MIDDLE-AGED WOMEN 40-60ish

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    glennie,  If you are like me, you can tell the difference in your FM if you have been lucky enough to get a good night's sleep.  I really feel it is at the root of our health.  One of the most basic foundations.

  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    SLEEP is the NO 1 benefit for FM!!!!! I sleep at least 10 hours a night and must nap a lot. If I don`t get that rest I am useless. My kids get it and have for years. Once when my son was performing in another city he arranged a hotel room for me so I could rest after work before I saw his act. Gotta love èm when they get it!!!!

  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    yes, i can tell the difference when I get good sleep and I don't.   Do any of you take sleep aids, and if so, what?  I took Ambien years ago,, but I became dependent on it and had a hard time getting off of it. I don't want to do that again.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    Melatonin. Use 15-25 mgs and it`s a natural sleep aid. Doesn`t always work, but it helps.

  • Brwneyedgirl
    Brwneyedgirl Member Posts: 113
    edited August 2014

    Dallas I worked through 6 rounds of chemo.  I will say the first round and the 5th were the worst. Felt cruddy most of the time, but it was good for me to get out of the house.  Everyone has to do what works for them.  

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    I agree, Elimar, I think when your body and mind are under stress, these things can settle in. I have been trying to deal with stress management for years, but I am a work in progress. When I told my mom I was going to have a double mastectomy and was worried about all of the discomfort, she said well don't worry, I have pain in my thumb from arthritis sometimes, you'll be fine. Now after my 3rd diagnosis, I told her I need to avoid stress, she said, you what about me? Story of our relationship. Barbie, you also have so much on your plate, I sometimes wonder how many straws we camels can handle. My DH has been pretty supportive through most, but I handled everything so well in the past, I don't think he knows what to do with the fact that I am so much more upset this time. Thinking of you Barbie, hope things turn around for you soon. Stephanie

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    Glennie, Barbie and Elimar, so true, I have not slept well in years. Finally agreed to take meds in Nov. after my MIL's dementia diagnosis. I was taking 25 milligrams of Trasadone, off label for sleep. It worked great and I was getting 8 hours for the first time in years. My fibro was doing well. Then with this new diagnosis, I am not sleeping again, on the insomniac thread at 3 or 4 am LOL. I think I will ask my RO about melatonin tomorrow. It is supposed to be good for breast cancer.

  • justamy
    justamy Member Posts: 532
    edited August 2014

    i do not sleep over 3 hours a night without meds. I have tried over the counter and they worked but left me really sleepy in the morning. I now take trazadone specifically for sleep but I take buspar, seroquel and klonopin as well for depression and anxiety and they all make me sleepy too. I have a really high tolerance for meds so it takes a lot. Ambien only worked for 2 weeks then no luck. Trazadone or ambien both work well for most people.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    I have some of those meds justamy and find that I wake up stupid. I need a clear head for my job and just can`t get used to the erratic times I take them. I wonder if I took them all the time if I would get used to them and not feel dopey or if they just wouldn`t work anymore? In Canada we have Immovane which is fabulous. It`s the OTHER blue pill and a lot of people don`t like the back-taste when you swallow it but it works great. I try to only use it when I have a big appointment the next day at work, but found the last couple of times didn`t work so I`ve gone off them for a while to let my body lose it`s resistance. Right now I am washing down a couple of ounces of Scotch and I haven`t had alcohol since my diagnosis!! Extreme times call for extreme measures....

    As for Melatonin, you can get it off the shelves in Walmart, no prescription. They are tiny, tiny white 5 mg pills and you take more until you find the amount that works for you.

  • justamy
    justamy Member Posts: 532
    edited August 2014

    i would say the "waking up stupid" is partly because you don't take them all of the time and also could be the dosage. If I take too much seroquel, it does that to me too. That is why my doc cut it back and added trazadone. I've been doing the depression/anxiety/insomnia med shuffle for about 18 years so I've been on lots of combos. I don't work so that makes it easier but klonopin or ativan are the best for the next morning. Hope you get some good sleep soon.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    For sleeping (and I really want to avoid the heavier meds,) I do use a 3 mg. melatonin.  Now that I am not on Tamox., I guess I could use the diphenhydramine tabs.  Generic ones are cheap.  That is what is in Benadryl, but without the antihistamine.

    Sleep is a topic that comes up over and over again.  Lack of it is a real plague in the Mid years too.  It is funny that when we read those lists of things we could change in our lifestyles to lower cancer risk, getting more and better sleep rarely gets mentioned.  I have no proof, just an intuitive sense that sleep is one of the biggest foundations to our health.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    I agree! Our bodies heal while we sleep. If we don`t go deep enough, we don`t get that healing...I had a sleep study done and it proved I don`t go to the deepest level, but no one commented on that part! I read it in the report and wondered why they skipped that as not being so important???

  • barsco1963
    barsco1963 Member Posts: 2,119
    edited August 2014

    OK ladies - need you to jump in the pocket tomorrow - bright and early! Having a bone scan as there are a couple of areas of concern. Hoping that someone maybe has access to the Magic School Bus (remember that kid's show?) and can get a few of you in to see just what is going on. Maybe bring some lasers to zap any nasty looking spots!

    image

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited August 2014

    We'll be there Barsco

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    Bringing the bus around!!! 

    (tried to find a bus but could only find this rocket ship!!)

    image

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited August 2014
  • justamy
    justamy Member Posts: 532
    edited August 2014

    Had MRI guided biopsy on lefty today. Righty's the reason for treatment for now. Anyway I was soooo glad I took an extra klonopin! I was fine w the anxiety. It took extra long because they messed up and had to redo part of the scan...it took almost 2 hours...ugh....anyway that's over. I will get results Wed.

    Tomorrow I go get my port placed. Then I'm done till Chemo starts on the 21st. Do you guys find it strange that they are doing my chemo education on the day of my first infusion? I wonder how I am supposed to know what to do prior to the first day? Like meds not to take etc...I guess I will give them a call and find out?

  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    justamy I do find that strange. I had to go in a few days ahead of time. For Taxol they just ran over a few things at my last A/C infusion. Nothing like the "class" I had for A/C. 

  • justamy
    justamy Member Posts: 532
    edited August 2014

    Im going to check into it tomorrow. It is a one on one class but strange that its on the same day. I'd hate to get there and have done something that would prevent me from getting my first infusion.

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited August 2014

    Barsco - All Aboard (in my best conductor's voice). Don't think I will be disappointed about not being stuck in the pocket corner. Plenty of room for all of us.

    image

    Amy there is a big thread about getting ready for chemo. I think the thread header has most of the info though certainly not discounting the posts. Just all the posts might be a little overwhelming at this point. And we can ride the same bus to Amy's for her port placement.

    https://community.breastcancer.org/forum/69/topic/...

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    Barsco, will definitely hop to it tomorrow!

    justamy, yes, do be proactive and call them.  I was not on any oral meds, so cannot recall any certain instruction.  At some point I was told no NSAIDs, but that might have been pre-surgery.  I haven't put this up in a while, but in the case of drugs/meds, I always like to check drugs.com for interactions.

    Welcome, chipmunk57!

  • glennie19
    glennie19 Member Posts: 6,398
    edited August 2014

    on the bus too.  

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2014

    Barsco--I
    remember the Magic School Bus!Great
    show, and hopefully available for you today!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2014

    Lie still & don't jostle me, Barsco, I'm here with my cup of tea.  I've brought some breakfast tarts for us all and some crumpets for me. 

    image            image

  • staynsane
    staynsane Member Posts: 213
    edited August 2014

    I'm in too, Barsco, but man, it's packed in here!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    Those look more like English muffins, e....just sayin'....

  • Tomboy
    Tomboy Member Posts: 3,945
    edited August 2014

    late to the bus, so i'll have to stand, but i'm here for you too, Bars!

  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    Standing with you kathec - all aboard!

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited August 2014

    Gosh Eli whatever those things are they look yummers!

    Hoping to hear from you soon Barsco.

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