Charleston Bound, part 2

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  • brca35
    brca35 Member Posts: 68
    edited July 2014

    Ashira - best wishes for a great recovery

    Highbeams - hope you are doing well. Would love to hear about your experience! 

    Martyj- major bummer about the Shelly belly. I was hoping it was a fluke complication my sister had and not the norm. The one thing I was looking forward to was a flat tummy. 

    I'm two weeks out tomorrow. Yikes!!!! Been planning this for over a year. Hard to believe I'll be boarding a plane for CHS in 13 Days! 

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2014

    it will be awesome...you'll see. Getting on with things makes such a differnece in your stress levels!

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited July 2014

    Highbeams...waiting to hear how you are doing...Ashira..tomorrow is the big day! brca35...14 days,no time at all.....Thinking of you all and everyone here.It is so kind that those of you who are way down the road still come back here to cheer us on and give us info.I really appreciate knowing about the hamburger buns..so many times you read about how beautiful someone felt they looked right after surgery..... beauty is in the eye of the beholder....I have a feeling though,that I am so going to be so happy to look down and see some kind of convexity (do not think that is even a word!) that I will think buns are beautiful!

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2014

    I have one diep side one sgap side.  The sgap is a little less pointy but definately not any burger bun I would eat!   Remember stage one is all about getting the flap to take.   Cleavage comes later!  But I wore one of the t shirt bras (kinda boob shaped anyway) and put a small amount of fiber fill in it after stage one 

  • cascader
    cascader Member Posts: 599
    edited July 2014

    Hi all. Thinking of all those in recovery, in the OR, and upcoming ladies. We are all in this together.  While in recovery mode, please ask all of your(crazy) questions here..many of us  have been there done that.  After Stage 1 I remember freaking out because it looked like there was a giant tooth in my drain bulb...haha..but ladies here calmed my fears almost immediately, thank goodness. 

    Thought I would share the good and not so great. First...I finally bought,(and spent a ton of money on) a beautiful bra. I was in Jackson Hole, WY for a few days and it was raining so I went into a lingerie shop. Never thought I would find a fit, as I tried many times in the past which usually ended in tears. Up until now I have settled nicely into wearing the Coobie bras, which I love for everyday. I was completely surprised when several I tried actually fit and looked good. I ended up buying one  that is all lace and no padding. Being a uni I never thought this possible. Sounds silly, but a momentous event! For reference I am about 1 1/2 years out from my last surgery..so be patient it can take awhile for things to settle.

    The not so great news is that I have found a few more lumps...one in my non affected breast and 2 in my reconstructed sgap flap. I am sure they must be necrosis or scar tissue right? So off I go on Thursday for a mammo on lefty and an ultrasound on righty. I think I am ok about this , not too worried, just hate that this is how it is for now on. Just when I was starting to forget the reminders keep popping up.Will keep you posted.

    So that is Thursday, and I leave Friday am for a wellness retreat at a beautiful little spot on Puget Sound, yoga, meditation, hiking and kayaking, and lots of delicious healthy food. Thinking that it is perfect timing...........

    Thanks for letting me share, you really are the only ones who "get it" and I am thankful for each and everyone of you.

     Have a happy and safe fourth everyone!

  • Ashira
    Ashira Member Posts: 161
    edited July 2014

    Greetings ladies, writing from the hospital room which I just received post stage  2. Forgive me in advance please for typos, as well as any nonsense that I may write due to our friend Wilbur. 

    Apparently after stage one, I freaked out my daughter by having a seemingly lucid conversation with her about how she needed to be sure that she reminded her father to kill plenty of horses for her dinnerShockedI've no recollection of the conversation, but at least a few witnesses...

    So, here I lay in what my experience are truly remarkable surroundings. From the check in attendant this morning, who offered a warm hug and reassuring words, to the unfailingly kind, attentive nurses, and the comfortable, tastefully decorated surroundings, punctuated by yummy food (not gourmet, but hospital delicious)  I feel truly well cared for. 

    Dr. Kline was just perfect at this morning's pre-op, offering up more than a small measure of hope for a wonderful outcome after this stage. I haven't looked yet though. I'm getting up the nerve and will definitely share when I do. I had remarkably good cleavage from the start, even without a huge amount of belly fat, so I never felt the "bun" thing. Also, so far no tummy swelling. I am hopeful that is one SE that I'll be fortunate enough avoid!

    High Beams, are you at East Cooper?  If so, and you feel like company, I would be happy to drop by for a visit tomorrow morning. I'll be here through early evening tomorrow, so let me know. I understand completely if it's just too much. Welcome to the other side!

    Cascader, congrats on the beautiful bra. I can imagine what a milestone that might be. My heart goes out to you and I'm sending prayers for all imaging to turn out just perfectly. Meanwhile, enjoy that vacation. You deserve it 

    Pink, Panda, BRCA, thanks so much for thinking of me. I hope that my ridiculously long post above, contributes to your confidence for the big day ahead!

    Marty, thank you so much for your flexibility for last night. I have a story to share around the whole thing that I look forward to sharing.   I'll be in touch soon and barring the need to leave early due to impending weather, I look forward to our later date. 

    Well wishes to you all. 

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2014

    Cascader ,

    Thanks for sharing the good and not so good. Praying that it is necrosis and all checks out clear. Woohoo on the sexy bra. Someday I will do the 60's thing and burn my genie bras. 

    The retreat sounds so peaceful and relaxing. Is there MBSR-Mindfulness Based Stress Reduction incorporated into the retreat?

    Did I tell you I went kayaking on Folly Creek when i was in CHS last month?  Just so awesome -- still calm water at low tide, dolphins, blue skies, not too hot. 

    Take care!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2014

    Ashira,

    So happy to hear from you again and how comforting Dr K and hospital staff make you feel. 

    Is your daughter with you this time since school is out?  I would have come to visit if still there. Maybe next surgery?

    Do you have post op appt. 

    All the best!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2014

    Welcome to the land of way, way too hot!  And too many visitors in town for the 4th.  Do I sound like a stressed local who lives on an invaded island?

    Ashira - you sound amazing!  I am so looking forward to seeing you and hearing "the story".  Are you in compression?  Told you that Stage 2 is a piece of cake compared to Stage 1.  Though, you might wish to be rather gentle when you sit on the potty.  

  • Ashira
    Ashira Member Posts: 161
    edited July 2014

    Pink, daughter is in Maryland on a writing course for the next three weeks. Really odd dropping off my 12 year old at a college campus to live in the dormitory. Sweet of you to want to meet her!!!  Next surgery will be on November, so she'll be in school. I do hope to bring her down sometime though. I like the idea of spending done time on CHS while not under the influence of narcotics. 

    Marty, I can always count on you for practical advice. What a gift you are!  Will definitely be thinking of you while sitting on the potty next time Can't wait to see you again. Let's make a point of speaking tomorrow. When you're freed up, please call. You know where I'll be. 

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2014

    Brca,

    Please keep us posted on your journey to Charleston!  Who is your surgeon?  You will love them all!

  • brca35
    brca35 Member Posts: 68
    edited July 2014

    craigie is the lead, Kline assisting and baron breast surgeon. :) 

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2014

    sounds like everyone is headed for a great July 4th.  So glad to hear all the surgeries went well. It's nice to know we're all in this together!   

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2014

    Ashira, just how do you prepare horse's for your daughters meals?  LOL. That is the funniest pre or post surgery conversation I have ever heard!  Glad you are on this side of surgery!

    Cascader, truly hoping necrosis or scar tissue from previous surgeries and benign on other side. Mk now how important it is for you to find out though and prayers your way for all clear outcome!  Kudos for your vigilance!

    Happy 4th all!  Last 4th I was getting ready for my stage 3!  Safe celebrating for everyone!

    Hugs 

    Catie

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2014

    cascaded, don't really see how anything in the sgap could be anything but scar/necrosis hope all goes well

  • brca35
    brca35 Member Posts: 68
    edited July 2014

    The one thing I did not talk to the surgeon about was the belly button. For DIEP, do they actually cut it out and replace it on your abdomen? And how do they know where to put it so it's not too high or too low? Thanks! 

  • jacee
    jacee Member Posts: 1,384
    edited July 2014

    The belly button remains in the original location. They cut around it to detach it from the surface, then move the skin and make a new opening and attach the original back to the new opening. It is amazing!

  • brca35
    brca35 Member Posts: 68
    edited July 2014

    thank you for the clarification Jacee

    Has anyone been on antibiotic for sinus infection just before diep? I've gotten sick 10 days before surgery - great timing.  Ugh!!!!! 

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2014

    brca - I am sure the antibiotics will knock it out.  Be sure to let Dr K&C know what antibiotic you are on, now.  That might effect or change the antibiotic they want you to take.  Different antibiotics for different issues .

  • brca35
    brca35 Member Posts: 68
    edited July 2014

    This office never ceases to impress me- my worries are gone. I got an email response already. The antibiotic I was prescribed is ok for pre- DIEP! Yay! A huge weight has been lifted. Now I need to get healthy for this surgery in 9 days!!

  • philomene
    philomene Member Posts: 45
    edited July 2014
  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited July 2014

    brca35,hope you are all ready feeling better..do you use a Neti pot? Last time I had a sinus infection, the doctor told me to use it at least twice a day.It really helped a lot.I have another question.We sleep on a futon..only thing I have found that is firm enough for my back.I have one of the thickest mattresses,but it is still lower than a regular bed.So I know it is going to be harder for me to get in and out of bed after surgery.A friend suggested I try a memory foam mattress topper that is 8 inches thick to add height and softness,she thought my hips might appreciate it!Any idea if this would help?Or what would?

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2014

    Panda - back problems are rampant here.  DH has 8 fusions.  While we sleep on a tempurpedic, we recently had to replace a sleep number bed in our guest room.  And, because we were having work done in our bathroom, we had to sleep on the new mattress for 2 months.  I bought a bodipedic on overstock.com for just under $300 for a queen.  It is fantastic!  Just as comfy as our tempurpedic and my DH loved it.  It is 8" thick.  And, yes, your hips will really appreciate the memory foam.  The thing comes rolled up in a box.  It sort of slowly unrolls itself over a day's time.  You might want to get it now so it is all ready for you when you return to NY after surgery.

  • cascader
    cascader Member Posts: 599
    edited July 2014

    Brca, You should be just fine, those antibiotics will start kicking in. I too am a firm believer in a neti pot, altho can't say I am a fan of actually using it. I also got sick right before my stage 2, I was so afraid they might cancel my surgery I didn't leave the Homewood and just slept, took baths, and massive amounts of Vit C. I was glad to have a cpl extra days built in to my trip, altho  they were supposed to be for fun! All of this can be so stressful, take care of yourself.

    Pink, the retreat has a labyrinth , so a walking meditation, which I just love. I have never been very successful with the more typical mindful meditation practices. Glad you got to kayak during your last visit. We need to stand up paddle board with the dolphins at Shem Creek! Retreat was wonderful, I am going to try and attach a photo of the ferry ride home which has Mt Ranier in the background. Love this city this time of year.

    My mammo on my unaffected left breast was fine, still keeping watch on a little area, but no significant changes which is good. On my sgap breast there is a very obvious mass of some sort that they do not know what it is. I don't have alot of confidence in their readings, as they kept referring to my "tram breast" and wanted to schedule a mammogram on it. As so many others have commented on these boards, they just do not know what they are looking at, not being familiar with autologous tissue transfer. I am having my results sent to Dr. Kline's office and he is going to have Dr. Baron and his radiologist wife look at it. I am sooo thankful to have his continued support. I am expecting it to be fat necrosis, but guess I need to find out just in case. 

    Panda, Use this time now to try and strenghten your ab muscles and your quads. It will really help in getting in/out of bed, using the toliet, sitting, etc. It was one of things that helped me the very most in recovery.

    image

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2014

    Cascader, wonderful picture and probably breathtaking to see in person!  Thanks for sharing.

    I trust Dr. B's input 100% - so good that you are sending the info there for Dr. and Dr. Baron's opinion!!!

    I love how our Drs continue to help us post surgery.

    Hugs

    Catie

  • Cherrie
    Cherrie Member Posts: 1,423
    edited July 2014

    Cascader- I was on that ferry last November and will be back in September. We are going to Orcas Island for a couple of days. Then on to Mt. Hood with a bunch of ladies who have had the DIEP surgery. My son and wife live in Seattle. He just finished a Ranier climb and snowboard down. He scares me. 

  • HighBeams-14
    HighBeams-14 Member Posts: 53
    edited July 2014

    BRCA Hoping you are feeling better and all is a go for your surgery.  Hang in there.  My husband got a cold right before my surgery and I was petrified I would catch it.  Made it to surgery and all has gone well so far.  Good luck!

  • cascader
    cascader Member Posts: 599
    edited July 2014

    Cherrie, Orcas and Hood. Two of my favorite places.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2014

    Cascader,

    So relieved that spots are benign. 

    "Tram Breast" .... I would not have been able to keep my mouth shut, and prob would have followed up sending them med literature on DIEP, SGAP, etc. 

    Rock on to our docs!

  • HighBeams-14
    HighBeams-14 Member Posts: 53
    edited July 2014

    Hurray for us all for getting to doctors who know their stuff!!!  And hooray for the doctors and their teams who put us back together!!!!  I'm having a good day today, post-op, can you tell???

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