Starting Chemo in December 2013

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  • oranje_mama
    oranje_mama Member Posts: 260
    edited August 2014

    jb - i had this too.  About 13 weeks PFC, several of my nails simply ripped right off, about halfway down.  One of them had something that looked like fungus underneath, and since it didn't go away for several days, I went to the dermatologist.  She said it was just classic Taxotere damage, no fungus.  Shortly after that virtual all of the rest of my fingernails ripped off at about the halfway point.  The good thing is that the yellow part is gone and the rest of the nail looks better.  I am taking Biotin, and even though my hair is growing slow as molasses, the nails are growing fast.  They look almost normal and I am 17 wks PFC now.

  • jbokland
    jbokland Member Posts: 890
    edited August 2014

    Ahh!  thanks!!!...I think I will keep them short and polished so I don't have to see!! 

    They were tender for a while and I knew something was brewing!  I have very hard nails, so maybe they will hang in there till it grows out, the nail beds look healthy.

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited August 2014

    good morning girls. Had to share. Heard this in the car this morning. Enjoy your day! YouTube video below. You are all radiant! Perfect, lol

    image

    http://m.youtube.com/watch?v=-ORyLcSdcfE

  • kjfromca
    kjfromca Member Posts: 283
    edited August 2014

    Barbara - Thanks for the info on the Zometa.  I was just reading about other drugs that work as cancer prevention. I think that it's great that your MO is doing this.  How often?  I think I will have to check this out.  Glad to hear you had no side effects.

    Jbok. - I have one bad toe nail. It was black and blue.  Starting to lighten up.

    Lisa - At the car wash,  will have to pull it up later... Love Jack Johnson.  

    Have a great day!

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited August 2014

    hip hip hooray. My MRI was good small disc but not bad enough to do anything bat it now. No tumors in the spine or mets in the bones.  Now I can just ignore the numbness in my foot and calf pain and get on with life.  Next doc apt in 3 months with the Mo. 

     I just got back from a 1.5 mile walk.  Everyone have a great weekend

  • RHGSR
    RHGSR Member Posts: 774
    edited August 2014

    great news Barbara!! Hooray!!

  • aff
    aff Member Posts: 279
    edited August 2014

    Barbara - that's fantastic!

  • J4DC
    J4DC Member Posts: 80
    edited August 2014

    awesome news! Barbara! So happy for you. 

    Congrats, jodi, what a great support you have! Welcome home!

    Everybody, have a great weekend!

  • kjfromca
    kjfromca Member Posts: 283
    edited August 2014

    Barbara - Awesome news.  Have a great weekend.

    Jodi - I can relate to your comment about hating the 8th floor, reminding you of chemo.  I have a certain style of blouse that I cannot wear, as it reminds me of chemo.  One of my friends can't listen to meditation tapes, as it reminds her of chemo.  

    Off to San Francisco today, the weather should be in the 60's..... I live 1 1/2 hours inland and it was 109 on my car thermometer yesterday.....

    Kim

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited August 2014

    Kim,

    Going to the infusion center  for a port flush I just sit in a regular chair in the front where you walk in. No biggie

    This week  I had my port accessed and blood drawn and they left it capped and attached while I went to  doc appts.  When I went back in for the zometa infusion I was taken back to a chemo chair and experience a bit of PTSD sitting there. The nurse was great as she set things up she chatted about how fast this will be Etc. Thankfully it is a 15 min infusion followed by a 10-15 flush.  No premeds or waiting between drugs.  Still it brought back those unpleasant memories I had pushed to the back of my brain. 

    6 months until I sit in that chemo chair again! Must be difficult for those of you still having to go back for herceptin. 

     As far as FU I had an MRI in May just after finishing chemo and a mammo scheduled for Nov, 1 year after surgery and 5 months post Rad. I think it will be a 3D mammo and Ultrasound. The plan as I heard it was alternating MRI and Mammo/US every 6 months. My ILC did not show up on Mammos until after I felt a lump. And that was the ductal cancer part I felt. 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2014

    Barbara, great news!!! So happy for you!

    Kim, enjoy your getaway.

    I read up a little on Zometa. May ask my MO about it next month, since I have bone loss.

     Maybe it will be approved, sooner than later, for BC prevention. I doubt I will be able to pay for it on my own, but will check into anyway. I do feel better that I am taking Tamoxifen as it can actually improve bone loss. 

    I will be changing insurance soon as my former is cancelling me...non-compliant with the Healthcare Act. UGH. Looking for  insurance that has my current Dr's. Has anyone else had problems having your providers on a new plan? 

    Enjoying my week-end!!! I think this is the best I have felt since my DX! From the depths of Hell, to a huge looming black cloud, to gray clouds, to white clouds, to clear days, to bright sunshine. 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited August 2014

    keepthefaith. Wonderful to hear you are feeling so well. 

    Shopping for insurance is a PITA. In my neck of the woods there is only one main health systems so most local docs are covered.  I work for the hospital system and the biggest pain is that they charge double to go out of the system to any regional Blue Cross places  and deny going out of regional area completely, or as they say it is 100% copay!   

  • kimie06
    kimie06 Member Posts: 215
    edited August 2014

    good news Barbara

    I had the nail issue too, it's better now at first I had no idea what it was, then I realized it was my old nail under there, it was weak, peeling ... Uugghhh.

    Now I am experiencing the gift that keeps on giving...a period from hell...day 7 today...uugghhhh. First one since chemo stopped.

  • kjfromca
    kjfromca Member Posts: 283
    edited August 2014

    Good Morning Ladies - 

    Kimmie - That's too long for a period......  What are they going to do for you to stop this?

    Barbara - So, are you going every 6 mos for the Zometa?   Oh glad you mentioned 3D mammo, I need to get in ASAP before surgery.  

    Keepthefaith - Had the same issue with my insurance back in December while going through Chemo.  I ended up with Blue Shield of CA.  Of course it is more expensive.  Good luck, I have always preferred PPO's and have found that it is a little easier to deal with than an HMO.

    Meeting with a Plastic Surgeon that a friend recommended this morning.  I want a second opinion before I have surgery on the 19th.  

    Kim

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited August 2014

    Kim, that is the plan, every 6 months for at least 2 years or as long as I can afford it.

    My BC of course is an HMO, another reason I hate it but have no choice, other then a high deductible plan that would cost a whole lot more with my cancer and my husband's Huntingtons

  • missy6758703
    missy6758703 Member Posts: 218
    edited August 2014

    Just catching up on posts that I've missed...glad to hear everybody seems to be doing well! My only complaint right now is my darn hips hurt so bad! ugh! Once I get moving i'm fine, it's just the getting moving that is hard!

    I had a simply amazing time in Texas.....I would guess its hard for most of you to imagine loving somebody in prison, and trust me, its not easy....but in life we all make choices that we have to live with, some good....some bad.  His bad choice will haunt him forever but to see the better man he is today makes my heart smile.  He has 4 years left on his sentence if he ends up serving it all....so its not forever.  I knew him long before he went in.....never thought i'd fall in love with him but it is what it is! I haven't been able to see him since last September since i was diagnosed the month after....it was an emotional visit, lots of tears shed by us both.  But i tell you, feeling his arms just wrapped around me and holding me while i cried was what my soul needed.  I was able to let go of so much fear and so was he.  

    Here we are .....   Hugs to you all............Michelle

    image

  • kjfromca
    kjfromca Member Posts: 283
    edited August 2014

    Barbara -  Glad this dose was covered.   

    Michelle - No judgment here..... Great picture, thanks for sharing.

    Kim

  • aff
    aff Member Posts: 279
    edited August 2014

    Michelle - you look amazing...and so happy! 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited August 2014

    Michelle, you both look truly happy

    Loving the short hairdo.

    Enjoy the rest of your visit to Texas.  I am heading off the New  Hampshire Thurs.  to visit my son for a few days. My husband wants to go also so it will not be a stress free trip. Taking 2 days to drive each way instead of my usually straight 8 hours driving when I go by myself. 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2014

    Kim, I hope you find a PS that you are pleased with. Hard decisions. I contemplate plastic surgery also, to even out my girls, but I think I want to see if BC girl will "shrink" much more before I make that decision. Right now, leftie is bigger and it would be nice to have them perkier, than droopier! 

    Barbara, enjoy your trip. I hope it's not stressful for you!

    Michelle, great picture! Enjoy your time in Texas. Very handsome BF!

    Spent most of the day with DD and grandsons yesterday. Took the older two, to Cabela's. They had a blast and I got to spoil them! I think my DD has become more lenient with my Grandma privileges lately!:) 

  • kjfromca
    kjfromca Member Posts: 283
    edited August 2014

    Keepthefaith - I met with the PS to get a second opinion yesterday.  He made me feel confident in my PS.  He said that I have a good PS and he doesn't do TE's, he does Tram Flaps, as the risk is really high that the skin will not heal after a second surgery due to radiation.  I knew this, but my skin looks great, so I am going to be positive and believe that my skin will hold up.  He also said that he would wait a year before doing anything on a radiated breast.  My surgeon said he wouldn't do anything until at least May on the TE side.  I hope this info. helps you, I know you are not dealing with the exact issue that I am, but your breast has been radiated and they will probably make you wait awhile before they will perform any kind of surgery on your radiated breast.

    Kim

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited August 2014

    Nails!  My two middle fingers broke 3/4 down.  And then the pointers owed next day.  The others are still there.  But, those did look off kind if warped a bit.  Hair is growing pretty fast now.  Started back at work yesterday.  We had a retreat last night and worked til 3 today.  Tired.  Tomorrow, teachers have to drive an hour and a half to have all school diocese meeting.  Ugh.  Glad to be back and see friends.

    Had a few emotional moments.  Today my calendar was on my desk.  Flipped through and all the activities from Aug-Nov were written.  I always put an x on the days once they pass.  Sobering to see, but the last day I had that x said half day.  The rest of the calendar was untouched.  November 18 - half day..the day I met BS and PS and had my BMX in less than 48 hours later!  The day after my 39th birthday-  praying I celebrate the big 4 oh cancer free!  

    I've been home for a week, and it has been wonderful.  Students report next Monday, and the cheer season starts next Wednesday.  First pep rally getting scheduled..happy- life goes on!

    And Jack Johnson is just simple good for the soul!!!!'

  • DJJ
    DJJ Member Posts: 229
    edited August 2014

    Barbara -  I think every dose should be covered.  Insurance companies....arrrghhhh!   

    Michelle - He's cute!! Glad you got to visit and it helped you feel better.

    Jodi, my big toenails are still holding on.  I'm babying them to hold on to them as long as possible as the new nails grow under them.  I cut the fingers off rubber gloves and put them on my big toes (toe condoms) during showers.  I just want them to last through September! Sandel season over! Finger nails have grown out but when the think the tips are grown out they release from the nail bed.  Just a little and it just makes the tips uneven so I have to keep them painted....frustrating.

    I'm ready for the joint pain to STOP!! My muscle aches are much much better.  My feet still burn after I'm on them for a while but the tenderness is much better.  My hands still get numb on and off throughout the day.  They don't seem to be getting any better.  That scares me.  It doesn't stop me from doing anything so I should be grateful, but it's uncomfortable.  I just keep telling myself, I have my feet and it could take up to a year for it to get better.  I see MO on Friday before Herceptin, I have a bazillion questions for her. 

  • DJJ
    DJJ Member Posts: 229
    edited August 2014

    Oh yeah my eyebrows are thinning at the tips again.  Having a bad night!

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited August 2014

    this board has been quieter since we're all finishing active treatment. I've been reading here but not posting much. It's hard to go back pages to comment but this one is a long page so that's good.

    Nails and hair, my thumb nails only developed a deep divot at the base when starting chemo and the R one developed a dark vertical line down it. Now that it's been 6 months since starting chemo those nails have grown out and the deep indentation and dark line is now at the tip and of course broke off. I actually used super glue on the indentation so it wouldn't break off early. And keeping polish on them is good so yiu don't pick at them which I would do because they are so thin and peeling. 

    DJJ, My eyebrows are also thinning at the again but it makes sense about the growth stage. All the hairs came in at once so it's normal to loose them at the same time. Until it gets staggered I guess. It's easier to use eyebrow pencil to fill in when there's still some there

    My hair is coming in and curls returning. It's still white but I'm getting used to it. Still only about 1-1/12" long and the curls make it look shorter. The sides are very straight though and still very fine and soft. I'm kind of liking it.

    Barb, good to hear about the MRI. And I will also ask mo about zometa on next visit 8/19. Also metformin used for tn. The AI's doesn't help me due to TN. Hope you can enjoy your trip to NH to see your son and that your DH does well on the trip.

    Michele, you two look happy. Your eyes sparkle and it makes me smile. No judgement or explanations needed. Just be happy.

    Jodi, that makes ME emotional thinking of your last years calendar and how much has happened since that last X you placed on there.good luck with your return to school and coaching next week

    Kim, so what surgery are you having on 8/19? I've lost track, just the reduction of the good side?

    I'm 2wks post rads. Skin is great, boost area is light tan now and I can keep my bra on all day now...lol! L breast looks about maybe 1/3smaller than R but I'm small anyway (B) so small is still small and that's what padded and push-up bras are for. I can always get an extra pad (chicken cutlet) for the L.

    I dropped off 2of my wigs and some hats and scarves at ACS today. I told them I'd be interested in being a support person for any newly dx woman. I spoke to the coordinator for the BC division and organizer of making strides against BC for our area. They are having a kick off breakfast for the making strides. It's this tues and she asked me if I wanted to be one of the speakers. They have room for 4 speakers and have 3 so far. I showed her my NO MORE CANCER, finished rads letter I wrote. She thought it would be good to share. I said maybe, but after thinking about it today I think I will do it. I'll modify the letter a little and then give it a go. What are everyone feelings about Susan g komen vs ACS making strides campaign. Thinking of doing a komen 5k race for the cure in albany ny in sept.

    Well this is the longest one I've written in a while. Glad we are all still here even though the activity is a little slower, but that's a good thing I think.

    Love ya girls, hope everyone is well

  • charusa
    charusa Member Posts: 107
    edited August 2014

    My fingernails grew very fast and were very strong, I kept them polished and had to trim them regularly...I kept them polish mostly b/c I didn't want to see them show signs of falling off. Then at the end of tx I noticed that a few of them were kind of warped looking. Now all but 2 have broke, they haven't come off but they are weaker and I can see a brown area when I remove the polish. I finished taxol on May 8th. 

    My eyebrows came in almost overnight or they were so light I didn't notice them and now they are very dark and a little bushy. I felt "something" on my eyeglasses and lo and behold I have some eye lashes!!! Not very long yet but enough to put on a little mascara. Now my hair is another thing. The sides and back are growing but the top you can still see some scalp. The edges are all white and the rest is a dark gray. My daughter who is in cosmotology said that hair grows like that but will even out with time.

    Well tomorrow I go for my dry run for rads and Monday is D day or should I say the R day??? 

    Everyone's hair is coming in so nice....I am hoping to regain my curls.

    So I want to ask as we all move forward....What is the 1 thing that you enjoyed doing, getting rid of, or thoughts right after chemo?

    For me it was getting new pillows for my bed...no more night sweats and new pillows was like a fresh start. I also liked putting away most of those meds. I remember back when I was on the A/C the terrible smell in my urine and was glad when I started taxol it went away. Don't really remember my thoughts about the end of chemo just so happy to be done that part and sometimes I look back on this thread and reread some of the posts and how terrified we all were and the SE's and it seems like it was so many moons ago....

  • RHGSR
    RHGSR Member Posts: 774
    edited August 2014

    Michelle- that is a beautiful picture of the two of you. I'll echo the rest of the ladies... No judgement here. I can see love and joy in both of your eyes. Makes my heart happy. 

    So ladies I have had a cough for almost 3 weeks now. Cough so hard at times I either gag or pee. Ha ha. Finished a Z- pal on monday. No help.  Probably just my allergies. And before BC I wouldn't give it a second thought... But now...

    Anyway , see my MO next week for follow up. Will ask him about it. 

    Hope you are all doing well. 

    Holli

  • missy6758703
    missy6758703 Member Posts: 218
    edited August 2014

    thank you all for the nice comments......I love him like crazy, at first thought I must be crazy......who the hell falls in love with somebody in prison???? uh yeah, i guess i did! I knew him for so long before he went in and always sort of had a "crush" on him but never thought it would amount to anything.  Well, over the years it did amount to something.....we appreciate what we have found and don't take anything for granted. 

    I have my PET scan on Monday.....freaking out scared.......

    My hips continue to be so sore....not sure what is causing this.....

    As a majority of you may have seen....i colored my hair brown and love it!!! Good Riddance Gray!

    Hope you all are doing great!

    Michelle

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited August 2014

    charusa, good to hear from you. Good luck with your rads, too! 

    holli, michelle, hoping your symptoms and tests are nothing! Seems like I had a cough a few weeks ago, but it finally cleared up...just seemed like it took a bit longer than usual. 

    Michelle, are they doing PET scan as routine follow up? I would be nervous, too! Take some Xanax!:) 

    My mammo and MO follow up are coming up the end of the month...UGH! Then follow up with BS. I guess we need to get used to it. I HATE being a patient!!!! 

    Lisa, good for you; I looked in to 'strides'...nothing in the Austin area. Thought that was strange. I am going to take "Erica" (my wig) to ACS next week. I am making myself wear it on Monday for a closing. These folks have had their house in contract for almost 2 months and I don't want to freak them out the very last time I will see them...will be glad to tell Erica good-bye!!! 

    djj, I hope your joints lighten up for you and you get all of your questions answered. 

    jodi, sorry about your nail issues. Yeah, I'm sure the calendar was a weird thing to see. 

    Finished Susan Love's book. Was interesting. I ordered another, "Living beyond breast cancer". Anybody here reading or have read it?

    Enjoy your week-end, ladies. I think of and pray for you all often.

    ((HUGS))

  • charusa
    charusa Member Posts: 107
    edited August 2014

    Michelle, You can not tell your heart who to love and I also fell in love with someone in prison a long time ago. Long story but he was in with my son in law and was looking for a pen pal. I was single and this was before computers and I loved to write so we started writing, exchanging photos, and talked on the phone. I felt safe telling him stuff I told no one after all he was in prison and I had no plans on meeting in person. But I did go visit and it was like meeting an old friend. When he was released we dated and I met his mom, dad, and the rest of the family and he met my kids. Two years later we married and we stayed married for 15 years!!! Things fell apart on us after i was dx'ed with panic/anxiety disorder but to this day we still talk every once in awhile on the phone. Through all the letter writing we got to know each other better than most couples do that physically date. Our relationship wasn't based on physical things but grew from what we shared. I wish the both of you luck, you are a cute couple!!! People do make horrible mistakes and some can change and make a new life for themselves. It is not easy for them once they are out but given a chance some of them really prove themselves worthy and very grateful for a second chance. Have you seen the movie Labor Day? I loved it and so will you!!!

    Charlotte

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