Is it rare for TNBC to return after 5 years?

Options
LenaT
LenaT Member Posts: 29
edited July 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

I am still in fear of recurrence.  Is there lots of women here on the forum who have had their tnbc recur after 5  years?

· Share on FacebookShare on Twitter

Comments

  • Lauriesh
    Lauriesh Member Posts: 692
    edited July 2014

    I am not tnbc, but I am her2+ ER/pr - .   It is very rare for it to come back after 5 years, but does it? Yes. I was told I had a 1 % chance of my cancer coming back after 5 years. It was great odds, but I guess someone has to be that 1%. 

    Your risk is similar. It will always be there, but it is very slim.  If your fear is so great that it is interfering with living your life, I would encourage you to talk to a professional.  

    · Share on FacebookShare on Twitter
  • bluepearl
    bluepearl Member Posts: 961
    edited July 2014

    TNBR decreases dramatically for recurrence after 5 years, more so than hormone + B.C. that decrease gradually. The Her2+ is a bit more aggressive and problematic. That 1% chance seems a bit low for this type of cancer, but crikey! I was supposed to only have a 5% chance of a second breast cancer and I won that lottery too. Stats are just that, stats. Got to live each day as itself, no matter who you are or what you have ailing you. Keep well ladies!

    · Share on FacebookShare on Twitter
  • LenaT
    LenaT Member Posts: 29
    edited July 2014

    People say it's rare to reoccur after 5 years, but I've found that is not true. I was just reading about quite a few women who have had recurrences even after 15 years.  I just found out that a woman I use to work with years ago passed away in 2011 after her breast cancer returned.  I am just feeling down and very afraid. I hate that I have to go through life this way.

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2014


    LenaT,

    Don't worry, we spend too much time worrying about things that might happen, and most of the time they never do happen.

    Relax tell yourself you are ok and your immune system is going to take care of you. I am almost 3 years out and I keep waiting to hear better statistics and hopefully new immune therapy and target treatments. In my heart, I feel that if my immune system could be trained, it would be fight off developing BC cancer cells.

    · Share on FacebookShare on Twitter
  • LenaT
    LenaT Member Posts: 29
    edited July 2014

    Thanks Meow13 for the advice.

    · Share on FacebookShare on Twitter
  • feelingoverwhelmed
    feelingoverwhelmed Member Posts: 17
    edited July 2014

    I went to the Dr today and was told I have tnbc - going to start my chemo this week or next - will find out for sure tomorrow. Also getting the PET and an MRI.... Any words of encouragement.... need them badly :)

    · Share on FacebookShare on Twitter
  • LRM216
    LRM216 Member Posts: 2,115
    edited July 2014

    feelingover.....

    Come on over to the "Calling All TNS" forum.  You will be greatly taken care of, advised and comforted over there.  This is the most difficult part of your journey - the beginning of realization that you have been diagnosed with BC, then the realization that you have been diagnosed with TN BC.  I too walked in your shoes and know the horrid feelings your are dealing with - hang in there and know that this too shall pass.  I am five and a half years out and never thought I'd  make it at the onset, and here I am.  Grateful for everyday I have had, and still pray for still a lot more to come.  I wish you all the best,

    Linda

    Edited to add:  The Calling All TNs is on the Tripel Negative forum - please make sure you introduce yourself over there.

    · Share on FacebookShare on Twitter
  • mimsey
    mimsey Member Posts: 13
    edited July 2014

    Feeling over    Go one week at a time or it will overwhelm you .  I liked books Chemo Secrets to thriving and Silver Linings . Chemo secrets will help you prepare for chemo .   I am nearing the end of chemo.  Have done mastectemy and than start radation in September .. Research as you are able . Pet and MRI baseline and can have false negatives(FYI) but scary to wait.  Get things done before chemo .. it will tire you out .   Positive thoughts your way

    · Share on FacebookShare on Twitter
  • KSteve
    KSteve Member Posts: 486
    edited July 2014

    feelingoverwhelmed - I second what Linda said.  The "Calling all TNS" is a great thread on this forum and we all support each other.  I'm am approaching 4 years out from a very large tumor and positive nodes.  I'm doing absolutely great.  Having said that, the beginning is the hardest part of the journey.  We're here for you!

    Kathy

    · Share on FacebookShare on Twitter
  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2014

    The beginning part is the worst. One day I woke up and cancer was not the first thing on my mind now it is on the very back burner.

    · Share on FacebookShare on Twitter
  • placid44
    placid44 Member Posts: 497
    edited July 2014

    Lena,

    All my docs said it is rare for TNBC to recur after five years. Hope to see you on the Calling All TNs thread. I am almost two years out fron diagnosis, a little more than a year after finishing treatment. Best wishes to you.

    · Share on FacebookShare on Twitter
  • LenaT
    LenaT Member Posts: 29
    edited July 2014

    Sorry you are having to go through this @ feelingover

    · Share on FacebookShare on Twitter
  • LenaT
    LenaT Member Posts: 29
    edited July 2014

    Thank you Placid44

    · Share on FacebookShare on Twitter

Categories