July 2014 Surgery Sisters

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  • belleb
    belleb Member Posts: 170
    edited July 2014

    I'll be joining you all too. I'm scheduled for a bilateral mastectomy with no reconstruction on July 25 :)

  • Q324
    Q324 Member Posts: 19
    edited July 2014

    Hello Ladies. I will be joining you this month for a bilateral mastectomy on July 8. I had a lumpectomy and sentinel node removal on June 11.  Still having some pain from last surgery.  I hope I will have less pain with this surgery as some of you have experienced. I think I went of the pain meds to soon last time. Won't do that again! Good luck to all xo

  • kimag
    kimag Member Posts: 114
    edited July 2014

    BEcky 63 I am thinking about you today.

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    Surgery complete! Yesterday I had sentinel node mapping,followed by bilateral mastectomy and lattisimus flap/tissue expander reconstruction. I am in the hospital now but should be released late this afternoon or early evening. I am quite sore today but it is manageable. I've been up walking the halls which felt really good to do. Just taking Percocet for the pain now. For my surgery yesterday they gave me a nerve block which lasted till the wee hours of this morning. That nerve block was great, I have to say. No nausea whatsoever either following surgery. So glad to get my Starbucks coffee this morning. I have 4 drains and the PS said all looks good. Waiting anxiously on pathology to come in. Apparently some involvement of lymph nodes per the BS. Thank you to all who offer support on this site. The power of positive thinking is a truly powerful force.

  • Ally2345
    Ally2345 Member Posts: 320
    edited July 2014

    Purplegurll- So glad to hear that surgery went well and no nausea!!  Glad you are up and walking, it certainly helps with the recovery.  Rest, relax and heal...that will keep your output low and those pesky (but necessary) drains can be taken out.  Let us know when you get home and how you are doing!!  Still sending prayers and positive vibes your way!

    Ally

  • tlj030
    tlj030 Member Posts: 10
    edited July 2014

    I am having a modified radical mastectomy on July 9th right breast and all lymph nodes will be removed.  I am still debating on reconstructive surgery in 6 months. I will be having radiation after surgery. I do not  look forward to the drains.  My chemo was  a nightmare so hopefully surgery will be much better! Any tips to help me get through the recovery?

  • kimag
    kimag Member Posts: 114
    edited July 2014

    Purlpegurll - good luck in your recovery. Thank you for posting how you feel, I am going tomorrow and hope all will be good too.

  • jess1965
    jess1965 Member Posts: 42
    edited July 2014

    hi everyone,

    Just diagnosed a few weeks ago and preparing for mx with reconstruction/tissue expander on July 15. What a whirlwind. I am finding the discussion very comforting and appreciate everyone's honesty and willingness to share. Sending thoughts to you all. 

  • jess1965
    jess1965 Member Posts: 42
    edited July 2014

    am wondering if anyone has recommendations for dealing w surgical drains...aka tops to wear etc. sorry if covered elsewhere. New to site. Thanks!

  • Swimmom2
    Swimmom2 Member Posts: 169
    edited July 2014

    add me to your list ladies! I'm going in for my exchange on 7/22. Good luck to all surgeries coming up.. 

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    Happy July 4th everyone. I came home from the hospital last night. I'm finding you MUST keep up with the pain medication because when it wears off, it's pretty painful. Sleeping a lot and no appetite yet. The drains are already slowing down and I will see the PS on Monday so maybe a few will come out then.A couple of observations. First, the sentinel node injection was a little stick for numbing medication and then did not hurt at all. I had no catheter after surgery and with all the fluids from the IV, I had to pee it seemed like every hour. That was a pain to call a nurse so often to go back and forth to bed. Also complete dry mouth which continues today. It's hard to swallow pills with no saliva! I'll try to get a shower this afternoon which I bet will make me feel loads better. To those who have already had your surgery, I'm thinking of you and wishing you a speedy recovery, And for those upcoming surgeries, I'll be cheering you on!

  • tlj030
    tlj030 Member Posts: 10
    edited July 2014

    7/9/14 modified radical mastectomy, unilateral ( right side), all lymph nodes removed

  • HopeEllen
    HopeEllen Member Posts: 37
    edited July 2014

    Jess1965, I had BMX with TE on 6/24.  A friend who had MX last year gave me her "pink pockets" and it was wonderful to have those. I was fortunate to get my drains out on the 4th day but was still thankful for the "pink pockets".  Here's a link to the website http://www.pink-pockets.com. You can get things to hold them around your neck but that was not comfortable for me. 

    This is a great site for support and to have your questions answered. Best of luck to you!

  • Swimmom2
    Swimmom2 Member Posts: 169
    edited July 2014

    purplegurl is right, stay on top of the pain meds, which also means stay on top of the stool softener! Both will be your friend the first few days. Also as she mentioned, the dry mouth is unbearable so make sure you have jolly ranchers, lifesavers etc when you leave the hospital. 

  • Swimmom2
    Swimmom2 Member Posts: 169
    edited July 2014

    Thought I'd mention this too- I wore these after my original surgery. I plan on wearing them for the exchange too. They are hoodies from old navy but they are t-shirt weight. Nice and light 

    http://oldnavy.gap.com/browse/product.do?vid=2&pid...

  • hyphencollins
    hyphencollins Member Posts: 109
    edited July 2014

    Hi everyone!  Looks like I'm joining this board.  I was diagnosed May with both IDC and DCIS. I'm having a mx 7.17.  Consulting with the plastic surgeon next week.  I need to make some decisions regarding whether or not I want to do a prophylactic mastectomy on the other side and also regarding reconstruction.  I know I want to do reconstruction but the options seem overwhelming to me right now.  

    Purplegurl - hope you are doing ok!  

  • tekwriter
    tekwriter Member Posts: 216
    edited July 2014

    I went for pre-op's last week.  The plastic surgeon says he doesn't like to  use drains, so he doesn't.  I don't know what to think after following the boards for a while.

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    Now three days post surgery. Overall I am feeling decently well. Trying to spread out the pain meds a bit more. Having some nauseousness but that may be from not eating much. Took a walk down the street last night which felt good but tiring. The drain output is definitely slowing so maybe the PS will take at least a few out on Monday. 

    Tekwriter, I'm not sure of the reasoning for not using drains. Even for my lumpectomy five years ago I think I had at least one drain in. 

    Hyphencolli, you do have some decisions to make. I opted for prophylactic mx on the right side because this is my second go-round with BC on the left and my Mom has had BC three times now, so for me it was an easy decision to try and kick this thing once and for all. A prophylactic mx is a different thought process for everyone though. Seek out resources that you trust and then give yourself time to think it through. Please feel free to PM me if you ever want to talk. As for reconstruction, it sounds like you definitely want to do that. I met with two plastic surgeons and they both gave me the same recommendation for the latissimus dorsi/tissue expanders so if in doubt, you might want to get a second opinion. 

    Becki63 and Kimag, how are you both holding up?

  • belleb
    belleb Member Posts: 170
    edited July 2014

    Tek, I think it is pretty unusual to not have drains. What does he do to get rid of the fluid? He may expect you to come in often so he can manually aspirate any accumulation. My doctor said that I will have drains AND it's not uncommon for him to have to drain some residual after the drains come out.

  • belleb
    belleb Member Posts: 170
    edited July 2014

    Swimmom - thanks for the link to those hoodies - I just added one to my "shopping cart" that's on sale for $10 :)

  • brca35
    brca35 Member Posts: 68
    edited July 2014

    I am 38 and having a PBM with DIEP surgery on July 16. Going in with BRCA2 positive mutation and BI RAD 3. Hoping for quick heeling! 

  • kimag
    kimag Member Posts: 114
    edited July 2014

    I am back Ladies, Purlpegurll I am following you steps in the way :) Looking ahead to read your posts so I know what can be next.

    I have only 2 drains, one per side but since I am skinny can feel drains touching the skin and the pain is more from drains, more right prophylactic side which is strange but I guess the drain is slightly different positioned.

    I had the best surgeon ever, not only skilled in her area but knowing I am anxious she held my hand while I was getting asleep for surgery.

    Good advices on pain killers I wanted to be brave and keep them low but it does not make sense, I have no reconstruction so the regime for exercise I have is different.

    Hyphencolli, the decision is a big one UMX v. BMX there is a link somewhere here on breastcancer.org which can give you some inside, for me the best indications were 2 opinions 1 lady decided UMX the other BMX but both stressed out that it depends on risk and on personal ability to live with given risk, the questions I was told to ask myslef was like how would I feel each 6 months on screening for the other breast, how would I take it should another biopsy or suspision mass be found etc. I know I would freak out each time and between I would think over and over is there something they habe not picked up... I had dense breast, previous radiation to the chest my risk calculated around 50%. Decided BMX. It is hard but I feel I made right decision

  • belleb
    belleb Member Posts: 170
    edited July 2014

    kimag, what exercises are they having you do with no recon? My surgeon implied that unless I have difficulty getting back my range of motion, there wasn't anything specific I should do after surgery, but I feel like it would be good to do something! What have you been told?

  • kimag
    kimag Member Posts: 114
    edited July 2014

    Belleb, here is the link to pdf

    http://cancer.ca/~/media/CCS/Canada%20wide/Files%2...

    There are exercise just after and one they say 6 weeks after, my surgeon asked me to do all of them as soon as possible, the easiest starting today, she says to take my pain killer regularly so I am comfortable doing exerecises, before discharge from hospital they reminded me tostart it today, those are all for BMX no rec

  • belleb
    belleb Member Posts: 170
    edited July 2014
  • sweetjam
    sweetjam Member Posts: 27
    edited July 2014

    hi there.  I jumped over from the June site.  I had my surgery on 6/23.  A couple of things that have helped me.  Spray on deodorant. I had 3/4 nodes removed and a lot of bruising under my arm.  The roll on hurt to put on.  Button up pj's from target.  Affordable and wash up nice.  Zip up sports bras from Walmart.  I bought the wrong size.  I was a 34B before surgery and did nipple and skin saving and wearing a 38D because of swelling. I bought 36c and they had to go back.  A shower seat.  I purchased afterwards but has been great.  So much easier.  http://www.pink-pockets.com these have been the best for the drains. I had 2 on each side boo!   I hate the drains and wish I had all 4 removed last week.  The ones they took out were under the muscle and causing pain so I'm glad to have them gone.  The left side hurt way more then the right side but I did drug myself up before hand.  I think that's most of the really helpful stuff.  

  • Swimmom2
    Swimmom2 Member Posts: 169
    edited July 2014

    belleb - I had my surgery at mskcc, here are the excercises they suggest post surgery for TE.

    http://www.mskcc.org/videos/exercises-after-breast...

    And without TE. 

    http://www.mskcc.org/videos/exercises-after-breast-surgery-without-reconstruction

  • belleb
    belleb Member Posts: 170
    edited July 2014

    thanks swimmom!!

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited July 2014

    Hi All,  I want to post to this forum and hope you can help. I am scheduled for an ALND on Friday 7/11 and can say I am getting more anxious as the surgery approaches.  Any advice for the ALND surgery as I am not sure if this forum is just for mastecomies.  I am scheduled to start chemo no later the 7/30 and will find out the exact date and approach to treatment soon after surgery.  I was diagnosed on 6/9 but no official Dx until after surgery once final pathology report is in.  Mainly due to me having an occult primary tumor - meaning no tumor has been found yet.  I have been following this forum and the June 2014 forum.  Thanks so much all for  sharing of your experiences.

  • Purplegurll
    Purplegurll Member Posts: 135
    edited July 2014

    It's now five days from surgery. Meeting with the PS this afternoon. All four drains seem to still be draining and one that wasn't putting out anything all of sudden kicked into high gear.I feel like I'm taking way too many pharmaceuticals and I'm someone who barely takes an Advil for headaches. I have something for nausea, a pain killer, a muscle relaxer, and an antibiotic. I am forcing myself to eat a little something. Very hard to get myself up and down from my high bed and sleep is elusive with back incisions for latt dorsi. Sitting on pins and needles waiting for results of pathology. BS told my husband at end of surgery at least one node looked infected and another did not look good. Initial biopsy path was ER-, PR-, HEU-. I am so hoping for no chemo.With all that said, I am overwhelmed and grateful for the support of family and friends. It's hard to get too down with all the well wishes coming my way. Wishing all those in recovery smooth sailing and thinking of those with upcoming surgeries scheduled.

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