Should it stay or should it go????

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DaughterofHER2
DaughterofHER2 Member Posts: 21
edited August 2014 in Benign Breast Conditions

  Hi everyone, old poster on the return....my mother passed from stage iv her2+ 2 years ago now at 48, I have had a lump examined via ultrasound 4mths ago they put down possible calcification or fibroademia, anyways noted the mass getting large had ultrasound today and it's quiet there and large Have Been Battling Weight Loss For A Year (PROB Stress From Losing My Only parent) ....no result or further testing just yet I'm 28 mother of 5 small kids just wondering if it's found to be a fibro should I opt for removal...read everywhere they dont turn but so worried as my mum was in remission and with a misdiagnoses of return passed 26days after diagnoses....fearful for my kids as they are old enough to know the effects of the C word...help PLEASE (Also No One Panic About My Mums Storys Her Dr just Got It Wrong) 

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  • DaughterofHER2
    DaughterofHER2 Member Posts: 21
    edited August 2014

    update since I originally wrote this....so I have two areas a 8mm ovoid hypoechoic and a 11mm (which 4mths ago was 1mm) one don't know the name but different after the Dr um'd and arr'd he decided just to do a follow up scan in 6mths (ultrasound report says due to age PROB fibroademia) feeling uneasy seeking second opinion tomorrow and now really worried 

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  • Jennie93
    Jennie93 Member Posts: 1,018
    edited August 2014

    It seems a bit odd that you would be told that it "looks like a fibroadenoma" and not confirm that with a biopsy.  I had a lump in the non-cancer breast and they biopsied it as soon as they found it.  Of course, I already had a history of cancer at that point.  Maybe that's the difference.  But personally, I don't think "watch and wait" is very reasonable given your family history. I agree you should get a second opinion.  

    Now, if you have the biopsy and find out for sure it's a fibroadenoma, then no need to worry about it.  That's what mine was, and they told me it's totally benign and cannot turn into cancer.  No reason to remove it.  They will put a "marker" in there that will show up on subsequent mammograms so they know what that lump is.  

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  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited August 2014

    So you've gone from a 1mm mass to 11mm in 4 months?  I'd go for the 2nd opinion.  Fibroadenomas can grow rapidly, but so can other things (phyllodes tumors come to mind, and can be hard to distinguish from a fibroadenoma - just ask the radiologist who (incorrectly) told me I had one).

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  • Lilith08
    Lilith08 Member Posts: 163
    edited August 2014

    DaughterofHER2, I would definitely get a second opinion, especially given your mother's history. But I'll also tell you that fibroadenomas can grow rapidly, so that could be a good sign, believe it or not. If yours is a fibroadenoma that's growing quickly, it could be one that keeps growing, in which case it might not be a bad thing to have it removed. Again, given the history, you don't want what could become a fairly large mass to hide something else.
    My first excisional surgery (lumpectomy) was at age 26 for a giant fibroadenoma. I know--I laughed, too, but that's the official name if it measures more than 5 cm! At age 33, I had a smaller fibroadenoma excised, in just about exactly the same spot. 

    Wishing you well! Let us know how it goes.

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  • Lilith08
    Lilith08 Member Posts: 163
    edited August 2014

    Unrelated question for anyone who knows: how do you put your surgery info below your post--is it part of your "signature"?

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  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited August 2014

    Lilith08 - you go to My Profile and then to My Treatments.  There you can specify surgeries or other treatment details. 

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    Daughter - Do you know how well your breasts image? Has anyone told you your breast density. Insist on this. If extremely dense ask you doc about additional screening with MRI.  Best wishes!

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  • DaughterofHER2
    DaughterofHER2 Member Posts: 21
    edited August 2014

    Thank you everyone booked this morning for a second opinion I think I need to feel 'content' with the result not getting much sleep.

    @farmerlucy in the past I have been told my breast were thickened I assume that's dense.

    The 1mm was picked up in a mri from my weight loss they scanned my brain and chest region they found a small nodule in my lung but at that time the specialist took a watch and wait approach being very small I was happy with that but now I'm freaking.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    I think we daughters of BC mothers go from zero to a hundred on the stress-o-meter anytime the possibility of BC is involved. I glad you are getting a second opinion. You know that everything is more than likely ok, right? Hang on to that. As we say around here - don't go there until and if you get there. You are not your mother. You are doing an excellent job of being proactive and your medical care sounds great. Trust your doctors. Be vilgilant, but trust your doctors. 

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  • DaughterofHER2
    DaughterofHER2 Member Posts: 21
    edited August 2014

    Thankyou everyone had a mammogram today and one at 9 o'clock showed still at fibroademia level feel more at ease now :)

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  • Lilith08
    Lilith08 Member Posts: 163
    edited August 2014

    Thanks, SarahJane!

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  • DaughterofHER2
    DaughterofHER2 Member Posts: 21
    edited August 2014

    Quick update today I seen my Dr he has referred me to a.breast clinic for the fibroademias to be removed for further testing I didn't read the mammogram right I actually have high dense breast so they couldn't see much question they mention birads it's no where on my report can I get these after I have had the mammogram or only during. 

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