Will I ever get some feeling back after PBMX?

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FLgrl32
FLgrl32 Member Posts: 35
edited June 2014 in Breast Reconstruction

I am almost 4 months post surgery.  I have a little bit of feeling in the lower area where the Alloderm was placed, but almost no feeling at all in the rest of both breasts.  I can feel my cleavage and the side of my body, but that's it.  I have full tissue expanders and I will be exchanging in September.  They are quite full.  I sure would like to know if others have had a similar experience.  Should I be doing something to help?

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    Whether your bmx is prophy or you actually have bc, all the breast tissue is gone. Most woman, though not all, have little feeling in their chest. I am almost three years out. I have some skin sensation, but no inside "breast" sensation. After all, my skin contains a silicone filled bag and not much more. The skin sensation is not complete, but I know when something is touching my chest. Some women claim more feeling, but implants for recon will never regain the feeling you had with your natural breasts. The inner breast tissue is simply not there. I hope this doesn't bum you out ,but hopefully, you discussed this with your surgeon ahead of time and were prepared for it. Good luck with your exchange. I understand it's a much easier surgery than the bmx (I had one step implants). 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2014

    I had a BMX in 2011, with saline implants in 2012. I have no feeling across my incision lines, but I do have a lot of skin sensation over most of the breast mound, especially above my suture lines. In fact, I have so much sensation, I was getting kind of nervous about getting 3D nipple/areola tatts! My left armpit, however, is still pretty numb.

    I think it's different with the TEs. I once wore a tube top out in the back yard, and when I looked down, it was around my waist, and I had no idea it had slipped down. There was NO feeling with the TEs.

    exbrnxgrl is right... with implants, there may be some feeling in your skin, but it's not the same as in your native breast.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2014

    FLgrl32 - after I posted the above reply, I realized that there was another point I wanted to make. After going through all the pain and discomfort of the BMX and TEs, and the additional complications I had at Exchange, I do feel like my saline implants ARE my breasts. 

    They are not my "foobs", they are not "fake", they just happen to not be the breasts I was born with, but the ones the PS created for me. I am VERY happy to have them.

    In the beginning, I complained to my MO - "I feel my implants all the time!" Her answer? "Give it time." I said I HAD given it time... she said give it MORE time.

    She said my brain had become used to the idea of how my native breasts felt for more than 50 years, so it had to get used to the new feeling of new breasts. She was right. I had been carrying around some 40DDD honkers.... and what I have now is a very nice 36DD. It was a relief to get rid of that weight and that larger size, although having BC was not the way I wanted to do it.

    You may be very surprised at how you feel after Exchange. I wouldn't worry so much about the lack of feeling right now. 

    Wishing you the best....

  • 1toughmomma
    1toughmomma Member Posts: 87
    edited June 2014
    • I had my MX in late November, TE exchange in Feb and revision yesterday. Forgetting that I UST had surgery I ha no feeling across most of my breast. Zero, no pressure and no painful stimuli. I was told to give it 18 months for a partial return. 
  • DiveCat
    DiveCat Member Posts: 968
    edited June 2014

    As exbrnxgrl said, whether your MX is for treatment or is done for prophylactic reasons, your breast tissue is gone. Along with that goes your nerves too. Nerves can regenerate in time, but they won't ever be able to replace what you had as they cannot regenerate through silicone or saline. Some women do report some sensation across skin or nipple, but the feelings you do get again can't and won't be the same as it was. Some women also report phantom pains.

    In my case I occasionally have phantom sensations that "feel" like they are in or around my nipple. They are similar to the fibrocystic pain and ache I used to get in my nipples, but I do notice less of these as time goes on. If I touch my nipples they just feel numb though. This is also the case for the lower half of my breasts below the nipples.  I do have surface/skin sensation on top half and can feel it if I or my husband run fingers lightly over top of breasts. My cleavage area was initially very hypersensitive but now is normal..I have surface/skin sensation in cleavage and inner portion of breasts along implant edge. The feeling over my sternum here is the same as pre-surgery...which for me meant it feels a bit weird and uncomfortable to touch or add pressure to! I have a boney sternum/not much tissue over it so it has never felt comfortable to touch. I also have some feeling on very outside along implant edge though right now that feeling is more often "soreness" like I bruised it. I have some feeling and sensitivity along scar lines in IMF. I can feel pressure and no when someone is pressing down on my chest (or when my cat is walking across it at 2:00 AM!)

    None of this loss of sensation surprised me and I was both aware of it and knew it made sense given they were removing tissue and along with it nerves. So I find it curious more than anything. Similar to blessings, I actually do feel like these are my breasts even though they are different  - and feel different - than the ones I carried around for 20 or so years. And mine are still "developing"!

    I am sorry if this is new news to you, this is something doctors really need to explain to patients. 

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2014

    The only place I have any feeling is in the cleavage where there is less breast tissue anyway, otherwise I have zero, nada, nothing. I cannot tell if someone is touching me at any place over the surface of the entire breast.

  • FLgrl32
    FLgrl32 Member Posts: 35
    edited June 2014

    Thanks so much for the info all.   No, my PS or Breast Surgeon did not tell me this.  They went to great lengths to discuss loss of sensation in the nipple though.  I have heard that there is a chance that the fat grafting I will have at the exchange will help.  Who knows.   It would have been good to be prepared for this.  What a real bummer.  

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    So sorry that your docs were not more forthcoming about this. You might want to mention it to them so that can do a better job in the future. Wishing you the best.

  • bethq
    bethq Member Posts: 311
    edited June 2014

    I had surgery June 5 and have feeling at cleavage, some on sides and a little where alloderm is. Nothing above incision. I just now partially shut my right breast in a cabinet so not that much feeling. Wonder if anyone has any tricks so they don't injure themselves?

    I also feel surgeons kind of gloss over this fact. Mine told me but it really doesn't sink in until you realize what it feels like. I was afraid to touch my breasts for two weeks. When I saw the surgeon and she pressed into the TEs I almost went through the roof because I had been guarding them so much. It's strange to have no sensation but still be able to feel pressure.  Hopefully this is something we can get used to.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2014

    Yes, the lack of internal feeling is indeed strange and hard to imagine prior to surgery.  I don't think that my surgeon glossed over this, but I do think that as doctors they completely understand why this happens and perhaps assume that we should too. It's almost as if in their minds they think, "Of course you won't have feeling. We've removed all of you breast tissue, cut and altered skin etc. Why would you even think you'd have normal feeling?" I will say that after almost 3 years, I rarely think about it. You are still fresh from surgery, so give yourself time to heal and make adjustments to the change. Wishing you the best.

    Caryn

  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited June 2014

    I'll chime in here too...

    I have the slightest sensation on my skin but everything else is numb.  Shaving under my arms is weird because I cannot feel the razor.  I have bumped into things with my boobs as a result of not realizing they are there.  

    It's not a perfect world but it is far better than dealing with cancer.  

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