Summer Rads 2014

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  • Jodi040812
    Jodi040812 Member Posts: 383
    edited July 2014

    Barbara and other itchy friends:). I have been getting the bumps mid chest starting on day 8:(. Doctor was not happy at all.  He put a skin patch thing on it and told me to replace it but keep it covered.  I did that, and last week he was out for my appt. The other dr said aquaphor.  Didn't help much because this weekend was horrible.  I bought OTC cortisone and it has helped.  I see my doctor today.  I am hoping he gives me a RX!  I have a ways to go here.  Today is 18/33 for me.  2 more weeks of regular rads and then hit the boost.  I've been red in the mid chest too.  Everything else looks good.  Maybe it  is because they are hitting that area hard due to internal mammary lymph node involvement?   Doesn't matter  I'll deal with it, but can't wait for this crazy train to stop:)

  • Sam2U
    Sam2U Member Posts: 233
    edited July 2014

    Aff--I had cording with mild le--I saw a pt that specializes in le and after 4 sessions I was much MUCH improved--hope you get some relief as quickly.

  • vettegirl
    vettegirl Member Posts: 235
    edited July 2014

    I have my simulation and consult with rad doctor tomorrow-will find out my schedule then but should be starting rads on the 21st.  On vacation next week so will start when i get back.  I am nervous but ready to get this phase behind me. 

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited July 2014

    Vette please enjoy your vacation and don't be nervous! I have two days left and that's it.  We are all here for you! 

    To my itchy friends (lol) Jodi! I haven't had any itching.  Does the itching mean it's healing or is that a SE that not everyone gets? 

    You all would be amazed at how healed I am.  I have no redness. My arm has full movement and I have just a little bit of pain inside the breast.  

    I'm so thankful this is almost over! 

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited July 2014

    this must be the week for the machine breakdowns. Got call yesterday to call before coming for my appt this morning because the machine was malfunctioning yesterday afternoon. Well today they said it's still not "behaving" and the technician will be in this morning to fix it so they pushed my time to 12:30. That's doable, as long as no further malfunction.

  • Deblc
    Deblc Member Posts: 479
    edited July 2014

    Anybody having really bad fatigue? I've completed 16/25 and for the past few treatments my fatigue has increased dramatically. I wake up around 9am tired, have my treatment at 12 noon, falling asleep by 3pm, still tired when I wake up early evening!  Back to bed by midnight and starts all over again next day. 

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited July 2014

    Deb I stayed really tired for about two weeks around the same time of where you're at.  Sleep when you can! I have to say I'm at the end and my energy level is back to about 90%!

  • vettegirl
    vettegirl Member Posts: 235
    edited July 2014

    Curiously-do they do blood draws at rad appointments?  I have read that rads knock your blood counts down-so that makes us fatigued.  Mine has not come back up that much since chemo...hope it does not get too bad....already tired and trying to work full time.  Was just wondering if they monitor that....?

  • rettemich
    rettemich Member Posts: 369
    edited July 2014

    I get to join the broken machine gang. LOL The one I use broke down today, thought they were going to have me come back, but instead, they put me on another one. Newer. Really quiet. Told the team running that one I wished I had that one. When I told them it was a lot quieter they never knew that as they can't hear it from the booth.

    And sleep, glorious sleep. I finally got some last night. 

    vette, they did mine before I started rads but that has been all. I often wondered about that but never remembered to ask.

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited July 2014

    Vette I had blood draws every two weeks. Mine dropped a bit during rads but nothing to be alarmed about.  Hopefully yours will be ok but it's certainly a question to ask your center.  

    Rett..... One more day and we are DONE! Hallelujah!! I got such a good skin report today that I do not have to see the RO again till then end of November.  So after tomorrow no doctors appointments for me till August with my MO! 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited July 2014

    no blood tests for me through all of RT.  My counts were all normal at my 1 month PFC MO visit a few days before starting Rads.

    Sunshine. The itching is on areas of thin skin over bone due to the burning. The collar bone area (supra clavicular nodes) and the sternum for the internal mammary nodes.  My intense itchy area is very red  at the colar bone.  I have some red bumps and a couple of small blisters over the side of the sternum in the mid chest.  The prescription strength steroid is finally kicking in. I really needed a dose around noon but that would be only 3 hours before rads and could not do it.  Aquaphor is ok for night but to messy for any other times. 

    Just noticed my breast area is finally getting some red spots on it. Only one more to the whole area. Poor nipple area will suffer with the boosts I am afraid. 

    Always afraid of the thunderstorms going through around the time of my rads, 3 PM.  Losing power even for a few seconds they have to re initialized all  the computers and run tests and calibrations all again, takes 45 min.

    The long weekend really helped my fatigue,  I did almost nothing but rest and read. Made it though work this morning without yawning. 

    Good luck to sunshine and Rett finishing up tomorrow. 

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited July 2014

    Glad you are doing so well, Sunshineink, gives the rest of us hope for good outcomes. Stephanie

  • Debster
    Debster Member Posts: 82
    edited July 2014

    Rett and Sunshine so happy for you finishing up tomorrow!!! Yay! Hope you have a great day.

  • peterandwendy
    peterandwendy Member Posts: 10
    edited July 2014

    My husband and I took a vacation to Sea World in Orlando during my four week break between chemo and radiation. It was awful, I would get completely worn out just walking around the park for a few hours. One day, I just could not get out of bed, as a result, I became depressed and anxious. I felt so bad for my DH, he was beside himself with worry. Finally, we got smart and rented a wheelchair and the trip improved from that point on. 

    I complete 28 rad. treatments on 8/14 and we leave for Disney World on 8/16. I need advice, will I need a wheelchair or a scooter after rads? How tired do you get? I have had 2 treatments as of today and I am quite depressed and have no desire for food. I am sure my depression is because I have been feeling so good. My energy level for the last couple of weeks has returned to normal and I hate not feeling good again.

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited July 2014

    peterandwendy, I just had 27/33 today and I am still able to walk 1.5 miles most days. You may need to plan on some rest breaks and early nights but RT fatigue is much less then Chemo fatigue IMO. 

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited July 2014

    Peterwendy I'm finishing rads tomorrow.  I had about a two week period that I was extremely tired.  Over the weekend though I've felt my energy returning.  Just keep in mind, Disney World can tire even the healthiest of people!! So don't be tough on yourself if you see you need a scooter.  Like Barbara (crazywabbit) I managed to walk atleast 2 miles a night even during the worst of the fatigue.  Exercise helps to fight the fatigue so do as much as you can snd drink as much water as you can! It'll be ok! 

  • Deblc
    Deblc Member Posts: 479
    edited July 2014

    Sunshine, Great to hear that the fatigue goes away eventually. I don't even have the energy to walk outdoors or get on my treadmill as it is so terribly HOT here (no central air) . Glad to see you are healing quickly and will be finished soon. Please keep us updated on continuing recovery afterwards, as I have heard that some people develop problems AFTER rads are finished.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited July 2014

    Rett and Sunshine, Its meant to be a happy face for the end of your rads tomorrow but I think whoever designed them had an odd sense of humor! They all look a little strained which is understandable I suppose. Anyway congratulations on reaching the last day!

    They did the simulation for my boosts today after rads and it was very quick. I guess they make a mold. There will be 5 but still a ways to go, tomorrow will be #11 and 1/3 way through!

    I do feel fatigued but I don't think its directly rads related. I usually feel a bit sleepy when I come out but not in a bad way so far. I am having a real problem concentrating on work though, and getting really miserable and teary at being on call this week. I never know if the phone will ring in the middle of the night. 

    I do feel bad for my boss though. He said "we still love you" and  my colleagues are so nice but the hours and bureaucracy we are stuck with are killer and we are all getting older. If (when) I leave I will miss them. MY DH does not converse much so he gets along very well with the dog as she only understands words like frisbee and dinner but I would get cabin fever!

    Well apparently today is my venting day. I thought it was see the doctor day but that was switched to tomorrow. 

    Hoping for a peaceful night everyone, quiet, and for those that need it, ITCH FREE!

  • count_it_all_joy
    count_it_all_joy Member Posts: 130
    edited July 2014

    Congrats Rett & Sunshine!  Tomorrow is my last day, too.  SOO ready for that.  Went out tonight and bought wind chimes for our patio as a little celebration gift for myself.  I've always wanted chimes out there, such a happy sound.  Of course we're having storms tonight, so I can't actually hang them!

    Vette - blood counts were on my mind during rads, too.  I was neutropenic during a lot of chemo.  I asked for an order for lab draws, and they gave it to me, just for my peace of mind.  and yep, I did find my wbc's borderline and my rbc's low.  I think Sunshine might be the only person I've heard who did labs during radiation.  The RO seems fully focused on his treatment and skin reactions, not on the way it affects the rest of the body.  that's my observation, anyway.  If you're worried, just ask to be tested.  

    peterandwendy - listening to people, the fatigue level seems hard to predict.  since it worked for you to use a wheelchair last time, just be ready to go with the flow again!  sounds like a fun trip.  

    jodi - one silver lining on waiting on the prescription… RO said the steroid cream they usually prescribe slows down healing, so you want to avoid it until you really need it.  sounds like now you might really need it.  sorry for the itching, makes it so hard to sleep!

    encouragement I hope for those starting - I seem to have gotten through the whole thing without any skin issues.  I can hardly believe it.  RO & tech's today both said that the way my skin looks now (32 of 33), even the week after treatment should be easy.  I've had problems after surgery… problems with my port… problems all through chemo… looks like rads is the part I can do well!   ;)

  • rettemich
    rettemich Member Posts: 369
    edited July 2014

    sunshine, count_it_al, A day to celebrate indeed. We must virtual party tonight. WOOHOO!! Anyone going with you all today? My DH and DD are going with me.

    For those just starting only advise is if you are allowed to use Aloe, start ahead of time. Just make sure you don't use it within 4 hours before treatment. 

    Fatigue is just unpredictable. Thought I was in the clear and yesterday it hit me like a hammer. Go figure.

  • ohiofan
    ohiofan Member Posts: 206
    edited July 2014


    Congrats Rett. Sunshine and Count!!!!  Did you ring a bell or get a certificate??  Truthfully, I'm a creature of habit and it took a few days to get out of the "take a shower at noon and leave for rads at 1:15 habit!"  DH felt the same way, too.  No longer !!  Maybe you will feel the same way.

    We had a very wonderful 4th.  My family (Mom, sister and her family, DD and SIL) went to a country lodge for 4 days.  It was a great visit with no cooking, cleaning or laundry to do.  The best part of it  was spending time with our 15 month old grandson!!!  He was so much fun!!!! and is absolutely adorable!!!  and terribly smart!!! LOL!!!  Then on Monday my mom (age 84) fell and broke some toes and sprained her ankle.  We were in the ER until 2:00AM.  sigh.....She is doing well.

    Best to all.  Again, thanks for being here!

    Ohio (Bonnie)

  • Blessedteacher37
    Blessedteacher37 Member Posts: 314
    edited July 2014

    For those in treatment or finishing...i finished three weeks ago. It's amazing the amount of healing, I didn't have any moist areas this time and fatigue set in earlier with this round but I think I'm healing faster. My first round three years ago had some moist areas but I didn't feel fatigue until towards the end. Not only do the side effects vary from person to person, they vary some if you have more than one round! 

    Hang in there! Although side effects vary, you do heal....I have made it a priority to eat a lot of protein and more fruit and veggies; also to get a nap if I can. I know not everyone can do the nap...I couldn't with my first round. My thought for the day is simply....it does get better!

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited July 2014

    Rhett I'm going alone as I have gone to all my rads appointments by myself.  My daughter and her family live 2 hours away and unfortunately my husbands work takes priority.  That sucks but it's just a way of life around here. 

    I wish I had someone to go with me.  Thinking about it has made me cry! Dang you Rhett! You ladies will just have to be in my pocket today.  

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited July 2014

    We're there, Sunshineink. Yay for being done today.

  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited July 2014

    Hi blessedteacher, good to hear you did well on round 2, I have been so worried about the cumulative effect. I did really well the first time, so hoping for the best. Thanks, Stephanie

  • peterandwendy
    peterandwendy Member Posts: 10
    edited July 2014

    Thanks everyone, Disney is my happy place and I would hate to have anything but happy thoughts when I am there. Well off for 3/28.

  • rettemich
    rettemich Member Posts: 369
    edited July 2014

    Oh Sunshine, I am in your pocket. There with you girl. Take a camera and have the staff take a few photos. You will be glad you did. Hubby was able to get a few hours off work and dd doesn't go to work until this afternoon. So it just worked out. 

    So glad it's done. Met with one of the other Dr.s as mine is on vacation. She said the pain I am getting might be fat necrosis. She is going to have an appointment set up with my PS.

  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    I decided to commemorate the start of Rads today:    (can't remember who to thank for this idea!)

    image

  • rettemich
    rettemich Member Posts: 369
    edited July 2014

    jbok, That is Hysterical!!! I love it. Wish I thought of that

  • AnnBR
    AnnBR Member Posts: 853
    edited July 2014

    Congratulations Sunshine! I am so happy for you!  I'll be done this Friday and I start to cry just thinking about ringing the bell. I've been very emotional lately.

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