Suspicious node

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So... my wife finished treatment in January, so far she's been in the clear, but Friday she learned that the MRI detected something that looks like a 0.5 cm lymph node, but they couldn't be sure, so she'll have a biopsy in the first week of August. It's only been six months, and It's probably just a lymph node... just a lymph node... just a lymph node... but of course the news hit us like a truck. 

The waiting is terrible,  way too much time to fantasize the worst. It's extra scary because so far every unlikely worst case scenario turned out to be indeed the worst case scenario.  First her tumor looked benign and was probably benign, plus she was "too young",  but needed a biopsy "just in case". Then it was cancer,  and it was the most aggressive grade,  and the uncommon triple negative. And she turned out to be BRCA1 positive. All the "probablys" turned out against us.

And now just a few months after it was supposed to be over, we have another "probably nothing" hanging over our heads. It sucks.

I'm not sure why I wrote this,  I guess I just wanted to vent a little

Comments

  • BrandyB
    BrandyB Member Posts: 195
    edited July 2014

    I understand wanting to vent. Just posting on this forum where everyone understands what you are going through is comforting. I don't know how long it'll take before the shadow of cancer doesn't darken our outlook a little. Maybe 20 years? Until then we just have to be careful with our bodies and patient with our thoughts. I'm praying that everything works out for you and this "probably nothing" is just that. 

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2014

    I am so sorry that you and your wife have to go through something like this yet again.  It's not fair and I totally get the need to vent.  I hope it does turn out to be nothing - you two have had enough.  When will they biopsy the lymph node?

    Nancy

  • Tiago
    Tiago Member Posts: 16
    edited July 2014

    The exact date is yet to be confirmed,   but it's supposed to be in the first week of August.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2014

    Tiago, welcome to the boards! we're so sorry to hear that you and your wife have this worry hanging over you. 

    We really hope that everything works out okay. Please keep up updated and be free to vent as much as you need!

    Warm regards, 

    The Mods

  • coni111852
    coni111852 Member Posts: 419
    edited July 2014

    Hello, everyone i was diagnose in oct 2010, I just found a little lymph node under my arm, right on top or beside the scar where they took nodes out, I'm concerned my onc, said to wait and see if it grows, ofcourse I think it may have.  I'm a bit concerned, and yet I don't want to think too much about it.  

    Does anyone have this? Like a little node? I'm so traumatized, I had this huge one when I was diagnose there were 4 of them. I'm already in the reconstruction stage, aug 19th I do my nipples and some fat grafting.  Yet I'm worried.  

  • Lee7
    Lee7 Member Posts: 657
    edited July 2014

    Coni, Can you ask to have an ultrasound of it?  I think that would tell you for sure if it was a lymph node, and if it is, then they can measure it.  That way you'd know how big it is and then recheck it in say 3 months and see if it indeed has grown.  As far as I know, and I'm not a medical person, lymph nodes can grow and shrink due to infections etc. I have ones in my neck that have done that my whole life. Blow up with every sore throat, then shrink right back down .   The good thing about ultrasounds are they are not invasive!  

    Tiago, I was thinking the same about your wife's node. Why not look at it with ultrasound to try to confirm it?

    Just a thought.  

    Hope all will turn out fine !

  • BrandyB
    BrandyB Member Posts: 195
    edited July 2014

    Coni,  I had a lump in my scar tissue as well. My breast surgeon removed it and it turned out to be fat necrosis. Hopefully it's something similarly benign for you. 

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited July 2014

    Tiago: I'm so sorry you have this gut-wrenching worry. Please feel free to vent. I completely understand about always having the most unlikely, worst-case scenario happen over and over. I was told it felt and looked benign, so I pushed for a biopsy and had to push hard. The surgeon's rationale was "you're young and have no family history. Plus the radiologist said it was a BIRADS3 and 'probably benign.'" I pushed harder, so he removed it and said he was certain it was a fibroadenoma. He was completely shocked, like my husband and I were, that not only was it malignant, but very aggressive Grade 3 Triple Negative that was also basal-like. I was 34 years old. Then, nobody thought I'd have a BRCA mutation because there was no family history; well, you know how that goes. Not only was I a BRCA1 mutation carrier, it was a variant that had been studied quite a bit and has a high rate of penetrance. Then, I found out I passed this stupid thing to my only child, my daughter. And, I was in the small group that gets permanent joint problems and moderate hearing loss from chemo. Why can't I just win the lottery? I feel like my chances of that are better than all of the unlikely things that have happened to me up to now. 

    It could be just a benign lymph node. Try to remember that. At my almost exactly one year anniversary, I found a lump on the side of my neck on the same side as the cancer. I freaked, and my team were quite worried as well and got me in for a biopsy ASAP. They felt my chances were more than 50% that it would be metastasis to the posterior triangle (spinal accessory) lymph nodes and I would be bumped to Stage IV. The biopsy came back benign, thankfully. 

    I'm so sorry you both have this with which to contend. Please come here as often as needed. 

    Best of luck.

  • Tomboy
    Tomboy Member Posts: 3,945
    edited July 2014

    many many many of my nodes are reactive on cancer side too, beginning a year and a half out from diagnosis after treatment. this all started happening 6 mos ago, and they feel much bigger than they image. they did biopsy 2 of them, benign. but they have gotten bigger and bigger, and i do not trust my place any more, but what choice do i have? they say its because they are doing the job of the missing ones, but why so far out? i hope you do get some answers, and all good news.

  • Tiago
    Tiago Member Posts: 16
    edited August 2014

    Thank you for the kind words. Biopsy is scheduled for the day after tomorrow, so here's hoping.

    Lee7

    I'm not sure why they didn't ultrasound it, but that ship has sailed now, the biopsy is just around the corner.

    lintrollerderby

    I'm sorry you joined the "worst case winners" club, but I'm glad you pushed and won that biopsy. One of the things I've learned in my online cancer research (I know some advise to stay away from Google, but with a little common sense to filter sources, I learned a lot) is that despite the incredible treatment advances of the past 20 years, doctors still know very little about how cancer truly works. As a result, sometimes different doctors will have wildly different opinions on the same issue. I brought this up because our story was the opposite of what happened to you. Your doctors told you not to worry because you're young and blahblahblah. Fortunately, you did worry. In our case, the reasons your doctor gave you not to worry was precisely what led ours to further investigate her "most likely benign" tumor. She's young and blahblahblahblah, so they wanted to make sure. Also, I chuckled at your lottery gag, I had the same thought! We have such a knack for low odds, it's about time it worked in our favor for once!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

    Sending positive vibes toward you and your wife.  You deserve the opportunity to let the house beat y'all this once--go get those better odds! We'll be thinking of you and her on Wednesday.

  • Tiago
    Tiago Member Posts: 16
    edited August 2014

    Heeeeeeyyyy people! It seems it was really "probably nothing" for once, and they didn't even biopsy it.  During the ultrasound they saw the suspicious lesion was smaller than last time and he was so certain it was an inflammatory lesion he didn't recommend the biopsy. Normally after all this tension I'd insist on the biopsy anyways to be 100% certain,  but the "smaller" part sealed the deal :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2014

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