Very Scared

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Hello -

I was offically diagnosed with BC last week and I am meeting with my oncologist tomorrow to go over everything.  They want me to have chemo before surgery.  I am very scared.  I am trying to remain positive but I am finding it hard.  The meds scare me, chemo scares me, losing my hair scares me.  Every little ache and pain scares me.  I feel very lost and confused. 

Can anyone provide any advice or words of wisdom?  I would greatly apprecite it. 


 

Comments

  • bluepearl
    bluepearl Member Posts: 961
    edited July 2014

    I am so sorry you had to join this club, but there will be great support for you here. What you are feeling is normal, although it doesn't feel that way to you right now. It is a terrifying place, but I can tell you from experience, that it gets better, esp. when you have a treatment plan in place and you know everything about your cancer. I cried and cried....even had a nervous breakdown, but ativan helped me through. I think I walked 10 miles a day...crying....lost 20 pounds because I hardly wanted to eat. I kept asking myself "what will I do, what can I do"...and my one piece of advice is DON'T DO THIS ALONE. Even if you need a volunteer breast cancer survivor, family, friend, counsellor.....just don't try to do this alone. I did and it was terrible. It made me worse than I needed to be. The second time around, my friend walked me right through with the surgery, in a large metro city, and during the tests etc. she made plans to go here, go there, see this, do that....kept me busy. A truer friend one could never find! I did much better. Give and accept hugs. They are healing. Right now, you are shell-shocked. But it will get better for you, one step at a time, and at your own pace. I didn't need chemo but I was afraid too. I was afraid of tamoxifen the first time around, didn't take it....got a new primary....so take your meds. Place some trust in your oncologists, don't fret over getting a second opinion if you feel you want one, become pro-active in your treatments...if you don't feel well on them, speak up. Speak up about your fears too. Know your cancer. Know that you too will be a survivor. Get exercise, eat a balanced diet, lose weight, meditate/pray/become involved with spiritual development whatever that may mean to you......keep your friends and family close. Other women you will come across in your journey who have b.c. will become like sisters to you. It takes time to adjust to your new "normal" but somehow you find something in the depth of your soul that moves you onwards and upwards.  Chemo before surgery is just as effective as after surgery too...so you may be over the first hurdle before your surgery. Wishing you the best outcome sweetie........and keep us all informed about your journey!!! (((((HUGS))))) PS...have everything written down for you from your doctors. They will give you copies. Our memories are not so good at this time.

  • Paula1231
    Paula1231 Member Posts: 456
    edited July 2014

    Hello Ocean,

    Just know that you will get through this.  I was in your shoes in July of 2010.  You are in for a rough year, but your life will return to a semblance of normal.  It will be a new normal, but you will still be you.  The posts here will help you cope and offer good advice.  I am here for you too.  Hang on tight.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited July 2014

    You've probably met with your Dr already today, hope you took someone with you. I also use my iPod to record my appointments as well as taking notes, amazing what I hear the second time around.

    I'm 4 weeks post op lumpectomy and starting chemo this week Thursday. I've found it's overwhelming to consider the whole picture, and have found it's better to focus on what's coming up next, and then ask myself "what do I have control over". Do not waste time and energy thinking about all the "what if" scenerios that could happen. If chemo is your next step then learn what you can about your chemo - the names of your meds, ask your Dr the most common side effects to expect, and then read up on what you can do to deal with them. Knowledge is power. 

    If hair loss is expected, visit your local American Cancer Society office. I got a free wig and 3 free hats/caps from mine. 

    I went shopping today and stocked up on easy to eat foods to have on hand, like yogurt, cottage cheese, pudding cups, applesauce cups.

    I asked someone to tell me about the infusion center so I'd know what to expect, private rooms vs big open room, what do they provide for food and snacks that day and what should I bring along, can you bring someone with you, etc.

    And continue to build your support system, like this forum. I also joined the Cancer Survivors Network (csn.org) and participate in their chat room and have found it a tremendous help. One of the members even sent me a private message the day I was to get my oncotype results, to tell me he was thinking of me and sending up prayers. It all helps.

    Left foot forward, right foot forward, take a deep breath - You do what you need to do.

  • oceanbreeze1818
    oceanbreeze1818 Member Posts: 50
    edited July 2014

    Hello Friends -


    BluePearl and Paula1231 - thank you so much for the words of wisdom you have provided.  I found comfort from them.

    Puffin2014 - you are right, I have already met with my doctor and established a game plan.  Chemo is first and will start in the next few weeks.  I have the names of the drugs I will be administered and know it will be 6 sessions every 3 weeks.  I am still nervious about it all but with two young daughters I need to stay strong and be positive and get through this.   My MO said the worse part in her opinion is the chemo and I am getting it out of the way first.  Then surgery options and possible radiation and I will have some additional hormonal therapy to be completed.  It sounds like a lot, and honestly it is a lot but like you said, left foot forward, right foot foward.  I am just very happy that all the doctors are working with me in regards to the surprise Disney trip we have planned for our girls in September.  Still working through the whole hair loss thing but I will deal with it as it comes. 

    I am just trying to remember to breathe.....

     

     

  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2014

    ocean.

    I have lord of suggestions. Hopefully some if them will be helpful. 

    I am 5.5 years out and you should know my life is pretty much like it was before. This too will pass. Things I did that helped me during chemo

    Bought great wigs

    Went to work every day I could

    Kept a journal 

    Taped all of my appointments and listened to all the optimism from my docs 

    Wrote my fears here

    Loved my little kids more 

    Had lunch with different friends every time I had the wig styled. Still do this after my annual visit to onc

    This year I had another unrelated (thyroid) situation and I invited friends and family to join a healing circle. It has really been great I wish I did it for my BC. I asked everyone to think/pray at the time of my thyroid surgery. I really felt their love and support 

    I think people rise to the occasion ifyou tell them what you need. 

    I kept the circle small with BC because I was so scared. What I realized was that I had so many people in my life who could help but I really just relied on h, my mom, a few friends.  Should have opened the circle. 

    I focused entirely on all the good news my docs were giving me. Not on google or even anything on this site. It it's about you, your biology and what you and your docs agree on. 

    Life comes back. I honestly barely remember chemo. I hated the hair thing but I only wore that wig for 7 months. That was the hardest part 

    At every turn, be very kind to yourself. 

    Hugs

  • emrose1
    emrose1 Member Posts: 4
    edited July 2014

    Hi OceanBreeze, 

    Just want to tell you my experience, I was recently diagnosed too--5/15/14.  I am lucky to be near a great research hospital that I trust, and had a treatment plan within about 2 wks. Yes, completely overwhelming, unexpected and devastating, I fell apart for a few weeks, then focused on treatment to keep my sanity.  Am doing neo adjuvant chemo, then surgery and radiation.  just finished 2nd session of 6, and the side effects have been pretty manageable.  (Chemo is every 3 wks).  I went on leave from work to focus on treatment, luckily, and that's the best thing I could have done.    I found that I had about 3 rotten days following 1st Chemo session, then started to feel pretty well for the rest of time leading up to second treatment. Mostly normal appetite and enough energy to do regular activity and a lot of walking, not any intense exercise though.  I'm now on day 5 following 2nd treatment, and side effects were almost identical, possibly less than first session because I am taking over the counter remedies to manage.  Definitely feel more normal today.

    I would be happy to give you any advice or info, support you need.  The beginning is so hard because it's so much information and you're terrified. This does get better, we are all much tougher than we realize.   Don't hesitate to reach out :).  All the best!!

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