Pretty sure dealing with insurance not supposed to make you sick

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Baballou
Baballou Member Posts: 15

I'm serious!  I missed alot of work this week because the only time I can deal with insurance issues is during work hours.  There is something fundamentally wrong with making people sick with cancer have to deal with insurance issues.  The whole thing has me so upset hat I am taking medication for the stress - and it's still not resolved.

It should be illegal to deny beneifts to someone in active cancer treatment  without taking at least five minutes to pick up the phone and make sure you have the facts straight and/or have all of the needed information.  

I got the denial last Friday at 5:30 pm and suffered over the decision all weekend, then spent the whole work week trying to resolve it, and am now back to suffering through the weekend with no resolution.

I could sure use some encouragement!

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2014

    Sorry you are dealing with insurance headaches - it is indeed difficult when already feeling vulnerable and stressed from treatment. Do you feel like sharing the specifics of the problem? some with direct similar experience may be able to help. Many of us had denials during treatment and can advise.

  • MameMe
    MameMe Member Posts: 425
    edited July 2014

    I, too, would dearly love to hear some techniques for success in getting insurance auths. 

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2014

    mameme - do you also have a specific denial you need to address?  It can often be issue specific.

  • Baballou
    Baballou Member Posts: 15
    edited July 2014

    I'm afraid to write too specifically about it publicly until it is resolved. 

    My PCP (who is a hundred miles away and hasn't seen me in three years) dutifully submitted the request (brief one page form) and absent any reason to approve it it got denied.  The insurance company doesn't have ANY information about my healthcare (it's true!  no medical records are available to the person who decides), no any idea why I need treatment that is not exactly what everyone else goes along with, no idea of the medical journal articles I've studied and the basis for wanting something slightly different AND to top it off: the provider I chose is out of network.The only way to prove that there isn't someone in network who would provide the same treatment would be to call each of them, ask questions, set up an appointment, order medical records, discuss with them and then try to persuade them to do something not usual (that's how I got the one provider that I did get).  I work full time.  I can't be messing around about this any more than I already have.

    I'm upset that there is no one to stand up for me and say "you are making this woman sicker by putting her through this!  What she wants saves your company money so why can't you just approve it?"   Instead, my friends and family tell me to calm down because cancer patients need to avoid stress.  The only thing that makes me angrier is imagining going back to the onc doc who was originally so dismissive and rude and having him give me standard treatment.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2014

    Ask for the provider who is willing to do the treatment you desire to do a peer to peer review with your insurance company. He/she can discuss the merits of this treatment with whoever is the approving contact. If you are asking for treatment that is outside the standard of care for most insurance companies, it would not be unusual for it to be denied. I had one diagnostic test denied because my insurance company felt it was "experimental" even though it was FDA approved, but was able to get an out of network doc (plastic surgeon) even though there are in-network docs who do similar procedures, because he was the physician my surgeon preferred for the type of surgery I did have.

  • MameMe
    MameMe Member Posts: 425
    edited July 2014

    Thanks for the considerate offer of help. I am asking for a workup at a major cancer center, to add to the data I have at my rural oncology office. It could be called a second opinion, but it is also a way to get into their system for future clinical trials.

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited July 2014

    Mama - I have no idea, but it does sometimes seem that their jobs are to make things as difficult as possible. But I do believe a second opinion should be covered by most insurance companies, especially since you have had a significant change in your diagnosis recently.
    What did they say their reason for denial was?

    And, I am so sorry you have to deal with this

  • have2laugh
    have2laugh Member Posts: 132
    edited August 2014


    Could I suggest you ladies try contacting your insurance company and ask if they have case management available? These are usually RN's and they are assigned to specific types of illnesses-therefor more familiar with treatments and what may be needed for approvals. Very often the person you are speaking with at the insurance company is non-clinical and may not understand all the info you are giving them and may not know who to connect you to for more answers. It is aggravating to have to fight to get treatment or tests needed. I am an RN and I have gotten a lot of assistance from my case manager at BCBS. She knows the system. Best of luck to you both.

  • JulioAnn
    JulioAnn Member Posts: 2
    edited November 2014

    11/21/14

    What should I do if the insurance company won't pay for the breast MRI (which your doctor ordered)?

    1. Doctor ordered Breast MRI (for both breasts)

    2. I told nurse at doctor's office that I don't want the procedure unless I know it will be taken care of by my insurance company.

    3. Response from doctor's office: Procedure will be covered as long as the insurance company received a letter of medical necessity. The doctor's office submitted said letter to the insurance company.

    4. I had breast MRI

    5. Breast MRI was denied and I am stuck with a bill for $5,635

    6. I contact doctor's office and they submit a letter of appeal

    7. Insurance company denies doctor's appeal

    8. Insurance company requests copy of all of my medical records

    9. Doctor submitted my medical records

    10. Insurance company still denied payment

    11. I filed a complaint with the Illinois Insurance Board. They determined they couldn't be involved in the case or assist me in any way since the insurance company was based in Ohio

    12. Illinois Insurance Board submitted my case to the insurance board in Ohio.

    13. Reply of Insurance board in Ohio was a copy of the original denial letter from the insurance company

    All the while these steps were taking place, I continued to contact my doctor's office for their help. This was continually put back as my responsibility to take care of. I also was in contact with the billing department at the hospital where the breast MRI was done. Although a doctor in their hospital issued the diagnostic procedure and they told me it would be approved, the billing department staff kept telling me it was my responsibility to pay the bill. Yes, they offered a discount only if I would pay $3,000 in full. I was and am still not in a position to pay that amount at once. Even though I had been in communication with the hospital's billing department, the insurance company, and the doctor's office, my account was sent to collections. So that my credit rating wouldn't be gravely affected by this, I continued to pay monthly payments.

    In the past several months, I have told people I know about this situation. Everyone I have talked to (including medical personnel) about this in recent months have indicated that I should not have to pay for the breast MRI. I agree.

    Talking about this issue again has given me new courage to fight for a refund for what I have paid so far and for the hospital to zero out the balance of the remaining amount on the bill.

    I have since contacted my doctor's office and spoke to a nurse who wasn't working at the doctor's office at the time of when I had the breast MRI. I have written one letter to the doctor's office, the hospital billing department, and the collection agency. She agrees that I should have to pay for the procedure and has agreed to review the letter. I am grateful for that. I also asked her to reassess the codes that were used for the diagnostic procedure and that it may make sense for the doctor to have a peer-to-peer review (again) with a doctor at the insurance company.

    However, I am hoping I don't get lost in a perpetual loop of phone calls and finger pointing like what happened before.

    I am realistically optimistic that I will get my money back.

    I am writing here to share my experience and to ask if anyone else has had any success with getting their insurance company to pay.

    Thank you for listening.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited November 2014

    It makes me sick at heart to hear these accounts. I so hope that those of you in this situation get approved. Nobody should have to deal with this. My DH has an aneurysm (above his stomach) that is monitored from time to time to make sure it does not get worse. This year the insurance company have denied his MRI. His doctor is still trying to get it approved but DH is 65 and comes off my work insurance at the end of the year so we are hoping that it can be done once his insurance changes if not before. I reached my out of pocket with cancer treatments this year so I don't know if that makes them meaner.

  • vlnrph
    vlnrph Member Posts: 1,632
    edited November 2014

    Wow Julio that's quite a story. I had an almost similar situation last year and included a few details in a thread here called "Use Your State Insurance Commissioner's Department" (scroll down for it). Sounds like you tried and got very little help. I am truly sorry about that.

    I was able to file an appeal and go in person before a committee that included a lawyer & doctor as well as someone on the phone. I had a copy of the applicable policy and several journal articles supporting my case. Do not be intimidated by their bureaucracy. The only way these companies make money is by not covering claims. They love to deny benefits but it is possible to win.

    You are keeping good records and documenting all contacts. Get names and write down dates/times of calls. You may have a typo in the paragraph about the new nurse: hopefully she agrees you should NOT have to pay. Do you know how to edit a post in order to correct it?

  • April8
    April8 Member Posts: 65
    edited November 2014

    Hi all: I am having terrible problems post surgery with both doctors and ins co.

    1. Breast surgeon convinced me to have reduction when having bilateral lumpectomy. Went to plastic surgeon whose office said they will deal with ins co. Turns out that they are both out of network and according to ins co, didn't preauthorize surgery. He's looking for $30,000 from me!

    2. Then I receive a bill from a surgical assistant who plastic guy brought in (had no clue about this-never met this person). Out of network and not preauthorized-they are looking for $8,000.

    3. I'm really upset-can't afford this and didn't even want to have the reduction and I still have two holes under my Breast that won't close. Is there any recourse for this mess??



  • yikes1
    yikes1 Member Posts: 120
    edited November 2014

    Hi JulioAnn,

    So sorry you are dealing with such issues with getting MRI covered.

    I am not asking or suggesting you put anything public you are not comfortable doing, but...

    A big part of your situation is why was the B/L MRI done?

    If you have a diagnosis of breast cancer via another study, then it may make a difference and make this easier for you.

    What is the exact reason they are denying the MRI?

    If you have the exact procedure code and exact diagnosis code, then see if you can find on the insurance web site some written material on their coverage for those codes.

  • vlnrph
    vlnrph Member Posts: 1,632
    edited November 2014

    Yikes is correct - proper codes are very important.

    April, sounds like a horrible nightmare. I wonder if the hospital you used has a patient advocate/financial adviser or social worker who can help sort through your problem. I have heard of people billed by practitioners they've never met and had no idea were on their case: sometimes, even though the facility is approved, the services provided by their employees aren't...

    Meanwhile, open wounds need attention. Can you get a referral to a surgeon your insurance does cover?


  • vlnrph
    vlnrph Member Posts: 1,632
    edited October 2015

    bumping for hopeful 82014 - specialk always has good advice. If she doesn't see your post, you could send her a private message

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