Chemo in May 2014

Options
11516171921

Comments

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Sounds like many here have finished chemo, congrats to all! I still have two more rounds, who else has more chemo to complete?

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    debiann I have 4 rounds of Taxol coming up starting Friday. I didn't start chemo until 5/30/14 so I'm probably the last one standing here :)

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    I'll be sticking around even though I'm done with chemo. We're all together here! Even though our chemo may be done, or close to done, we still have some things ahead of us. 

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    Nervous about Friday, but I've been posting in the Taxol thread and getting a lot of info there. Glad I won't have the nausea on top of eveything else though. I can's stand that feeling

  • writinghelps
    writinghelps Member Posts: 88
    edited July 2014


    I have one more next Tuesday. I'll most likely be sticking around this board too.

  • nancybel
    nancybel Member Posts: 81
    edited July 2014

    Congratulations to all who have finished chemo and hugs to all who still have a few left.  Almost there.  :)  I am finally feeling better, but I am still so tired.  I think I had the first real all night sleep w/o help of meds this week since this all first started.  It felt pretty good. :)  Hang in there all.

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Finally the big decision is made, I'll be having a bmx with Diep reconstruction in mid September. So happy to have come to a conclusion, can't wait to get it over with. Wish I could just do it tomorrow and be done, lol, but alas need to finish chemo first then wait 4 weeks to operate.

    To those who have finished, is the last round any easier knowing you don't have to do it again?

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    Ugh, I am still SO fatigued!! I'm AWAKE, which is good, but walking up a flight of stairs does me IN! Today I had to take all my kids for their therapies and just getting them there and into the building totally wiped me out. I texted my husband, "WHY am I still soooo tired?" Without my asking he left work, came to the therapy center and sent me home for a nap. Love this guy! I slept for almost 2 hours. 

    Normally be now (day 8) I'm feeling close to myself. Not so this time. I have a class reunion tomorrow and I am GOING doggone it! 

    Debiann, congrats on making a decision. In my head I know what I want to do. I want the dmx. While my risk of recurrence in the cancer side is the same with mastectomy or lumpectomy, that says nothing about the other side. I don't want to tangle with the cancer bus again! I know a mastectomy is not a 100% guarantee I won't develop BC again, but I want to be as close to zero as I can get.

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Sorry you're so tired yet Lespring, hope you enjoy your reunion.  Keep us posted.

    My 35th class reunion is on day 12 of my next cycle, hoping to feel good.  I'm still trying to figure out where 35 years went, btw.  It was so hard to recognize people at the 30th reunion, really had to rely on name tags.  With my chemo brain,  I probably won't even recognize their names, lol.

    Regarding surgery, I was so undecided first leaning toward only losing one boobie, then two, then back to one.......but my bs kind of steered me to do two, first to reduce risks of a new cancer and second said I'll like the aesthetic result better cause they will match. I'm so happy the decision is made!  Also hearing lots of good things about both my BS and PS, a nurse today called them the "dynamic duo".  My PS, I've learned, is also a medical illustrator with a great eye for making things look good.  Also, apparently I'm not as fat as I thought I was, PS said I only have enough belly to make me a B cup, but he added they will look good.  I'm ok with that.  I always was a B cup till I got fat during menopause, so with the flatter belly I think the B will be fine.  

    Have you decided on surgery for sure Lespring?  Do you want recon?  For awhile I was certain I didn't want recon.  I even made an appointment to be fitted for a mastectomy bra.  I found out insurance pays for 6 bras and 1 set of prosthetic a year, but then I noticed that when I was out I kept staring at women's breasts and I was getting kind of jealous and knew I'd probably miss them.  I thought, "I've worked hard my whole life, I have good medical insurance that will pay for surgery and I'm settling for fake boobs in my bra." I realized that I was choosing no recon because I was afraid of surgery.  Reading about everyone's experiences has helped me gain some courage.  Thanks all!

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    First Taxol yesterday and so far NO SE's! I feel like I never even went! Ahhhh..... (knock on wood!)

  • writinghelps
    writinghelps Member Posts: 88
    edited July 2014


    Not to get you guys questioning your decisions about surgery but I wanted to share my experience. In the past few weeks I have been hit with an intense grief about losing my breasts that I didn't expect to be so intense. I have found myself at times wishing desperately that i would have done a lumpectomy no matter how deformed it left me looking. And i was so sure about the BMX decision before surgery.  So I am really surprised by it. 

    I also decided on no reconstruction (and no foobs) and I've also wondered if that has made the feelings more intense. And if reconstruction would have actually lessened the grief. I'm meeting with a friend tomorrow who is a few years out from treatment and of all the things i want to ask, one is "did reconstruction help you with lessen the grieving process?"  Of course she may not be able to answer that since I don't think she was ever flat before getting reconstruction.  I still won't get reconstruction but I am curious to know and I guess I hope that asking and hearing her answer may resolve some of the grief.

    I had my pre-chemo (#4 and last) appt last Friday.  In my onc's office we are required to alternate between the NP and the doc with visits. I saw my doc Friday and i haven't seen her since before round 2. Which was great. I have been battling this face rash on about day 10 after ecery round and until now haven't felt like people are taking me serious about it.  All along I have felt like the cause is Taxotere but until now i haven't felt like anyone would listen. The doc came close to canceling the last round. But changed my steroid regimine instead and so i'll be in the chair Tuesday for my last chemo. I'm a little bummed but also want to get it done and reap whatever benefits 4 rounds over 3 might have. I also wondered if the do would nix the Nuelasta but she didn't.  Maybe because of the rash.

    So now i'm off to mentally prepare myself to be sick (I hate this part).

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    Wendy - I felt I decided on the mx a little too quickly myself. The lumpectomy didn't get it all and when I met with my BS she was not sure about saving the breast. Then I went to my PS right after that and he told me she felt she could get it all but would take the nipple. He also said that if I were his wife, another lumpectomy wouldn't be good enough and he saw women return with BC after going the lumpectomy route wishing they had done the mx. I thought , what the hell, she is taking my nipple anyway so it won't look like my boob anymore and this will be insurance. Now I kind of wish I had SOME breast tissue there instead of this hard ball on my chest. I have had implants, so this is not going to affect me the way it will affect those that have not had them. I know they will look weird at first, but then normal soon enough. I spent a lot of years with very small breasts and I am happier myself with breasts and not having to decide what to wear to make me look the way I want. Just my take on it. 

    I get the preparing yourself to be sick. Doesn't look like you did the A/C, that was brutal for me. I was laid up and queasy for 3-5 days. I had my first Taxol on Friday and felt great yesterday, today not so much. Very fatigued but glad I don't have the queasiness. My nails are dark at the bottom so next time I'm going to try and ice them. Joy oh joys!

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Homemom, if you don't like the implant, would you be a candidate for diep reconstruction using your own tissue? Lots of info about this procedure on the diep 2014 thread and many of the women had tissue expanders before the diep, it does not need to be done at the same time as the mx. I'm scheduled for a bmx with immediate diep on Sept 29. I was really anxious about it at first, but talking to others on that thread has helped calm me.

    I should be sitting in the infusion chair right now but damn low platlete count messed things up, so next treatment pushed back to Thursday, maybe, if the platletes are cooperating. I can't believe it but I'm actually disappointed that I'm NOT getting chemo today. I just want this over with!

    Lespring, how was your class reunion? 

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    Doggone it. On home isolation because my neutrophils tanked to 400. Anything 500 or below is an admission to the hospital for IV antibiotics. They only reason I'm still at home is I'm already on an oral broad spectrum antibiotic. If I have develop a temp over 99 I have to be admitted. Of course, I have a sore throat and am VERY prone to strep so that will keep me paranoid for a couple of days. Still, this is to be expected since I didn't get the neulasta shot with the last round. Another couple of days and my counts should start coming back up.

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Hey Lespring - did they offer you a nuerporgen shot - it is a temporary boost to the WBC - lasts for 24 hours or so.  I skipped the neulasta shot last time and I also tanked and they gave me a nuepogen shot on two different days - I took it in my stomach and had no bone pain from it.  If you don't recover soon maybe you can ask for it to keep you out of the hospital.

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    ughh Debiann - sorry for your delay - that sucks!

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    debiann - so sorry you have to wait longer to get that last chemo - it will happen! I'm not unhappy with an implant, it is the TE that is just a tight hard ball on my chest. I have one more fill on the 5th of Sept (my last chemo day) and I think it will be 70-90cc's so I'll be a little uncomfortable that last day. I've highlighted the day on my calendar!

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Homemom, wish this is my last chemo, its only number 5 out of 6. I was hoping to have a week to recover after the last tx before school starts, but thats not happening now. 

    So after your last fill then you will get a permenant implant? Are they more comfortable? I had to decide if I wanted rhe PS to insert a TE if there's a problem during surgery and I can't get the flap. I said yes, so I could wake up to a surprise.


  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    debiann - gotcha. After my last fill I will have the 6.5 weeks of rads and then I think I have to wait 3-4 months for my skin/breast to "cool down". I 'm thinking about possibly Jan/Feb recon surgery. That 3-4 months was told to me when I was have a lumpectomy and would have breast tissue... I'm assuming I still have to wait. 

    This TE is much more uncomfortable then when I had the implants. Of course then I had breast tissue and now there is nothing by muscle between the implant and my skin. I remember crying over the end of my little but normal looking breasts when I first had the implants. The implants were high and so the shape was weird.  I cried all the way to the PS office for my post op appt. He told me not to worry, they would drop, I just had to keep massaging them in the shower.  They did drop and looked great. I'm assuming they are going to more comfortable then a TE.

  • writinghelps
    writinghelps Member Posts: 88
    edited July 2014


    My last infusion was today. I've been reading about others not being exciting about it even though it's the last. I didn't think I would feel that way.  But I did. I was so surprised. I can really pinpoint why either. I mean, seriously, no more poison in my body. Who wouldn't be excited? My guess is that it is more about what will be coming in the next few days (and some of it is already here - bad stomach troubles tonight).

     

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Well I'm excited for you writing helps! Last round of se's, hope they are few.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    I think that once you're out of the woods with the SE's and feel normal, you will get excited. We all know how rough those days can be. 

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    I met with the plastic surgeon today. She did my tummy tuck 5 yrs ago and I really like her. We went over all my options and she had already discussed my case with my surgeon. The two of them agree I'm a good candidate for nipple sparing. (that can't be 100% decided until they're in there and can look at the tissue). Now I just need to meet with my oncologist to determine if I can put off radiation to get a bmx done first. 

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Lespring, do you still need rads if you do mx? I was told node negative, no rads with mx.

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    I'm not sure about rads. Meeting with my oncologist on Weds next week.

    I have a question. Over the weekend, particularly Sunday, I was feeling back to myself. Then my counts dropped further, but I shouldn't feel anything from that. Yesterday and today the heavy fatigue is back. But its more than just "fatigue". I can hardly move my arms and legs. Like going up the steps in the house is almost more than I can handle. Tonight, even rolling over in bed takes more energy than I can muster, my arms and lets screaming at me that its too much. Its not really "pain". They just feel exhausted. As if I just ran 10 miles and couldn't think of taking another step. Lifting my arms up over my head takes everything I have. They're just so tired! Do any of you have this? Getting through each day is so hard. My last chemo was 2 weeks ago. Enough already. 

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Lespring - when my reds dropped after my 4th treatment I got really really exhausted and my muscles burned and felt like they wouldn't respond.  I am 4 weeks out from that treatment and I have days that are kind of OK and days that I feel like I ran a marathon when I do dishes or walk for more than a few minutes.  Especially my legs.  I don't understand the ups and downs of the SE's once treatment is done - seems like there should only be improvement but that doesn't seem to be the case and others have told me that they have the same issues.  I will talk to my MO about it next time I see him but I think it is just all part of the recovery.  Hope you start feeling better soon.

    I also did not need rads after BMX with no node involvement.  I would have needed it with a lumpectomy though.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited July 2014

    Very strange. If I had no node involvement, I would have just had the lumpectomy and rads, no chemo or mx. I decided on the mx because of the node involvement and the fact she didn't get clear margins the first time. 

  • noonrider
    noonrider Member Posts: 464
    edited July 2014

    lindaa505 its my white counts that are low. (so my immune system is down) all my other counts are fine. Low white count does not cause symptoms. So, in digging through Dr. Google I think I I have neurapathy from the taxotere. I had forgotten that I've been tipping over a lot. The other day I feel in the bathroom. Not even sure how. Just tipped over! And the whole feeling like my legs and arms belong to someone else which is the strangest sensation ever. I'm anxious to talk to my doctor next week. I just want it all to go away. I'm at the 2 week mark from my last infusion. Enough already! 

    http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Peripheralneuropathy.aspx

  • debiann
    debiann Member Posts: 1,200
    edited July 2014

    Lespring hope you are feeling better soon. I just got home from round #5 and feeling very good atm, but hate the anticipation of what will come.I'm with you, ENOUGH ALREADY!

  • linda505
    linda505 Member Posts: 847
    edited August 2014

    Oh Leespring - so sorry on the possible nueropathy.  I had that after my first treatment bad and somewhat after my second.  My MO lowered my dose and that helped.  He also had me take b6, b12 and l-glutamine - don't know what if any of these items helped but maybe ask about them and see what his/her recommendation is - I am still taking all three and have no tingling or numbness and have had any since the 2nd treatment.  Neuropathy was one of my biggest fears from chemo - I am diabetic so I had/have a double chance of getting it and I live in a retirement town and see too many people shuffling around from it and that really scared me.  I hope you quickly recover from this SE!!  And I third the "enough already" motion!

Categories