Fear of what comes next

Options

I was diagnosed with DCIS and IDC on 2/14/2014 (Happy Valentines Day!). I had a MX and lymph node dissection on 3/17. I discovered (post surgery) that I am BRCA positive. Fortunately I had a hysterectomy and oophorectomy in 2007. I was in tremendous pain from the surgery and during recovery. I completed 4 rounds of AC (lots of nausea) and just finished my 2nd (of 4)Taxol treatments (lots of pain and fatigue). Through all of this, I have stayed pretty positive but notice myself becoming increasingly anxious about finishing chemo. There is a sort of reassurance that at least the cancer cells are getting killed while on chemo. I am afraid of getting BC in my remaining breast once I am done.

I would love to hear how others have dealt with this fear and post treatment in general.

Thank you.

Comments

  • TB90
    TB90 Member Posts: 992
    edited July 2014

    Hi HannahEm:  I too worry about that and coincidentally decided to do some research this morning.  Our situations are different though as you are BRCA positive.  My research stated that there was only a 5% chance of another cancer in the other breast.  I liked that result so did not look any further :)  Hope others with more knowledge chime in here.  I would assume that there are many factors that contribute to our risk of another cancer in the other breast.  I love having one breast and just could not have a mx while it was still healthy.  But I certainly can understand why many do.  It seems on bc.org that many women opt for double mxs yet my "research" also indicated that the vast majority of women do not???  I think that it is a very personal decision based upon many factors including your risk factors and what degree of risk you can cope with.  Discuss your own personal risk factor with your MO and that will help with your decision and peace of mind.

    Many of us have struggled when treatment ends.  There is an adjustment period and then it gets better again as a new normal sets in.  What has really helped for me is the lifestyle changes that I have implemented.  Once you feel better and stronger and can exercise, etc. you feel as though you are "treating" yourself.  But this time with positive and healthy treatments rather than with radiation or chemotherapy.  Research does show that diet and exercise have a significant impact on our well-being, including reducing chances of a recurrence, new cancer or death.  I personally have not felt this good in 15 years.  It really helps me feel confident about my future.

    I hope this helps, but it is a process and you need to allow yourself to go through all the steps.  You will work through it and decide what is best for you.  Embrace the women on these boards as their experiences and knowledge definitely helped me, but we must make the best decision for us.  Take care!  

  • mdg
    mdg Member Posts: 3,571
    edited July 2014


    I am too much of a worrier and got some anxiety from all of this so I started on Effexor.  It tames my fears and it also helps reduce hot flashes.  As time goes on, I think about it less and less. 

  • MondaysChild
    MondaysChild Member Posts: 591
    edited July 2014

    Yes, we worry about it. I cry at night a lot in fear of it, or just the isolation and abandonment of it.  But in the morning, we must get up and live the day as if it is not the last, but only the first in many more to come.

    One day at a time. And before we know it, there a lot of those days.

    Faith.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2014

    Hi HannahEm, 

    As some of the others have mentioned, since you are BRCA+ it will be important for you to discuss your options post chemotherapy (e.g. hormonal therapy medicine, prophylactic surgery, etc.). 

    This article may also be helpful:

    BRCA +

    Thinking of you, 

    The Mods

  • HannahEm
    HannahEm Member Posts: 2
    edited July 2014

    Thank you all who responded to my post. I find this site to be supportive and a great source of information!

    I really appreciate it!!!!

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