Vent about Permanent Neuropathy

Options
1262729313278

Comments

  • Notbuyingit
    Notbuyingit Member Posts: 1,035
    edited July 2014

    i too have just a whisper in my finger tips - & my feet do feel the best without shoes cuz it's mostly my toes that re numb. My feet are super slippery in the tub cuz of all the lotion i wear at night!

    i am definitely liking the vapor rub - just a little goes a long way

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    Don't think I need a lidocaine cream.  Already numb.  Might try the Vapo-rub and see what that does.

  • Notbuyingit
    Notbuyingit Member Posts: 1,035
    edited July 2014

    the other one i like is actually for sunburn - it'a Hawaiian Tropic's Cool Aloe I.C.E. with Lidocaine xtra strength

    i haven't seen anyone mentioning Capsaicin or Neuragen creams - both of which were recommended to me at the onset - but they made me feel like my feet were on fire!! when i read it may take weeks to tell if it's really working I said forget it! anyone out there use either of these?

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited July 2014

    I used capsaicin. It helped some. 

  • ktym
    ktym Member Posts: 2,637
    edited July 2014

    dumb dumb dumb dumb dumb

    That was me today.  Very hot here.  Went out on the back deck to admire the cutest puppy outside.  I knew the deck was warm but was "only out for a minute."  I knew better.  I'm walking around later thinking my feet feel funny and I can feel them a little less than usual.  Yeah, I burned them.  I knew I couldn't feel well enough and when I felt like the deck was warm I should have gone back in because I wouldn't be able to tell when it was getting HOT.  Luckily not too bad but I'm kicking myself I knew better and it is a little harder to walk because they're more swollen. dumb

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014
  • lovewins
    lovewins Member Posts: 881
    edited July 2014


    I ordered some cream from etsy that is suppose to help with neuropathy temporarily...I am excited to get it.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    GEE, LET US KNOW IF IT HELPS!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    NBI, Why do you like the lidocaine cream?  If your feet are mainly numb, doesn't that just make them number?

  • Notbuyingit
    Notbuyingit Member Posts: 1,035
    edited July 2014

    i just put it on at night when they are painful - haven't found anything that makes the numbness go away

    one thing i have found when i swim is that my toes get like little charlie horses sometimes - they cramp up when i'm kicking as I swim...anyone else experience this?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2014

    NotBuyingIt - Yes to occasional cramps in the water, but more in my calves.  I've always gone bare footed, but now I'm wearing water shoes.  Hate them, but...  Also had to find "toe caps" since I'm still in the process of losing my big toe nails.  Such fun!!!

    Sometimes i think I might be getting some feeling back above my ankles.  Woo Hoo.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    not---count me in on the foot cramps while swimming!  dang but they can be scarey when they hit

    been ok recently, also been working on my crappy balance and someone suggesting walking front and back in the pool.  Do believe that is helping my balance as well as the training with my trainer.  I recently started working with him again after going on my own for the last 6 months, huge help to me!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    I noticed soreness in the first months, but that is mostly gone for me now.  Just the numbness remains.  Haven't done swimming yet.

    MinusTwo, my numbness was going up my leg in those first months, but it seems to only remain in the feet now, so I think your legs would be the first to notice the reversal should it occur.  Every little bit helps!

  • Notbuyingit
    Notbuyingit Member Posts: 1,035
    edited July 2014

    glad it's not just me - i figure any feeling is good, right? but it doesn't feel good - i've been putting them up to the bubblers...somethings gotta work....and when i find out what it is i'll make millions!!! lol I gotta think about something while i'm trotting around the pool 

  • lovewins
    lovewins Member Posts: 881
    edited July 2014

    I have been thinking a lot about the wax dip from my last pedicure...when they did it my feet were screaming and then they felt better.  I did do some reading that some found temporary relief from wax dip...not sure if it is related but my feet are feeling better.  I feel like the dip woke my nerves up....if anyone tries this please let me know.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    gonna try, I know it felt good on my manicure

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2014

    LoveWins - can you mandate that I have my feet waxed for neuropathy while on a cruise?  That would be a wonderful excuse.  Sigh!!  But yes, I will try locally.

  • SyrMom
    SyrMom Member Posts: 862
    edited July 2014

    I've never heard of a wax dip; do they dip the whole foot?

  • pip57
    pip57 Member Posts: 12,401
    edited July 2014

    I had to google it too.  Sounds interesting.  Would a warm water foot bath or heating pad give the same result?

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    I think warm foot bath is sure worth a try!  hmmm, next time they ache...can not hurt more than now!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    Some people report a burning feeling as part of their pain.  Don't know how a warm soak would feel on that.

    I never had that.  My pain was more a cold, crushed feeling.  A warm soak that got my blood circulating always felt good to me.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    times my feet feel like Arnold S has been crunching my toes in his dang hand!! not sure but it usually happens at night after I have been walking

  • River_Rat
    River_Rat Member Posts: 1,724
    edited July 2014

    I have a home paraffin unit that wasn't too expensive (some beauty places carry them, otherwise medical supply places, but generally more costly there). I don't often get the burning feet thing, mine is usually the frozen foot thing. You dip your foot into the paraffin, bring it up and let that coat set briefly, then redip, repeating several times. Then you put a plastic bag over the foot, followed by a cozy bootie to keep the heat in. When the paraffin has cooled you peel it off and put it back into the unit. I've found this very helpful for when my feet are killing me, toes seem so cold they feel like they're going to drop off, feel like rubber bands around them choking them off or something. I use it at those times and it gives me relief. It hasn't changed the frequency of this happening, but being able to get relief is wonderful. I also have a heating pad made for the foot of the bed, it goes all the way across. I use both of these things in the winter but find I can warm my feet up without them in the summer.

    P.S. If you get one of the paraffin units you have to keep the wax melted in it as it takes too long for it to warm up for you to just plug it in when you need it.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    proud, My description of the cold, crushing sensation was that I was in an ice shanty with an elephant standing on my toes.  Yes, the feeling set in the worst at night when I was not walking around on them.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    elimar, ooo, I do get it though.

  • Notbuyingit
    Notbuyingit Member Posts: 1,035
    edited July 2014

    never had success with warm foot soaks - but also don't have the cold crushing sensation...

    i did however buy the raisins & gin today   might have to just administer the gin while i wait the 7 days...

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2014

    not buying it, you will need to do what you need, do let us know!


     

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2014

    Raisins and gin?????  What did I miss?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2014

    NotBuying - I've read about raisins & gin over the years but thought it was only for arthritis.  So far I'm just administering the gin with tonic & lime over ice.  Found the following on line.  Is this what you're using?  Do let us know what determine with your trial.

    To prepare gin-soaked raisin, first empty one box of dried white
    raisin in a shallow container. Only white or golden raisin should be
    used for this recipe. Then pour enough gin into the container to cover
    the raisin.

    Cover the container and keep it covered for 7 – 10 days to allow the raisin to steep in the gin.

    Allow all the gin to evaporate to leave gin-soaked raisins in the
    container. These raisins keep well when refrigerated. The popular advice
    is to take nine of these “drunken raisins” every day. Most users report
    improvements in arthritis symptoms between 1 – 8 weeks of using this
    remedy.

  • lovewins
    lovewins Member Posts: 881
    edited July 2014

    I missed it too....I have vodka and raisins. 

    Disappointed with foot cream from etsy...smell good and my feet feel moisturized....but did not help pain. 

Categories