DIEP 2014

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  • pollyanna5
    pollyanna5 Member Posts: 85
    edited July 2014

    I am sorry to hear that!  I hope it is not too long before they reschedule you!  I can't imagine the emotional upheaval of that! 

  • Teacher64
    Teacher64 Member Posts: 840
    edited July 2014

    Last year I was scheduled for foot surgery (big toe fusion due to arthritis and pain with every step) and decided I needed to help DH spread mulch under some new trees because I would be on a rollabout, in a cast, and in a boot for three months. I was covered in chigger bites (more than 50!) and had to get med for itch and to clear them up. It took about a week so it wasn't too much of a delay. Diagnosed with bc three weeks after that surgery, went through all tests and scans rolling around. Dr. agreed to put me in boot a couple of days before bmx so I wouldn't have to try to roll around with T Rex arms. Frustrating that DH did not get one chigger bite!! Glad I was able to take care of my foot when I did because now I can do my 3 miles a day pain free.

  • Cherrie
    Cherrie Member Posts: 1,423
    edited July 2014

    pzercher- We all know the emotional " planning" for this surgery. Mine was canceled the night before. I am so sorry this happened to you. Take deep breaths and retook at that calendar. Think of your insurance deductible and co- pays too! I had stage 1 in November (2nd date) and stage 2 in February. I had to start all over with my deductible. Ouch!!

  • thinkpink4ever
    thinkpink4ever Member Posts: 205
    edited July 2014

    goldie, I have not heard anything about Oil Pulling.  Sounds interesting, and since my dental hygienist is very in-tune to the latest and greatest for good oral health, and I'm going to ask her next week when I go for my checkup...

    pollyanna, I really want to try to find a normal bra.  I'm still wearing the soft surgical bras that I got at the hospital and I'm longing for something more normal.  It's hot here and I want to wear some sleeveless tops, but these bras are cut so high under the arms that it comes up over the shirt's arm hole.  Arghhh...

    pzercher, so sorry to hear about your delay.  I can only imagine being so close, and having to be delayed.  Stay encouraged.  They will get you rescheduled and before you know it, you'll be post-op and on the other side of the surgery...

    One love,

    tp4ever

  • pollyanna5
    pollyanna5 Member Posts: 85
    edited July 2014

    thinkpink - It is strange how the PSs all have different directions.  Mine had me in no bra for two weeks, then only sport bras until I was comfortable, but no wires, that was the big instruction.  No surgical bra needed.  But, he was big on binding, whereas others aren't.  It just feels nice to be in a normal bra, even if the fit isn't 100%!

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited July 2014

    Pzercher- I can't imagine being so close. You must be a strong woman! After all the planning and anxiety for the day itself, I think I would have screamed! However, things do happen for a reason (and I hate that phrase )-your PS errs on the side of caution and put you FIRST! This is good! I hope you get another date soon. Lisa

  • optimi
    optimi Member Posts: 67
    edited July 2014

    Pzercher- I am sooo sorry you have to go through this!! I can only imagine how you must be feeling so close to putting the surgery and all the anxiety associated with it behind you. But it is certainly for the best. You definitely do not want to risk a flap failing. Better safe than sorry. I hope your surgeon will have a new date for you very soon!!

    After posting my issues here my legs are feeling so much better! All you wonderful ladies on this board, your words and suggestions are truly healing :)

  • Ridley
    Ridley Member Posts: 634
    edited July 2014

    Pzercher -- what crappy luck to have bug bites cause you to re-schedule.  I guess better safe than sorry, but there is so much mental prep for this surgery that it is hard to have to go through that again.  I hope your surgeon can get you rescheduled quickly.

    For those that are looking for a more "regular" bra, I throw this out in case is works for someone -- Playtex Women's 18-Hour Seamless Smoothing Bra #4049.  It's thick enough that my crop circles don't show through, but not padded enough that it has a cup shape with projection that I don't fill out. And it's only $15 on Amazon, so not a huge investment in case it doesn't work out.

    Ridley

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    pzercher, I'm so sorry your surgery was cancelled at the last moment. I think I would have cried! I'm sure this is for the best since the last thing you want is an infection. Sending hugs your way!

  • lemon68
    lemon68 Member Posts: 684
    edited July 2014

    Pollyanna, congrats on finding a bra that makes you feel good. My bra drawer is overflowing with ones that don't fit. I keep buying and trying but with the side swelling they aren't comfortable. And my left is bigger than my right so there is a lot of space in there! I have surgical bras in 4 colors but man o man enough already, I need to feel like me again.

    I am sorry you are feeling some survivor guilt, please don't. I know I posted of the loss of my friend Kate here, I hope I didn't trigger something for you. WE are all so lucky, no doubt. Kate didn't die of BC, she survived BC but ended up with bladder cancer right after BC TX, no relation. Just a unfair hand dealt no question about it. I went yesterday to the Angels of BCO Thread and sat and cried, the list is sooooooooo long it was painful to look at. Each one of them was loved by someone here, it really got me shook up. But I know that the connections we make here are priceless. If we were all to meet up somewhere together everyone around would see a group on strong, badass women full of love for each other and kindness, it hurts to lose one but because of the rest here I will stay and hope that I am helpful to someone as many were to me.

    Pzercher, dang I am so sorry, who would every think a bug bite could delay you. I am glad your doc cares although I know how disappointing it must be. Everything happens for a reason but sometimes we don't know why, soon you will be on the other side, healthy and happy. Hope you get scheduled quickly and can get those kids off to school. ((hug))

    Teacher- When is your Stage 2? Are you waiting due to the heat in Texas? I am anxious and impatient....

  • Teacher64
    Teacher64 Member Posts: 840
    edited July 2014

    Pzercher - I'm hoping you have your date next week, like I did for my foot.

    Cherrie - that was me, too. December and March. I want to get approval to get cataracts taken care of this year to avoid another deductible next year.

    Lemon -my bra drawer is overflowing, too. My stage 2 is July 30, but had nothing to do with TX heat. I had to wait longer than 3 months due to strip of muscle being taken and my cardiologist wanted me to have more time to heal because of two long surgeries in three months. It's getting closer now, so I'm thankful for good AC.

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    Lemon, this isn't Kate from the radiation thread, is it? I remember when I used to post there and when she was first diagnosed. This is so sad. She was such a vibrant lady. Rest in peace, dear Kate.

  • lemon68
    lemon68 Member Posts: 684
    edited July 2014

    Andrea, yes that's our Kate. I sent you the info in a PM.

    Teacher, I am so jealous!! I have to be in Chicago for work the last 2 weeks of August, just when I was hoping to have mine done. I am hoping maybe he can squeeze me in the beginning of August but not sure if its too soon. I called today to ask questions but he was in surgery so hoping for more info tomorrow. I want to make sure if I need a Stage 3 I don't have to start over with deductible. 3 months seems like what I had heard on time to wait. He had told me by end of July everything would have settled so we will see.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited July 2014

    pzercher, I can't believe it!!!!!  Freaking chiggers!!!!  I hate them.  I had them once and I got rid of them by coating them with daps of clear nail polish.  It kills them.  How long will they postpone?

    Pollyanna, congrats on the bra!!!  I bet it feels great!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    Three weeks out from surgery today. Life is resuming normalcy, doing all the usual stuff except mucking stalls. We are going RVing next week to one of our favorite campgrounds. Won't have the sailboat, but we can kayak and, most importantly, will be on/near the water. It simply isn't summer without it! Start PT on Thursday. I don't post here often, but wanted to show that recovery *can* be straight-forward and uneventful. I will schedule Stage 2 in Nov, after some important events that I manage are behind me and I have available recovery time. Hope you are all doing well and enjoying your summer as best you can. 

    PS..just learned that my breast surgeon was the creator of the Cancer Gene test. Thought that was pretty cool, and he is such a self-effacing guy.

  • pollyanna5
    pollyanna5 Member Posts: 85
    edited July 2014

    Lemon, it wasn't that.   I also did go over and read several of the stories on the angels thread, also in the stage 4 metatized group.  Also, talking with my mom about my aunt, who died of breast cancer 10 years ago, speaking with a few older women at church who've had stage 3 cancer and are living with it.  Also, it seems everyone knows someone who has had cancer.  Another lady at church, has a niece at 33 years old, with stage 2 or 3 (i forget), with rad/chem and then BMX/DIEP, a neighbour has a friend with stage 3 in her mid 30s, who had to have eggs harvested to preserve her fertility....PLus the dragonboat race for the cure is here locally this weekend, so the news is innudated with breast cancer stories.  

    It just seems EVERYWHERE right now.   It just seems to be such a widespread, insidious disease that hits so many.  And, the doctor when I went for my followup talked about how lucky I was that I did the BMX when I did, and it was the right decision.  I tend to be a big "What-if" scenario person.  So, along those lines.

    I'm sorry about your friend Lemon.  that is very hard. 

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    HeidiToo, it's great to hear your recovery has gone so smoothly! It sounds like you've got a fun, busy summer ahead of you. I hope you have a wonderful time!

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    For those who had radiation before your diep, how has your recovery been? Has the radiation caused any problems with your reconstruction? I can't wait to get this uncomfortable implant out from my rads side!

  • aff
    aff Member Posts: 279
    edited July 2014

    pzercher - I am so sorry that happened to you. I hope you can get a new date scheduled quickly.

    optimi - I'm glad your legs are feeling better.

    I knew my recovery was too good to be true. I have been chugging along without any issues and feeling great. Last week I started feeling some pain under my arm. I assumed it was from the SNB. The pain began to travel down my inner arm. I hoped it would resolve itself but it actually started getting worse. It hurts just to touch my inner arm and is very painful when I stretch my arm. I went to see my BS today and she confirmed...cording. I can actually feel a "cord" in me armpit but not down my arm. She said it would resolve itself on its own but would send me to PT if I wanted. I think PT will help me feel better all around. I have been out of work since March. I am very active and somewhat physical at work and since I have been out I just feel all around, blah. I know this too shall pass but with rads starting Thursday I would have liked for my surgery recovery to continue to be uneventful.

    Hope everyone had a terrific holiday weekend.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    i had rads in 2009. That breast has had a bit of necrosis, but they have me applying a burn cream and it appears to be sloughing off the dead tissue leaving healthy behind. Hasn't been uncomfortable...just needed time to sort itself out. If it hadn't the PS. would have fixed it in stage 2. It appears that won't be necessary.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2014

    Andrea, I had rads before my DIEP.  Because of my diagnosis, they radiated the heck out of me, and my RO insisted on no expander--he was worried it would throw off the targeting of the radiation, which was very close to my heart and lung and other gizzards.  I had to wait for 9 months for the effects of the radiation to settle down, but the DIEP surgery was very successful.  Apart from the fact that the incisions are more obvious with the kind of delayed DIEP I had on that side, the flap healed very well and looks great.

    Since I had a complete axillary dissection on the left, though, and I had whopping doses of chemo that probably squashed my immune system, I've had several bouts of cellulitis in the skin of my chest.  It always responds to antibiotics but I've been hospitalized three times for IV bug-killers, and since I still have at least one more revision procedure to go, we're trying to figure out how to prevent bacteria from invading. 

    Probably TMI!  Good luck with your own speed bump!

  • Teacher64
    Teacher64 Member Posts: 840
    edited July 2014

    aff - cording is a pain, no pun intended. It took me a while, about 2 months, for it to resolve. I worked with my trainer to get rid of the pain that went down my arm nearly to my wrist. The cord was visible all the way down to my forearm and is still visible, just in my armpit but it doesn't hurt. 

  • optimi
    optimi Member Posts: 67
    edited July 2014

    Polyanna it is very depressing to see and hear how the disease seems to be 'spreading'. The number of women affected by BC is drastically increasing, and it seems to be more of an epidemic by now. During my chemo sessions there were 6 chairs in the treatment room which were mostly occupied by ladies in their 30s. Well, the positive (this is not the right term really) side to this is that there is more focus on BC research  so hopefully treatment continues to improve and maybe one day in the near future there will be good alternatives to nasty chemo or radiation.

    Heidi, so happy your recovery is going so well. Enjoy your RV trip!

    Aff, I am so sorry that you are experiencing cording!! I hope your radiation treatment will not get affected by this. Here is to a fast resolution of the cording!! I have been out of work since Dec and know what you mean. I am also looking forward to PT that will start in a couple of weeks to get out of this blah feeling.

  • Andrea623
    Andrea623 Member Posts: 959
    edited July 2014

    Thanks HeidiToo and sbelizabeth. I've wondered how skin would react to this surgery after rads and it's good to know it's doable. I hope my CT scan on the 16th will make everything a go! 

    Is your rads side the same size as the other?

    sbelizabeth, are you in Santa Barbara? My sister lives there and works for the 24 Hour Fitness.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2014

    rads side is smaller, as it was prior to surgery, but I am expecting Stage2 to even things out

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited July 2014

    Hi all,

    Just a quick Hello!!! I had a long busy day, and another one tomorrow.  First day of PT.  Keeping my finger's crossed it helps.

    Hello to all the newbies.  Welcome.  I promise to catch up tomorrow. 

    Sounds like everybody is doing pretty good!!!

  • enjoyevrymoment
    enjoyevrymoment Member Posts: 334
    edited July 2014

    Sbelizabeth good to hear from you!

    Heiditoo, glad your recovery is humming along!  :)

    Pollyanna, I know what you mean.  Brings you face to face with your own mortality as well.   

    Goldie, know a lady who swears that coconut oil is helpful but my dentist said it is not legit.  That being said, I guess it wouldn't harm you.  

    Lemon, I called my PS office to see if I could get in sooner, if there was a cancellation.  They said to call each week and they will see.  Worth a try.  I am holding off on more bra buying until stage 2, but it does take will power.  I found a nice bra to hold me over at Walmart, just the right amount of padding and actually fits things well, also I splurged on a Soma that so far continues to fit and is probably the most comfortable. 

    Optimi, getting your legs feeling better must be a real encouragement.  Yay, you!

    Aff, teacher had that as she posted, she is a great resource for that and PT helped a lot.  Hope yours goes away soon!

    Pzercher, sorry to hear of your delay.  That stinks and I hope you get a date soon.

    Have any of you had Zometa?  Let me know if any tips.  I know it is supposed to be nothing compared to chemo but I have to work the next day so wanted to do all I can to reduce side effects.  I have heard to drink lots of water.    I read that it causes reduced appetite, so that is a silver lining.  I am not losing weight and PCP is checking thyroid again.  Pffft.  

    Have a great day, everyone!  

  • Kb33
    Kb33 Member Posts: 88
    edited July 2014

    recently diagnosed with dcis in right breast.  Just came from Nola with a recommendation for diep.   I am curious how people feel about their diep breasts.   I have read a lot about the surgery and recovery.... But not a lot about how it feels after or how it looks.  Long term tweaks and maintenance.   How close it looks to your breast prior.   I would love to hear about others experiences.   Thnx

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2014

    My rads side is the same size as the other, but it's a slightly different shape.  This is reasonable, since the rads side breast is almost completely abdominal skin an fat--a manufactured breast--and the other side is my breast skin and shape, just filled with abdominal fat.  It's crazy to me that the faint stretch marks on my "breast" are from stretching my abdominal skin with a twin pregnancy!

    Andrea, I don't live in Santa Barbara but I wind up there a lot for work--meetings and stuff.  I live in Simi Valley and work in Oxnard, which are both in Ventura County.  Wow...working for a health club...now there's no excuse for not getting in a workout.

  • trish01254
    trish01254 Member Posts: 128
    edited July 2014

    heiditoo - are you planning on paddling that kayak?  I am in awe.  my right arm has pretty good range of motion but I couldn't imagine pulling a paddle.  good for you! 

    I'm going for followup today and will be asking about stage 2 date.  I want all this done in 2014 for deductible reasons as well.  Hoping for Sept date with stage 3 in Dec. 

    Short term disability cut me off as of 7/6.  Couldnt believe it.  Still havent gone back to work while dr's office and STD battle it out.  Not confident that dr will win that battle.  Just cant imagine the 45 minute drive plus 9 hours in office and 45 minute drive home at this point in my recovery.  Argh.  drove for first time on sunday since I was so upset by the STD letter.  Wasnt too bad driving just the discomfort was there in the belly.

    My surgery was almost cancelled due to a very embarassing thrombosis hemmmoroid (sp).  I get them fairly often and BS was hesitant to go on with surgery.  PS wasnt concerned so I was cleared to go.  Funny how much that hurt before sugery and didnt feel it at all post.  So many other parts were hurting instead :)

     

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