Younger women with ILC?

Hello.  I am 51 now but I was diagnoised at age 46.  I was told my tumor was very slow growing and had probably been with me for 8 years or so.  So that would put me in my 30's when my cancer began.  No family history of breast cancer but my father died of pancreatic cancer.  I tested negative for the breast cancer gene.

Dx at 43.  No one else in  my family + extended families ever had BC

Marls: I saw your post and have to say there are really something we do not know.....sigh....

Hi, I'm 35 diagnosed with Lobular - 4.5 x 5.5cm and Ductal Invasive 1.5cm - both in the same breast. I got prego last year via first time IVF and miscarried due to fibroid that grew 5 cm because of all hormones given during the IVF. My onco is highly suspicious that these tumours grew due to the IVF treatment. I had a complete mastectomy on Jan 7 and have been freezing embryos. I'm planning one round of collecting follicles and next week and will be starting chemo first week of April. The treatment plan I'll be given is sequential ACT - AC 4 x 21 days + 12 weeks of T - once a week. I'm scared from the side effects of chemo - particularly with fertility . Oh I have 1 infected node with lobular cancer cells and Her2 -ve. Both lobular and invasive ductal are 100% ER positive. 

I am 44. Still on the young side, especially since I have a 6 year old. Diagnosed with ILC in late January. Started chemo Monday. Despite being 44, I felt like a kid at the treatment center!

Hi. 49 and premenopausal at dx. No family hx, non drinker. Mom took DES while pregnant with me, a known risk factor for BC, but who knows? Taking my Femara and trying to live healthy and positive now. That's the best we can all do, I think.

My name is Kristal Bondi, I am looking for women on Facebook that are around my age to relate to. I am 33 years old dx with ILC 10cm after chemo, well a mixture of ILC and LCIS. I finished chemo, had the double mastectomy with reconstruction and have 2 positive nodes. I'm scheduled for surgery on the 26th....left axillary dissection and left papilla exertion? Not sure of spelling, lobular is so sneaky!!! I am scheduled to meet with rad doc on the 10th of Oct. I'm a mom of 4 and I love coming to this site, I just know us younger ones are more likely to be on Facebook? I'm only guessing because I never see any on the young BC site. I just would like to have ladies on or around my age to relate to and see how y'all are coping so young and maybe here positive stories on here being dx stage 3a as of this week....I'm strong in my faith, God has gotten me this far, he will continue to see me through. God bless all women having to go through this.

Thank you for your response😊

I was 49 and premeno (3 days before my 50th birthday, but still...) I was never a big drinker, even socially and no family history.

I was 48 at dx, considered "young" because I was (and still am) premenopausal.

Just diagnosed at age 44 with both Invasive lobular and Ductal Carcinomas in left breast. Surgery scheduled for next Tuesday, then chemo and Rads. Never smoked, non drinker, no family history of BC, children before age thirty and premenopausal. Scared and worried for my husband, sons and our Granddaughter who all depend on me. Taking a couple days off for the surgery and then hopefully return to work and keep on working through the chemo and radiation treatments. Would love to hear from others who were able to return to work soon and continue working through their treatment.....

Dxd at 44, premenstrual, 9.6cm tumour. Pleomorphic ILC, IDC, DCIS, grade 3, a bit of everything in there <sighs>. Breast surgeon thinks the cancer could have been there for at least 5 years. I personally think it was 6 years, as at 38 I suddenly started having violent migraines every month. I'm ER/PR + so I think the migraines were hormones gone crazy.

I am 49 and in the midst of treatment for IDC and ILC. I had DCIS in my left breast with lumpectomy and radiation five years ago at age 43. Now I have a 3.0 cm cancer again left breast although different quadrant with lymph node involvement. I was having regular mammograms and ultrasounds and even breast MRI's, yet I was the one who found the lump in May that started this new dx, so who knows how long it could have been growing there and why it wasn't detected earlier. Both my original DCIS and now this new cancer are both ER- and PR- so perhaps that has bearing on my cancer re-development. My mom has also had BC three times, although hers was post menopausal and hormone receptor positive. I've tested negative for BRCA1 and BRCA 2. I quit smoking 25+ years ago and drink only occasionally. I exercise and have low BMI. My feeling is there's just no rhyme or reason to this disease. 

I'm going to ask my question in this thread, rather than start a new one.

I'm 35, just diagnosed ILC. I'm going for an MRI and CT in a few days, but my breast specialist says I am either stage 2b or 3c, depending on whether they find anything in the lymph nodes.

She said that the treatment I will need is chemo, then surgery, then radiation, then hormone therapy. The mass is quite large, so she said that I will need a mastectomy, and we can consider a double mastectomy.

However, I have been getting the impression that chemo first (if at all) isn't necessarily typical for ILC. So I'm not sure if my BS is recommending this course of action because I am young or because the tumour is so large.

I'm curious as to what treatment other people have had, especially those under 40.

It was information overload with the specialist, but I'm back to see her on Tuesday, and I see the oncologist on Monday, so I will ask again, but I think that she said that the tumour is too large, and she won't be able to preserve my breast. Then I have forgotten whether the mastectomy was a given or whether we will wait and see how it responds to chemo.

Edit: I checked with my husband, and he remembers the doctor saying that there is a possibility that the chemo will reduce the tumour to a size that will mean a lumpectomy or even make it disappear altogether.

BlueKoala - There have been some studies that indicate that ILC doesn't respond as well as IDC to chemo before surgery. There is a study right now looking at neoadjuvant hormone therapy and it's effect on ILC. Several women have posted on the boards that this was effective for them.

Here is a link to the thread where John Smith posts about the ongoing study.

https://community.breastcancer.org/forum/73/topics...

This is definitely something to discuss with the oncologist. Best of luck deciding on the treatment plan that is right for you.