February 2014 Starting Chemo Club

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  • lago
    lago Member Posts: 17,186
    edited July 2014

    Rosiesride and jbokland are either of you on Hormone therapy. The can cause stiffness (especially in the morning), muscle pain and bone pain. If this is starting weeks PFC that could be the cause. There are threads specific to the hormone therapy you are on. You might want to check them out.

  • princessrn
    princessrn Member Posts: 370
    edited July 2014

    jbok..hows rads going for you?  my fourth was today.

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited July 2014

    my feet hurt in the morning too but loosen up quickly after some movement and walking...but im not on hormone therapy due to TN. So who knows, right? This chemo really throws your body into a tizzy I think. THis is as far away from the probelm area as you can get...boobs to feet.First day of NO RADIATION! It was great not to have any medical appointments today

  • Rosiesride
    Rosiesride Member Posts: 513
    edited July 2014

    hey jbokland...I thought you finished right before me!  Sorry you are also still stiff and achy...but I guess it helps to know it may be normal...it's like I almost would rather not lay down for the night!!  I told my husband it feels like I am regressing back to chemo days!  Wonder when it goes away...hope life is good!  I have 11 more rads and then start back to teaching...looking forward to getting back to my old life!  Doing more fun things too! Thanks for the info...Rosie

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    No hormone therapy yet !

    I've had treatment 14/33 today.  So far no problems.   My radiated, deflated foob feels a little tighter.  

    I have not notice any increase fatigue.   Saw the RO today and he feels if any issues start would be evident next week 

    FINGERS CROSSED!

  • gatorgal89
    gatorgal89 Member Posts: 56
    edited July 2014

    Rosie & Jbok...so glad you brought this up! I'm 10 weeks PFC and was just saying today that I think the pain is getting worse! Definitely evident in the morning in the feet, legs, and knees or after I sit in the same spot for too long. Now, the past few nights my shoulders and neck hurt after I lay down and then try to change positions when I first go to sleep at night. I was thinking it might must still be fluid because when I get up and move around in all cases, I'm fine. At first I explained my leg pain away because I have been riding my bike a lot more, but the neck thing makes no sense to me.

  • Rosiesride
    Rosiesride Member Posts: 513
    edited July 2014

    gatorgal...sorry you also have this but your symptoms are mine too!  I have always had neck issues but in bed shoulders, back and neck also are bothersome and I am very careful about turning!

     I was walking in our pool awhile ago and when the leg pain started I thought it was that exercise so I stopped.  Now I also feel that if I sit too long I have more discomfort...went for a walk on the beach last night but not too long.  Well, between the 3 of us maybe we can find answers...I may go to my MO and ask about it...the RO said it could take a few weeks to afew months ...REALLY? That's helpful...I am going to look into reflexology at a yoga center...massage for the feet and lower leg specifically.  Need to google that...will keep you posted!  Rosie

  • Rosiesride
    Rosiesride Member Posts: 513
    edited July 2014

    Lago...not on hormone therapy yet...that's another worry...will probably start right when I begin teaching! Uggg...Rosie 

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    I am very pleased to learn the YMCA offers a FREE program for cancer patients called Live Strong.  It 12 weeks of exercise, stretching and yoga!    I just signed up! 

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited July 2014

    jb, there's a Y that has it too but it's an hour away so not sure about wanting to drive. Read up on it and sounds good. Good for you. Can you start before finishing treatment? Let us know when you start and how it is

  • Rosiesride
    Rosiesride Member Posts: 513
    edited July 2014

    Lisaj...I pass my Y and the sign for live strong everyday on the way home from rads...but like you it's a long drive...45 minutes and I am almost finished (aug. 13) with rads so I can't drive that far for the program. I will be starting work after rads is done so I will have no free time!  It does sound awesome!! I am so done with driving downtown everyday!  Rosie

  • princessrn
    princessrn Member Posts: 370
    edited July 2014

    Jbok..I have a y near and will look into the program for the end of rads.  Thanks for the tip!

  • Sicilian
    Sicilian Member Posts: 49
    edited August 2014

    Hi, all! Hope you're all doing well. Finished treatments on July 7th and just saw all my docs for follow-ups. All going well. I got a prescription for my hormone blocker today, anastrozole. Not looking forward to it after hearing all the side effects, but what choice do we have? I have my mammography and bone density next month.

    Although I thought chemo was tough, I hated radiation. Got some really nasty burns which a month later have finally almost fully healed. Went to FL for a nice getaway with my hubby and a few weeks ago our daughter got engaged! They're not planning on getting married for two more years, though.

    Best wishes to all!

  • lago
    lago Member Posts: 17,186
    edited August 2014

    Yay Sicilian! FYI my first 2 years on Anastrozole was not bad at all. The 3rd year I got very depressed so I switch to Exemestane. I feel great! Many women just do fine with it though. Remember most post about bad SE. I was so scared too… more scared than chemo but I'm still doing the ESD (Estrogen Sucking Drug) and I feel fine!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited August 2014

    Sicilian...YAY FOR FINISHING!  I sure did hate chemo but rads was no walk in the park...super burned as well...took a 7 day break after 13 and now I finishedd 12 whole breast and am burned again...only 4 boosts left!  I am also worried about the drug MO will put me on...will know on my next appointment which will be soon.  Congrats on DD engagement! Happy times! Rosie

  • Jules_NY
    Jules_NY Member Posts: 276
    edited August 2014

    Congrats Sicilian!!!!!!! Woohoo

    Having my MX tomorrow. Not excited. Hubby and I just checked into a hotel in NYC that gives discounts to pts of the cancer center I go to. One last night on the town with the girls as a pair!!!! And we got a free upgrade to a suite!! Cancer perks!! Lol

  • lago
    lago Member Posts: 17,186
    edited August 2014

    Good Luck Jules. I know, it's so surreal. My "last supper" was at our favorite French Bistro. We had Orange duck for 2 and I started of with mussels in white wine and cream broth… and of course I had a glass of wine.

    So be sure to have something good. 

  • gatorgal89
    gatorgal89 Member Posts: 56
    edited August 2014

    Well...I went back to work on Friday!  People were very welcoming when I first arrived, but as the day went on, I found myself pretty isolated. What have your experiences been? I did not realize how focused on myself I had been until I got back to work and tried to remember what exactly my job entails. It's difficult not to become overwhelmed.

  • jbokland
    jbokland Member Posts: 890
    edited August 2014

    Jules

    Best wishes!!!! Enjoy your suite, you deserve it!  You will be fine !

  • Jules_NY
    Jules_NY Member Posts: 276
    edited August 2014

    Thanks ladies!!!!!

    Gatorgirl, I worked throughout chemo on an altered schedule but went back to nights and full time for one week before I go out for surgery. It was weird and welcoming all at once. This was the welcome I got from the night staff who I haven't seen since Feb...

    image

  • lago
    lago Member Posts: 17,186
    edited August 2014

    Love this photo. You look great. Oh and  I'll post it: Fuck Cancer!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited August 2014

    haha...Lago...got that right!!  Jules...good thoughts are with you!

    Gatorgal...I am finishing up rads and slowly getting back into the school/work routine of teaching although we don't officially start workdays until august 19 and kids come on the 25 th.  My school family were some of my greatest supporters during the past 8 months and I am blessed.  

    The problem I am having is dealing with the everyday things people say and do...I guess it's about the change we have been through and, for me, I am not the same person before bc.  I guess it's a transformation...I don't have patience for the stupid things people say or the whiners...that's going to be difficult to be around but gotta get back into the real world at some point!!  Rosie

  • lago
    lago Member Posts: 17,186
    edited August 2014

    Rosiesride at one time we worried and complained about stupid things too. Just ignore them… you have more important things to focus on!

  • jbokland
    jbokland Member Posts: 890
    edited August 2014

    So true!  I looked down at my damaged nails and started to complain....then I stopped.  After all my body has been through and the worst of the collateral damage is some funky nails and sore heels when I get up........BFD!!!   I am GRATEFUL for my  eyebrows and eyelashes that are growing...They don't look quite like the ones I used to have, but what the hell, I will just reinvent myself a bit!

    Has anyone noticed their sense of smell has become highly acute?  Its crazy, I'm like a hound dog.  Every time I open the fridge or the pantry, I say 'something smells bad/sour/strong', but no one else smells it.   I walked into someone's house that my wife said had a 'hint' of cigarette smoke, to me it was overwhelming!

  • princessrn
    princessrn Member Posts: 370
    edited August 2014

    jb. How's rads?? I'm on 11/30. Suntanned looking. Not pain yet. 

  • jbokland
    jbokland Member Posts: 890
    edited August 2014

    Red color bone, but no pain. Freckles and dots galore! My radiated TE is high and tight, just as I was warned. I had 23/28 today, followed by 5 boosts.   Home stretch!!!

  • princessrn
    princessrn Member Posts: 370
    edited August 2014

    all right!!  Keep rockin it!

  • Jules_NY
    Jules_NY Member Posts: 276
    edited August 2014

    And I'm home! And so glad my surgery is over! Feeling pretty god. But that has a lot to do with no TE's. My surgery got bumped to 4pm. That wasn't fun. But its all over now! Thanksfor the best wishes!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited August 2014

    wow Jules!  Glad it's over but you are on the computer already?? Speedy recovery to you! Rosie

  • Jules_NY
    Jules_NY Member Posts: 276
    edited August 2014

    Rosie I'm in bed in the ipad! But I feel pretty good. Only a UMX with no TE's. I'll have my prophylactic MX on the right at the time of recon next spring. Oh and the kids took the news like champs. My 5 year old had to be reminded of why I was gping through all this. But my 7 year old asked a few questions he saw the incision site and drains on my armpit side and then asked to have a snack and go in the pool! 

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