Can I ask how many of you did both chemotherapy and radiation?

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I'm just curious.  I have to do both and am worried about all these things being done to my body and long term side effects from them.

Thanks,

Nancy

Comments

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2014

    Nancy, I did both chemo and radiation.  I trusted my team of physicians, and had they told me to eat lye soap I probably would have done it.  My diagnosis was such that they wanted to throw the kitchen sink at it, and so did I.

    Who knows who, why, or when someone gets recurrence or mets, but I didn't want to be there saying, "I wish I hadn't turned down that treatment!" 

    But we're all different.  Your "inner physician" frequently has good guidance.

  • inks
    inks Member Posts: 746
    edited August 2014

    I did both. Chemo is for distant recurrence (somewhere else in the body), radiation is for local recurrence (in breast, chest wall, nodes close to breast). Neither of these treatments are recommended without a good reason. They both can leave lasting side effects. You should weigh the risks and benefits of both treatments with your doctor based on your health history.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    I'm doing both - better to be safe then sorry. I've been told mine is for insurance. 

  • Kay_G
    Kay_G Member Posts: 3,345
    edited August 2014

    many people do both.  As inks said chemotherapy is to prevent distant recurrence, radiation is to prevent local recurrence.  I did both as well as a mastectomy, but I know I did everything that was recommended and that I could to prevent cancer from coming back.  It helps me to sleep at night.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2014

    Nancy, I did both and I am doing fine. Although everyone is different, my side effects were minimal and manageable through both. Hopefully no surprises down the road! If you have under-lying conditions, of course, take those into consideration, also. We all have to do what we think is best! Check on the chemo/rads forums and you will get some good advice as you go through treatments. Good luck. 

  • edwards750
    edwards750 Member Posts: 3,761
    edited August 2014

    Nancy- I did Rads only- 33 to be exact. No real SEs except fatigue halfway through and a bit of burning. I had the Oncotype test done to determine treatment because I had a micromet in my SN and my ONC was ambivalent about treatment so she ordered the test. My score was 11- low - so no chemo -  just radiation. My ONC never considered my doing both - it was one or the other. I am Stage 2, Grade 1 IDC. 

    There are short and long term SEs to both. I never considered not doing radiation because as others have said I too wanted to do whatever was necessary to prevent a recurrence, 

    It's your call, just be sure you don't second guess yourself. Don't look back either. 

    You may be one of the lucky ones who has minimal SEs. 

    Good luck!

    Diane 

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    I have already started chemo and it got changed.  It was TAC and I didn't handle it well nor did my WBC.  They dropped to .7 .  I was given the neulasta shot and it didn't kick in until week 2.  Then my WBC was 13.  My MO said I should do AC +T and she felt the taxotere caused most of the side effects.  I am also Stage IIb, grade 1.  Had one lymph node involved and LVI.  Tumor was 2.8 cm.  I did a lumpectomy because everybody thought it hadn't gone to the lymph nodes.  Wrong.  I'm just wondering if I had done a mastectomy if I could have skipped radiation.  I do want to do all that I can to make sure this damn disease doesn't come back.  My MO didn't do the Onco test on me.  She said because I was premenopausal that phase of the test was in the clinical trials.  However, I have heard people get it anyway regardless.  

    Nancy

  • tangandchris
    tangandchris Member Posts: 1,855
    edited August 2014


    Hi nancy-

    Sorry that you've had trouble with chemo already. I just finished TAC 6/17/14 and I'm currently doing rads. I've completed 19 of 33 and so far rads has been much easier than chemo. I'm talking SE's....as far as long term issues there is always the chance that could be an issue.

    From what I was told radiation was neccesary for me because I had node involvement. You should talk to your doctor obvsioiusly to be sure :)

  • inks
    inks Member Posts: 746
    edited August 2014

    Nancy - I wonder if your doctor decided no oncotype test and in favor of chemo based on the LVI. I had a mastectomy but ended up needing radiation anyways because of the LVI, multifocal/multicentric and  one lymph node. Some people need radiation after mastectomy because the tumor was too close to the chest wall. Having a mastectomy does not automatically mean that you get to skip radiation. Could you ask your doctor that if you did a mastectomy after chemo would that let you skip radiation?

    I wish they would have given you Neulasta to begin with. So sorry you felt so lousy. I hope the rest of it goes better since you'll get the Neulasta. For me radiation was not as bad as chemo and if needed I would do it all over again. I hope the rest of your treatment is easier on you!

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited August 2014

    Nancy, I did both because I wanted to throw everything at it...if I hadn't and got a recurrence, I would feel terrible.  Its still possible to have a recurrence but not because I didn't throw everything at it.  BTW, I have had no long term side effects.

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2014

    Remember that our DXs are not the same thus TX plans are didferent.

    I did 4 DD A/C neoadjuvant (before surgery), 12 weekly Taxol adjuvant (post surgery) then 25 rads.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2014

    I did chemo, surgery, BMX, and rads. I wanted to do any and everything I could to kill it. I didn't want to second guess myself, or play the what if game. Currently on Arimadex. 

    So far no long term side effects, damage, or reoccurrence. I'm almost 2 years out. I don't think about it every day, and sleep well. 

    It is scarey at the beginning. Just remember the light at the end of the tunnel ISNT a train!

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    I just hope my MO is right.  She said that AC + T would be easier on me than TAC (and the T is taxotere onco felt that caused all the problems). She is finding that younger women (ha I'm 51 not young) have a harder time with it.  I thought about asking her if I had a mastectomy after chemo if I could skip rads, but I'm not sure I want to do that either.  I also want to make sure I do everything possible so I can sleep at night.  I just worry about all this crap being done to my body.  I walk my dogs every day twice a day.  I love my dogs and if I can't walk them it would destroy me.

    Nancy

    Do you think my WBC won't drop as much with just AC as it did with TAC?  I think my WBC of .7 scared my MO because she immediately wanted to change my treatment plus I had some pretty severe stomach pains.

  • Sparkle2014
    Sparkle2014 Member Posts: 139
    edited August 2014

    Hi Nancy - I had MX on Right (am 42 yrs old) - had 1.1 cm tumor - upper outer quadrant but not too close to chest wall so that was good and DCIS in rt breast tissue too - I am 6 weeks out - have the expander pocket in and it is getting more tolerable as time goes by

    I have too many skin reactions, sensitive, fragile, thin skin and circulation issues (rheynaud;s) - Radiation would have most likely burned me - I was leaning to MX anyways - rather get the dense - hard to monitor tissue out and more peace of mind..  yes I will have a fake breast but if had lumpectomy would have needed to get it worked on to match Left side anyways - it is such a personal decision however - you can make appointment with the Radiation Oncologist that works with your breast surgeon at the hospital you are being treated at - he/she can go over how you may do if you got 6 weeks radiation - and then you decide if want the full MX - that appointment in my own case was a turning point which sealed the deal - I left there - called my sister and said - it's official Mastectomy is my plan - that was just confirmed and now no need to fret over which surgery to do,,, 

    and also you can ask your hospital's nurse navigator to put you in contact with local women who have gotten it so you can maybe meet some women - from what I have heard - many people tolerate Radiation fairly well however it is 5 days week - takes about 5 - 10 mins and it is a place you must go those 5 days week - and that can be emotionally draining - weigh the options - and fatigue mid way through - make your list questions and find out what you have questions about and then go from there, this board is great place to gather info (I just knew Radiation for a person who has very fragile, sensitive, over reacting skin and all and Rheynaud's, that I should check first before saying sign me up)

    I have to deal with the reconstruction process and starting Tamoxifen (scared to) and my road will take another 6 months at least if not maybe even almost a year to heal and be done with surgeries...  but for me I prefer that vs lump/radiation and having that dense difficult to read type of breast tissue still in me...  everyone is different, each of us has our own beliefs and I wish you much success in making the decision that you feel would be right for you and hope that you will do very well with the choices you make,  be well,

  • muska
    muska Member Posts: 1,195
    edited August 2014

    Hi Nancy,

    I did both and stayed active through both treatments. I think it's good you have dogs to walk - this will help to get you out and light exercise like walking is beneficial to both body and mind.

    Good luck!

  • Homa2005
    Homa2005 Member Posts: 1
    edited August 2014

    Dear Nancy,

    I had both chemotherapy and radiation.I am not going to tell you that it was a walk in the park for me.

    I think it depends. Some people do well and some don't. But guess what, both groups get through it.

    I became a different person after my cancer and I thank my cancer for this.

    I know it won't make sense to you but go for it. Be strong and know that this shall pass too.

    Life is worth going through chemo and radiation for it.You owe it to yourself,your family and friends,You will be just fine.

    I had two separate cancers at the same time and it was tough.But I am happy and grateful because now I appreciate the real value of life.

    I don't take anything for granted.

    If there is anything and I mean anything that I can do for you, Please let me know, I have been a survivor for 9 years,

    If I can share anything with you that would make you stronger, that is my reward.

    I love to help you in any way I can.

    Take Care and Be Strong!

    Homa

  • jetgal23
    jetgal23 Member Posts: 44
    edited August 2014

    Hi Nancy -

    I started chemo last Wednesday so its now day 5 for me, with a neulasta shot on Friday.  Saturday and Sunday were tough but only because I was flushed and having low grade fevers.  Minor aches, but I'm usually quite healthy so its a very strange feeling and hard to know if this is "normal".  I did call a Dr as my fever shot to 110.5 but because I did not have chills or major aches, he said to wait a little bit.  Feeling better today but I took an Alleve at 9am and have been outside and generally trying to do some small things (like get my hair cut super short, its not a problem for me.) So what I've learned here and reading what is going on with others is that 1) everyone is very different so don't compare yourself to anyone,2) talk to your doctors primarily if you have any question, and 3) go with what you feel is best.  I had the oncotype test which scored 21 (mid-range) and then had Mammaprint which yielded high risk luminal (but a high prognosis with chemo, rads and hormone blocker). I'm doing everything I can to beat this, and that means keeping myself informed but not TOO informed.  My chemo nurse told me to wait and see how I felt after treatment rather than start something before then, and she was right.  I'm not having some of the pain that others have so I'd rather wait until I feel something and then address it.  Wierd though, I have no real nausea but I'm hungry! I feel like I'm burning up and my motor is running...so I need to eat small meals frequently, and drink a lot! You'll make the right decision...!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2014

    I did both (plus 5  years of Arimidex). Chemo was very yucky, but I had no long term bad side effects from it. I found radiation to be much, much easier and had no long term bad side effects from it either. I figured one really hard year was worth it to have a better chance of living a long, long, cancer-free life in the future.....and that has worked out well for me so far (knocking on wood as I type!) As mentioned above, if you can force yourself to get in a little exercise during treatment, it may help you get through treatment a little easier & will, for sure, help you bounce back better once you are done.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2014

    thanks to everyone.  I'm doing both.  Just had my second round of AC.  Felt pretty awful on day 3 and part of day 4, but snapped out of it.  Back to normal now and don't have to do chemo for 2 weeks.  I wish it were the end of December as chemo would be over.  Patience is not one of my finer qualities.

    Nancy

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2014

    jetgal23 - Your temperature went up to 110.5?  That's not 'low grade' - that's 'death grade' without major medical intervention and possibly even with the best of intervention.  Did you mean 101.5?.

  • Chrissy26
    Chrissy26 Member Posts: 32
    edited August 2014

    I'm also doing both for insurance. 

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