What would you say is the root of your depression?
Since active treatment has ended and I've been on tamox, it's been a struggle to keep a happy outlook. I am on 74 mg of Effexor, which has taken the edge off irritability, but isn't getting me to where I'd like to be for depression. Plus I'm always tired and have to push to get things accomplished. My RO just referred me to a psychiatrist which I'm going to try - albeit reluctantly. I don't feel that I'm dwelling on the negative - I think it has at least some to do with treatment and surgeries and the tamox - but I've been trying to figure out the mental end of things - why am I feeling blue when I have so much positive around me. It dawned on me that this last year, I felt that I lost control of my life. Strapped into a rollercoaster and run through appt after appt, test after test, treatment after treatment. From never thinking about death, to hearing someone tell me that I should be happy that I "only" have a 10% chance of dying in 5 years - and he wouldn't admit that anything I could do - exercise or diet - could change that. Again no control. Also facing losing our insurance coverage that gets me a top rated breast cancer center - with my options being reduced to local hospitals that I don't have much confidence in. Etc. So - loss of control over my life - could that be what's contributing to my melancholy moods? What do you think it is for you?
Comments
-
Hi Sophia, well I think for me it is just that, the lack of control over my life, I was always somehow in control and then bc came along with other bad things which turned my life outside down. I also started seen a psychiatric but I have to be honest with you I feel I waist my time every time I go there. I go there and talk to this person and she shows no emotions in her face and it's like talking to a wall plus I know she never had bc so I don't believe she could imagine how I feel in side. Anyway I am not only down sometimes but I am angry. As if I don't care what happens out in the world 🌍 I don't watch the news anymore I have not interest on much .I keep thinking about what could I have done to prevent this from happening ? I Wish you Start feeling better just know you Are not alone there Are many of us out there going through similar roads .
Take care
-
I'm so sorry Enerva. I wish you had some better help. I'm not thinking the psychiatrist here will do much for me either though. Just hoping she will see that it's not so much a "thinking" problem as it is a chemical one. Using the time up til the appt to get my thoughts sorted out so I can express things more efficiently.
-
Initially I saw a paid psychologist, but it wasn't very helpful. Around the same time I started meeting with a Stephen Minister from my church. She made a world of difference. Mainly I needed someone to tell me what I was feeling was perfectly normal and that I would not always feel like I did. The root of my depression was that fact that I never dealt w my mom's BC and the fact that no matter what I did to try to escape the beast it still caught up with me.
Before BC I thought I had some control over my Iife. BC showed me I had little to no control. That is ok. It is a freedom of sorts.
-
Sophia...depression gallops in the DH's family! In fact it seems to affect the smartest men in his family. Neuroscientists are still trying to sort out why depression occurs. While loss of control may play into it, the important point is not to focus on what may have caused it so much as to focus on finding whatever the means there are to helping you get well. Recognizing you are depressed and want help is a huge step in getting better. From my experience with the DH, all I can say is there are meds that help. After trying meditation, talk therapy, hypnosis and a whole host of meds, we finally stumbled on a medication that brought rays of sunshine back into his life. Despite the side effects of the meds that affect his QOL, having had several severe bouts of depression, he now understands that his depression is chronic and will require meds the rest of his life. However, for most people who I say catch a depression, they take a medication and ultimately recover. Depression as the commercial says, "hurts." And just like you treat other illnesses, depression can be treated AND cured.
Hope you are feeling better soon! I wish you well!
-
thanks! I do too. Thankfully not every day is so bad. I feel that the low dose of effexor that I'm on keeps my head mostly above the water line, but when any little wave comes, it gets me. I really want to keep my head above those waves!
-
SophieMarie, I was diagnosed with bipolar depression a few months before I was intially dx with bc, I am currently taking Cymbalta 60 mg for depression and Risperidone 2 mg for mood swings. A few months ago I ran out of insurance and stopped taking these meds. but still took Arimidex which is what I get for cancer. The se's from the Arimidex went through the roof! including mood swings, depression and hot flashes, as soon as I was back on the psych meds the se's from Arimidex dissapeared. The new ASCO standard of care for cancer patients in general urge oncologists to screen cancer patients for depression and refer to a psiquiatrist if necessary. Psyquiatrists in general do not provide "talk" therapy, they're MD's and their role is to make sure your level of medication is the recommended one to keep you stable. As for "talk" therapy I've found that a support group for other bc patients is preferable to a psychologist that does not have experience with bc. Depression is a chemical imbalance which in my case occurred prior to bc but that in the case of cancer it can be exacerbated by thoughts of dying and by the medicines we take, so I would suggest to see a Psyquiatrist and maybe try to find a support group.
Hope you can find the right match for you
Aurora
-
The root of my depression is cancer. I have always felt that cancer is about the worst thing that can happen. Even though my prognosis is good and I now know cancer is treatable and there are worse things that can happen, and I have a good life, that deeply ingrained belief affects my mood every day.
-
Racy! I'm so sorry that your mood is affected by your cancer diagnosis. You really, really don't need to feel that way, every day. Do speak to a physician and ask if there is something more that can be done so you can feel better.
Racy, so many people look to the "why" they feel the way they do. However, IMHO that is a waste of energy. When you catch a cold, do you ask yourself why you got it? Bottom line, you treat the cold and then you get better and then stop thinking about how lousy you felt when you had the cold. I know you think I am crazy comparing a cold with cancer. But think about it. Does one walk around every day with a cold? No! So why should each day a person be saddled with a horrible feeling that affects one's being?
My sister's niece (her husband's brother's daughter) perished on 9/11. We also lost a host of friends that day. One of the awful things about living in NY is that on most days, we are reminded of 9/11 for one reason or another. We watch the news and there is always something said about terrorism. My family and extended family and I all grieved and still grieve for those who died that day. The only one whose grief from that awful day hasn't abated is my sister's sister-in-law who lost her beautiful daughter on that day. Her grief has turned the most vivacious person into a walking stone.
My point. No one needs a reason for how their depression came to be. And no one should suffer every day with an illness that is treatable. At the height of one of the DH's deepest, darkest depressions, he too was a walking stone, catatonic. IMHO, depression is the most ugly illness known to humanity. It robs one of the beauty of life. And despite all of life's ups and especially downs, which we know there are many, we should all be able to ENJOY living.
So, if anyone believes their mood is off, seek help. And if you are receiving help and your mood is still off, seek more help. Life IS beautiful and all of us are owed the pleasure of enjoying it.
-
I was recently diagnosed with clinical depression and anxiety disorder and am being treated by a psychiatrist for the medical side and seeing a psychologist for talk therapy; taking cymbalta + sonata that helps w/ insomnia for the middle of the night wake ups & not falling back asleep for hours. I have anger, grieving and loss of total estrogen issues that are negitively affecting my marriage, work and loss of things I use to love. The last 2 years of diseases, surgeries, chronic pain (some now I know are from depression such as headaches), insomnia, 2 family deaths this year took their toll of me in a heavy way. I have no idea how long I will have mental illness; my DS has been treated w/ it for the last 2 years. My docs are very helpful and the psychiatrist way better at prescribing meds than my GP or neurologist. I hope this discussion continues, it will be helpful to me to read what other women are experiencing.
-
I agree with everything voraciusreader said. And jill47 I totally get where you're coming from. I was officially dx with bipolar depression in 2009 a few months before my bc dx but I realize that since I was very little I had emotional issues, I was a cry baby when I was little and through out my young adult years I battled depression without getting help. My current therapist says that a dx of bc can exacerbate an already dx of depression, the standard of care for cancer has issues warnings to oncologists to screen all cancer patients for depression and refer to psychiatrists and/or psychologists if needed. From personal experience I can tell you that cymbalta (I take 60 mg a day) has helped not only with depression but with neuropathic pain as well. And the mood stabilizer (risperidone 2mg) has helped with the mood swings steaming from estrogen deprivation and with the hot flashes. So in my opinion cancer. cancer treatment, and depression and depression treatment have a connecting relationship.
I too would like to see this conversation to continue.
Aurora
-
SophiaMarie -- I'm sorry you are feeling the way you are. I have a prescription of Effexor filled and am waiting to start tomorrow, so I have the weekend to deal with any immediate side effects. When I was talking to my doc, she said that some women need more that 75 mg to deal with both the hot flash side effects and low mood, so maybe the solution for you would be to increase the dosage a bit. I think she mentioned that 150 mg is often needed for low mood -- the psychiatrist will tell you all that.
I was a very even keeled, logical accountant
before all of this hit. I like to think I'm still a logical accountant, but the even-keeled part has departed, and I'm ready to feel better, including feeling some joy. My doc said we'll try it for six months and see where things are at. I'm anxious to start and nervous at the same time, but know that I'm ready to stop having to push so hard to get through the day.
-
"What causes depression?
(This article was first printed in Understanding
Depression, a Special Health Report from Harvard Medical
School.)
It’s often said that depression results from a chemical imbalance, but that
figure of speech doesn’t capture how complex the disease is. Research suggests
that depression doesn’t spring from simply having too much or too little of
certain brain chemicals. Rather, depression has many possible causes, including
faulty mood regulation by the brain, genetic vulnerability, stressful life
events, medications, and medical problems. It’s believed that several of these
forces interact to bring on depression.
To be sure, chemicals are involved in this process, but it is not a simple
matter of one chemical being too low and another too high. Rather, many
chemicals are involved, working both inside and outside nerve cells. There are
millions, even billions, of chemical reactions that make up the dynamic system
that is responsible for your mood, perceptions, and how you experience life.
With this level of complexity, you can see how two people might have similar
symptoms of depression, but the problem on the inside, and therefore what
treatments will work best, may be entirely different.
Researchers have learned much about the biology of depression. They’ve
identified genes that make individuals more vulnerable to low moods and
influence how an individual responds to drug therapy. One day, these discoveries
should lead to better, more individualized treatment (see “From the lab to your
medicine cabinet”), but that is likely to be years away. And while researchers
know more now than ever before about how the brain regulates mood, their
understanding of the biology of depression is far from complete.
What follows is an overview of the current understanding of the major factors
believed to play a role in depression....."http://www.health.harvard.edu/newsweek/what-causes-depression.htm
-
Dear Sophia, It's what I call the post treatment blues. I was done with all my treatment and on the other side of this thing when all of the sudden I was aware that I felt like I was just exisinting. I didn't know my purpose. For the past year and a half fighting bc was my purpose and it was a arduous journey but by the grace of God I can honestly say there were more blessings from the experience than anything else. I didn't talk or express my feeling of meloncholy to anyone, I was just going about my day to day. But then I realized that I needed to find my new purpose. My life will never be the same as it was before bc and I know that God has other plans for me now. You have so much influence that you don't even know about. There are so many women going through what you went through and you can be an encourager and a support. Maybe look into some local support groups and get involved and see how it feels to give hope to women who are just beginning their fight. I have found that this has given me an excitement and drive that I haven't had before. I am also taking 75mg of effexor and 20mg tamoxifen. I'm finally feeling stable and am looking forward to my new normal. By the way, for me as well rather than a therapist I find that I get my greatest support and encouragment by talking to other bc survivors. We relate and understand eachother without even having to explain. I have 3 ladies I meet with and we just talk and the first time it came out that we all experienced the "blues" it was so liberating for me! I wasn't crazey!! I am normal! But I think talking with your sisters is the best therapy! God Bless You.
-
Hi Ridley
I also started effexor for the hot flashes, mood etc..Just a heads up it can take a couple weeks to even out and start working. Sometimes a bit longer. I've been on it now for about 3 weeks and can say that my body is feeling better. It actually made me feel yuck for a while, lathargic, dry mouth, kinda scatter brained
I had no drive to really do anything. BUT, I am much better now and am thankful that I stuck it out. Not sure yet how it's helping with the hot flashes but everything else is good for me. Good luck with it, hang in there!
-
Hi jenniemarie and welcome to BCO.
Thanks for your input as it always helps to hear a positive aspect when many posts are only about the negative SEs others have had. Helps balance.
The Mods
-
Jennie, post treatment blues - exactly. I am so glad you started this thread SophiaMarie. I have been feeling melancholy and loss of purpose for months. I have not been myself but not sure what was wrong. It is a strange feeling, like a sort of detachment at times. I think this cancer experience really did a number on me mentally. I like your suggestion of local support groups. I will look into that because just as you say, no one else can understand what this is like except those that have been there.
-
Voraciousreader thank for the article, very insightful and thank you Aurora for sharing your mood swing meds. I forgot to mention that I will be undergoing an in lab sleep study in a few weeks (ordered by neurologist) to rule out sleep apnea and to gather brain activity while I sleep. Psychiatrist supports the study as sleep is so important to mental health. Blessings to all of you today, Jill
-
thanks jenniemarie -- I took the first Effexor this morning -- I'm hoping for good results. -
Good Girl Ridley! Give it some time and we will hope for the best! Keep us posted.
-
CoffeeLatte, I'm so glad you will look into a support group. These forums are wonderful but there's something about being with your sister's who've fought this fought or are currently in it or getting ready to start it. Just because we've come out the other side doesn't mean we are done and ready to just jump right back into life as we used to know it. Nothing is the same anymore for us. I think that's why we feel that detachment and meloncholy emotions. But, we are not alone and we need eachother! It can be so uplifing to come alongside someone getting ready to go thru what you've survived and encourage them and give them hope. It's very theraputic for you and for others you can speak to! One foot in front of the other. You have great purpose!
-
Hello to you all. I have suffered from depression, with suicidal ideation, most of my life, going back into my childhood. I only started taking medication for it a little over a year ago. A couple of weeks before I discovered a lump in my breast, my depression seemed to be worsening so I had my med dose increased. I'm currenly on 450mg Wellbutrin and 75mg Zoloft. The combination has worked wonders for me. When I found out I had cancer, one of the first things I did was research what my treatment options would be. I came across several articles that say these, and other, antidepressants can interfere with Tamoxifen. If it comes to that, I may very well choose my ADs over Tamoxifen. If it weren't for these drugs, I would be huddled in a dark corner right now, hugging my knees, and rocking back and forth. I might be willing to try switching to Effexor, but the thought of a major relapse of depression really scares me. Oddly enough, because these drugs have worked so well for me, and the timing of my increased dose was such that it really kicked in just prior to my diagnosis, I am actually feeling less depressed now than I was shortly before my diagnosis. Don't get me wrong, I'm very upset and angry about the cancer, but it's an entirely different state of mind/being. The "chemical" depression feels like an unbearable weight is pushing down on me and there is absolutely no way to escape it. Now when I feel "depressed", it feels crappy but it's manageable; it doesn't feel as "heavy". I'm not happy, but I'm functional.
Getting back to the initial question of what caused my depression--In my case I believe it's largely genetic, combined with neglect and instability in my early childhood.
-
Hi Iwanna....I'm sorry about your bc dx. but the timing of the better AD dosage is a miracle. I'm not on tamoxifen but I do understand if given the choice why you'd take the AD over tamox. Prior to my dx of depression/anxiety, I was feeling so miserable & begged my gyno surgeon to prescribe hormone therapy, he flat out said no and said no other doc would either. I was willing to take the risk of bc coming back over feeling so horrible. When he told me I could expect to feel this bad for 5-10 years w/out estrogen and that women like me are usually treated with AD . Thank God though my neuro recommended psychiatrist for the right treatment.
-
I am being pushed to take Aromasin for LCIS. I suffered from serious depression from about the time I was fifteen. During perimenopause it worsened severely, to the point I was angry or suicidal a lot of the time and had severe insomnia. Menopause has been magical. I have not been depressed or had serious mood swings since. I am NOT going to mess with my hormones further.
-
I have suffered from sleepllesness and anxiety for years. I also get what I call "situational depression" in that I know the causes. Some I can remove, others just not possible. My doctor tried me on SSRIs several years ago and none of them agreed with me. They all made me feel horrible. Wellbutrin was the worst for me. In the end we settled on a low dose lorazepam as anxiety was the worst problem but I ration them as she does not like me taking them every day. I do find it helps when I am feeling depressed though. Also it does not interact with AIs which I go on shortly. HOWEVER, if the AIs make me feel worse and I cannot find something to alleviate it I have no intention of "feeling this bad for 5 to 10 years" as Jill was told. If a doctor said that to me I am afraid would tell him where to put his pills in no uncertain fashion and find a more empathetic doctor to help work something out. Cancer is scary but not as scary to me as being sleepless, anxious and unhappy for the forseeable future. I am about to quit my job after years of stress and want to enjoy life a bit.
-
hi jill, lyzzy and melissa, I too was diagnosed for bipolar depression a few months before my bc dx, but in retrospective I was probable manic depressive my entire life. Anti depressants and mood stabilizers have been my salvation also but just as important is my treatment for bc. When I was first dx with bc I was taking prozac and shortly after I was put on Tamoxifen, nobody told me it could interact. After two and half years on this combo, progression to the bones I went to my psyquiatrist and asked for a different anti depressant for a year now I've taking Cymbalta 60mg (anti depressant that helps with pain also) Risperidone 2mg (mood stabilizer that helps with hot flashes) and I'm taking Anastrozole (Arimidex) for cancer. So far this combination is keeping me sane and the cancer stable. Everyone is different but don't give up on bc treatment just yet, get your medical team working on a solution that helps with everything. The newest standard of care from ASCO is saying that all cancer patients should be screened for depression and referred for counseling and psych meds treatment if needed. Hope we can all remain stable in all areas for a long time.
Take care,
Aurora
-
Auroaya, my situation is a little different, in that I just have a high risk condition, not breast cancer-just LCIS. I'm comfortable right now with being closely monitored.
-
Jill--are you on antidepressants now? If so which one(s)?
Auroaya--I hope this new "standard" will bring about new and improved ADs that work with hormone treatment, since Effexor and Cymbalta don't work for everyone.
Best to you all.
-
Iwanna....yes, my neurologist (was seeing for brain lesions (benign), chronic headaches, stupor & insomnia)) gave me an amitriptyline (one of the earliest AD's, it was not the right med for me); I was on it until I started seeing the psychiatrist who said, I don't what it is w/ neurologists they like giving that old AD; he put me on Duloxetine (generic cymbalta) 30mg, on it for the last 11 days, less SEs that the other one and I am already calmer and less reactive to stress, headaches improved other than the left ear/jaw pain, I need to see a TMJD specialist to confirm TMJD, sleep issues persist. Seeing psychiatrist weekly for awhile to ensure the duloxetine and dosage is right for me, after this weekend where I've been more down, my dosage may go up. I don't know. Have a good day ladies, off to work.
-
Congrats to Iyzzysmom on the pending job "change". I quit mine a little over a year ago and enjoy the fact that 'retirement' now gives me the chance to be at the gym or in the pool several times a week.
Exercise is a highly effective method of dealing with both depression as well as medication side effects. Simple walking whenever you can with a goal of 30 minutes a day is one guideline.
Be sure to take the Effexor (venlafaxine) on time regularly - since it has such a short half life and wears off quickly, some people will get a withdrawal sensation within a few hours of missing a dose.
-
I have found this thread fascinating; thank you all for being honest. I started having hot flashes at 49. I tried a supplement, but it didn't work. I exercised regularly but that didn't offset the hot flashes and overall grumpiness. I finally went a gyn who put me on the lowest dose of HRT. I was on this med for 4 1/2 years and felt back to normal the whole time. Then BC hit and I will always wonder if the HRT caused it. BS said that there's no direct link and I've read other research that says the same. Still, I wonder.
The BS made me quit the drug cold turkey and I've been in full hot flashes ever since. The hot flashes interrupt my sleep which then makes me tired and grumpy. I think if I could get back to running and hiking, some of these symptoms will go away. However, just as the PS released me to get on with my life, I developed plantar fasciitis. I'm in PT twice a week with the therapists working on my foot as well as my upper body due to the bmx and reconstruction. Chronic pain can cause depression and I feel like I'm on the edge of depression.
I'm going to join the Y and start swimming to see if exercise gives me some relief. If not, I think I'm going to need some meds to get through this emotionally.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team