MIDDLE-AGED WOMEN 40-60ish

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    Crumpet...

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    English Muffin...

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    Was glad to be able to nibble away on the PP goodies today as no diet restrictions for bone scan! Thanks all for jumping on board with Ms Frizzle (Frazzled might be more like it). You must have had the air conditioning cranked on the bus - I had to ask for a blankie to put over me. Will find out results in a couple of days (hopefully). Came home and made a cherry pie - first one ever. Smells delish! Can't wait to try it!

    justamy - hoping your port install went without a hitch.

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  • justamy
    justamy Member Posts: 532
    edited August 2014

    They are indeed doing my chemo education on the same day as my first infusion. But I my nurse is now going to call me with specific instruction prior to the day. So it helped to ask.

    I got my port today. Easiest surgery ive ever had (I've had 4 or 5).The pain is pretty bad right now but it's my fault because I wanted to go to the mall after so I just took ib instead of the real pain meds. Got some stuff for my chemo bag and went to Charlotte Russe and found some great scarfs for $5 each for head coverings. Plus my niece brought me a cute wig to the hospital. So shopping was fun but I'll be taking the heavy duty pain meds when I get home!

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  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    refreshments on the bus! How lovely! 

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    justamy - So good to hear surgery went well. Now to get those pain med in and relax for the rest of the day.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    my post went to the bottom and there were more posts! 

    Nice shopping after port surgery, you tough woman!  

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited August 2014

    Hey everyone, sorry I missed the bus, glad you had a crowd, bars and justa! I have found what I'll bring to the next pp, a bacon bowl or two!! I saw them at Marshalls yesterday. They are my favorite brand "as seen on TV". 

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited August 2014

    I am part of the fibro group, too. I was just dx a few months ago. So still not quite sure what it's all about. I think it actually started before my bc dx, but doc I went to about being so tired all the time, said I was probably just a little depressed. I had been caring for my ailing parents for a few years and running a business and raising kids, all of a sudden I couldn't do it all anymore. Anyway, my Dad died soon after and then my dx a few months after that. So then it was all bc this and bc that, I started taking Arimidex and found I could not function. I got HBP and very depressed. They started me on those meds.  So now on Tamox, and dx with fibro. I take a half of trazadone at bedtime. Only wake up once or twice and can go right back to sleep. I am feeling so much better than a month ago. It seems like it is better living thru chemistry.

    edited to add: I like the spacey header pic, e!

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  • jbokland
    jbokland Member Posts: 890
    edited August 2014

    We fell in love with crumpets when we were living in Australia.  I have not been able to find them here!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    mac, That header is probably just time lapse of a starry night, but I put it up there because it's that time of year again...time to look heavenward to the Perseid meteor shower.  You insomniacs will love it because I think viewing is better after midnight.  How to get away from light pollution is always my problem.  

    Oh, and sleep starved people...ever notice how the nights are not black anymore?  Supposedly we should be sleeping in as a lightless room as possible.

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  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited August 2014

    Oh Barsco, I'm sorry I missed the Magic Bus Ride to the bone scan. I hope the ladies got in there like storm troopers and zapped all the foreign objects. Oops, mixing two fantasy shows. Hope you get good results back soon. Maybe I should tempt the Stable Boy with the funny-looking horse/giant poodle so he can rescue the poor animal.

    Yep, fibromyalgia here too. Diagnosed in 1995.  After trying many different medicines (which didn't help) I just decided to endure it.  Most of the time it's okay.  Sleep is the main thing that keeps the pain away.  If I only get a few hours, I feel crippled by the time I get back to my bed.  And even if I catch up that day, I'm still good for nothing for the rest of the night. It takes about two days to get back on track if my sleep gets cut short.  People have no idea how debilitating it is when they interrupt my sleep to suit their schedules.  They just think I'm lazy.  After all these years of trying to explain it, I give up. They'll never get it unless they "get" it.  Same with cancer.

    Oh, about the really stupid things people say when you're trying to discuss your cancer fears with them.  I really hated this one, courtesy of my brother: "Yeah, and I could get hit by a truck tomorrow so I could die, too".  I'm like, oh really.  Do you think about that truck running you down in the road over and over all during your work day and when you can't sleep at night?  Every single day?  Do you get online and look up to see what you can do to stop it?  Fortunately, that was several years ago and the good news is I don't think about cancer quite so much anymore.  But that annoying remark is just stuck in my head.

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    I feel for you girls with FM. This fatigue is frustrating and to have to deal with a chronic condition like that on top of it all has to be tough. 

    The worst thing anyone has said came from my sister. I have been fortunate that I married a great guy and we have had three great kids (married 30 years). She picked the wrong guy every time and as result is divorced now 17 years with no children. I understand she has had it tough financially etc and I look like I have it all, but when told her I would get breast recon and have two new boobs, she said "Even when something bad happens to you, something good happens".  I'd gladly keep my old starting to sag boobies that are cancer free then have to go through this chit. When I lamented my hair falling out she said the usual "It'll grow back".   Well duh, but do YOU want to be a bald woman for a several months?  One time one of her dogs jumped up and chipped her tooth, you'd think the world was coming to an end because she "looked like a witch".   Within days the dentist fixed it. Life goes on as usual! 

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    Ohhhh mac - Bacon Bowls! Bacon has got to be just about the most universal food out there. It goes with everything! I bet it would taste great crumbled into a bowl of Cheetos!

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    lol - I obviously was not the first person to think about the Cheetos/bacon connection.

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    OR how about a Cheetos/chocolate/bacon combo?

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    Not sure why some pics don't show when I copy/paste - grrr

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited August 2014

    thought of everyone here when I saw this.

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    LOL mac!

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  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    Mac, that pic is hilarious!  

    Hesrtnsoul:  I totally get you. My mom has said completely wrong things to me.  "Won't you ever get over this?" About the Fibro.  And now I have another chronic problem: lymphedema.  And there is just no understanding of that either.  But god forbid anything happens to her.  It is total trauma!   

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    OMG, mac, get me one of those little devices!  My world has just revolved around those two things for 5 years now.  Unfortunately.

    I think FM is even more misunderstood than BC.  Half the doctors do not understand it.  The other half don't believe it exists!!!

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    Yep, elimar! Just like docs didn't used to believe in LE!!!

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  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    Hi ladies, SIX more treatments to go, but who's counting?

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    Did you say SIX?  I can count better when speedos are involved.   

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    Where is F-nut?  Wonder how she is doing?

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  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    Oh Yeah, Elimar, I'll go with that.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    six speedos is a nice way to count!  

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited August 2014

    i was just wondering where F-nut was, too. I bet she's off having fun somewhere! Those guys? i want. & mmmmbacon too..

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  • justamy
    justamy Member Posts: 532
    edited August 2014

    Well I got my biopsy results back from Monday. TI havevtiny calcium deposits in my left breast bbut no cancer. I am glad there I'd no more cancer there but I think my doc is only going to do a single mastectomy now... I'd rather do bmx but he says he does not remove healthy breasts. I don't want to have the other come down with it in 2 years and do it again....glad for the good news... Wondering what it means for my treatment plan.

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  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    Hi, Justmy, very happy no cancer, but I am very surprised your doc won't remove both, if that is your wish, especially with calcifications. I never heard of this. You might want to get a 2nd. opinion, although I know how hard it is to have to wait for appointments and for treatment to begin. Best wishes, Stephanie

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    I am also surprised that with calcifications he won't take the breast off! That is how the cancer starts!!!! Could take years and years to develop, but that is the beginning! Why put someone through TWO surgeries for heaven's sake!!

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2014

    justamy - I agree with getting a 2nd opinion.  Why wouldn't he remove that other breast especially since you're HER2+.

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  • justamy
    justamy Member Posts: 532
    edited August 2014

    To be fair, I haven't seen the surgeon since I got the results. I got a phone call from the radiologists today. But he told me when we last met that if I did not have the gene ( I don't) and if there is no cancer in lefty then he will only do a single mx because he doesn't do prophylactic MX on healthy breasts. To make it worse (I'm venting a bit) my always supportive husband of 22 years wants me only to get a single mx. I'm sorry but I am the one who has to get sick, lose my hair and deal with all of the other SE of this crap. I think I should get to weigh in somewhere. I want a bmx. If insurance won't cover both though, there is no way my husband will let me do it....just have to wait and see. Not having surgery until after chemo...prob in January.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited August 2014

    justamy. women. get. to. have. prophy's. insurance has to pay. definately get a second opinion, do not let anyone stop you, if that is ypour wish. your body!!! you are the one who has to live with it! are you thinking recon? please forgive me if you have already said so. its just, even with recon, it would never match exactly, and if you don't, you will be the one having to deal with getting dressed, etc. your husband can weigh in, but it IS YOUR choice.

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