Bone metastasis probable

leonarsu, try not to worry too much. Wait until you have your bone scan because I think many things could look suspicious but not really be mets .  Read the other threads under this topic and you'll see many women who had symptoms and scans and then things were ok. Well....ok in the sense it wasn't mets, but it was arthritis or they got a fracture because of osteoporosis.  But not mets!

It's a Saturday and likely not too many on the boards right now but hopefully you'll hear from others who can give you better info than me and help put your mind at ease for a bit.   Hang in there!

I realized there are 2 topics, one for not diagnosed with a reoccurrence but concerned (which is me) and the other which is this thread. I was trying to edit my earlier post but it ended up deleted.   BCO has been wonderful for me and you will find many supportive friends here.  Hugs.

Leonarsu ~ I'm so sorry about your CTScan results.  And I know exactly what you mean about the vague language.  That drove me crazy! Sometimes it sounds like the only reason they're concluding likely bone mets is based on our previous bc history, but I guess that can be pretty strong evidence.

I hope your bone scan will have much better news, but if it turns out to support the CT conclusion, it's not the end of the world.  I was dx'd w/bone mets back in January -- also ended up with a fractured pelvis & femur -- but thanks to Anastrazole, I'm doing well and feeling pretty normal today.  So hang in there until you get more info', but also know that as long as bc is only in the bones, treatment can do wonders for it, and in some cases remission is even possible.  (((Hugs)))   Deanna

Leonarsu, I think my hip replacement surgery (I was actually admitted thru ER due to excruciating leg pain after hobbling around with a cane for several weeks, not realizing I had worsening fractures...) turned out to be a blessing b'cuz my ortho surgeon feels he removed everything funky going on in that area.   The first couple of weeks of recovery was rough, but in 2 to 3 mos. I was pretty much back to a normal activity level, and today I often walk several miles when it's not too hot.

Yes, I had chemo (TCx4) & rads back in 2008.  I passed on an aromatese inhibitor back then because I had a bad experience with Femara and was afraid of Tamox.  But I was doing a natural estrogen modulator, and think I was doing fine until an horrendously stressful episode last summer (our house severely flooded while we were away... everything had to go into storage while we lived in hotels and did a total renovation... lots of insurance and contractor issues...).  Anyway, I truly believe the stress of that experience sparked my recurrence, but clearly, there were lingering bc cells in my body.  And for some of us, genetics probably trumps tx.

 I'm still hoping that your bone scan surprises with different results than your CT!  Fingers crossed!    Deanna

Leonarsu, other than some pain meds initially, I just had surgery and am now taking the A/I.  Xgeva has been recommended for me, but I've been slow to take it b'cuz of some necessary dental work I can't seem to face doing.  And that's interesting about your muscle issues.  I didn't have muscle pain, but around the time I was re-dx'd, I did have some sudden muscle wasting going on.  I tried to chalk it off to not going to the gym and to not refilling some hormones (DHEA & testosterone) my ND had had me on for awhile.  But in retrospect, I think it was all related to the bc recurrence.

As far as the hip replacement... don't be afraid of it as long as you have an excellent ortho surgeon.  A friend of mine had a terrible fall while hiking last year... shattered her hip and had to be air-lifted off a mountain.  She needed an emergency hip replacement, and I watched her spring back to normal walking and her very energetic lifestyle in a very short time.  So I knew going into it that you can recover with a great outcome very quickly.  Since then, someone else I casually know had one, and he was also back to normal amazingly fast.      Deanna  

Leonarsu, 

On my second dx with liver mets CTs and bone scan showed multiple bone islands on both hips, femurs and lower spine. However, both scan where inconclusive. Only PET scan refuted the bone mets. So unless they do a biopsy or a PET please don't speculate as it will stress you over may be nothing. Hugs ) 

Leonarsu:   I am an older lady with bone mets also.  I was dx'd on 1/10/2012.  I am currently on Faslodex every month and Zometa every 3 months.  I am doing well,but I do have some fatigue.  I swim at least 3times a week.  I never had surgery because it was never found in a mammo.  I had a side ache and had a MRI and they found bone mets in rib area.  I only have bone scans once a year.  My markers are always good.  

hi leonarsu, I am following your progress because I just found out that I may have mets, probably in my shoulder and maybe in my hip, based on pain I'm feeling, very similar to yours...  

A few months ago I began having severe shoulder and hip pain.... The shoulder I just assumed was a rotator cuff tear or bursitis, but got an X-ray and it found what looks like either chondrosarcoma (less likely) or mets in the shoulder... I am going for my pet scan tomorrow...

Good luck to you and everyone here on the site.

I was just diagnosed, via bone biopsy, that I have bone mets after 8 years of being "Cancer free" and on Arimidex. Your posts have been very helpful. Glad I found this forum!