Winter 2013-2014 Rads

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited May 2014

    Bondsy - yes I also have pains under my arm & along the side of my radiated "breast".  Since I already had implants in place, the pain is sort of a 1/4 circle around the side to bottom of the implant.  I finished Rads 2-1/2 months ago.  I did discuss the pain with both my surgeon and my MO and they don't see a problem.  My RO originally said there will be changes in the tissue & muscles for 2 years after Rads.  Yuck!!  I agree exercises do help.  I'm going to try using very light weights in June and I've been cleared to start back to water aerobics even though I still have a port & will continue Herceptin for the rest of the year.

  • bondsy
    bondsy Member Posts: 94
    edited May 2014

    Thanks for your post, MinusTwo. Good to know that my pains are normal, but not fun to know they could last two years! I'll try light weights, too. 

  • Lilyluv
    Lilyluv Member Posts: 160
    edited June 2014

    Hi bondsy,  I finished my rads in Feb. and have been having physical therapy due to the same thing you're describing.  It also involved my forearm and hand numbness as well as range of motion restriction.  The numbness is much better, but still have the aching under my arm and next to my breast.  The physical therapist massages the area and has given me some home exercises with a band to do.  Although it's much better, the soreness is still there.

  • Lilyluv
    Lilyluv Member Posts: 160
    edited June 2014

    Question:  Have any of you heard of sclerotic changes in your ribs or pericardial effusion (fluid around heart) after rads? I've never heard of that but just had a CT scan due to an ill defined density found in my lung.  No cancer thankfully, and they think it's a change from having rads.

  • yoga_girl
    yoga_girl Member Posts: 234
    edited June 2014

    5 months post rads

    Deep aching under breast deep inside on the chest muscle and rib; yes still; started Day 5 of rads

    Feeling of heat pack issues; yes; feels like you can fry an egg on the spot; started Day 5 of rads

    Hot and cold chills; yes; started Day 5 of rads; out of the blue these will happen; frequency has not changed for me. 

    Try small ice packs available from your Dermatologist (who specializes in facial treatments via laser or injections) placed in a small white 100% cotton ankle sock and placed in your bra or compression garment. Works much better than pain meds.

     

    *****

    Lilyluv; Feb 12, 2014 04:55PM 

    Lilyluv wrote:

    Question for you pros...have any of you had deep aching underneath your breast  deep inside like it's your chest muscle or rib? (tumor was very close to chest wall and surgeon couldn't get a good margin there).   Also, right after rads, it feels like I have a heating pack implanted in there - handy in this cold weather! But it feels like it's coming from within and not from my skin.  Skin is just a faint pink until the next morning and I had that last week with none of this internal burning sensation.   Is it also common to get some minor chills on and off, once you start to feel some of the burn?   This is day 8.  

  • yoga_girl
    yoga_girl Member Posts: 234
    edited June 2014

    Lilyluv,

    Thanks for posting this.  I am due to meet w/ Med Onc regarding breathing issues that started in the last four weeks.  Will ensure I ask these questions and discuss CT scan as no other part of my body has been scanned or checked for cancer issues since breast issues have been addressed.


    19 hours ago         Lilyluv wrote:    

    Question:  Have any of you heard of sclerotic changes in your ribs or pericardial effusion (fluid around heart) after rads? I've never heard of that but just had a CT scan due to an ill defined density found in my lung.  No cancer thankfully, and they think it's a change from having rads.

  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Hi gals - I haven't been here for a long time, and am happy to say so far so good.  I'm headed for my first post rads mammogram and have suddenly noticed my breasts are totally different sizes.  I guess I just haven't paid attention or inspected myself in a mirror.  I've had some of the vague pain I've read about in your recent posts, but haven't been worried or had any functional problems.  I just was surprised when I actually took a good look and saw how very different they are now and were not that different right after lumpectomy and rads.  Any of you noticed the same thing?

  • AndreaJ50
    AndreaJ50 Member Posts: 889
    edited September 2014

    Mimi, our journeys seem very similar. I had my first lumpectomy three days before you, but had two more reincisions (and an excisional biopsy on other breast) as well. 

    I was a DD before, and even though I had  plenty   to work with they ended up taking a large portion out of one side. I remember just after surgery thinking I looked like a sock with a ball in it, lol. But it has filled back up (with fluid I assume) and looks pretty much the same as before.

    All through radiation I was hoping my breast would get smaller. But I finished rads in April and there has been minimal change. 

    How much smaller is your breast since Rads? My one nipple has changed and toughened, but other wise not difference.

    Take care,

    Andrea

  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    AndreaJ50 - It's quite a noticeable difference.  The nipple of my right breast is at least two or three inches lower than the breast that had surgery.  I don't really care I guess.  I'm 67 years old and nobody else is here to care.  It just took me by surprise when I suddenly realized that.  I seldom look in the mirror beyond my face and the sad muffin top above my waist.  Since I'm wearing unstructured bras these days both cups seem to fit because of the elastic.  It's just when there is no bra that the difference is obvious.  There are no full length mirrors in my bedroom to see myself in PJs.  I noticed when trying on a new bra.

  • ellenkc
    ellenkc Member Posts: 173
    edited September 2014

    Mimi -- I recall my RO telling me that the breast that has been radiated tends to stay, shall we say, perkier. Could that be what is going on? -- Ellen

  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Yes that's exactly it EllenKC.  I know people talk of having a plastic surgeon, but I never even considered it might be on the breast that was not treated.  I've always wanted smaller breasts and now I have one!  But even if medicare would pay for plastic surgery on the other breast, I don't think I would do it.  I'm pretty queasy about any surgery and think I'd rather deal with it.  But who knows?  Thanks all for this open discussion.  Where else can someone go for this stuff.  

  • aussielovergirl
    aussielovergirl Member Posts: 46
    edited September 2014

    Miminiemi Hi -- When is your first post radiation mammogram ?  Mine is also this week.  Not looking forward to it as sometimes I am really sore and tender still.  I'm just dreading the mammogram.  I also have a knot/scar where the incision was, so I feel like that will hurt getting squeezed too...   Can anyone else chime in with what their first post treatment mammogram was like ??

    Thanks !


     

  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Aussielovergirl - . I too am sore sometimes. Mine is Monday and meet with RO on Friday. I do worry about the mammogram. And also the results. I have the mammogram at the local hospital just like before, but the RO is at the is at the cancer center some miles away. I don't really know if the local radiologist reviews the results. The surgeon warned me they will takeouts more pictures than just a regular screening and not to be alarmed. That was my first clue last December that something was wrong. They kept sending me back for more with no explanation. And then an ultrasound before the radiologist came to see me. Ugh I'll be glad to get it over with and hope we both are fine and pain free. 

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2014

    Mimi - be sure to ask for a CD of the films - if not the actual films.  That way you can take it with you for the cancer center to review.  I have CD copies of all my tests.

  • ellenkc
    ellenkc Member Posts: 173
    edited September 2014

    Mimi and Aussie: I've actually got less sensation this time around, so first mamo this time wasn't bad. First time I had cancer, there was more sensitivity. Mammo wasn't fun, but basically a few minutes of discomfort. You'll live! Smile

    DO NOT BE ALARMED, though if they show you the pictures and there is a big bright spot if you had a lumpectomy. Since my first lumpectomy, and this was 1 cm tumor, a bright spot about the size of a quarter showed up. Turns out, as is usually the case, that is just scar tissue. Has been stable now for over 8 years. Interestingly, my second lumpectomy, for a slightly larger tumor, doesn't even show up. When they went to do the boosts during rads, they couldn't even locate it on CT-scan, had to check manually to find the right spot.

     At this point, I always ask to see the picture rather than wait and worry. I have seen them enough that I would recognize any major change. Could show bad news some day, but I typically prefer certainty (even bad news) over uncertainty. My second mammo is due shortly, need to get that scheduled.

    Ellen

  • checkers
    checkers Member Posts: 95
    edited September 2014

    I had my first post rad mammo in June approximately 3 1/2 months after finishing rads. All went well and everything was clear. Even a year after surgery, though, I still have tenderness at the site. My surgical NP says that's normal because of the location of the site there is nothing to fill in that space. I have a little divot instead.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2014

    I had my 6 month post-rads check with the RO.  Was hoping for some answers to pain & she said Radiation Fibrosis and truncal LE.  I'm scheduled for a PT evaluation but they couldn't work me in until October.  Had an Ultrasound to try to rule out another recurrence but it just shows the edema.  Oh Joy.

  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Thanks gals for the encouragement.  This has been a fun and busy weekend for me so I have had no time to worry.  I'm feeling sleepy now at this late hour.  So mammogram tomorrow.  I'll report out tomorrow night so I can encourage others, I hope!

  • simplypoised
    simplypoised Member Posts: 21
    edited February 2015

    I did the 3 week treatment. It was harder on my skin and wound. My wound burst open after my rads and after my first diagnostic mammagram. I wore bandages after each instance because I was still trying to work. I am glad I didn't have to go longer, but you have to be strong.

  • yoga_girl
    yoga_girl Member Posts: 234
    edited February 2015


    American Society of Clinical Oncology

    *Magnesium Supplements for Menopausal Hot Flashes*

  • yoga_girl
    yoga_girl Member Posts: 234
    edited February 2015


    *Anxiety and Insomnia*

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  • mouse9587
    mouse9587 Member Posts: 53
    edited February 2015

    My radiation ended a year ago. My skin is still discolored and the nipple is still peeling. I thought I'd be "normal" by now. Anyone else having these problems?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2015

    Mouse - so sorry to hear about the continuing problems. It doesn't sound normal to me. Have you been back to see your radiation oncologist? If not, I'd give him a call. I see mine every 3 months for the first year.

  • mouse9587
    mouse9587 Member Posts: 53
    edited February 2015

    No, I haven't seen my rad onc since my check up 6 weeks after rads was done. No mention of follow up appointments. She did say I could call with questions though. I guess I will do that. Thanks!

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