Need answers to reconstruction options

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cbrenner
cbrenner Member Posts: 9
edited November 2014 in Stage III Breast Cancer

I was dx with DCIS, IDC, ILC and underwent a BMX in April 2014. As my head was spinning from the huge amount of information, I did not really pay attention to the reconstruction options. I believe my PS did not offer anything but TE with saline implants. My question is about DIEP flap recon. I have TEs that have been filled 320ccs. They are lopsided and uneven. Can I opt for DIEP flap at this stage? If I have DIEP, do they need to remove rhe TEs? I have 4 more chemo rounds to go, then 28 Rad treatments so recon is not going to happen soon. Any help, advice, experience on recon would be great.

Comments

  • Momine
    Momine Member Posts: 7,859
    edited July 2014

    Cbrenner, I can't help much, because I have not had recon. However, I do know that a DIEP would mean getting rid of the TEs and not having implants. That is the big advantage of the DIEP.

    It sounds to me as if you should take this time to talk to several PSs. Also, always, always ask to see before/afters and insist that you only be shown before/afters of women who had your stage of cancer and your treatment. It is fairly easy to make recon look good on a woman who had a skin and nipple-sparing BMX with no rads, for example. So showing you pictures of those kinds of cases would be very misleading.

  • cbrenner
    cbrenner Member Posts: 9
    edited July 2014

    Momine

    That was very helpful. Radiated skin is very different from nonradiated. Thanks for the giidance.

  • kar123
    kar123 Member Posts: 273
    edited July 2014

    Also, it's hard to get a good idea of what the final result will be by looking just at the TE's.  They are only meant to stretch the skin, PS's do the refining during the implant stage.

  • DiveCat
    DiveCat Member Posts: 968
    edited July 2014

    You definitely cannot judge the final result with implants by your TEs. TEs are not really meant to be pretty or symmetrical...though some lucky women end up with them that way. They often look very wonky and asymmetrical. Their only purpose is to expand tissues to place an implant. At exchange the PS does work with pockets to improve cosmetic results.

    Definitely go for some consults. Even if you do DIEP some PSs may want you to keep the TEs in until surgery. In meantime you can disguise their wonkiness with clothing and forms. But some may be fine with removal once safe to do so (when at lower risk of infection). 

  • muska
    muska Member Posts: 1,195
    edited July 2014

    I think you need to get opinions from 2-3 plastic surgeons and discuss your options. I am very happy - so far- with my bi-lateral reconstruction with silicone implants. Had TEs expanded through chemo and exchange for permanent implants before starting rads. Had 28 rounds of rads completed on May 1st. Everything looks very good 2+ months out.

  • besa
    besa Member Posts: 1,088
    edited July 2014

    My understanding is that with DIEP flap they would generally leave the tissue expander in place to preserve the skin envelope while you undergo radiation treatment (and also preventing the radiation from hurting the transplanted flap), then when you are ready for DIEP they would remove the tissue expander and immediately replace with a flap.

     As divecat said -what you are seeing now with tissue expanders is not going to be your final cosmetic result,  But for me something more important should be considered - implant reconstruction after radiation tends to have more complications - including more capsular contracture down the road.  Your plastic surgeon should be explaining this all to you so you can make informed decisions.  I agree that a couple of outside opinions are in order. (I don't think there is a downside to getting extra opinions.)  If you are thinking about DIEP see a microvascular plastic surgeon for consult (someone who does DIEP on a regular basis).  Also consider ordering a copy of Kathy Steligo's "Breast Reconstruction Guidebook"  The best I have seen on the topic.

    http://www.breastrecon.com/ or from Amazon.com   

    The link below is just a random find on a google search from MD Anderson (see bottom of link).  Other cancer centers may have other protocols or possibly different recommendations...

    http://www.mdanderson.org/patient-and-cancer-information/cancer-information/cancer-topics/cancer-treatment/surgery/breast-reconstruction/reshaping-you-booklet.pdf

    Another link related to this topic on "Johns Hopkins" "ask the expert" question and answer site....

    http://www.hopkinsbreastcenter.org/services/ask_expert/viewquestions.asp?id=999821232

    one more link to a science daily abstract:

    http://www.sciencedaily.com/releases/2012/10/121002143451.htm

     

    (You probably would  get many more responses to this post if you put it under "Breast Reconstruction")

  • cbrenner
    cbrenner Member Posts: 9
    edited July 2014

    Besa,

    Thank you for the comprehensive answer and the links.  I read them all and they were helpfful. I will definitely get several opinions before I make a decision.

  • cbrenner
    cbrenner Member Posts: 9
    edited July 2014

    Thanks Musk a and continued good luck

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    Cbrenner:  My plastic surgeon would not put TE in side that was to receive rads.  I ultimately opted for bilateral diep, however, with not the desired result.  Everyone has good advice about talking to more than one plastic surgeon that does the diep.  I contacted four different ones in four different locales, but had to stay within my health plan coverage on just one being authorized.  If you want to PM and let me know if you have more questions, please do.  I wish I would've listened to my gut, but at that point I just wanted to look as real or normal as possible.  I was not a fan of implants, considering having to replace between 7-10 years later. Hope this helps.  --  

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2014

    Cbrenner, we are all so different!  Like shelly, my RO wouldn't allow a TE to be placed before rads, so my PS wanted me to do the unilateral mx and leave the healthy side alone until recon.  I had a delayed DIEP to the left side and immediate DIEP to the right side. 

    I knew my girls wouldn't match completely.  The delayed side has more incisional scars and the radiated skin above the flap is still a fading reddish color, so the skin tones don't completely match, but here's the deal.  I'm happy to be "whole" again.  I have two soft, natural feeling "breasts" despite the battle scars. 

    In your case, having the TEs in place would be to your advantage.  For your DIEP, they would remove the tissue expanders, having done their job to recruit more skin to cover the new "breast," and fill the pocket with fat from your abdomen.  Your cosmetic result would most likely be better than mine, because you're not starting with a flat, radiated chest.

    Good luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    A side note talking about skin thickness.  My radiated side had something like 1/8" skin thickness, compared to the other side which measured more like 1/2" thickness.  That alone makes the girls look off balance, not to mention they didn't say how hard it would be to actually shape them to match.  My diep tissue feels much heavier than previous breast tissue, although it is supposed to be comparable.  I had a very skilled PS but even so, there is only so much that can be done with the aftermath of mastectomy.  He also said diep tissue will always behave like it is still in the belly, so losing weight may not affect how it looks or feels.   

  • cbrenner
    cbrenner Member Posts: 9
    edited July 2014

    sbelizabeth - I have read so much about movement, cc,  hardness, coldness, need for swaps, etc about implants with rads that I am again st them. As you said, our bodies are battle scarred from treatment and surgeries. I've begrudgingly come to accept that. In the end I just want my body in my body. Never was perfect anyway. :). Thanks for your input.

  • Momine
    Momine Member Posts: 7,859
    edited July 2014

    cbrenner, after much research, I decided that I was better off with a plain scar than going through a lot of pain and surgery and a high risk of complications only to end up with a couple of numb, odd-looking lumps on my chest. I know that for some women it is really important, but I knew that, for me, a poor result would bother me far more than just a scar. It is so extremely personal, and you really have to work through it for yourself.

    The only thing I would strongly urge is that if you are not 100% sure either way, then wait. I am almost 3 years out, and there are days when it would be really convenient and nice to have "built-ins." It is not that I have not considered it, but I am just not comfortable with the potential downside, nor am I particularly bothered by how I look. I do, however, wear small fakes most of the time when out and about for various reasons of my own.

    Give yourself some time to feel it out.

  • Desm
    Desm Member Posts: 5
    edited November 2014

    I was told it was best to in the expander until radiation the end of radiation.thats what I did

  • Desm
    Desm Member Posts: 5
    edited November 2014
  • Desm
    Desm Member Posts: 5
    edited November 2014

    I was told it was best to keep in the expander until the end of radiation.thats what I did

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