Starting Chemo in March 2014

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  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Jotro, I hope a younger lady does come join you soon too though not that I wish cancer on anyone. LOL 

    How is rads going for you? I hope well!

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2014

    Congrats JoTro on finishing chemo! we
    will be thinking of you during your Radiation.

    Princessrn, glad to hear you are feeling
    good and getting back to yourself!

    Longisland, good luck!!

    Jmg58, we're delighted for you

    Yay genny5775!!

    Xrayalli, best of luck with the rest of AC

    JoTro, Thinking of you!

    It's great to see all the continued support on this thread

    Your Mods ---

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  • cmp106
    cmp106 Member Posts: 48
    edited June 2014

    Alli- Sorry about your son leaving. Like Sinsin said, we will keep you company!  How do I join the FB page? 

    Sinsin- I'm with you on the Rads thing. one. step. at. a. time. Just need to get through 6 more Taxol's first! 

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  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Cmp106, PM AKC with your FB name and she can invite you in.

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  • megomendy
    megomendy Member Posts: 141
    edited June 2014

    The facebook group is nice because it's much more user friendly. Easier to respond directly to a post someone makes rather than respond ten posts down. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Ok, this neuropathy of the face is just bizarre!!

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  • cmp106
    cmp106 Member Posts: 48
    edited June 2014

    Thanks, Sinsin- Do I PM AKC on FB or on these boards? Do I need a full name or just AKC?

    Thanks.

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  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    I PM'd her through these boards with my FB name and my email address. 

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited June 2014

    Second AC finished Thursday, had my shot today. Took Claritin proactively this time hoping the bone pain is a lot less. The heartburn is horrible but a friend gave me a tincture with lavender and other special ingredients that seem to alleviate that. 

    Just wanted to mention that my neuropathy started around Taxol #8 out of 12, it was super painful until the Gabapentin got on my system. The numbness and tingling went away as soon as Taxol was done (with the help of the Gabapentin). Now 9 out of 10 fingernails are lifting and I am cutting the dead stuff off as it grows out, weird that the lifting isn't painful, just ugly as hell. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited June 2014

    Yeah, I didn't really have neuropathy issues until lately. Now it's my face that has it the worst and naturally my hands and feet are following suit. Ugh! I go for Taxol #10 on Monday.

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  • princessrn
    princessrn Member Posts: 370
    edited June 2014

    alli..I had taxotere.  9 of 10 fingernails lifted.  one thumb with odor and drainage so on antibiotics.  I keep them polished to not see the yuck and keep them short so they dont catch on things. they are growing though and the outgrowth looks fine.  I am taking biotin as well for hair and nails.

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited July 2014

    So far no infection in my nails. Only one thumbnail has survived, I really don't like this SE!

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  • Sinsin
    Sinsin Member Posts: 358
    edited July 2014

    Princess and Alli, so sorry that you ladies are having the nails issues! Ugh! It's just one fun thing after another on this train, isn't it? Hang in there!!

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  • Generation3
    Generation3 Member Posts: 45
    edited July 2014

    For those of you that have had nail/neuropathy issues, I just finished TAC x6 doses(skipped the last dose of adriamycin though) About 2-3 days after my last dose I got painful fingernails that feel like they were hit with a hammer a few days ago and are left feeling sore, swollen and numb. The pain is both on the fingernail side and the pad of the finger side down to the first bend in the finger. Is this nail problems, neuropathy or both? My big toes feel the same way. Thanks, Wendy

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  • Sinsin
    Sinsin Member Posts: 358
    edited July 2014

    Generation, sounds like nail issues more than neuropathy. Neuropathy is more tingling and numbness. I forgot to ice my fingers and toes this last round and I have some pressure like pain in my thumbnails off and on. My nails also easily lift up easier if I accidentally bend one back or even get one caught on something. So the whites on some of my nails is farther into the nail bed than others. But none are lifting off thankfully. 

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  • jbdayton
    jbdayton Member Posts: 700
    edited July 2014

    I did TAC x 6 as well.  All my first digits of my fingers and toes are still tingly and partially numb and I am one year out.  It is neuropathy according to my MO but still says I could lose the numbness up to 3 years out.   

    I do have a problem doing lots of writing or using a sewing needle without having to stop and let the fingers rest.  It is definitely annoying and somewhat painful at night.  I do have to elevate my feet at night.

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  • Generation3
    Generation3 Member Posts: 45
    edited July 2014

    Thanks for the feedback   Wendy

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited July 2014

    Wendy- that is neuropathy, it's very painful. Mine started with that feeling like someone pounded my fingers with a hammer, throbbing, numbness and tingling. It was awful, the pain and numbness finally went away but all but one nail has lifted. Taxol did that to me, AC doesn't seem to cause that SE. 

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited July 2014

    hi Ali some of my nails are starting to lift too. What do you do about it? I heard some people just put polish on them. Is there more I can do? Thanks. I thought I was past this and they wouldn't lift, they were so strong, but they are lifting anyway. :(

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited July 2014

    Lori, I have had to keep trimming mine so they don't catch and worsen the lifting. There really isn't anything to fix it, unfortunately. I'm wearing polish when I work with patients because it looks bad but then I take the polish off so I can see how they're doing. Mine are also pretty strong considering. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited July 2014

    Hope everyone is able to get out and enjoy the holiday and have a nice 4th of July! May everyone have a side effect free weekend!

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited July 2014

    happy 4th. What kind of polish do you put on your nails to keep them hidden? I found I have to use sparky polish to camouflage my nails or otherwise you can see the ridges and now nails falling. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited July 2014

    Lorbgoo, I do a dark color as light colors still show the lines and such. I currently have a bright pink with a metallic glitter for fun painted over it.

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited July 2014

    I've been able to wear any color and I don't have any ridges, yet....

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited July 2014

    thanks. I have been wearing light sparky polish but maybe I will try a different color. Do your nails hurt?

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  • Sinsin
    Sinsin Member Posts: 358
    edited July 2014

    No, my nails don't usually hurt. I also ice my fingers and toes during infusion. I forgot to this last infusion so sometimes I feel pressure on my thumbnails, like a soreness. However, not often or much. 

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  • Generation3
    Generation3 Member Posts: 45
    edited July 2014

    My nails were really sore last week. About 2-3 days after chemo. But they are almost back to normal now. Still have some numbness and tingling at the fingertips.   No ridges yet just a little yellow discoloration. 

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  • Generation3
    Generation3 Member Posts: 45
    edited July 2014

    I just wanted to send out a great big THANK YOU to ALL of you who have contributed to this thread over the last 5 months. I am not an eloquent writer so my posts have been minimal, however, not a day went by(except right after chemo when I couldn't even hold my computer let alone read it), that I didn't check in and read up on how you all were doing. You gave me information, you gave me hope, you gave me inspiration, you gave me the will to keep going when I thought I couldn't do it another day. And most importantly you gave me a place to go and "be" with people who were going through the same thing. I hope and pray that each and every one of you has a SE free  and cancer free ride from here on out whatever you continued treatment plan is. 

    Now that my last chemo is done I'll be having more surgery to clean up the margins and remove more nodes(yuck). Then on to 6 weeks of radiation starting in mid-September. I'll still be checking in here every few days until the last one of the March chemo group is done. Most sincerely, Wendy

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited July 2014
    • imagechemo nails. Yucky
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  • Xrayalli
    Xrayalli Member Posts: 237
    edited July 2014

    Wendy-so glad you are done with chemo! On to the next hurdle, stay in touch. Your words were eloquent this time, I feel the same way. Being able to relate to others going through similar struggles daily, this has been a great place to check in on things. good luck with your surgery!

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