IS chemo effective? This FREAKED me out! Pls tell me it's NUTS!

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Shellies
Shellies Member Posts: 55

PLEASE tell me this site is wacko!  http://preventdisease.com/news/14/033114_97-Percent-of-The-Time-Chemotherapy-Does-Not-Work.shtml 

It is FREAKING me out!  "97% of chemo is not effective"... ""90% of the patients will die in 10 - 15 years because of chemo"...

 


 

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2014

    It's bullshit. Stick to reliable sites like Pubmed or Johns Hopkins or the info here. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2014

    It's nuts.....toss it out!

  • Kicks
    Kicks Member Posts: 4,131
    edited July 2014

    That's "porcine manure" (pig poop).  It is amazing to me how anyone can read post such #&+@#%* and anyone put any thought  that it is factual.

    %'s and survival length do vary with the different BC types.  There are other 'things' that come into play with long term survival also - other health issues already present/not present at time of DX, age, life 'style', etc.  Using well documented research, 87% of ALL types of BC added together are still 'here' in 5 yrs.  At the same time, with IBC, the 5yr survival is only between 25% - 45%.  with that said, It takes serveral yrs for new research to be done and DOCUMENTED but it does appear that the %'s are getting better all the time.

    There certainly are some for whom chemo does not work totally but definately that very small few is not the "97% of  chemo is not effective".  However, for most it does work, as is shown by the vat majority of the women here.  

    I can only state my personal experiences that without chemo, there is no way that I would not be celebrating 5 yrs since DX next month and still NED.  

    Everything else that turns up later in life can not be attributed to cancer, chemo or rads.  We age and age brings on other issues - not matter what else has gone on.  It is possible that there can be - at times - an asociation, but not always.  Again, in my case, im the years since DX, I have gone from osteopenia to osteoporosis - the osteopenia had been there for years before IBC DX (I have a STRONG family history), so that was to be expected to happen eventually anyway.  My upper back arthritis, which had been there for many years pre IBC DX also, has gotten worse - but, again, that was to be expected with time.  

    We should read/educate ourselves but more importantly, we need to learn how to "seperate the wheat from the chafe".  The internet has a lot of fantastic info to be found but not everything there is factual and some can even be dangerous/deadly.  Do not work yourself up over the 'stuff' that is clearly designed to scare.

  • Shellies
    Shellies Member Posts: 55
    edited July 2014

    Kicks:  (Sorry... I am blonde!  lol)  What did you mean by " At the same time, with IBC, the 5yr survival is only between 25% - 45%."  "IBC" = "inflammatory BC"?!

  • Shellies
    Shellies Member Posts: 55
    edited July 2014


    Thanks, you guys!  I feel like I'm getting a handle on this anxiety, then crap like this shows up all over the Internet and sends me spiraling back!  UGH!  I totally feel like I'm suffering from PTSD some days! 

    Thanks!  What would I do without the wonderful women here?!?!  <group hug>

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2014

    Shellies,

    Cancer is such a loaded word. Anything we read/hear about it may provoke anxiety. Anytime I read, hear or receive info on bc, the first thing I do is investigate the source . That goes a long way toward deciding if something is credible or not. Wishing you the best. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2014

    Stick to reputable places like the home page information of BCO, American Cancer Society, Mayo, John Hopkins. DON'T even go to other places; anybody can say anything they want on the internet.....often promoting a 'miracle cure' for their own profit, or just plain fear mongering, for what sick purpose I don't know. 

  • curveball
    curveball Member Posts: 3,040
    edited July 2014

    OK, it's nuts! The page that scared you is full of conspiracy theories and unsupported claims. Here's one example, from near the beginning of the article:

    "They could never show the public the true 97% statistical failure rate
    in treating long-term metastatic cancers. If they did publish the
    long-term statistics for all cancers administered cytotoxic
    chemotherapy, that is 10+ years and produced the objective data on
    rigorous evaluations including the cost-effectiveness, impact on the
    immune system, quality of life, morbidity and mortality, it would be
    very clear to the world that chemotherapy makes little to no
    contribution to cancer survival at all. No such study has ever been
    conducted by independent investigators in the history of chemotherapy."

    I don't think anyone will dispute the fact that metastatic BC eventually kills practically everyone whose disease reaches that stage, but the way that this is written makes it appear that the 97% failure rate applies to all cancer patients, not just Stage IV's. They produce no evidence whatever to support their claim about what the long term results would be, if they were ever published.

    Why is this website so opposed to chemotherapy and other standard treatments? In my opinion, the answer can be found right at the top of the page: a great big link that says "the preventdisese Store is now open". In other words, they want to sell you something. They are doing exactly what they criticize the so-called cancer industry for: seeking to make a profit off your illness. Again in my opinion, the whole site is probably nothing but an extended sales pitch. Don't get me wrong, I am not criticizing complementary therapies such as vitamins, herbs and supplements. I'm not sure where to go to find accurate, impartial information about which of those treatments are effective and which are a waste of money, but it definitely wouldn't be to a commercial site, especially not one that uses scare tactics to try to frighten people into buying from them!

  • Kicks
    Kicks Member Posts: 4,131
    edited July 2014

    Shellies  - IBC is Inflammatory Breast Cancer.

    There are different types of  BC with different  prognosis!  The current 'stats' for IBC (which is rare - only between 1% - 5% of DXd BCs) is between 25% - 45% to make it to 5 yrs.  While all types when added together - 87% make it to 5 yrs.  Does that make it clearer?

  • leggo
    leggo Member Posts: 3,293
    edited July 2014

    I suppose it all depends on who you talk to and how those people define "effective". For instance, if I went through chemo only to find out it didn't shrunk my tumor, spread or recurred shortly after, then I would agree with the graphic. If it worked to keep me cancer-free for years, then I would disagree. Even just reading people's stories on this site, you run the gammit of who has had success and who hasn't.  It's fairly easy for me to rationalize, but I see things in rather black/white, right/wrong. Recurrence or metastases shortly after chemo at a lesser stage, to me, translates to ineffective. Also, personally speaking from a Stage IV perspective, if it gives me an extra three, four months, leaving me disabled and damaged, it's grossly ineffective. Sadly, I can't think of a word that fits better than "grossly" without getting kicked off, but you get the idea.

  • Quasi
    Quasi Member Posts: 44
    edited August 2014

    the truth is up till now there is no cure for cancer, the is no known cause(s), there are theories but nobody knows for sure, and the best we have is chemo and rads, is it the best treatment? CERTAINLY not but we donot have anything else people who chose alternative therapies are risking everything simply because the information is not there, different people react differently to the same therapies and all cancers are not created equal, there is a huge amout of variation even within the same cancer, breast cancer is no exception. The ideal scenario is to have treatments that can kill only the cancer cells without affecting anything else, and with no side effects but we don't have that and the only way we know how to stop it is through chemo which is a thoughtless monster that just destroys anything in its path, cancer or not.

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2014

    chemo does not kill cancer STEM cells but it kills all other cancer cells, so survival post chemo depends on how well your immune system deals with the stem cells to stop them setting up home elsewhere and causing metastases

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