Myriad myRisk - genetic test - anyone else do it?

I also had this done last week. My insurance only covered BRCA 1 &2-which I had and were negative, as I thought they would be. I got call from genetics nurse last week that she had luck getting this test approved for another BCBS patient and felt with my family history of breast and other cancers she could provide adequate documentation of medical necessity. I have reached my out of pocket maximum for year so nothing to lose and my understanding is Myriad will not run testing until definitively approved by your insurance. I have been prepared we may be denied and have to appeal so could be a few month process. Crossing fingers it will be approved!

I'm supposed to get colon checks    much more often.  I assumed I would have been getting boob checks every 6 months, but with the BMX hopefully no need to now. 

Janett2014- I am not sure anything will show up in my case either. It is likely they haven't isolated all the genes and environmental factors that may cause some families to have so many more cases of cancer. In my case-results could still sway me surgically. For now-have to wait and see. Best of luck!

I've posted about it many times, but want to make sure people know about the Broca panel from the University of Washington.  http://tests.labmed.washington.edu/BROCA#BROCA_Ge...

It looks like you can order the whole panel, or just a specific gene(s) to test.  I had this done last year before the "new" genes were added (already tested negative for BRCA including BART). I had no mutations in any of the 40 genes they tested.  It took three months for results but it is the most comprehensive panel out there.  More is not always better though - ask your genetic counselor what test is best for you and WHY.  

farmerlucy- I am also a no go from insurance for Myriad test. It has something to do with billing including BRCA in the name and fact that I am required to use Quest for labs-which I did for BRCA. So aggravating but geneticist spoke to Myriad rep and in October they will be offering "extended testing" which includes everything but BRCA. So basically they are renaming test for coding purpose. They will still offer complete Myriad MyRisk, this will just help others get coverage.Quest doesn't offer other testing so I may have chance of having this approved. I will have to have sample redrawn in October but we are going to try again as soon as they make this available. I asked how much it would be to have own my own and I was told about 3500 so not an option at this point. Be sure to check back in October.

I had it done after I was diagnosed w/ a rare type of bc, plus I have a sis that was diagnosed w/ IDC last year and another sister who was diagnosed w/ imflammatory bc back in 2005 and passed in 2007. Also, my mother has multiple myeloma.  All came back negative.

I am a state govt employee and we have a self-insured program, but they hire BCBS to run the program, so most docs consider me as BCBS. My claim was denied so far, but the EOB says they have asked for further info from the provider. I also signed the paperwork that Myriad would let me know beforehand if my co-pay was going to be over a certain amt, so if BCBS refuses to pay anything, I will not pay more than that the paper i signed said as I believe it was Myriad's responsibility to find out what BCBS would pay before they ran the test. If BCBS does decide to cover, it may not cost me anything since I have already met my max out of pocket for the year.

I'm glad I did NOT have Myriad testing - they don't look for the rare mutation found primarily in a geographically unique group which members of my family carry. The Ambry & BROCA panels do include it and, once identified, our local medical college lab can screen blood samples for that particular defect and bills only a couple hundred dollars.

Any company that took advantage of their monopoly the way they did for years may not deserve our business. The Supreme Court setting aside their patent 18 months ago has meant a lot of new work for geneticists but, in my opinion, it's to the good. 

Hi Straitlover, I'm happy to have found someone else who had one mutation show up on your panel that you don't know what it means. May I ask which company you went through? I had a full panel all come back negative except for one "Unknown Risk/Not well studied" Gene. My result was also not 100% Pathogenic, but somewhere on the varied scale of results. In short, I have no idea what it means. I have since done a ton of family research and have found very few people in my family who actually had breast cancer. I'm beginning to wonder why my genetic counselor even recommended I get the full panel in the first place and am questioning my vague result on the test. Also, waiting for insurance to cover it and it has been going on for months. I had the test done in August and it's January and it is still not resolved with insurance. It has been denied but I believe the genetics company is appealing. Very frustrating experience all the way around!

For those of you who get a mutation report (especially one of unknown significance), please consider sharing your data within the PROMPT study. There is a post pinned to the top of this forum with more information.

Four research institutions began this effort in autumn 2014 and will hopefully help define treatment guidelines, etc once more of us have pooled our results. Definite conclusions may not be derived in time to influence our personal decisions but the project should have benefit for the future!