Starting Chemo in April 2014

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  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    Enjoying all the pics!

    On the subject of fatigue - this illustrates the way I have felt for the last week.  Finally (fingers crossed) feeling a little better today.  I CANNOT wait to get normal taste buds back:)

    image

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  • linda505
    linda505 Member Posts: 847
    edited July 2014

    Great picture golfinggirl!!

    Glad your SE are less evil ColdinCanada - and this fatigue is overwhelming.   It sets in earlier and last longer each cycle for me also and I don't seem to get as many nice days at the end either.  Oh well what can we do but do it!!

    I just got back from getting fluids - although I am able to drink plenty I got them after the last treatment and they really seemed to help with the first 4 days of blah so I am hoping they do the trick again.  Only thing is now I feel bloated LOL.  oh well...

    A Belated Happy Canada Day to my friends from the great white north and Happy 4th of July to my US comrades.  Mine will be quietly celebrated on my couch or in my bed but at least my hubby is off and I will not be alone.   

    Have to tell you a very sweet story.  We have season tickets to the Tampa Bay Bucs and my account manager contacted me about a month ago to check to make sure I was getting her emails and invites to all the off season stuff cause we hadn't attended anything - it is only the 2nd year we had had tickets.   I told her what was going on and today I rec'd a package from her and the Bucs with a very nice hand written get well message signed by Joel Glazer - one of the owners and my rep and a Bucs bandanna for my bald head.    There are nice people in this world!

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    Linda cool about the bucs!  I had a similar experience with our lacrosse team the toronto rock. We have been season ticket holders for 2 years and I had emailed them before my surgery to get extra tickets for friends explaining my situation with cancer

    At the game I was given a signed jersey and told that the team was behind me with my fight

    So touching!!!!

    Really restores ur faith in humanity!!

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    Go Bucs!!!

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  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited July 2014

    Footballnut - have you thought of calling the Dermatologist office and telling them that you are a cancer patient and wondering about this nail thing is really freaking you out?  How they could contribute to your piece of mind by trying to squeeze you in?  Surely your piece of mind would be worth more than a botox shot.


     

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    brig not certain who I am being referred to bit the request is coming from my onc which should be helpful. I will wait until the end of this week and if I hear nothing I'll call my nurse

    I've had it for 6+ months so a few more weeks can't hurt anything  except my nerves 😄

    I don't know what made me search after all this time. Guess that every little thing makes me think of cancer these days!!!!

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  • lena-lou
    lena-lou Member Posts: 10
    edited July 2014

    Thanks for all the welcomes!  

    Brigadoon and Lakegirl, thanks very much for the explanations on the cough.  That makes total sense and feels exactly like what is happening to me too.

    Lilyrose, congrats on being 1/3 of the way through Taxol!

    JBokland, my tumor may be bigger too -- at this point they are just guesstimating from the imaging.  My surgeon said the lobular kind is often more extensive once they get in there.

    MommyQ, that's awesome that you enjoyed the pho -- can't wait for my tastebuds to get normal.  And hooray for the lump just being fluid!

    Clarrn, did you have low white blood cell counts?  I did too -- ended up in the hospital with neutropenic fevers on my first 2 rounds of A/C, then they reduced the dose by 25% and put me on Cipro.  That seems to have worked.

    Longislandl8y, have a good weekend with your little dog - he sounds like a sweetie!  We have a little white poodle mix named Star who may be about the same size.

    Linda505, I loved your story about the Tampa Bay Bucs!  Very touching, and a classy thing to do.  

    Golfingirl, you look great!  I hope the nausea and muscle pains are leaving you alone now.

    Footballnut, good job working out - 40 mins on the treadmill is awesome!  I have tried to keep to my exercise routine too but I've definitely had to cut back.  I totally get obsessing about things like your nail -- I do the same and it almost always turns out to be nothing.  I agree that your dermatologist should get you in early so you don't have to stress about it!

    ColdinCanada, so glad to hear you got some good sleep.  How old are your babies?

    SharonDe, that photo of your dog's fatigue is too cute!!  I feel the same way.  :-)

     I am here at the beach with my husband, MIL, and 3 kids.  I have spent a lot more time in the rental condo sleeping than on the beach or at the pool, but I'm glad my kids are having fun since they had to miss out on a couple of other trips due to my diagnosis.  I have felt like I stand out when I do go to the beach or pool because I'm wearing a cap and weird tops to cover up my port, etc.  Truth be told, no one is probably paying any attention.  :)

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    Lena- enjoy the beach, I find it very healing.   Yes. ILC are often bigger, get are sneaky SOBs!!

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  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited July 2014

    Cold - after 5 I am experiencing the same wane in SEs.  Who woulda thunk it??? Fingers crossed that the big D isn't as bad this time. 

    I forgot about the question regarding drinking water and how cumbersome it can be.  I've found that sparkling water is helpful.  And today I'm going to make a batch of home made strawberry lemonade I made for the first time a couple of weeks ago and freeze it into ice pops.  It's just strawberries, lemons, sugar or honey and water.  Very good! :)

    4th of July in NY today looks like cool and rainy.  Is it wrong that I'm happy about this? lol.  Bwtn it being my bad week, my little dog Jack deathly afraid of fireworks & my gardens contending with dry heat all week I am thrilled for this weather.  

    Football I am so proud of you for keeping up the exercise.  I dropped off after my 2nd or 3rd infusion.  Just getting to work every day and trying to keep things normal around the house has been about all I could handle through chemo.  I figure in 4 weeks I will be ready to get back to working out.  Can't wait!

    Linda, I agree wholeheartedly with all you've said about the article.  I also put it out there on my facebook.  If you would like to be facebook friends, I'd like that.  My name is Jeanne Musella-Fling on facebook.  And that goes for everyone on here.  The more friends the better, especially with people with whom we've formed a bond with.

    Happy Independence Day fellow fighters! Hope it's a great day for everyone... or at least minimal to SE free! :D 

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  • Mompv
    Mompv Member Posts: 110
    edited July 2014

    Thank you all for the fluid tips! Anyone else have bizarre dreams? I wake up and just think...what the......? 

    I am going to try and go to the grocery store with DH. I am still too spacey to drive. I feel like I am high or something and I hate that. But light at the end of the tunnel. I should feel really good oh about Wednesday, just in time for round 3 of 4 AC. Then I start 4 rounds every other week of Taxol. My MO says this is the best for my TN status. 

    Hair started falling out 10 days after round 1. Shaved it but now have stubble! 

    Nice to not shave armpits or legs though. 

    Hope everyone has a light SE day!

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    try a few fresh mint leaves in your water!  

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  • writinghelps
    writinghelps Member Posts: 88
    edited July 2014

    Hi All,

     

    I've been lurking since before my first infusion on 5/20 (I'm a regular on the May group). I have used the information you've shared to prepare for each of my own infusions.  I've wanted to "come out" a few times but you guys have such a sweet bond btwn each other I didn't want to crash it.  But when lena lou was welcomed in, I figured I'd come out of lurkdom. So, hello *waving*

    And I want to send out a BIG thank you for being so open and honest on here. Your experiences have helped me so much. I've been happy with you on your good days and sad and mad with you on the bad days.

    Peace,

    Wendy

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    A big welcome Wendy!!!

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    long I have hit you up on Facebook and invite all others to hit me up if you like. Just look for Angie Sandow. 😊

    Hoping that all are safe on the east coast of the US!  Hearing about Arthur now. Pls be safe my friends!

    2 days after herceptin and taxotere. Can't complain yet. Have a funny taste in my mouth but can still taste food and other than that -and my nail freak out - I'm doing well

    Plan to get my butt back on the treadmill today and doing my arm weights. 

    I never really cooked before but since cancer I've been exploring!!  I am so proud of myself. I actually roasted vegetables yesterday in extra virgin olive oil, made honey garlic salmon and chicken. Gee when you don't work 10+ hour days and have to rush home it's amazing what you can do!!  

    I wish you all a wonderful July 4 th. Enjoy your day and weekend with minimal or no SEs!!

    God bless all of you and the USA!!  

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  • Mompv
    Mompv Member Posts: 110
    edited July 2014

    image

    So here I am with my youngest DD! Thought if you all were brave I could be too!!!

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  • Mompv
    Mompv Member Posts: 110
    edited July 2014

    image

    this is on the back of my office door at work!!!!

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  • jbokland
    jbokland Member Posts: 890
    edited July 2014

    lol

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  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    Lena - hope you are enjoying the beach.

    Wendy - welcome.  I think lots of us read the other monthly threads and it's great to see people cross posting.

    Mompv - You go, girl!  Thanks for sharing your brave pic.  And, about the bizarre dreams?  I almost asked this same question yesterday - having wakened from a most bizarre kidnapping where I had to escape through underground tunnels ... Totally Bizzare.

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  • MameMe
    MameMe Member Posts: 425
    edited July 2014

    Mompv, You look so cute! Your daughter is beautiful, as well. 

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  • MommyQ
    MommyQ Member Posts: 117
    edited July 2014

    Golfingirl & Mompv: Great pics!

    Footballnut: Yay, you pooped! I did too! Hey, we gotta celebrate all the good things. :)  Sounds like your nail thing will be ok and probably is the same thing your mom had.

    ColdinCanada: I'm finding I'm getting more fatigued with each treatment too, starting with #3. I guess the docs did warn us! :) That's weird with the black tongue! At least your kids are getting a kick out of it.

    SharonDe & Lena-Lou: My tastebuds started getting wonky yesterday (day after infusion), so I hear ya. Looking forward to getting them back in about a week or so! Sharon, that's a cute pic of your pup! Lena-Lou: enjoy the beach. Even if you sleep a bunch, I think getting some fresh sea air is probably good for you. I love the beach. 

    Linda & Footballnut: That's so cool that the Bucs/Rock sent y'all those gifts. Yes, there are good people in the world.

    Mompv: Oh, after reading several posts from others about freezing juice, I remembered this. I use a Zoku to make slushies out of juice. You freeze the Zoku overnight and then pour in juice (or whatever fluid you want), and stir it for about 15 minutes on and off to make the slushie. Great for summer. $20 at William Sonoma or other places (http://www.zokuhome.com/pages/slush-shake-maker)

    Wendy: Welcome to the board!

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  • clarrn
    clarrn Member Posts: 557
    edited July 2014

    Happy July 4th to all my American friends on here!  Hope you get to enjoy whatever kind of day you want today with minimal SEs!  Last year today we were at Cannon Beach, OR..  Oh how I love everything about that place!  

    image

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  • writinghelps
    writinghelps Member Posts: 88
    edited July 2014

    That is one of my FAVORITE places ever. I dream to get back there one day.

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    I am so bored today!  Went on treadmill for 40 minutes. Took half the day to get my ass to workout. I just can't get myself to do anything else today!  Ugh!!!!!

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  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited July 2014

    Wait a minute, Footballnut, if I had done 40 min on the treadmill I would be resting on my laurels! (That is a body part isn't it?)  Congratulations!

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

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  • SharonDe
    SharonDe Member Posts: 222
    edited July 2014

    footballnut - 40 minutes!!!  I'd have to rest after just looking at the treadmill.

    Clarrn - beautiful photo of Cannon Beach - maybe next year?

    Last year, we enjoyed the Fireworks in Camden Harbor (Maine):

    image

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  • MommyQ
    MommyQ Member Posts: 117
    edited July 2014

    Footballnut: I'm with Sharon. I'd be worn out just walking downstairs to my treadmill. :)

    Lazy day here. Napped for an hour with my dog on the couch. Sat outside on the back deck and enjoyed the beautiful weather with the hubby. Noticed I have 3 dark "tree rings" on my fingers from my 3 chemo infusions and took a pic. :)

    Getting ready to eat grilled dry rubbed pork steaks prepared by the hubby. Hope they taste ok. :)

    image

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  • Footballnut
    Footballnut Member Posts: 742
    edited July 2014

    What an interesting day this Saturday is starting out to be!  Let me backtrack to last night when the aches started to kick in. I suspected that if I did experience aches that ithey would target my already weak spots like hips and knees. Whammo!  

    So this morning I woke up with similar aches and now the tummy has joined the party!  My bathroom and I are becoming aquainted again but this time is the big "c". I feel like it's just stuck there. Can't even stand up!

    I have meds for this but since it just started this morning they will take 1-2 days to kick in. ugh!

    What a terrible feeling!  I can deal with the aches but don't want to spend all day in the bathroom just incase something decides to move!

    I hope that once I can start the meds that I don't end up with the big "d" like last time! 

    Saw the macys fireworks which was aired last night - beautiful!  The US sure knows how to throw a party!  

    I hope that ure all enjoying a great weekend!!

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  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited July 2014

    MommyQ - My fingernails look just like that (but not as long and certainly not the lovely shape of your nails).

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  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited July 2014

    football, I could have written what you just did.  Yesterday was extremely painful.  I took two hydrocodeines and i think that makes constipation even worse.  So I took a dulcolax, two stool softeners and a prune every hour for 3 hours.  Relief at last!  

    What is amazing to me is how the body controls the mind.   I felt like I was dying yesterday and my mental state went right along with it.  Hopeless.  Then, this morning, I woke up with this sense of "life" returning and with it came "hope".  I will try to go to the movies today.  Good luck to all of us!

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