Feeling rejected

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hi everyone. I was diagnosed with stage two breast cancer October 2010. I had surgery to remove my right breast and had 17 lymph nodes removed. I am in a position to have reconstructive or not. As much as I want to look "normal" again, I really don't want to go through a major surgery that will involve taking fat from my stomach to make my new breast. Quite honestly, it scares me too much. The thing is, I will never, ever get used to having one breast but I deal with it. My husband was absolutely fantastic when I was diagnosed. I don't know what I would have done without him, but now we are never intimate anymore. He has never seen me naked since my surgery and he's never asked to look at my scar. Everything is so awkward. If I am getting changed in the bedroom, he makes sure he's not there. I feel like a complete freak and it breaks my heart that he will never look at me the same way again. How do I deal with this? It is making me cry just writing this. Its a cruel thing that we have to go through so much but the hurt never really ends. Don't get me wrong, I am absolutely grateful to be alive but I just want him to love me like he used to and I don't think that will happen. Sorry for rattling on but I've never spoken to anyone about this and I feel so lost. Is there anyone out there that is in a similar situation to me? 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    I'm so sorry you're feeling this way at home, but always feel you can come here and find support from breast cancer survivors who have dealt with any and every possible situation. Find your way down through the forums; there is one specifically about breast cancer reconstruction.  There are people there in every stage of reconstruction or not, lopsided like you AND ME (I like to call myself "single breasted."  I'm sure you will get better answers there, but you are hurting right NOW so I wanted to let you know that there ARE those of us in the same situation.

    I had a right mastectomy and I knew I would not have reconstruction.  I was a single Mom running a biz and I could not stand the thought of something fake in me, my breasts looking different, doing an additional surgery to use other body parts, etc.  If I had pain, I'd worry it was the reconstruction.  I'd seen some bad reconstructions and I just didn't want any of that. 

    BUT, as you know, there is a LOT to deal with in our shoes.  When I say I can't wear "normal" tops when I'm wearing a prosthesis, they think I mean "low-cut."  I admit I never let even my daughter see my body.  We're just not that type.  But I'm still single, 9+ years later.  There are a lot of reasons, but one of them is that I have a lousy body image.  Well, I always did have.  Honestly, I've considered having the other breast removed many times because it's such a pain to be one-sided. I went for a consult once, and broke down into tears in the office because I realized I would not want to lose my other nipple sensation.  I know...too much information, but here we are.  It's not like I'm "using" it right now, but once it's gone, it's gone. 

    I don't know how to speak to you about your personal relationship, because I'm not married.  I wish I did.  It sounds more like a problem he is having than one you are having.  I'm not a big fan of counseling but I know you'll find MANY who will recommend it. But I bet you'll also find some very encouraging stories in the other forum.  MAYBE he doesn't ask to see it, and makes himself scarce when you're undressing, because he feels that's what you'd want.  He's giving you the space you feel you need. 

    I don't have much to recommend, but I do wish you the best. Now go check out the other forum and I'll be you find stories that will help you, about how others got past this stumbling block.


  • Moderators
    Moderators Member Posts: 25,912
    edited August 2014

    Dear Dtom102

    Welcome to BCO Forums. It is a very stressful
    time but often talking with others can help enormously.

    You
    could read the Reconstruction stories and options on BCO and
    ask questions.

    You may
    consider not reconstructing and going flat, so read Living
    Without Reconstruction After a Mastectomy

    There
    are many issues to consider and many variables in all treatments depending upon
    location, surgeon, your body's responses and your Dx.

    We
    understand that it is confusing, often overwhelming and there is so much
    information to read and consider but there is no easy way as YOU have to make
    the decision as to what is done to YOUR BODY. You probably need to talk openly to your husband too, if you can. There are also husbands on here you or your husband might talk to in PMs possibly. You could find some in The Husbands Corner(for family, friends, boyfriends, ect.) if that might help.

    Sorry
    we can't help more. You are best talking with the other members. 

    All the
    best

    The Mods

  • Ariom
    Ariom Member Posts: 6,197
    edited August 2014

    Hello Dtom, I just wanted to say Hello and Welcome! This is a great place to make contact with others who understand what you're going through. To ask for support or advice.

    I am a Uni too, no recon, by choice and very happy with my decision. I have a Husband who has been involved every step of the way, from coming to all my appointments, to all the decision making.

    In saying that, even I was a little apprehensive about showing him my new chest, the day after my surgery. It isn't an easy thing to do, no matter what your situation.

    I also had a Mother who had BC, she also had a Umx, so I had seen it and
    knew what to expect. I cared for her for years, before she went into
    permanent care. I think her experience was what made it a fairly easy transition
    for me.

    I have made a hobby out of the clothing and foobs and feel far more confident in the way I dress now, so that's another hurdle overcome.

    I too, wonder if the point whatnow makes about your Husband making himself scarce is because he isn't sure what you want him to do. You say he was great at the start, have you both been able to sit and discuss your feelings on the whole subject? I always find, being completely open, if you have that kind of relationship, is the only way to move forward with something as life changing, as all this. I don't think it is ever too late to initiate this kind of discussion if it is something you feel you can, and want to do. I sounds like you may have both just got a little lost along the way and bringing it up hasn't been easy for either of you. It sounds like you have a good man there, maybe he just needs a little reassurance from you.

    I do wish you all the very best, I am sure there will be others along who may have other suggestions, take care and let us know how you're doing!

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited August 2014

    I am not in your situation, but I think that as long as you feel "like a freak", it's going to be difficult to improve your relationship with your husband.  Maybe he's picking up on your feelings about yourself, and doesn't know how to respond.  And then, after a while, it becomes a new kind of normal.

    I know you decided not to reconstruct, but reading your post, it seems to me that you are conflicted about that decision.  Have you talked with a plastic surgeon recently to see if there are other options (besides a flap) for you?  I have implants, and I'm happy with them.  They aren't like natural breasts, but they look good, my scars are fading, and overall I like them.  I had some fat grafting done at my exchange, and that helped to plump out some of the edges.

    I'm not trying to sway you towards reconstruction, so I hope it doesn't seem that way.  When I first decided to proceed with my PBMX, I didn't want to reconstruct.  My head was spinning, and what I'd look like afterwards was the last thing on my mind.  I just wanted to end the nightmare that I was living.  It was my BS who steered me towards reconstruction, gave me a referral to the best PS on earth, the one he said he would send his family members to, and I honestly will be grateful to him forever for doing that.  For me, it would have been a mistake not to reconstruct.  I see that clearly now, but I didn't before.  We all need to make the choices that are right for us, and that we can live with, and sometimes we need help with that.

    I think you need to come to peace with yourself.  Either by accepting your body as it is, or doing something to change it.  Talk to your husband.  You don't know what's in his head unless you do.  Yes, things have changed.  Things are different.  But it can still be good, and you deserve to be happy. 

  • mrenee68
    mrenee68 Member Posts: 383
    edited August 2014

    I am  a uni, but I chose to reconstruct. For me I couldn't live with only one breast, I have body image issues and always have and this was an awful thing for me to go through. I think right now you need to talk to your husband and see where his head is. Let him know how you are feeling and how you need his support and affirmation that he is still attracted to you. Ask him if he wants to see your scar, but be prepared in case he doesn't. Remember men are fix it people by nature and this is something he can't fix, he may be too afraid of hurting you. At the same time you have to learn to accept the new you, I know easier said then done, I'm still working on that part. Just talk to him and see where he is mentally, he may just be waiting for you to give him a sign. Take care!

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