DIEP 2014

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  • MsW2012
    MsW2012 Member Posts: 226
    edited August 2014

    Hi pzercher, I love your sense of humor. Yes I figured out what FC stands for pretty quickly! Sometimes that's what I feel like shouting. I even thought - just as a fantasy - of posting that on Facebook. Fc, fc, just fc! for my current status.  But I won't because I have a pretty strong aversion to cussing in general. Still! It sure sums it up sometimes, doesn't it!

    As far as how you feel three weeks out - which means our surgeries must have been very close in time, mine July 15 - breastbone pain and tight feeling in pec is probably a combination of the rib cartilage they remove right near the bb plus the swelling/pulling in that area in general. I also find that certain activities cause discomfort like that. Like, I can walk around the block, but if I go up and down my stairs too many times or carry anything 5-10 lbs even a short distance, I pay for it. You also mention that TFO thing - third-week Total Freak Out. Yes, isn't it amazing how powerful it can be! I thought I was an old pro on managing depressive/negative moods but man! Thank goodness it started to fade quickly after several days.

    The hair thing is another darned indignity. I hate surprises like that. I won't have that particular one because I didn't need any extra skin, just fat. But my hairline is a good 1" higher than it used to be. That'll take some getting used to.

    I seem to be following the standard course of recovery in a lot of ways. The 3rd-week thing came and went, and after it passed it was a real turning point to a much more positive outlook about everything. I wish the same to you, and I hope your discomfort lessens quickly.

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Goldie: that's a good point! I am having everything vaginally, but she did say there would be three small openings made in my abdomen as well as two small cuts down at the groin line. 

    It was the PS that said for me to do it first as he didn't want the onc/gyn to go in after him.

    But I will mention it and make sure first of course from the onc/gyn, best thing would be for them to talk to each other.

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited August 2014

    don't think I'm gonna get a wink of sleep

  • Andrea623
    Andrea623 Member Posts: 959
    edited August 2014

    Sweetie, best of luck tomorrow. I'll be thinking of you!

  • k79miller
    k79miller Member Posts: 101
    edited August 2014

    sweetie...good luck tomorrow!  I'll say a prayer for you tonight.  We'll see you on the other side.

  • Teacher64
    Teacher64 Member Posts: 840
    edited August 2014

    sweetie - you will get plenty of sleep tomorrow. Just show up and you can rest while everyone works for you. I think most of us don't sleep well the night before. I slept about 2 hours the night before. You are doing fine and will tomorrow, too.

  • jmb5
    jmb5 Member Posts: 532
    edited August 2014


    pzercher, I have noticed since I had my nipples done that there is a decent amount of very fine and light colored hair growing. That's the tummy skin, so I guess I have a hairy tummy and never really noticed. I guess we have hair everywhere, but geez. Didn't want it growing right out of my nipples. I did mention to the PS about having it removed and she said I could have it lasered off. I am wondering if insurance will pay for it though.

    goldie, any idea what tattoo you will get on the abdominal scar? I looked at pictures on Pinterest once. Didn't see anything I cared for. My only tattoos right now are radiation tattoos. Lol! I'm not a big tattoo person, but the scar is just so darn ugly. I don't know... it would be one big tattoo to cover it.

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Sweetie, we will all be thinking of you! Like everyone says, just show up! Also, if you are feeling extra anxious tomorrow, you can let them know that and once you've signed everything might give you some medicine to help relax before they take you back. In a blink of an eye you will be on the other said and can let the healing begin! I hope you can find some winks tonight. Best wishes!

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  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Sarah, I had my laproscopically and there was no issue, and I even had a C-section years ago.  But, better safe than sorry.  I do know some that have had their hysterectomy afterwards too.  It's just what your docs feel the most comfortable with, and of course, you!!

    Sweetie, I had zero sleep the other night before my stage 2, except for being very grumpy until they put me under, it all went fine.  We are all thinking about you.  Keep us posted as soon as you feel up to it.

    JMB, my son keeps promising to draw something for me to have tattooed over my scar.  He is a fairly good artist (cartoon type of drawing, etc), and if nothing appeals to me he promises his friend who is a tattoo artist will do something pretty.  I just want something with vines and flowers I think. Something feminine. Who knows, when I am finally finished with all this surgery I might never want anybody to ever touch me again.  I am assuming your PS didn't do a scar revision on your tummy.  A lot of them do.  That is one of the first things my PS ever brought up about revisions, and it bother's me, but not as much as some of the other stuff.  What worries

    image

     me is that it won't be numb there anymore when I get around to it, and that is a lot of area to cover and if tattoos hurt they way I hear they do, well then who needs it?  LOL.   What do you think of this one I pulled off Google a while back?

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Goldie, I've been thinking about a abdominal tattoo too. I am going to give the scar some more time to heal to see what it will look like in a few months but m really considering it since it is such an extensive scar. Something simple. If you run across in your looking let me know! I will do the same! Sounds like your surgery was quite extensive. Saying prayers for healing and for less pain. Gentle hugs to you!

    Ms/pzercher I agree...fc seems to sum it up but might not be the best thing to post on Facebook! I have a good friend who painted her 'middle' finger on both hands a different color during chemo, essentially flipping cancer off. She is so spunky! I love her sense of humor and fight! Sounds like you are both on track with your healing. Body sure will check ya if you do too much though, doesn't it. Pzercher, glad you are having a relaxing time in CO. with family. :) Good luck as you start seeing clients this week. Be gentle with your sweet self! 

    Sarah welcome! You absolutely belong here and we are glad you have been reading and participating. This is a great group to bounce questions and ideas off of and a very safe place to share. Sorry you are faced with so many decisions about surgery and so young. I had to have a hysterectomy at 28 and ovaries out at 40. I feel for you. .I would recommend looking into bone and heart health. Get a bone density test before your surgery as a baseline  so you know where you are at, if you haven't already. I wish someone had talked to me about some of these things early on. I had osteopenia going into chemo and came out with osteoporosis (i am er/pr+ so no hormone replacement for me anymore.  Fortunately there are drugs out there that are supposed to help protect bones and also diet and lifestyle can help protect bones and heart. :) I haven't gone the med route for bones. To be discussed post stage 2. They didn't want to add anymore drugs to the mix at this point.

    http://www.heart.org/HEARTORG/Conditions/More/MyHe...

    http://my.clevelandclinic.org/disorders/menopause/...

    Teacher, adoption is such a wonderful gift for all involved! <3

    Andrea I don't know if the Ken Doll goes away or not but you can bet on Friday I am going to have that as a question before surgery! 

    Happy sleeps my friends!

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Georgie: thanks for the great advice!  I will have the bone density scan done for sure. And start reading up on what I can do to help with my bones and heart. I'm hopeful that after my mx I will be able to take some kind of HRT.   So sorry to read that you have osteoporosis, I hope the doctors can find something to help with that.

  • Kanada
    Kanada Member Posts: 12
    edited August 2014

    Hi Sarah,  My 1st contribution....   just reading your HRT comment - I can't have any HRT due to high family cancers....  just toughing it out with hot flashes - central air - and lots of cool cloths.  I'll be having my 1st bone density test on the 22nd of Aug. - just need to stop taking calcium supplements 2 days prior to test.  Best of luck Sarah !


     

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Goldie I like the tattoo! I found one today...Neither are exactly what I want but maybe with some modifications! Don' think I'd want a tattoo that came up around my belly button. Maybe a different type of flower. There sure are a lot of tattoo pictures out there to look at!

    image

    image

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Hey Sarah, when I had my ovaries out at 39 my doctor wanted to put me on bio identical HRT. I resisted, fearful of breast cancer risk and toughed it out for the first 90 days post surgery. I really felt the impact of having the ovaries out, hot flashes, emotional, declassed concentration, insomnia so I went back to my gyno and he said we needed to weigh the risk of bone and heart health and quality of life to the risk of br ca especially due to my age. . I agreed to do replacement feeling I had no other options, I was on it for 7 years before I was diagnosed with er/pr+ breast cancer. I often wonder if that replacement somehow contributed to my dx. of br ca. Of course no looking back, and can't be sure that is what might have caused or contributed to it. I was on the pill too in my younger years too...Lots of thoughts on what might be the smoking gun for breast cancer. Just wanted to pipe  in case this information might help with some questions to ask your provider. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Well, the woman with the tattoo up around her belly button needed that.  It's a big improvement over her poor scars.  I wonder what they were from?  It looks like she had a tummy tuck incision, or diep incision too.  The other one was very fresh.  Almost like they took the pic as soon as they were done because the tattoo was still raised and swollen.  I like that one too, but looks a little two big.  I would love to see it after the swelling goes down. Oh goodie, maybe we will be getting our tattoo's around the same time also, since we seem to be on a similar schedule.  I hope Lemon is doing okay on her business trip.  Your stage 2 is any day now, right?

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Oh forgot, I wanted to say to all those worried about bone health and anti hormones after dx.  My SIL, who does not have BC has been on Evista for her osteopenia for quite a while now, and it is also supposed to have anti breast cancer properties too.  It's like killing to birds with one stone.  She feels good on it, and has had improvement in her bone density.  There is plenty of info out there on Google about it.

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Yes hers was perfect for her scaring. I like the before and after pics so you can see the difference. I want smaller too. So many of them are really big, even thick! I want something a bit more dainty. I never thought I'd consider a tattoo but I really think putting something on the scar would make me feel better about it. That would be cool if we got ours about the same time cinco girl.Do you know how long one would need to wait to get a tattoo? Lemon, you in? LOL! How is your trip going? Ok so I better get off the computer. I am having the sleepless pre surgery thing going on this week. Brain busy doing what it does.....spin, spin, and repeat. We leave on Thursday morning for a Friday morning surgery. AK!!! 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    I have heard they want you to wait 5 months for nipple tattoos, so maybe the same length of time for tummy scar too?  I guess they want the scars to be completely mature.  I have something else I want to show you.  I will send the pics and the explanation tomorrow  since you are going to bed now anyway.

  • GeorgieGirlKC
    GeorgieGirlKC Member Posts: 132
    edited August 2014

    Oh still not sleeping...moved to the couch not to disturb DH. Ate some rice and watching some bad t.v. So I found this awesome document on breast reconstruction planner that had a lot of stuff we've discussed on the board, condensed in one place! Thought I'd share. Goldie looking forward to your follow up post tomorrow. :)

    http://www.bradayusa.org/Documents/breast-reconstruction/breast-reconstruction-recovery-guide-planner.pdf

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    Oh Georgie, we both have insomnia!!!!  You have it from nerves, and  I have it from withdrawal from anesthesia.  I sleep most of yesterday and a lot today, so I am wide wake now.  So, I will post the pics and explain.  The two pictures I am going to post are of a woman who had breast implant reconstruction and wanted to get rid of the redness of her scars.  She had a laser used on the scars called the V-Beam laser.  I have had some experience with laser's through a friend of mine who is in the skin care business, and I have had V-beam done on some red imperfections (broken blood vessels) on my face. This laser is amazing for red imperfectiions. The two pics are the before and after one treatment.  There is a dermatologist in my area who has one of these machines (not to many around because they are expensive), and he trained with the top guy at NYU.  I have talked to him, and he is willing to work on my scars when the time comes. So, here are the pics. The results are impressive.

    image

    image

    I inserted them backwards.  The top one is the "after" pic.  One more treatment and the scars will be gone.  Now, I don't know if insurance will pay for this, but all they can say is no.  I know of women on this forum who have had their PS's do laser on them after their stage 2's, so......

    Of course, there are really generous surgeons that do stuff for their patients that they don't charge for, but because they were breast cancer patients they do it out of kindness of their hearts.  Wish there were more of those. 

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited August 2014

    on my way to hospital. Thanks all for the well wishes. I can't wait to see wilber

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited August 2014

    Thinking of you Sweetie!

    OK - I had a complete hysterectomy with ovaries removed at 44 yr, and it triggered menopause within days. My OB put me on Premarin (common HRT). Five years later DX with BC in right breast 2013 and left breast 2014.

    My OB never discussed possible issues, and I had no one in my life who went through BC.

    I believe the HRT triggered the BC.

    If anyone wants more info, just let me know.

    Lisa

  • annieb4
    annieb4 Member Posts: 106
    edited August 2014

    Good Luck to you Sweetie..

    So, I had a partial hysterectomy at age 40. Was OK with the hot flashes and what not. Then menopause around 5 years ago, and the hot flashes drove me nuts. Was put on Premarin also...Now dealing with BC.. makes you wonder doesn't it??

    And Goldie...those scars after laser have amazing results.!!!!!!!!!!!

  • Sarahbb
    Sarahbb Member Posts: 50
    edited August 2014

    Hi ladies thank you all so much for adding your input about the early menopause situation and the link between hormone replacement therapy to breast-cancer, this is the reason why I'm planning to not only remove my reproductive organs but also to remove my breasts prophylactically so that I can take some sort of hormone replacement therapy I definitely know that being the person I am I will probably have all of the bad menopause symptoms and I really want to try to avoid them if at all possible.  

    Kanada: good luck on your bone density test I hope everything works out in your favor!

    Sweetie: Good luck! 

  • Shine14
    Shine14 Member Posts: 25
    edited August 2014

    Hi Ladies! Sorry I have not been updating. Doing great but the past few days have gone by in a bit of a blur. My mom left Friday and my big sis arrived that afternoon. She and I have a great time together, but laughing is a bit difficult! I sound like a pressure release valve - chhhhhhhh. I keep saying that the laughing hurts on the outside, but all those endorphins are working wonders on my insides. :) She leaves tomorrow and my twin arrives in the afternoon. I am loving all this attention! I will agree with whoever said that recovery is not so much painful, as exhausting, and having my family here attending to me has been a rare treat. The ATP tennis tournament is in Cincinnati this week so my goal is to attend the semis and the finals this weekend. Nice to have something to work towards! My husband says they can wheel me to our seats if needed, but I would rather walk on my own. I am building my endurance, with the main issue being my back because PS doesn't want me standing fully upright yet.  Hopefully by the end of the week, I will be doing better.

    I got 3 / 4 of my drains out last week and get #4 out tomorrow morning. Yay! my visit with PS on Saturday went great. His words "you will not have a wound healing issue" have made me so much more relaxed about moving around. He said my stage 2 should be able to be done in one operation, probably in November. So all good news!

    I love the Ken Doll effect! Iowagirl, did you come up with that? In the hospital, I looked down and saw it and thought, that is unexpected! But it comes and goes. My PS said I could wear a spanx like garment to compress swelling. I wore it for a few hours yesterday, but am afraid that I will start to depend on it for support. Has anyone else felt like that?

    Optimi - so glad to hear about your clear PET scan! Hooray!!

    Sweetie - thinking about you today! I hope you and Wilbur get along better than we did. :)

    Goldie - I hope you are doing well today!  That inframammory flap sounds interesting. 

    Vballmom - good luck on Wednesday!!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2014

    I don't know what exactly causes the Ken doll, the pulling of the skin tight over the pubic bone, or actual swelling, or both. If my pubic hair would grow back mine would not be that noticeable.  Did anybody else have this issue with the hair not growing back.  It was getting thinner with menopause, but now it's just about gone.  I remember when I was younger and helping my MIL shower when she was ill and thinking that must happen when you are really old.  But, here I am, not "really" old, and it's gone. 

    Shine, you are so lucky to have siblings to come help you. I only have my brother and he sent flowers, and I got a phone call, or two, but no prolonged visits.  Sister's are the best.  Thank goodness for my girlfriends.  And, yes....laughter is the best medicine!!!! 

  • aff
    aff Member Posts: 279
    edited August 2014

    Shine - sounds like you are doing great! Really happy for you. I wore compression round the clock for 6 weeks. The binder was so uncomfortable so I bought these great tanks from Walmart. No compression on the breast but very firm compression from under the breast down to hips. I just could not walk around without compression until week 6 or 7. I am just over 8 weeks post surgery and have only recently been comfortable without compression.

    Hope everyone had a great weekend. I'm down to the final 5 radiation treatments. Next Monday will be my last. I cannot wait!!!!

  • jmb5
    jmb5 Member Posts: 532
    edited August 2014


    Shine, Glad you're doing well. Yay for getting the last drain out!! :)

    goldie, I like the tattoo you posted. If I get one, I'd want it to be as dainty as possible, and still cover the scar. I don't like the really thick, heavy looking ones. You're right, my PS hasn't done any scar revisions yet. I asked her about it because I hate how high my hairline is, and she said she wanted to wait many months to see if it went down over time. Well, it's been almost 7 months, and it hasn't moved at all. I have a check-up next week, so I will ask about it. I will hopefully be scheduling my stage 3 then. I'm hoping to fix one last spot on my radiated breast... it needs a little more fat grafting, and also a little lift on the right breast which is a little larger and hangs down farther. A part of me feels like I'm being picky, but I figure I might as well get them as perfect as I can before my yearly deductible is up. This will be it though. I'm not interested in a stage 4. Hopefully I can do the scar revision too, and then all I have left is nipple tattoos this fall.

  • LAstar
    LAstar Member Posts: 1,574
    edited August 2014

    Sarahbb, I don't know if HRT is recommended even after surgery. We still have a small amount of breast tissue even after BMX.  My naturopathic oncologist recommended no hormone-related treatments for me since my DCIS was estrogen-positive.  Even progesterone is not recommended because, according to her, the body may be able to change it to estrogen.  Best wishes sorting this all out!   It is a confusing process!

  • Teacher64
    Teacher64 Member Posts: 840
    edited August 2014

    Home from getting ultrasound treatment to break up some of the scar tissue that had formed the huge ball like bulge on my side. I may have to have another treatment if massage doesn't break up more. No reason why it developed on just one side because I've been massaging both the same. I was so relieved that there was a painless remedy. I was afraid of the unknown because I had no idea what it was or how to deal with it. More massage and the binder 24/7 until all bruising and the bulge is gone. At the snail's pace the bruising is disappearing, there will probably be several more super moons before I'm free!

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