please share discharge issues

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miss_g7
miss_g7 Member Posts: 5
edited July 2014 in DCIS (Ductal Carcinoma In Situ)

along with my dcis. I've seen little convo about discharge. I'm extensive dcis, comedo necrosis, grade2, 5 cm lump about 6-7 oclock on left breast. please share your dx and what. if any, discharge you had. mine is bloody from one duct.

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  • Ariom
    Ariom Member Posts: 6,197
    edited July 2014

    Hello miss g7, I just wanted to say Hi!

    I didn't have any discharge at all with my DCIS, but I have read of many women who have had discharge, some with DCIS and others with B9 breast issues. I am sure there will be others along to give you information about their own experiences.

      

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  • april485
    april485 Member Posts: 3,257
    edited July 2014

    I had a teeny tiny bit of discharge both before my BC was diagnosed and since then but was told it was nothing. Mine was clear and I would not even know except that it crusted a little on my nipple. Sorry could not be of more help and hope someone comes along who can shed some light on this.

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  • pollyanna5
    pollyanna5 Member Posts: 85
    edited July 2014

    I had discharge, but didn't pay attention to it.  I've had elevated prolactin levels since my 20s, so discharge was normal for me, and breastfeeding and pregnancy through my 30s, only enhanced it.  After my last child,she only nursed on the one side, and the left continued to leak on and off, even after weaning 2 1/2 years ago ( I nursed her for 2 1/2 years), until my breast reduction in March of this year.  The right breast leaked a bit, but not as much.  The discharge out of the left was funky, looked and smelled weird.  It retrospect, I should have pointed it out to the doctor, but that was my normal, so I didn't.  THat was the breast that the DCIS was found in and widespread grade 3, which resulted in my decision to do a BMX and DIEP reconstruction in June.  Not sure if it;s related at all, but that was what I found.

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  • redsox
    redsox Member Posts: 523
    edited July 2014

    I had discharge from one duct in one breast.  It was clear/milky and only a small amount. That was what led to my diagnosis as the mammogram and other imaging did not show anything. 

    Some things I learned:

    If the discharge is from both breasts or from multiple ducts, it is probably hormonal and not cancer.

    If the discharge is blue or green, it is probably an infection and not cancer.

    (note the word probably in both of the above.)

    If the discharge is bloody or milky, it can be cancer but it can also be from benign conditions, e.g. papilloma.

    Most women with DCIS do not have discharge.

    Having had discharge may affect treatment recommendations. Many doctors will advise against nipple-sparing mastectomy or will more strongly recommend radiation therapy after a lumpectomy for patients who had discharge.

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  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited July 2014

    Had my son in 1994. A few milk ducts in the right breast never dried up. Years later, it turned into a green discharge, but only when pressure was applied to the breast. Finally got the courage up and talked to my family Dr. in 2007, who sent me to what I think was a breast surgeon. He couldn't get the discharge to come out. I explained it happened when my partner, at the time, would squeeze the breast when we were fooling around. His words were well, don' t let him do that anymore. He sent me on my way. The green discharge never stopped.

    In August or September of 2010, the discharge (out of the same ducts in the nipple) turned bloody. I was shocked and realized it was a cancer sign.

    I ignored it until October 2010 when I found the sausage like lump in the breast which was confirmed cancer in November 2010. I had DCIS.

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  • miss_g7
    miss_g7 Member Posts: 5
    edited July 2014

     Thank you for the quick response. what were you actually diagnosed with?

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  • Nancyinct
    Nancyinct Member Posts: 72
    edited July 2014

    I had a clear to milky discharge prior to my diagnosis and two years prior I had a severe case of mastitis. I was 51 years old and that is unusual for someone my age.

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  • deb1973
    deb1973 Member Posts: 96
    edited July 2014

    age 33 - spontaneous bloody discharge - diagnosed with benign intraductal papilloma

    age 34 - spontaneous bloody discharge - diagnosed with benign intraductal papilloma

    2013 (age 39) - spontaneous bloody discharge that turned more watery and clear over the two-week period prior to biopsy - diagnosed with 10 centimeters of ER negative DCIS

    Mammogram and ultrasound clear - no palpable mass despite presence of discharge

    Treatment with double mastectomy - not nipple sparing (due to the discharge)

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