Starting Chemo in April 2014

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  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    Cold, I'm so happy for you.  Onward and upward!

    Did they say anything about why you had that reaction?  You are one brave warrior!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    MommyQ, why are 5 and 6 optional for you?  My onco didn't want to give me more than 3 and I can't figure out why.  I'm getting 5 on Monday.  

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    Timbuktu- yep crazy urgency for a few days after chemo.   No UTI.  Sometimes it is worse, with all the fluids being pumped into me I peed on the floor TWICE today! !!  But at least not yet on the oncology unit where I used to work!   Private room, free TV, private bath.  Thank you to whoever pulled strings to get me into a palliative room even though I am not palliative.   Friday night football :)

    image

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited July 2014

    Yes, I havep seen many posts to that refer to that symptom.  

  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    Cold - congrats, and love the sign your son made.  Girl - you don't do it the easy way!  Scary about your reaction, but sure glad you worked your way through it.

    We made it to our place in Maine after 3 days of driving.  Sitting here enjoying the ocean and (mostly) tasting a cup of coffee.  The light at the end of the tunnel continues to get a little brighter each day.

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Ahh clarn  so sorry that you find yourself in the hospital but glad that you have a nice room and a stable potty chair :).   

    Hopefully this will bring a smile to your face and to others. 

    image

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    linda ... haha... just  the smile I needed this morning! 

  • mmtagirl
    mmtagirl Member Posts: 509
    edited July 2014

    Clarnn hope you are doing better. 

    Congrats to all of you wonderful ladies finishing up chemo. You are my inspiration  as I finished taxol#3 on Tuesday. Only 9 more!  I find weekly taxol much more "taxing" on my emotionally and sometimes physically than the AC.  This round of SEs include a weird numbness in my face and tongue. Could it be neuropathy starting?  I think my fingers are tingling more than usual, too. Energy is better, though. Two days without a nap and even got a good workout in. However, the weight gain gas started. 5 lbs in 3 weeks. Yikes !

  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    my eyes won't stop tearing, my nose won't stop running..... Ugh!  Eyelashes are just about gone - eyebrows are thinning. Atleast the pain has been gone for the past week. Harder to get going in the morning but must push myself......  

    So how does one wear eyeliner when the eyes are tearing??!!

    Look forward to my chat with my onc next tues re go forward plan. I dread having to go for chemo weekly!!  Just want this over with!

    Trying hard to keep my mind out of dark places. Going to a concert tonight - Scott weiland - singer of the stone temple pilots is here solo. My hero!  Last time he was here with the stone temple pilots I got up on stage with him to sing. 

    Tonight hubby and I will try to meet him but not holding my breath. I've been chatting with his bass player and supposedly my name is on a list but we don't know who holds the list!!  Lol

    Have a good weekend all!!

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    I was coughing and peeing my pants during chemo!   It all went away PFC.  Hang in there!!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    I also peed on the floor of the infusion room because I was so zonked I could not get out of bed in time to get to the bathroom.  After that I had my husband stay with me and wake me every hour to go.  I can't believe my onco said she never saw this before.  But what I have is a little worse than urgency.  I am leaking a little bit all day long.  I just hope it improves when I'm finally done.  

    I don't know why but this thread doesn't come up automatically anymore on my favorite topics.  This thread is truly my favorite!  I thought no one was posting!

  • MommyQ
    MommyQ Member Posts: 117
    edited July 2014

    Timbuktu - My MO said that the recognized standard treatment for my diagnosis is 4 rounds of Taxotere and Cytoxan. There is no scientific proof that any more cycles will improve my outcome, although she said new research is being done to see if 6 is better than 4, so I guess some think there's a possibility it's better.  Due to my cancer being advanced (3 cm tumor and 3/16 lymph node involvement), she'd like me to do the extra 2 cycles, as long as my body tolerates it. She figures that in case 6 is better than 4, she'd like me to get the 6. So, while I'd love to stop now with 4 done, I guess I should go ahead and do the 6.

    linda505 - LOVE that card, LOL.

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited July 2014

    C*O*N*G*R*A*T*U*L*A*T*I*O*N*S C*O*L*D!!!!!!!!!!!!!!! 

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    Makes sense to me Mommy.  Better safe than sorry.  I can't figure out my onco.

    BTW, I can't express how much this group has lifted my spirits.  You are all amazing!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2014

    I actually asked my infusion nurses about the bathroom issues and they see if when too much Benadryl is given. I haven't had that issue (knocking hard on wood). I have had a million others BUT not that one. I am getting ready for Tuesday's infusion and return to the chemo hole. :(. Blah. 

    We have been on vacation and had to go back so I could get an infusion. Talk about a bummer. I am a major downer these days and my dreams last night didn't help make me feel any better. ;(. I know I will eventually feel better but it feels like those days are so far away.  I think I need to find something to occupy my time and get myself moving again. 

    Cold- congratulations on finishing. May the last chemo hole be short lived. 

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    arg.... temp remains up... They want me on the antibiotics for 2-6 weeks IV!   

  • jhodro
    jhodro Member Posts: 240
    edited July 2014

    sorry clarn!! I hope you feel better soon! This road is so full of potholes.

    I should be thrilled for my last taxol next week but I am so emotional. Ugh! I feel terrible for my family. I keep thinking about rads too--will I feel better then? I want my life back!!!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2014

    jhodro - I promise the feelings from chemo go away. Not in a day but they do. I am worried about the rads also. Just hope the SE's don't linger from it.

    Clarnn- that stinks. :(. Where do they think you have an infection??

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    Jaimieh -  my left breast is red, although they are surprised that I would get an infection so long post surgery (feb 28).  But everything else is clear, so it must be that.  Growing staphylococcus aureus in my blood :(

  • nancybel
    nancybel Member Posts: 81
    edited July 2014

    Congratulations Cold!! Yay for last chemo and boo for reaction, but hey YOU ARE DONE! :)  Love the sign.  Hope your dark place isn't so dark this time and it goes by quickly. 

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    Hope the antibiotics do their thing quickly and painlessly!  Let us know when you are better.

  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    clarrn - do you have to stay in the hospital for the antibiotics?  

    Footballnut - how was the concert?

    Decided to stop whining about fatigue and do something about it.  Started a regimented daily walking program today - no excuses unless I just pass out or something.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2014

    clarrn I hope the Rx take care of it quickly. I had issues months later. I think it is common because of the chemo. 

    Sharon-Way to go starting an exercise plan. 

  • mmtagirl
    mmtagirl Member Posts: 509
    edited July 2014

    Clarnn, so sorry. You just can't catch a break.  Do you have to go to the hospital for daily antibiotic infusions or stay there ? I hope you can get out of the hospital. You are much safer from germs at home!

    Jhondro I get the emotional roller coaster approaching chemo day. It starts on Sunday for me and lasts until my infusion on Tuesday. I have Ben overly sensitive on those days and want to kill my husband, yell at everyone at work and the world irritates me. I have a friend coming from out if state to visit me for a few days. She is very dear to me so I am praying that the black hole stays away from me this round so I can enjoy her visit 

    On another note, I have officially had a thumb nail lift through my shellac painted nail this weekend. Ewwwww. I am afraid to take off the polish to see what is under neath the paint and the status of the other nail beds. Oh, and I purchased a dress this weekend for my niece's wedding August 1. Two sizes larger than BC.  The joys of chemo. :-(

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    They are having trouble with vein access, might get a port with only 5 weeks of chemo left! If I do, they might let me give myself them as I am a nurse. 

  • jhodro
    jhodro Member Posts: 240
    edited July 2014

    Clarrn: sorry about the port. Best of luck. Maybe it'll make the rest of the process easier for you…hopefully.

    Sharonde: Yay you on the exercise program!!! I want to do the same as soon as the foot pain diminishes for me.

    Mmtagirl: Your description nails the emotional roller coaster to a T. I am having trouble getting back at work - I have zero patience for stupidity (and right now everyone seems to be acting stupid). And my husband tends to get on my last nerve - I've had to tell him about 600 times that I can't drink citrus or can't eat something. I say I'm tired, he says why. It's not like he isn't trying, but I'm not easy. And then you have the whole responsibilities of the kids. :) Sorry about your nails. I think I remember you saying you were icing? 

  • mmtagirl
    mmtagirl Member Posts: 509
    edited July 2014

    Yep, I am icing.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    mmtgirl, what a comfort to come on here in the morning and read that I'm not the only one.

    Tommorow is infusion number 5 and I was up most of the night.  The anxiety seems to get worse each time.  I even took an ativan and it did little good.

    But as I said, it's nice to know that I'm "normal" in this very abnormal situation,

  • MommyQ
    MommyQ Member Posts: 117
    edited July 2014

    Timbuktu: Better safe than sorry, for sure! I found the website that my MO used when determining my treatment so you could look at it too. I don't see any treatment plan which only consists of a total of 3 treatments. I can't remember which chemo drugs your MO has you on, but if you go to the following website, you can look at the recommended treatment regimens listed:  

    http://www.nccn.org/professionals/physician_gls/f_...   

    Click on "Breast Cancer." On the following page click "NCCN Guidelines for Patients (Stage I and II Breast Cancer)" and go to page 44 and 45.  Those 2 pages list all the recommended treatment options for HER2- tumors. There are a bunch of them! Maybe you can show this to your MO.

  • Ddkath70
    Ddkath70 Member Posts: 129
    edited July 2014

    hi ladies! Love that card Linda. Congrats to all of you warriors who have conquered your chemo with determination and perserverance.  I'm just wrapping up the dark place of number three. The swamp water taste and aches are gone, but the fatigue just won't let up. Is everyone else feeling like you have cement shoes and no stamina? It's so depressing. Even if I wanted to go out, I don't think I would last long. And then I look in the mirror and say "oh yeah, your still here" . Lol. I really never got over the bald thing. I must have purchased 29 different hats and scarves, and 2 wigs...just can't feel comfortable in my own skin no matter how hard I try.  Anyway, I'm coming up on my last treatment and while I am elated, and psyched,  I'm also worried. I'm worried that maybe I should do 6 treatments , what??? Do I hear myself? I asked the dr when we were deciding which regimen was right for me she said both ( 4 of TC, OR 8 of AC-T) were suitable for my cancer. I said, so should we meet in the middle and do 6? She said that there's no research that oroves one is better in my situation. Will we ever give ourselves a break? Will we be able to breath deeply again without thinking the ground is going to fall out from beneath us? 

    I'm sorry, I'm so whiney and down, but I read your posts and you get it. No one around me gets it. 

    Thanks for listening. And I love what Cold said. Doesn't matter what SEs come this time, because there will not be a next time. I WIN!!!!!

    Dd

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