Her2/neu Positive and 9 years NED

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marejo
marejo Member Posts: 1,356
edited December 2014 in HER2+ (Positive) Breast Cancer

Hello to all my her2 "sisters!"  It has been a long time since I visited BCO and I remember when I couldn't stay away.  I remember back when I was so very scared.  The initial diagnosis...(June 2005) - Mastectomy number 1 (July 2005) - chemo begins (August 2005) - Herceptin starts (Oct. 2005) - Chemo ends (Nov. 2005) - Radiation begins (Dec. 2005) - Radiation ends (Feb. 2006) - Prophylactic mastectomy other breast (March 2006) - Herceptin ends - (October 2006) - Delayed Bilateral DIEP - (June 2008).  Ey yi yi - FEAR?......will it ever end?......will I ever be "normal" again?.......will it come back?.......will I ever not think of cancer?........will I ever trust my body again?..........and on and on and on with the questions and fears. 

Now......today.......July 23, 2014......It will be 9 years since my first mastectomy on July 28, 2014.  Here are the answers to my questions above.....Fear?  - Yes, I had much fear.  It took time but the fear leaves as you one day realize God gave you today to live.  I decided to live in the "today."  I didn't know my tomorrow any more than anyone else did and I surely didn't want to waste "today" on worrying about tomorrow.  It took a few years to get to that place, but I did.  WILL IT EVER END?  Oh how I remember those feelings of everyday being something with cancer....whether it was chemo - radiation - side effects - appointments - whatever, you live it day in and day out and wonder if it will ever end.  It does for some of us and in all honesty those days are a vague memory for me.  The positives that I took away are what is with me still today.  WILL I EVER BE 'NORMAL' AGAIN?  - My answer in a nut shell.....oh Lord, I hope I never return to the "normal" before cancer.  I have learned so much....God has taught me so much.  He has taught me the truly important things in life.  I can honestly say that breast cancer was a blessing in my life.  That very, very, very tough trial.......helped me get to that place I needed to be.  WILL IT COME BACK?  I think I thought about recurrence the most in the first 3 years.  It was a tough time for me.  Each ache and pain scared me into thinking "what if."  I never was that kind of person before breast cancer.  I was healthy and never sick.  I trusted my body completely.  Breast cancer showed me that yes, it can happen to you.  So recurrence seemed very real to me and I use to think....'well it happened to you once....why not again?'  I'm over that thinking now and realize that yes, I may get cancer again....but I also may get a lot of things.  No one gets out of this life alive (as it were) - so worrying about recurrence I left by the roadside.  :-)  WILL I EVER NOT THINK OF CANCER?  Well, I think about it.....how can you not.  It seems everyone has it.  But I don't think about it for me personally anymore.  I know it's always a possibility but I'd rather spend my energy trying to encourage and help others and let that go.  WILL I EVER TRUST MY BODY AGAIN?  - It took a while but I do.  I try to take care of myself but realize that I really have no control over my body.  I couldn't control the first breast cancer and can't control whatever else will happen.  One day at a time. 

I was diagnosed at 45 with stage 2B her2/neu positive breast cancer.   I now am 54....have 4 grandkids and feel incredibly blessed and changed.  All because of breast cancer.

I pray I encouraged and helped someone here.

Comments

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited July 2014

    thank you for coming back and giving us who are just starting some hope. We are so frightened- it means a lot to us looking for a success story.

  • Hope40
    Hope40 Member Posts: 26
    edited July 2014

    You certainly helped me today. I'm one year out from dx. I have my reconstructive surgery in exactly two weeks time. They called today and said while I'm having my new breasts put in they will remove my port. I'm like what? Excuse me I think I need to keep it, right? Totally threw me off. Scared me. Learning to let go... Very hard. I was sitting here tonight with my 9 year old son watching a movie and thinking to myself, how long until it comes back? I fear being hopeful and also fear not being positive if that makes any sense. I turned here and happened to see your post. I needed to.. Thank you! I'm so very happy for you. Your words were in inspirational and hopefully I can take heart that I will too get last this. God bless!

  • marejo
    marejo Member Posts: 1,356
    edited July 2014

    I am happy you 2 were encouraged!  I remember very well those first few years.  Hearing about other women who lived NED long part treatment is so encouraging,no sweet blessings you two special ladies.

  • Girlstrong
    Girlstrong Member Posts: 438
    edited July 2014

    Marejo:  thank you , thank you, thank you......I am one year post diagnoses and I try to keep that fear at bay; easier said than done. Still I am soooooo grateful for what God has gotten me through this past year.  Now I pray to stay strong so that I can move forward in my life.   Your post was so wonderful.  Thank you for coming back to share.  With BC you can never forget but we can become stronger and move onward.  Step by step....Much love :)

  • Alicethecat
    Alicethecat Member Posts: 535
    edited July 2014

    Marejo

    It is ladies like you that keep us hopeful ones with our head raised high and a spring in our step.

    Thank you so much for coming back and letting us know how you are.

    Alice

  • Sassa
    Sassa Member Posts: 1,588
    edited August 2014

    I was diagnosed in November 2005.  It seemed like Marejo and I followed each other around this board (we also have the same given name).

    So I am also almost 9 years out from diagnosis, 8  years from the end of chemo (4 AC), 7 from the end of herceptin.

    I also feel well and am extremely active.

  • mannettes
    mannettes Member Posts: 18
    edited September 2014


    Thank you for posting. 9 years is a long time. You give the rest of us hope.

  • kerbearcure32
    kerbearcure32 Member Posts: 5
    edited September 2014

    Hi, everyone!  Reading all your stories and I was 31 stage 3 b at age 31 with 22 nodes involved , that was 10 years ago, I am cancer free... However in my mind it's a diffrent story, I still go ever year to doc freaking out, . There is such hope for us her2nu ladies! Y'all are amazing and warriors. :) it's the battle in our minds we need to fight with on a daily basis. Are we ever really cancer free??? 

  • lkc
    lkc Member Posts: 1,203
    edited September 2014

    Marejo Great to see you. Congratulations!  Ain't life wonderful?!!!

  • ipursuit
    ipursuit Member Posts: 45
    edited September 2014

    Wonderful to hear about these treatment successes and so encouraging!  I thank God for modern medicine every day. 

    I am now 5 1/2 years post diagnosis and so thankful to be here to see my kids growing up!

  • Michelle14
    Michelle14 Member Posts: 32
    edited September 2014

    Good morning ladies... I just read the results of the newly released cleopatra study and they are AMAZING!!!!!! Adding perejetta to herceptin and a taxane chemo  increased survival by an additional 15mos in women with stage 4 her 2 positive mets.  One of the most significant breakthroughs in cancer history!!!  We are so lucky for the incredible research and new antibody therapies available to us Her2 positive ladies!  I swear they are on their way to curing Her2.  If there is that kind of success with stage 4, what could it do for early stages???  

    At first diagnosis, I was devastated by the aggressive nature of HER2. Now I am grateful that if I had to have cancer at all, that it is HER2 positive. The breakthroughs are incredible!!!

    Hang in there ladies! We are winning this one! : )

    Michelle

  • marejo
    marejo Member Posts: 1,356
    edited November 2014


    How are all you ladies doing?  Thanking God we are all doing well.  Praying for those who are struggling. 

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited November 2014

    just scared today and trying to get the fear behind me.

  • Jennliza
    Jennliza Member Posts: 184
    edited December 2014

    Just want to thank those of you who post your success stories here. So many of the stories on these boards are of recurrence...because they understandably need support. It is encouraging to read stories of people who had that same treatment as me whom are cancer free so many years post treatment.

    I finished chemo on 10/30/14. I still have 6-7 months of Herceptin left and just started Tamoxifen...which I'll be on for 5 years and then most likely swtiched to an AI for another 5 yrs.

    I am hoping one day life will return to normal... Though having to take tamoxifen or an AI for the next 10 yrs will always be a reminder.

    Question: those with BMX, do you do any diagnostic tests...such as MRI's, PETscans or blood tests annually?

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