March 2014 Surgery

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  • linda505
    linda505 Member Posts: 847
    edited July 2014

    ahh good to hear ucfmom - i started thinking about it and was on my way back to ask if it was possible your were exposed to some find of plant from gardening or something - but I like your doctors answer and especially the part about it going away in a few days.  

  • Ally2345
    Ally2345 Member Posts: 320
    edited July 2014

    ucfmom-  Good news!!  Ditto linda505's point about going away in a few days.  

    Ally

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited July 2014

    What causes vasculitis?


     

  • ucfmom
    ucfmom Member Posts: 127
    edited July 2014

    Apparently it can be caused by an infection or allergic reaction to medication, which makes no sense because I'm not taking anything except Zyrtec and I've been taking it for nearly a year.  Nothing I've read online seems to fit.  If I do have some kind of infection, hopefully it will show up in the bloodwork they did last Thursday.  My doctor didn't seem to think it was caused by an infection though.  It's still there and doesn't look like it's faded much, nor does it look any worse either.

  • Frostecat
    Frostecat Member Posts: 447
    edited July 2014

    On a side note, I was reading Samantha Harris' twitter and she commented about how she was going bra shopping for some Spanx bras for her reconstruction.  I wrote her and told her to check out Genie and Playtex Play, and also to check out breastcancer.org for great info.  She tweeted me back "Thx, I'll check it out".  I also told her I couldn't have made it through all of this without these forums.  So Samantha Harris if you are searching yourself and see this, welcome!

  • Frostecat
    Frostecat Member Posts: 447
    edited July 2014

    http://www.nlm.nih.gov/medlineplus/magazine/issues...

    Just came across this story on Amy Robach.  Good read.

  • Sailon
    Sailon Member Posts: 55
    edited July 2014

    Julie -- thinking about you with 8/8 around the corner.  Just wanted to let you know I have been thinking about you a lot and willing a fabulous exchange to happen.  

    I have not been online much -- or just checking in to see how everyone is -- but not leaving notes. It's great keeping up with this online family -- so helpful -- sorry I have not been contributing much -- I have just been letting it all go by, awaiting my exchange in October, quietly worrying in the back of my mind what this entire year means for me for the rest of my life -- and then finally trying to keep up with work (wow this is a lot), and of course family and the love of my life, my Manly Man Stacy. Oh my 2014 is a historic year for me - In many ways I can't wait for it to be over. But I have always lived by "The Prize in the in the Process so Play Hard!" So wishing the year is over -- is against my rules. Hummm.   

    The spirit of this group and all that everyone manages through - provides me with so much strength.  Thank you everyone and best wishes that good things will eventually result in all that everyone is going through.  xoxo (Sailon) Linda.

    Manly Man Stacy, Me, Daughter Ania, My Mom, Son Nick (NYU Graduation - Lincoln Center, NYC 5/14)

    image

  • Juliecc
    Juliecc Member Posts: 4,868
    edited July 2014

    Thank you, Sailon!  You look great!  You have a beautiful family.  It has definitely been a crazy year for all of us.  I started 2014 thinking "this is going to be a great year!"  Breast cancer is so life changing.  Sometimes I walk around and think I look normal and it's weird because no one knows I had cancer and had my breasts removed.  But everyone has some sort of battle going on so it's not like I feel sorry for myself.

    I am excited and nervous about the exchange surgery.  I am also worried about a little red lump I've had for the past 5 weeks.  My onc and my surgeon saw it and felt it.  The surgeon sent me for an ultrasound last week but it wouldn't show up.  He didn't want to poke it with a needle because it's right on top of the TE.  I guess I'll show it to my PS at the pre-op on Friday.  Maybe she'll take a little biopsy of it.  It is probably nothing.  I hope eventually I won't think about breast cancer and my boobs all the time but I think recurrence will always be on my mind.

    I hope all of you March ladies are doing well xoxo.

  • KLJ
    KLJ Member Posts: 284
    edited July 2014


    Hi Julie! I didn't realize your exchange was coming up so soon. Do you know if they are placing drains after your exchange. You're ahead of me by about 3 weeks. My exchange is scheduled for 9/2. I had to take 3 weeks off due to the sudden allergic reaction to tape of all things! I am hoping for no drains but have heard a few women say that they had them. I was hoping to be able to go to a family reunion at the beach on 9/13. Won't go if there are drains involved. Glad you and all of the March women seem to be doing good!

    Sailon you have a beautiful family! 2014 certainly has been quite the year for all of us. I am ready to put this year behind me. My daughter was diagnosed in 2012 with Triple Negative BC. My husband was diagnosed in 2013 with Prostate Cancer and then I was diagnosed in Dec. 2013 and treated in 2014. Can 2015 be a cancer free year for all of us...please!!!

    Take care xoxo

    Kim

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited July 2014

    I didn't have drains after the exchange and most of us don't. But a few do. Can you ask your doctor if he usually does this?

    My oncologist said we cannot use the phrase "cancer free." She said breast cancer is a chronic condition and the best we can hope for is to be NED (no evidence of disease) for as many years as possible. Sometimes those years go on and on until we die of something else. Other times it comes back. I hate living with the threat hanging over my head and am reassured by the percentages, but I wish there will come a day when we CAN say we are cancer free. (Don't give up cancer researchers.) Remember, there is no cure for cancer, just treatment which is often successful. So for now, I am NED and not afraid of what COULD happen, but wary.

  • KLJ
    KLJ Member Posts: 284
    edited July 2014


    Thanks Sandra! I am going to check with him. I have my pre-op appt. coming up. I just got a phone call today asking if we were going to make it and the thought crossed my mind that I still didn't know if I was going to have drains or not. I am really hoping for no drains :) I just want to go visit. Not planning on spending too much time sitting on the beach but a nice walk in the morning and evening sure does sound good right now! I think I am actually missing Florida a bit right now :(

  • Juliecc
    Juliecc Member Posts: 4,868
    edited July 2014

    Kim, I will be getting style 20 rounds and my PS said I have a 50/50 chance of drains.  She said if I got anatomicals like 410, I would have drains for sure.  From what I've read, people get their drains pulled from exchanges within days.  I also hope I can get out of this with no drains but I know she plans to do a few things like some pocket work and fat grafting.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited July 2014

    Julie, I did not have drains when I switched to 410's. As usual, every doctor is different. (sigh)

  • Juliecc
    Juliecc Member Posts: 4,868
    edited July 2014

    Hi Sandra. I had my pre op today. I won't be getting fat grafting during this surgery after all because she wants to biopsy a small lump I've had for awhile in my upper pole area.  Hopefully with less work to do, I can avoid drains. I'll get the fat grafting maybe in 2 or 3 months. I'm sort of bummed things aren't going as planned but I guess I should expect that! 

  • Frostecat
    Frostecat Member Posts: 447
    edited July 2014

    Julie, we now know along this journey to expect the unexpected.  So sorry that you can't finalize everything, but I guess it's better to be safe than sorry.  I have the fear of fears that when they do my lift/reduction on my natural side that they find cancer.  I honestly couldn't think of a worse case scenario, but this is the part about moving forward but always looking over the shoulder.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited July 2014

    True Frostecat.  I already feel like I am very lucky that things have gone so smoothly.  

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited August 2014

    I feel your frustration. These "scenic detours" are not appreciated when we are anxious to complete this journey. I go next week to the plastic surgeon to discuss the details of my 5th surgery, Sept. 19th. I too hope this will be the last one...but I said that after #3 and #4. I'm hoping he will agree to fat grafting this time instead of making me wait three months for another surgery. We'll see.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited August 2014

    I wish you the best, Sandra, and I hope your surgery goes well.  I think I was having wishful thinking that I could get everything done at once and it would all be perfect.  I'm still very excited about getting the squishies even though my dent will probably still be there.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    Just to be the voice of cautious reality here - if you expect perfection at any point along the way you have to be ready for disappointment.  While we all think that we deserve a wonderful aesthetic result from reconstruction after all that we have been through, it doesn't happen for everyone - maybe even the majority of us.  One of the things that good plastic surgeons do is to manage expectations, and gently let their patients know what to expect, that after this experience you can have a variety of results, and to be honest about what can and should be revised if the patient is less than satisfied.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited August 2014

    Thanks, Special K.  My PS keeps reminding me of such things even though she is a bit of a perfetionist herself.  She said with revisions, most women have 3-5 surgeries.  You and Sandra have dealt with many more than that!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    Julie - and that is why I posted about that - not that I was seeking perfection by any means, but if I knew then what I know now - I would not have replaced my alloderm in March - I had two more surgeries after that, and need at least two more just to have anything on the left other than complete flatness.  That surgery was not for aesthetics - it was a structural repair, and things went way wrong.  Everyone should allow some time and truly consider whether any revision is really necessary, or whether they can adjust their thinking to be content with what they have.  I am so hoping that you end up with exactly the look you want in your exchange - that would be awesome!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited August 2014

    Agreed. While I'm not looking for anything close to perfection, I want to be out of pain from the significant "skin and bone" areas in two places across my chest. Those places have felt bruised for a year now. Fat grafting will help, I hope. The change of implants to the taller gummie bears in December helped to cover some of it, but the left one migrated, causing a capsulorrhaphy to be done in March and the implant to be replaced. (The implant looks huge in the photo from two weeks post-op, but that's just the large amount of swelling from the repair of three muscles and the capsulorrhaphy.) Now it's migrated again, and tilts towards my sternum. It's downright uncomfortable. I go next week to talk to the PS and suspect he will get rid of the gummies and go back to rounds, which I had to begin with. I just want to be put back together in a way that eliminates pain and doesn't scare little children if I wear something without sleeves. My left side is a mess. The PS fixed damaged muscles in March so I have a 6" Z shaped scar from the front of my left shoulder down my side. There is still a very prominent "mini-boob" of tissue that the PS plans to remove this time and transplant into some of the hollow spaces on my side where so much tissue was lost. It hurts there too...just skin over bone on the side next to the left implant.  Perfection? That ship has sailed.

    image


     

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2014

    sandra - here's hoping your doc can get this figured out for you - you have been through enough.  Not to speak for you, but I am guessing that like myself, you want a decent representation of a chest, no more pain, and a shot at moving on from all of this.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited August 2014

    I wish you the best, Sandra.  I can't imagine going through as many surgeries as you and Special K had.  Mine is Friday - she'll do the swap and excise that skin lump.  Two more days!

  • Sailon
    Sailon Member Posts: 55
    edited August 2014

    Special K and Sandra -- thank you for all the perspective.  It is important to go in with realistic expectations - your conversation was good to hear as I likely do not have realistic expectations.  My religion of choice in this scenario is positive thinking yet believing it will carrying the show on this one might be a little out in left field!   

    Juliecc - thinking of you this week.  I hope the little red spot is just that. Fingers crossed.  Good luck with the surgery and the initial recovery. You have already been on my mind all week and I find myself willing the cosmos to make good things happen for you.  God's Speed and Good Mojo dear --  looking forward to hearing from you soon.   

  • Frostecat
    Frostecat Member Posts: 447
    edited August 2014

    SpecialK and Sandra - I can now admit, that when I first signed on this board and read all the surgeries you both have had - my eyes got as big as saucers and quite frankly I was scared $#!*less!!!!  I gotta say you have both been a great help to others along this journey.  Not that you had wished to be the "chosen" ones of experience and advice, but I for one, certainly have appreciated your honesty, experience and advice all along the way.  

    Julie - Woohoo - almost there!  So excited for you to be in the home stretch.  I'll of course be watching for your posts to see how everything goes, and sending "Good Mojo" to you too!

    This March board is still my favorite - March girls ROCK!!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited August 2014

    I've had it easy compared to SpecialK and others who have been through so much more. The real heroines are the ones whose cancer is ravaging their bodies in spite of every attempt to slow it's progress. I've been lucky from the beginning...that my diagnosis came early enough to cut out the beast before it could get an upper hand. In spite of the "scenic detours" as my friend Moonflower would say, I remain lucky to have found such a warm and caring group of women like you here on BCO. The March sisters will always remain close to my heart and I wish only the best for you.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited August 2014

    image

    Love, Sandra

     

  • iwannaseeyoubebrave
    iwannaseeyoubebrave Member Posts: 226
    edited August 2014

    Amen Sister Sandra!


     

  • jbdayton
    jbdayton Member Posts: 700
    edited August 2014

    Wow, so many ladies are preparing for their final exchanges.  I am praying each of you have uncomplicated surgeries and are happy with the results.

    I am coming along slowly but surely.  I chose a different reconstruction and have had a few set backs but the end is still in sight.  I got one breast in my March surgery and a second breast in my June surgery.  The second one did not want to heal so I have been on a wound vac for the past two and a half weeks and it looks like I might get it off by the middle of next week.  Just a very small hole still to heal and then a small surface area will take a few more weeks to finish healing.  Then I guess I will have a few months off before any revisions.  

    Been in a funk for a few days but I am looking forward again.  

    We need to make sure to follow Sandra for her September surgery and keep up with SpecialK as they continue their journeys.  

    The March ladies are a great group and I hope we continue with updates as the year goes on.  

    Special prayers for our August exchanges Julie, iwannasee and ally. 

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