DIEP 2014

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  • Teacher64
    Teacher64 Member Posts: 840
    edited August 2014

    Lemon - if you have a 2b, ask about getting rid of the Ken doll look. We all have moments of tears. I've decided they are healthy cleansing for my eyes and face and blowing my nose clears my sinuses. It's a win-win! You will breeze through the trip. I will be thinking of you.

    Goldie - I couldn't do pain med after stage 2 and still do Benadryl due to the allergic reaction. The discomfort was from the itchiness and also the bruising, so I guess it was good to sleep most of the time anyway. I was 100% surprised about the size of the nipples. They would have looked normal on my adult film star post DIEP breasts! Now that some of the stitches are out, they look so much better. Thursday just the stitches around the areola were removed. I can see how everything will look so much more clearly and I like what I see.

    Sweetie - life is better at home. Take it easy. Don't do too much. Eat protein. Drink lots of water.

    I didn't have to wear a bra after DIEP and had a compression binder that wrapped around my abdomen so potty breaks were easy to handle. After stage 2 I wore the same compression and because of the bulge get to wear compression for 24/7 for 2 more weeks and then at night only for 2 weeks. I did get permission to wear spanx though. They aren't as bulky as the binder. I have a short torso and the binder would end up pushing on my breasts. When I told my PS, he said I could switch because the girls don't need anything pushing into them because of scar revisions. I do have to wear a bra 24/7. I came home in a stretchy bra and got a couple Fruit of the Loom front closing stretchy bras at Walmart so I didn't feel bad about cutting holes out for the nipples. I have to wear a cami. The bandages around the nipples and the strategically cut holes in the bra are an interesting vision and seem to show through everything. It will be so liberating to throw these bras and the binders away. I guess it will be like old women's lib days when women burned their bras. There's probably too much synthetic fiber in them now to burn without adding noxious chemicals to the air. Don't think I'd want to explain that result to any fire personnel who might need to be called for such a bonfire!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Andrea, when you say BB, do you mean belly button?  If that's what you are asking about, it's still ugly.  It has looked the same from day one after stage 1.  I loved my belly button, so I am upset.  I wouldn't mind it being different, but not ugly.

    Teacher, I am with you on the burning of anything I wore during this whole ordeal.  I am sorry you get no pain meds, but the benedryl will made you sleepy.  I forgot about those.  I might try one the next time I get insomnia.  Yes, the nipples are a BIG surprise.  I hope when my stitches come out they go down a bit too.  LOL   Porn diep boobs? LOL

  • Kat-ski
    Kat-ski Member Posts: 212
    edited August 2014

    Due to the massive blood clot in my right chest and lung, Surgery for 2a in October has been cancelled and the PS is not at all sure when it will be done. (hmmmn)    I have the gut feeling I am back to square one because PS doesn't know how to handle the new blood thinners with surgery. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Kat-ski, this is not great news.  I am so sorry.  I know stage 2 is different than stage 1, but I was giving blood thinner's during stage 1, so...

    I mean, I don't know anything about the danger's of blood thinner's during surgery, and I am sure you surgeon knows what he is doing.  I wish there was some positive spin I could put on this. The only one I can come up with is that thank goodness the blood clots didn't go any permanent damage, and you are here to tell the tale.  We are here to play the waiting game with you, and hopefully your surgeon will come up with a plan. 

  • enjoyevrymoment
    enjoyevrymoment Member Posts: 334
    edited August 2014

    First of all Lemon, so sorry to hear of the timing of this trip and your 2-a surgery.  I think we all just want to get things resolved and put it behind us but our bodies just seem to have a different plan in responding to surgery not to mention we are dependent on the PS as well.  You are a beautiful person and I have no doubt you will rock the left breast no matter what.   People will be so busy looking at your beautiful face and who you are!  

    Katski, another road bump and my heart is cheering you on for resolution of this clot and some good news soon!  I know virtual hugs do not erase how you feel but please know you are loved and supported!  

    Goldie. My nipples are a bit smaller now and it will be two weeks this Wed.  One is bigger than the other but i am glad no signs of infection.   Teacher, I am out of wearing dressings on the chest i am surprised you are wearing dressings inone  way but once again, surgeons are so different.   Glad you are slowly but surely getting better!!!

    Sweetie hang in there, I suspect you will be one happy lady once things calm down.   

    Jbdayton i have noticed I cant go as long waiting to get to the bathroom but have attributed that to the Femara.  I am expecting plaques to be placed in every restroom in America--"Cindy peed here".  :)

    About to go to the beach.   Will post pictures if I capture anything fun.  

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited August 2014

    Thank you JB!

    Goldie - I had necrosis after surgery on radiated breast which is reason for graft!

    P.S. I am still commando - just easier - and summer!

    LiLi

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2014

    Kat, I know it must be very hard to have 2a cancelled.  Really disappointing.  I feel certain that your surgeon's primary concern is for your safety and the potential risks caused by the clot (with any type of thinner).  Sure don't want it breaking loose.  Maybe with a little more time the issue will resolve for you and the clot will disintegrate.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    LiLi, sorry, I will pray the graft does what it's suppose to do, and I believe going commando is the best option if you can handle it, and it depends on who is around the house, etc.  My son was here for a couple of weeks during my recovery, and I wore panties when he was here. I figured I had gotten him this far without any psychological trauma, didn't want to take the chance of exposing him to any at this point...lol.  

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited August 2014

    Thank you Goldie! Luckily, I live alone! LOL

  • Andrea623
    Andrea623 Member Posts: 959
    edited August 2014

    Oh Goldie, I am laughing over your last comment! You have a great sense of humor!

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Goldie: Thanks so much for the suggestions! I will be sure to remember them when the day arrives! Another thing to add to my list! :) 

    I have a question, I'm not sure who might be best to address it to, but thought I'd just throw it out there.

    I have saggy, post breast feeding (3) kids, for.a combined 4-5 yrs., breasts. They are DD's, and I ABHOR wearing a bra. I told the PS I want to go small, like a B cup, and he looked pretty surprised and I just don't know what size to ask for, because I just want to not be required to wear.a bra, but not look completely flat. It's a dilemma for me, I won't get  to spare my nipples because they are way too low. So I figure they can put the new ones wherever they look best.  And I'm not thin (as you all know!) and maybe smaller would look strange on me. Help! What suggestions do the wonderful ladies here have for me?

    PS: I have lost 13 lbs. now, in 10 days. (Lo-carb) yeah!!

  • AndreaJ50
    AndreaJ50 Member Posts: 889
    edited August 2014

    Sarahbb: great questions. I wanted to know the same thing. I hope those who know will respond.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2014

    Ask for the most appropriate size for your body (the PS will have a good idea), then if they are too big they can be reduced at Stage 2.  But they can't be made bigger without adding another flap (or implant).  Just give yourself options.  I think it is really hard to conceptualize what a b would look like after living with DD+.  I went from DD to C for my original surgery years ago, but I was 15 pounds lighter (and 29 years younger).  I loved the way clothes fit and my boobs were no longer the center of attention.  For my flap surgery - I asked for appropriate for my size.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Hello from the bank of the Potomac River, where we are located after a week in the mountains doing horsey stuff via RV and great friends.

    I now have my Stage 2 date: Nov. 11, after all my fall equine obligations. Still waiting for that bass to popout on the end of all my rejected stitches.....but necrotic area has finally raised the white flag, leaving behind healthy tissue...and about time, too. Patience is not one of my virtues.

  • JuicyJackie
    JuicyJackie Member Posts: 41
    edited August 2014

    I'm running around like a chicken with its head off.  I was trying to get on here earlier to get an idea of what I need to take to the hospital with my tomorrow morning.  It was a crazy busy day and now I believe you are all sleeping.  I'm wishing you a most comfortable night.  If anyone is awake I'd love to hear what you took and what you wish you had taken to the hospital with you.

    Sweet dreams and healing hugs!

    Jackie

  • aff
    aff Member Posts: 279
    edited August 2014

    Jackie - I took so much more than I needed. All you will really need is Chapstick, throat lozenges, the charger for your phone and a comfy (large) outfit to come home in. I never changed out of the hospital gown while I was there. I brought my kindle and mags but could not focus long enough to even read a page. I brought my makeup bag but only used my lotion. You may want slippers but the hospital will give you non-slip socks. Sorry if I forgot anything. It's late and I was just checking in before going to sleep. All the best. 

  • nihahi
    nihahi Member Posts: 3,841
    edited August 2014

    Jackie......here are some suggestions for you.

    Chapstick, facial wipes, toothbrush/paste, hairband, glasses, hand lotion, comb/brush, slippers that have a non-slip bottom. Loose/front fastening clothes, sandals to come home in. Many ladies use the hospital gowns/robes so no need to bring those. Other things like laptop, ipod, cellphone are handy, but my hospital discouraged having those "kept" in your room, due to liability. You may also want to bring a book to read after the first couple days. 

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Jackie, good luck tomorrow!! I'll be thinking of you! Looking forward to hearing how you are after you're through!! I've read that having an extension cord for your cell phone charger is a good thing to bring and a small battery powered fan for your bedside because they keep the room really warm for the flaps.  Hope that helps!!

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Marty: thanks for the suggestion. That's probably why when I said B, he said well, probably B/C, I think he was very nicely letting me know C was probably a better fit.

  • LAstar
    LAstar Member Posts: 1,574
    edited August 2014

    Sarahbb, I asked for large B/small C but ended up with large D (I think my PS didn't believe that anyone would want smaller breasts).  I had F cups after breast feeding and have been in the 155-170 lb range since I had my daughter (I'm 5'4").  I had necrosis in my left breast and it has shrunk to a B.  It's totally cute and I don't think it's too small for the rest of me.  I don't know what it would look like if I lost all the weight I'd like to lose though.  I will have a DIEP in January to remove the necrosis and am torn on what to do.  My right SGAP breast is a round D.  I would like to go smaller but have no desire to suffer any more unnecessary complications.  But the breast is heavy and I feel like I need to wear a bra most of the time.  Also, those adorable little cotton blouses still gape in the front and *dangit* I was really excited about wearing them with smaller breasts.  So all that to say, get what you want!  Big breasts are a hassle.  Best wishes!  

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited August 2014

    Jackie I'm thinking of you! A neck pillow was a must-have for me! Earplugs also. 

  • JuicyJackie
    JuicyJackie Member Posts: 41
    edited August 2014

    Thank you so very much, I'm not as stressed as I was last night and I see so many of you helped me with must have lists!  I am a little scared this morning.  ShockedTHANK YOU ALL SO VERY MUCH FOR HELPING ME!

    aff - I'm an over packer that's why I asked.  I love your list!  No reading material - lol!!  I just grabbed my sllippers, I hate those non-slip socks.

    Nihah - Nice list, I think I've grabbed all on your list.  Thanks!  I should be good to go!

    Sarahbb - I just grabbed an extension cord, I waited too long to ask my question...Darn, too late for a small battery powered fan!  Great idea!  I'll be thinking of you when they are cooking me in that hot room!

    Sweetie - I've got the ear plugs packed but too late for a neck pillow...I'll probably wish I had that.  I do hope your doing better today then you were yesterday.

    Thank you dear ladies!  I just love you guys.  

    Getting close to leaving time, 3 hour drive!

    Jackie

  • Teacher64
    Teacher64 Member Posts: 840
    edited August 2014

    Jackie - last minute surge. You get to relax from for a few days now. Let everyone take care of you.

  • crs629
    crs629 Member Posts: 4
    edited August 2014

    Hello ladies,

    Thank you all for your thoughts, prayers, and words of encouragement.  I am happy and relieved to say that my scans were clear, thank God! Whatever showed up on my chest x-ray did not correlate with my chest CT.  It was a fearful 24 hours for my family and me as we never expected anything to show up during my pre-op tests.  My surgery is a go for August 21st.  I am ready and scared at the same time.  I am not so scared about the surgery part as I am about the results of my tumour pathology and what additional treatments I may need.  Breast cancer is so complex, requiring a number of treatments in various stages.  When I was treated for Hodgkins, it was straightforward....found out my treatment plan and moved forward with chemo and radiation.  Well, I guess I just have to breathe and take one step at a time (easier said than done sometimes!)   As I have ready so many times from all of you, I am just going to show up on Thursday morning and let my doctors take care of the rest!  I am making note of the posts I read this morning about items to take.  I have a busy 3 days ahead of me, then rest on Thursday!

    Thank you all so much for being on this board.  I don't post a lot, but I read every day!  I couldn't have made it through these last 6 weeks without you!  You are all so strong and inspiring!  God bless all of you! I pray for all of you, my "sisters", every day! ((((hugs))))--Cristina

  • annieb4
    annieb4 Member Posts: 106
    edited August 2014

    Good Luck Juicy...It sounds like we always pack more than we need, so hopefully you have everything.

    Andrea, I have extenders in still, and they SUCK !!!! I can't wait to get them out, I am at the point that I don't care if I have enough belly for a -A...I just want them gone..and to think I still have 5 months to go..

    The1toC...you say you have an 8 hour drive. I will also be 9 hours away, I am thinking about flying, and just staying down at Mayo for a couple weeks. Is that a dumb idea? When you get out of the hospital how long before you have to go back..This really stinks being so far from home..

    Am thinking about all of your recuperating, and hopefully you are all doing as great as can be expected.

  • aff
    aff Member Posts: 279
    edited August 2014

    Today was my last radiation treatment. I am overwhelmed by all the different feelings I have right now. I have been in active treatment since Dec and it's hard to believe it's over.

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited August 2014

    Great news Cristina on the results! You will be in my thoughts and prayers on Thursday!

    Aff - Congrats on finishing rads! Just because we may be through active treatments, we still need time to heal on the inside.....and that will take time.

    Annie, I would plan on being close to Mayo for a few weeks post-surgery. My surgery was a 2 hour drive, and that was a long drive for my body after surgery.

    Sending healing and positive thoughts to Jackie 

    I am still too tired to focus and work...it has been a long 2 years.....

    LiLi

  • annieb4
    annieb4 Member Posts: 106
    edited August 2014

    Congrats Aff...I remember when I finished my rads, it was a really wierd feeling. It almost felt like I was losing my good friends, and someone who took care of me and now I had to do that all myself.

    Thanks Lili,,that is what I thought. I live in ND and where I work, we own apartments down there, and they will put me up in one for as long as I need it, and I have 3 daughters who are going to take turns staying with me, so I figured that would be the best thing to do.

    and I agree with you, the last two years have been such a drag, and I feel sometimes like I just don't want to deal with this anymore. When I was first diagnosed , I figured OK this is going to be a long 8 months...yea. if I only knew.  I, too, am just tired of it all. And waiting for surgery is a bummer..

  • Teacher64
    Teacher64 Member Posts: 840
    edited August 2014

    Cristina - wonderful news. As you said, you've shown up before, so this will be another step. Thinking of you.

    Alf - congrats and wonderful news from your front (no pun intended)!

    On my way to another ultrasound. Such discomfort on side that I couldn't sleep. I guess this is payback for thinking this roller coaster ride was nearly over for me.

  • Andrea623
    Andrea623 Member Posts: 959
    edited August 2014

    Cristina, that's great news! Good luck on your upcoming surgery!

    Aff, walking out after the last rads session is such a good feeling! I actually cried once I got to the car.

    Jackie, I know you're out right now, but I'm sending lots of good thoughts your way. I'm looking forward to hearing your updates.

    Teacher, I hope the ultrasound relieves your discomfort. Good luck!

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