Starting Chemo in April 2014

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    Congrats SwissMiss!!!   Whoot whoot!!

  • rosebud77
    rosebud77 Member Posts: 24
    edited July 2014

    Hello  All, I just read this thread and realized that I am in the same time frame.  Last chemo tomorrow!  Woo HOO!  It is great to be at the endpoint of this phase. I'm excited to see some hair soon.  I don't care what it looks like as long as something reappears.   I  am looking forward to having a conversation with Onc doc tomorrow to discuss next steps of radiation, implants, port removal, etc.     Good luck to all of you as well !!!!!.

    Footballnut- I have the  bloody scabby nose thing but only when I wake up each morning.  Not real nosebleeds. I feel as though it is from the extreme dryness/ losing nose hair. Not to be super gross, but I've gently  wiped the area with a wet q tip to clear the scab each day.   (Yuck- sorry!)  My doctor would probably not be pleased with me messing with it.        My eyebrows got really thin after 7th chemo round and I've lost bottom lashes on right eye only  (Taxol).  I'm grateful they hung on this long -but it looks weird and lopsided.  I expect to lose more lashes on last dose of Taxol. Waking up with same sweats and tingling feet  so I could have written your post.  


     

  • EverForward
    EverForward Member Posts: 242
    edited July 2014

    Congrats, Swiss! Definitely worth celebrating! I'm with you in the chair today for my next to last chemo. But I continue with Herceptin until April.  Hoping for mild SEs.

    I'm listening to music and the lyrics right now are applicable to us: "My life is like a lemondrop, I'm sucking on the bitter to get to the sweet spot. I know there are better days ahead."

  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    way to go swissmiss!

    As for the nose -it's not a nose bleed just dry and when I blow I can see a bit if blood. When it runs it's not bloody just a nuisance!!

    Rosebud we sound very similar with respect to the nose and eyelashes!!  Lol

    I'll chat with my mo about all this next tues

    I am still so scared about future treatments but even the bad times have past quickly

    Football starting soon!!!!  Focus. Focus!!  Lol

  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Congrats Swissmiss one part of your journey is done!!

  • Sunshine36
    Sunshine36 Member Posts: 88
    edited July 2014

    Hey ladies!!!! Sorry ive been MIA lately! Just dealing with chemo and se and trying to enjoy the summer as much as possible with hubby and kids!  

    Woot woot my final chemo is next thurs! Cant believe it! And my bilateral is 8/20! Feeling like I see the light at the end of this very scary tunnel ;)

    Crazy to think in april when we all started connecting,  that we are now gearing up to the final legs of our chemo journeys. Im forever grateful for the friends ive made here. I hope we all keep this thread going! 

    Congrats to all the chemo (and upcoming) graduates!

    Xoxo jen

  • jhodro
    jhodro Member Posts: 240
    edited July 2014

    Congrats Swiss!! So good to hear you're done! I started 4/8 too and my last chemo is next Tuesday. Then on to rads on 7/30 for sim. Looking forward to moving on to the next thing.

    Congrats to you too Sunshine! Soon you'll be well on your way!!

    We'll definitely all have to stay in touch!!

  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    Congrats Swiss !!! And to everyone getting close. 

  • nancybel
    nancybel Member Posts: 81
    edited July 2014

    Congrats Swissmiss!! and Congrats to all upcoming graduates.  We are all fighters and survivors.  I hope for minimal SE for all.

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    You know I think I like the word THRIVERS!

  • MakeLemonade
    MakeLemonade Member Posts: 153
    edited July 2014

    Congrats to those that are finished or finishing chemo soon!   I think the light is at the tunnel for most of us!

    I had my second last treatment yesterday with NO reaction to the Taxol this time.  Last chemo will be on July 29 but will then continue with Herceptin every 3 weeks until June of next year.  Will be done the chemo portion, but won't be "done" Haven't even spoken to the onc about any of the anti estrogen stuff yet.  

    Had my consult with the radiation oncologist this morning.  Will be doing the simulation on Aug 1, then starting radiation the week of Aug 18.  Probably for 5 weeks ... he wasn't definite yet as he has to see the simulation.  He is very nice though, I like him a lot.  Was hoping to start 2 weeks after the last chemo, but he likes to wait 3 or 4 weeks as the skin can still be very sensitive to burning before then.  Makes sense.

    Funny thing out of that consult ... because I am through menopause, I have to have a pregnancy test done.  I laughed at that one as nothing has been going on in that department while I have been having chemo.  But that is the standard of care, so I will go and pee in a cup.  Too funny though :-)

    Also had another PT session with the lymphedema therapist.  She got rid of the little bit of cording that I had a few weeks ago, but I still don't have 100% range of motion back and am still a little tight.  Getting there ... going back the week after my last chemo and then again after radiation starts.  Depending on how I am doing, I might keep going back during and after radiation until I am 100%.  Radiation can increase the risk of developing lymphedema, so doing all of this proactively.  

    Then went and had the Neulasta shot.   Everything is being done at my hospital center, so it is all convenient.

    Even though I had a bad night last night due to the ton of steroids I had yesterday and the hot flushes that I am developing, I still feel very energetic today.  That will all change tomorrow when the steroids wear off :-)

  • HollyHope
    HollyHope Member Posts: 46
    edited July 2014

    Yay to those on their last or second to last chemo!!  And congrats Jen on the surgery date.  Are you getting TE's then also?  My exchange is scheduled for 8/25! :-) Only good things ahead for all of us!!! HUGS

    Holly

  • Sunshine36
    Sunshine36 Member Posts: 88
    edited July 2014

    Lemonade - good luck with rads girl! 

    Holly - yes getting the te at same time.  The plastic surgeon said if I do not need rads after surgery and things go smoothly,  then exchange surgery is about 8 wks later!! Im so excited for you that yours is so close! Hugs!!!!!

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    Hi everyone,  

    I was MIA due to fun!  Woohoo!  Got to take the boler out camping for 3 nights over the weekend with my twin brother and his wife and my hubby and dd.  It was great, beautiful and 30C  all weekend :)  Lots of sunscreen!  

    Then appointments all tuesday .  Lymphedema specialist kept asking about my DVT and was worried about my puffiness, wondering about my heart,  etc.  Went to the next appt MO.  My resting heart rate was sitting at 125.  Oops... I hadn't even felt any symptoms, so Echocardiogram was after my chemo yesterday.  Will have results by Friday when they ultrasound the DVT site to see if I need another 3 months of Tinzaparin injections....boo hoping not to have to do that anymore.  And they are checking out the non dvt arm also because they don't want to compress that arm in case of another clot.  So after that is ruled out I have to go straight to the store to get a sleeve and gaunlet :(  

    Lymphedema specialist also broke the news that I can not do ICU nursing with a sleeve/gaunlet due to infection control.   I had a good cry about the loss of a big part of my identity.  Will be forced away from the bedside, and not ready for that :(  I will miss my patients and their families.  I am still hoping that maybe I could wear compression at night instead but with all the heavy lifting required the specilist said no.  Grr.  And who knows what the LE will do after rads. Ack!  But on the bright side I have been thinking a lot a out becoming a nurse navigator if a position opens up, maybe this is the push to do it once I get the ok to work again. 

    Then MO reminds me that tamoxifen is now off the table due to DVT.  Boo.. wants me to either do ooph removal or suppression and an AI.  But I still was holding out hope for more babies.  Double boo and double the tears.  Then the nurse practitioner who is a good 300lbs gives me a 10 minute lecture on the 11 pounds I have gained since surgery and chemo, talking about reccurence, survival rates and it's like I am in the cartoon peanuts....blah blah blah.  I am walking my 2 km a day and just can't handle anymore after my day with a 3 year old.  At least my MO walked in right then and said no working out or anything strenuous until they get my heart rate figured out.  Thanks MO... I love you♥♥♥ 

    But I do only have 5 Taxols left, and am doing ok by only thinking about that :)  Totally think my down time will hit hard after I get through chemo as well.

    Congrats to everyone finished or finishing chemo!!!! So excited for august 27th for my last one!!  I agree with the fast/slow time thing with this journey.

    Football- so excited you are feeling better, and I too am having the bloody nose but only when I blow it.

    Cold- congrats on your new ride!  Way to go hubby!

    Jaimieh and holly- fuzzy white hair starting to grow too, I am getting some fuzzy face too, ack!  Will wax that!

    Good luck to sunshine and holly and all those heading in to surgery! 

  • MomMom
    MomMom Member Posts: 523
    edited July 2014


    Clarn,  So sorry for your disappointments.  My heart goes out to you.  But I love the way you are already thinking ahead about switching gears and possibly switching to nurse navigator.  They are so helpful to us before and during treatment.  It takes a special person and I'm sure you've got what it takes in spades!  Hoping the heart issues turn out to be nothing. Hang in there.

    Thanks for my Lol of the day - loved your description of the 11 lb. lecture coming from the 300 lb nurse!  Priceless!

    I have only one more Taxol to go next Thursday.  Can't wait!!  Two weeks ago my white counts were too low & had to skip that week.  Last week they were up considerably and this week they were amazingly high.  Go figure.  I'm just grateful.

    Yep, I have that Taxol bloody nose too, but only when I blow it in the morning.  And Yep, I've got that baby chick white fuzz stuff going on too.  I really can't call this stuff hair, but at least something's growing there!

    Hugs and good wishes to all those with surgery coming up.  So happy to hear that it's better for you Footballnut!

    Paula

     

  • MJ1966
    MJ1966 Member Posts: 8
    edited July 2014

    Hello everyone.I've been a lurker here since early April. Just not a public person,but I've learned a lot from all of you. 

    I'm just really bummed today and,I admit,a little scared. My treatment has been complicated from the get go.  Had seroma develop after lumpectomy in January and ended up with a wound vac for 6 weeks or so,delaying start of chemotherapy until,April 4 First cycle about killed me...diarrhoea,nausea, vomiting,dehydration,etc. Had to have multiple iv hydations. MO reduced carboplatin dosage and said I'd be fine. Wrong! Over subsequent cycles I've required delays, multiple hydration, went. Into early kidney failure ,dosage changes and switched to cytoxan.Was scheduled for last chemo on 7/28 but today MO cancelled it and said I'd be fine without it and we can just move on to radiation.  Herceptin has been delayed for another four weeks too. Tho on one hand this sounds great it scares me....I've had so many changes and delays,what if those little suckers are still lurking out there and need just that last blast to convince them to leave me alone?  I'd hate to have gone through so much to no avail!  Am I crazy?

    And the start of radiation is scary,too! What complications is that going to bring?  

    Thanks for letting me vent. I have remained positive through all of this until today and every thing just hit me. My MO is great and I trust her, but....

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited July 2014

    CONGRATS SWISSMISS!!! WOO HOO!!! Happy I am not too far behind you in the race to finish with Tuesday 7/22 being my last one.  My daughter made me a sign as well! Stay tuned...

    Saw this on facebook and promised to share it here. 

    image

    xoxo

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited July 2014

    Footballnut - I also get the bloody nose thing.  Every morning!  I have had a few actual nosebleeds, but have been able to stop them fairly quickly.  I'm so glad to hear you're feeling better!

    Clarrn - I'm so sorry you've had so many disappointments.  Hopefully, you will be able to become a nurse navigator.  I think you would be great!  Also l got a good laugh over the nurse lecturing you on your 11lb weight gain!

    Had Taxol #6 yesterday.  Fatigue is my biggest enemy right now.  Also have dis colored fingernails.  They feel strange too.  I hope they hang on.  

    Wishing you all well.  Hugs, lilyrose

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited July 2014

    Woo hoo! So many of us are heading into the last round or 2 - so exciting! It seems like a short time ago we were all just starting out and scared out of our wits! Look at us now -Super Heroes, all of us. :)

    Swissmiss - Congrats on being DONE! Hooray! :)

    Nancybel - I believe you just finished up too, yes? AWESOME! :)

    Holly - I have the white "chick fuzz" too! If it all grows back that way, I'm going to look like someone's Grandma for sure. Eeep. :O

    EverForward - YES to the muscle fatigue. We have a 2-story house, and that trek up to the second floor almost kills me. I have to stop and rest half-way. And every time I say a little "thank-you" to the landing for being there. :D

    Footballnut - I had the bloody nose thing too - that Taxotere is a PAIN, right? I was also getting headaches EVERY DAY. My MO told me to take a Claritin the day of chemo and about 5 - 7 days following (and to continue for more days if I need - which I usually do), and it completely cleared up the headaches and the nosebleeds. That man is a GENIUS, I'm telling you! I hope things are going better for you!

    clarrn - I am SO SORRY for all the stuff cancer has stolen from you. :( I do thing you would make a marvelous Nurse Navigator. Mine has been super useless - I've heard from her ONE TIME before my surgery and nothing since. It's definitely an area that could use some fresh faces who have BEEN THERE. And as for the nurse lecturing you on your weight gain? What can you do but laugh? Honestly, you were in good shape BEFORE. You were healthy BEFORE. And those things didn't keep the breast cancer away. I'm pretty sure the 11lbs you gained during chemo aren't increasing your odds of recurrence. Some people are just CLUELESS, right? GEEZ.

    MJ1966 - Welcome! I'm sorry to hear you've had such a tough time. Chemo is nasty business, isn't it? I'm super impressed you've made it this far! Way to power through it all when faced with side effects that would have caused many women to quit after round 1. You're seriously a super-star in my books! :)

    Tomorrow morning at 8:45am, I will hit the chemo chair for the LAST TIME (after that it will only be the Herceptin Chair, and I'm cool with that). And I'm EXCITED. Practically GIDDY. Bring it ON. Because no matter what the SEs bring me this time, there will be no next time. I WIN. Woot! Woot!

    Thinking of all of you who are heading into the Chemo Lounge over the next few days. We're almost there Ladies! 

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited July 2014

    Football - I get the bloody chunk thing right after taxol. 

    Lilirose - I am not fatigued but have a hard time staying on task and organized.  Motivation is not my friend.  My nails are raised and some have black spots that look like bruises in the middle.  I also have some burning neuropathy in my big toe tonight. 

    Having a hard time waiting for my scan on Mon and then the breath holding that will go on until Wednesday.  Think I see my friend Xanax on the shelf.  Got to keep my spirits up..

    We have a fun thing happening in our family tomorrow.  Our son, DIL and SuperGrandson live down the road.  They just bought two, that's two, Great Dane puppies.  We are all so excited.  Like having new babies come  home.  That will tide me over if I ever get to hold them ;-)


     

     

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited July 2014

    Brigadoon,  Motivation went out the window shortly after I started chemo.  I get it.  The onc nurses tell me that my high resting heart rate is a big factor.  I sure hope it goes back to normal once chemo ends.  Waiting on tests is never fun.  Waiting for results is nerve wracking!  I hope your scan gives you good results!  New puppies to cuddle will be fun to look forward to!  Great Danes are awesome.

    Hugs, lilyrose

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    Thanks for all the encouragement!   You bring happy tears to my eyes because you get it.   You understand. 

    Woohoo!  Happy dance,  you do win Cold, congrats on getting to the last one! 

    I am smiling as I look at the commode in front of me.   I will always remember your tale about yours cold...lol.  I spiked a fever of 38.9 today so here I am getting fluid boluses.  Poor nurses had a difficult time with my poor chemo veins.   4 pokes and we are set.  Not so bad though.  Timing is terrible.   My cousin got here at 9pm tonight  from 2 provinces away.   I waited until they went to bed to come in.   They leave at 9  in the morning so I guess they will come say goodbye here.  :)  Tour of the hospital? :) not quite the visit we were hoping for but life happens.   Hope you all stay healthy! 

  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    Good morning, everyone.

    Clarrn - I was reading through your posts, thinking how much you have to deal with, then saw you were in the hospital!!! Your positive attitude is amazing.

    MJ - welcome.  This is the place to vent.  Hoping things improve for you.

    Congrats on your last chemo today, Cold!!!

    Lilyrose - I hear you on the fatigue and weird nail feeling ... Life is so odd these days.

    Brigadoon - thinking of you as you await your scans, and also picturing you frolicking with two Great Dane puppies.

    Longisland - I like that: there is no room for drama!

  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    image

    There it is.... and yes I still managed to piddle on the floor...lol

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited July 2014

    It's a weird feeling as I get closer to my last infusion on Tuesday.  I can't seem to focus, or relax - yet I have no energy.  My daughter asked me if I was getting excited about it and my answer was No.  I don't know how I feel - the only feeling I'm sure of is "Unsettled".  Maybe part of it is that I have other things in line immediately following the chemo.  MRI & Bone Density scan the next week, followed by mtg with Radiation Oncology to set things up there.  Maybe after those appts. I will be able to relax a little during the few weeks break until radiation begins.  As for right now, I'm just kind of existing for the next few days.  Trying to stay upbeat but it ain't easy.  I think my hormones are messing with me as well.  

  • HollyHope
    HollyHope Member Posts: 46
    edited July 2014

    Just thought of something funny after reading the updates.  We're like a bunch of baby chicks that just hatched with all our fuzz lol!  Big high 5's of everyone finishing up chemo or moving to the next stage of this journey.

    Clarn - Sorry to hear about the career change, but I have no doubt that this experience will help your patients out so much!  If only we all had health care professionals who understood what we're going through.

    MJ - congrats on remaining positive with everything you've gone through!  It sounds like you've had it VERY rough.  We're here for you to vent or just to read our updates so you know you're not alone.  I went weeks without posting here, but now I'm back.  This has been such a safe learning place for me and I am so very grateful for every one of you wonderful strong ladies!!!

    Hugs my friends...

    Holly

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited July 2014

    clarrn - You are a hoot! I have very fond memories of my own Grown-Up Potty chair. How wonderful that someone else gets to enjoy one too. :D And even now, when I hear the word "commode" I giggle a little. Thanks for sharing your photo and making me laugh today! :) I hope you're feeling better!

    Well, I MADE it Ladies. I made it through the final chemo round. But the day was not without its blips. For the past few rounds the oncology nurses have been warning me that Round 6 of carboplatin is when reactions can happen. I asked my MO about it and he assured me that while they CAN happen, they are not common. The nurses are wonderful, he said, and they know what to do, so don't worry about it. Total foreshadowing there.

    So, I marched into the chemo lounge this morning with a SMILE on my face. Seriously, I could NOT stop grinning, knowing that after today I don't have to do this again. We started with Herceptin for 30 minutes, then Taxotere for 1 hour, and then carboplatin for 45 minutes. Unfortunately, half way through the carboplatin, I got a little nauseated. I thought it was because I had just eaten lunch and maybe I had eaten too fast. A few minutes later, I started to feel...WRONG. I hit my call button, and with only ELEVEN MINUTES remaining for the carboplatin, we stopped. My face, neck, and chest had turned a lovely glowing RED, and I felt AWFUL. The nurses were AWESOME, as always. They did a saline flush, then some Benadryl, then some Hydrocortisone, and THEN some Zantac, and THEN some more saline. Then there was a 20 minute wait, and I totally zonked out for a little while. 

    My nurse informed me that typically they don't "challenge carboplatin" once there's been a reaction. But because mine was a minor reaction ( I would hate to see what a major one looks like - oy!), and because I had so little left, my MO wanted to try to finish it up, but at a slower rate. So 11 minutes became 22 minutes. And guess what? I took it all like a CHAMP. And then I got to RING THE BELL. Now THAT is an awesome feeling. :)  I walked out of the chemo lounge much more tired than usual; which was expected, considering how many extra meds I had pumped into me! But I feel like a Super Star. If I had ever learned to tap dance, I would have tappa, tappa, tappa'ed my way out of there. :)

    image

    Isn't the sign amazing? My son made it.  I'm keeping it forever. :)

    In other news, my daughter was diagnosed with Strep Throat this afternoon, and my son appears to be following in her footsteps with a fever and a sore throat developing this evening. *big sigh* When it rains, it pours, right? The worst part is not being able to go near them. Mommies are supposed to snuggle with their sick babies - it helps them get better. And I CAN'T. AAARGH! NO FAIR. *stamps foot* And my husband (and Mom - the traitor!) thinks I should be quarantined to my room until the children are better. WHAT?! I can't even argue with him about it too much, even though the idea SUCKS. Because he's probably right, the big Smarty Pants. 

    Ah well, I am FINISHED CHEMO. And that's really all that matters here, right? One more visit to the Dark Place, and then I'll shake the dust off my feet, straighten my crown, and walk away like a boss. ;)

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    bravo Cold!  And tell your son that's a fantastic sign!!

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited July 2014

    Cold...CONGRATS!!!  I love the sign, definitely one to treasure!!!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    Has anyone had trouble holding their urine?  My onco said she'd never seen anyone have that trouble before but I looked it up and it seems to be a side effect.  My neuropathy is getting bad.  The pain keeps me up at night.  I also get dizzy on standing up from lying down.  Supposed to have 5th infusion Monday.  Pretty scared!

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