "late" for mammo as I was helping care for my father who was dying from colon cancer.  Please don't beat yourself up about that, I know I did...but my doctor said "late" I have patients who wait 5 years between mammos. 

    I know you are sacred and this board is a great resource. Stick with it. It can be a lot of info. Sometimes I feel Cancer has become my full-time job!  

    LIST of things to do right now is book doctors appts and if you feel comfortable-speaking with friends ask who they used as well as surgeons they used. You'd be surprised how long it can take to get appts!  Some require the biopsy labs even before booking--this will tell you size and type and grade. All important information in treatment. MRI will give you more info as well. Just start getting names of doctors. 

    Breathe...It will be Ok, you can and WILL do this. I have come SO far in TWO months I barely recognize myself. 

  • SandyLovesLucy
    SandyLovesLucy Member Posts: 204
    edited August 2014

    illvecoasters, I'm sorry for the reason you are here but glad you found us. I was terrified and in total shock after my diagnosis. The support I found here has helped tremendously.  There is great information here about different types of breast cancer. Waiting for testing and results is very difficult but, as many people told me, once a treatment plan is in place it does get better.  Sending good thoughts your way.

    Sandy

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Thank you ladies. The diagnosis just came at 4:45pm yesterday. I took today off to get all of my next appointments scheduled, and of course fight with my insurance to speed up pre certification so the MRI can be done next week. Next will be the bank discussion since my out of pocket is $10k before they cover at 100%. I have a 15 year old son. He took the news hard, but he is extremely mature. I told him his number one job was school and to make us proud. I'm most at a loss of how to communicate all of this to him in a way that isn't overwhelming.  

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    I have a 17 year old son...I can relate to you and that level too. I told my children I would always tell them the truth and I talk openly about all treatments, surgery, doctors appts etc. , I usually take a day or two to process myself before talking with them as I do think it helps to see mom "strong" and as positive as possible. I even took my 17 yr old son with me to a few "easy" dctrs appts. I think that made him feel included and helpful. He parked the car, bought water bottles and opened doors when I couldn't. Boys are harder then girls as they tend to hide their emotions--Just keep him engaged. We have shifted our conversation towards colleges now and life has moved forward. Just keep the lines of communication open with him...a lots of hugs don't hurt either. 

    Wishing you a smooth road my friend...I will be following your progress...keep us posted. 

    Blessings. 

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Thank you for your kindness. I am scared  and not having all of the details yet just has my mind racing. I didn't really sleep last night. All that kept running through my head was omg I have cancer. It is very surreal, almost out of body.

  • MaxineO
    MaxineO Member Posts: 555
    edited August 2014

    I'm sorry about your news, ilovecoasters.  It's a terrible pill to swallow.  But know that many have done this ahead of you and that we are all here to support you. I am now three years out from finishing treatment (surgery, chemo, radiation, hormones) and doing great.  The lack of sleep sucks and wreaks havoc on the mind; consider some sort of sleep aid.  And as others have probably mentioned, once you get your scans done and get a treatment plan in place, you will feel SO much better about your ability to get through this.

    It's totally surreal. You probably never even thought it was a possibility.  But it's okay. You can totally do this.

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    After i was DX a quick script for Xanax from my Primary care physician enabled me to at least sleep. You would think with all the all day crying I did, I would be worn out...but I couldn't sleep either. Just a suggestion.  

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    I did the same - got a script for Xanax.  The whole cancer thing is horrible and the beginning is the absolute worst.  Big hugs to you.

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Today just sucked. No other way to say it. I'm weepy, stressed , and could not effectively do my job. My doctor called just to check on me which is making me think a much worse diagnosis is coming. Prior to this mess my gyno had been discussing the need for a hysterectomy due to a 6cm fibroid and 4cm ovarian cyst. Feeling like things are just spiraling out of control.

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    My doctor called me to just to check in before path report-It doesn't mean it bad news coming. Did he/she say when you will more info...size of tumor etc? When you know what your dealing with you will feel better. Right now your mind is completely racing. Please hang in there---

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    My MRI is 8/22. Doctor is waiting for two more labs to return and the MRI results.

  • mdg
    mdg Member Posts: 3,571
    edited August 2014

    don't feel bad about missing a mammo.  I had a clear mammo and then I found the lump a few months later.  My mammo missed it....

  • kamm
    kamm Member Posts: 140
    edited August 2014

    Just take it one day at a time. I can see how your overwhelmed if your OB is talking about hysterectomy at the same time but if they're sure it's a cyst and not something else than put on the back burner. Everybody's right. Take something for sleep because being sleepless only makes your ability to make decisions harder. Once you get your results, take a breath. Take some time to make your decisions.Talk, talk, talk, to everybody you can. Family, friends, and BC people. It helped me organze my thoughts. We've talked about this before on other threads but I think most of first reactions are to get this thing out of me as soon as possible. I was like that as well. So I had a lumpectomy and then took some time to decide what my next steps were. I wanted to make sure that I had no regrets and didn't want to have that feeling like the cancer was in there waiting to spread while IO was making some huge descisions that will impact the rest of my life. It's alot of info all at once while your in crisis. And alot of your treatment is "up to you". Unlike other cancers where they just say this is what you "need" to do. So One day at a time. One minute at a time, one decision at a time. You can do this. We're all here for you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Ilovecoasters:

    What a fun name, but be careful what you ask for, right?  You probably feel like you're on a roller coaster ride you'd like to get off of. So sorry you're here, but glad you found us.  I've come here many times over the past 9 years.

    I was 46 at diagnosis, and the single Mother of a child who was in 7th grade.  I'm now 55, NED for 9 years, and my daughter just graduated college and is headed overseas to teach.  Not a bad outcome. So I understand your concern about your son.  But try, if you can, to take a big breath and concentrate on yourself for a bit, one day at a time.

    As for the OB/GYN recommendation...I was also told I should get a hysterectomy for fibroids (at least 7 of them), but I never had it.  They found the first one when I had a cesarean.  Later ultrasound found 3.  Watched them for several years and there were at least 7 at last count, the largest was the size of two fists.  But I still didn't want the surgery.  I had debilitating periods, but ended up in "chemopause" and never had a period again.  So don't think you have to rush into any decisions on that matter--I agree with the other poster that should be placed on the back burner for now.  Fibroids are nearly always benign (even for those of us that like to grow abnormal cells:  I've had breast cancer, pre-cancerous cells on my cervix, actinic keratosis on my face which is a pre-cancerous cell, warts, etc. ). The ovarian cyst might be more serious--I have no personal experience with them. 

    Just wanted to say to try not to let more than one diagnosis at a time force you to spiral downward. Tell each doc about the other diagnosis so you can get it sorted to decide what to manage and when. 

    And best to you!


     

  • msphil
    msphil Member Posts: 1,536
    edited August 2014

    hello sweetie, I know its alot right now but when doc apps and such are in place things will get a little better for you. keep HOPE for that got me through along with support of family and friends, to Inspire you to hang in there I am a 20yr Survivor(Praise GOD).msphil(idc,stage 2, 0/3 nodes, L mast with chemo before and after surgery, rads and 5 yrs on tamoxifen)

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    I am just struggling so much. My GP doctor can't get me in for an appt and I literally haven't slept more than 15 hours since Wednesday. I cry everywhere I go. I found a support group in my area but I can't make it there due to my work hours. I keep hearing it will get better, I'm just not believing it. I'm usually not an over emotional person, upbeat and funny most of the time. I feel really hopeless. 

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    I remember you said in your original post that you have biopsy and MRI scheduled this week correct?? Is that still happening? 

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    I had the biopsy already. MRI is Friday. Not knowing my prognosis, treatment plan, and how to handle my work and finding the finances for all of this is just consuming me. My insurance only covers 80 %. 

  • kamm
    kamm Member Posts: 140
    edited August 2014

    I see you mention your GP. When you say he can't get you in for an appt do you mean with him or with a breast surgeon? Please don't feel hopeless. Things are far from hopeless though it is overwhelming in the beginning. You need a hug! Can you use family and friends for support for now since you can't get to a group? Think about whether you know someone that's also had BC. Even if you don't know them well. You'd be surprised how much other women who have gone through this are willing to listen and talk it out! It helped me to talk to a friend that I knew had been through this in person just to keep my mind from getting crazy.  Give them a call if you do. Use them to talk it out while your waiting for appts. and of course their is always us!  Crying is fine! Do it. For me the stage your in was the worst part. Once the treatment plan was in place and things were scheduled it got better. Felt like I was more in control. I hope the same will happen for you. 

  • Obxflygirl1
    Obxflygirl1 Member Posts: 377
    edited August 2014

    these boards are a wealth of information...you could start a thread asking for the names of breast surgeons that specialize in BC in your area.  You may find someone in here that can help you with this information.  The waiting is truly the hardest part.  You are strong and you will get through this.  Now is,the time to put yourself first.  Hugs!

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    Ok- Biopsy done, MRI soon....you're gathering very important information and this all will help you make the best decisions. Don't worry know how you paying for it right now. Only deal with getting an accurate diagnose and finding the best doctors you can. THIS IS THE WORST PART...believe us when we say that.  Maybe your doctor can't see you but they can certainly call you to go over results of tests. This IS all consuming--I'm so sorry your dealing with this but you have to be strong and take one day at a time...keep making progress each day in finding the best treatment for yourself. 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2014

    As others have said, this is the worst part, believe it or not. 

    Have someone go with you to your appts, if you can. Just having someone there will be a great support. Try to stay busy while you wait. You are much stronger than you realize. I have read that it takes about 2 weeks for us to just process a traumatic event...so, you can give yourself a break. What you're feeling is normal and okay. ((HUGS)). 

    There are resources for grants to help with deductibles, etc. Ask your social worker at the Cancer Center you go to. I actually  had help paying for my chemo and Neulasta shots! The Patient Advocate Foundations has funds for BC patients. 

    Good luck as you kick BC's butt!!!

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Today was a little better. I'm finding if I am busy, I don't give my mind a chance to worry. Tomorrow is my MRI.

  • barremom64
    barremom64 Member Posts: 191
    edited August 2014

    Good Luck with the MRI- Just be prepared they are very noisy and can be a bit scary. Some people take a little anxiety pill before just to relax them. laying still in a tube with lots of noise can be hard. I just said little prayers and kept reciting " I get get through 20 minutes of this" ..then I kept counting down..."I have 10 more minutes" and before you know it, its over. It does not hurt at all. You just have to lay still. Its a test that will tell your doctors much more information. The more information you have the better decisions you can make about your course of treatment. Best of luck :) 

  • vbishop
    vbishop Member Posts: 616
    edited August 2014

    The best advice I received was from a good friend who does not have cancer of any kind....but the advice is solid.  Don't borrow trouble.  Go with what you know.  This means don't read stuff on the internet and "just know it applies to me".  Nine times out of ten, it doesn't apply to you.  Why waste a good worry on "what if"? 

    "Go with what you know" became my mantra....and I said it to myself over and over in the early days.  It stopped many many pity parties in their tracks.  Its okay to have a pity party sometimes ....we all need to allow ourselves to have a good pity party....but try to keep them to a minimum. 

    Use your humor and your upbeat personality to your advantage.  They will become your best weapons as you move forward.

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Thank you to all for your kind and caring words. The MRI was hell. I had a wave of panic come over me somewhere around the 20 minute mark. I was able to finish then promptly passed out when I stepped off the table. Now I understand why so many people suggested meds prior. I had no idea. 

    Next up is a visit to the breast specialist. I'm assuming surgery discussion is next? 

  • SandyLovesLucy
    SandyLovesLucy Member Posts: 204
    edited August 2014

    I'm sorry you had such a tough time with the MRI.  Each test result will give you and your medical team the information to make decisions about treatment. Take good care of yourself and take one thing at a time. I had to learn to take one test, one appointment at a time and not get too ahead of myself worrying.  Easier said than done, I know!  

    Sending hugs,

    Sandy

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    Thank you Sandy. I am hopeful my doctor appt on Tuesday provides me with the answers I am seeking. I have never been so distraught.  The impact this has already had on my family and job is beyond words.

  • SandyLovesLucy
    SandyLovesLucy Member Posts: 204
    edited August 2014

    illvecoasters, good luck at your doc appointment today.  I'll be thinking of you! Let us know how it goes.

    I understand the fears around family and work.  Keep taking it one thing at a time.

    Sending hugs, 

    Sandy

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited August 2014

    I saw the breast specialist today. She used ultrasound to take a preliminary look at my lymph nodes. She said all looked ok but of course no final word until after surgery. The MRI showed multiple masses. All too small to be felt. Largest one is 4mm.  Too many to save the breast. She has recommended a full mastectomy. Both breasts if I choose. ER+ PR+ HER2 -  she said these were all good news. I haven't quite wrapped my mind around what they mean.  Next is a CT full body next week. Also consultation with a plastic surgeon to discuss reconstruction. 

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