Didn't turn out as well as planned

Options
13»

Comments

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2014

    It's not the best news, but it's not the worst. I was more afraid of chemo and radiation. I was afraid that would kill me. I am so glad they are treating it with a hormone pill. I know you were all pulling for me. So thanks. I'm going to do OK. I have a baby cockatiel who thinks I am his mother. He won't interact with anyone but me. As a matter of fact he is wanting me to remove the cage cover now. I guess he is ready to start his day.

    image

    · Share on FacebookShare on Twitter
  • DiveCat
    DiveCat Member Posts: 968
    edited August 2014

    dune,

    Your cockatiel is adorable! 

    I have been following your updates, and I am so sorry that it looks like you have had a recurrence. Will they be doing biopsies on any of the lumps? Especially to make sure you are still dealing with ER+? 

    · Share on FacebookShare on Twitter
  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited August 2014


    Dune, thanks for including the photo of your feathered friend.

    I just wanted to suggest that being persistent about keeping your vitamin D level up can make a difference.

    A.A.

    · Share on FacebookShare on Twitter
  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2014

    Thanks . And yes there will be a biopsy. I don't know when yet. My Vitamin D levels are very good, and I get them checked regularly. Since it may have gone to the bone I have to make sure to have lots of calcium and vitamin D. I'll try to get most of my calcium from food, especially vegetables and fish.

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited August 2014

    So happy you can just do the hormone pill, it sounds safer than chemo/radiation.

    I am taking exemestane I did anastrozole for almost a year and a half until SE were bad. It seemed to me like a cumulative effect. Nice thing is onco can take you on and off them or change them. Good luck.

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2014

    no chemo nor rads????

    Well I'm so happy for that

    Love ur little child

    Xoxo

    · Share on FacebookShare on Twitter
  • inga6060
    inga6060 Member Posts: 56
    edited August 2014

    Something simple is make some bone broth soup, immediately.  Great for the kidneys (lymphedema), digestion, bones.  Loaded with bioavailable minerals.  Have at least 1 to 2 cups a day.  It would be best to use organic meat.  Just do the best u can.  Recipes all over internet.  Don't give up.  I have had so many set backs.  When u fall down, you don't just stay on the ground, right?  No, u get back up again.  Stage 4 is totally doeable.

    · Share on FacebookShare on Twitter
  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2015

    I passed your suggestion on to my mom, so she makes lots and lots of bone broth. And Divecat, I don't think they did a biopsy this time. That's interesting. I should ask my oncologist (which is probably a new oncologist since I was last chatting here). I am now doing Taxol too. It went to my lungs. I hope this doctor is being aggressive enough. Sometimes I have to laugh at that. I wouldn't let the other one do anything because I was bound and determined that proper eating and avoidance of chemicals would take care of it. I guess it did ok, lasting for 2 years. Unfortunately, I stopped eating well when I moved in with my mother -- and it's gotten even worse since the chemo. Way too much sweets. Everyday, I determine to do better. We'll see how that goes. I hope you are all doing well.

    · Share on FacebookShare on Twitter
  • juneping
    juneping Member Posts: 1,594
    edited May 2015

    dune - if you want some sweets, get those dried fruits that's non sweetened. Or dark chocolate.

    How are you doing/feeling? I hope mentally you are stronger. Sometimes mental happiness help

    · Share on FacebookShare on Twitter
  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2015

    I think our mental state has very much to do with how well we do overall, June. I've been doing fine. Hope you are too.

    · Share on FacebookShare on Twitter

Categories