IV Vitamin C Therapy
Comments
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Thanks, Musiclover. I thought the story was interesting.
Musiclover -Just curious...is your vit c liquid or capsules?
I'm just using IV C as another tool in my toolbox. I'm in no way promoting it as my main treatment. I have had neoadjuvant chemo, BMX, radiation, Tamoxifen, ooph, and continue with Femara and Zometa.
I use both conventional and alternative...and hope for the best.
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I did vitamin c IV therapy with Dr. Dianna Hanson at Global Integrative Medicine in Portland, OR, for 5 months. At least 3 met sights are now NED. I still have spinal mets but thats not as bad as it was. They gave me 6 months to live... that was 2 1/2 years ago... it is NOT cheap... and it is usually not covered by insurance. Its approximately $400 per infusion which is and was a huge barrier for me. But i welcome your questions and will gladly send you Dr. Dianna's phone number. I wish you well. Xoxoxo
Ps i sought out vitamin C after the cancer returned in full force after a year of NED. I did all the traditional treatment the first time.
Pss... the dosing was well over 200,000 units. I think grams... like taking 200 1000mg pills at every infusion. Mine was more experimental but it worked for those mets...
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Christinethon - seems that you are new to bco...so thanks for sharing your IV C story. How many grams of IV C did you start with? Are you still receiving the 200,000 units? If so, how often?
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I can't afford the treatment so Im currently not receiving it. But my last dose was a few months ago and I think it was closer to 400,000 units by the time I stopped....
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christineathon, I'm just curious inf you did vitamin c in conjunction with chemo or on its own? One of my doctors wants me do do it with chemo and the other (oncologist) says no way.
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Had my 2nd 50 grams of IV C - will be bumped up to 100 grams next week if my absorbic acid blood levels aren't high enough.
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Canuck Mom I did chemo when I was first diagnosed in 2010, was NED for 2011, then stage iv 2012 at which point I had several met sites and it became "treatable but not curable". That is the point that I sought out alternative therapies and found the Vitamin C treatments. I didn't do the therapies together so I have no insight as to the benefits or cautions associated with concomitant treatment. My understanding of the Vitamin C however is that it acts like chemo with less side effects (that was true for me). I don't know how or if it would benefit you to do both at the same time.... that seems like a lot to put your body through at one time.... but the Vitamin C could also act as a fortifier against the negative effects of chemo.... My most humble opinion would be to talk to an ND pharmacologist if you can find one and see if they have any data on the benefits or caution of doing both together? ?? Please post when you decide and updates if you feel comfortable doing so ~ I would like to know that you are ok. Much love and strength to you. Xo
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Dr. Dianna Henson, Naturopathic Physician
1585 SW Marlow Ave #200, Portland, OR 97225
(503) 548-4008
FYI for anyone interested. I spelled her name wrong before ~ apologies. She is very open to answering questions and she is one of the few in the US pioneering with very high dose Vitamin C. She took a lot of time and answered a LOT of questions before I even started treatment. I hope this helps. Wishing you all love, strength and support. Xo
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peacestrength, I get really thirsty when I do the infusions and I always fill up my water bottle when I go in and then have to go to the bathroom halfway thru the infusion and fill up the water again. They said that's normal.
I did want to tell you guys about something else--my doc has me on megadoses of vit C pills also and I'm supposed to take 1000 mg about every hour or so. Part of the reason for such high doses is to clear out the mercury from my system and it's a great detoxifier. The problem is that one day I took my cit C pill just before going in to the dentist to get 2 huge amalgams dug out and replaced and they placed the first pain shot and it did almost nothing. I told them I"d taken a vit C pill prior to coming in and they almost thought they were going to have to cancel the appt but we did it--3 hours and 5 more shots later! Apparently vit C can neutralize pain shots--don't know whether it was novocaine or lidocaine. I know the dentist was nervous b/c it can cause the pain shots to wear off quicker too, and when they have to move around to do the shots, there is a chance of hitting an artery. After the appt I took my next dose of C and within half an hour the painkiller had worn off. I wished then that I hadn't taken it--that was the most pain yet.
I've read that the infusions don't do this, just the pills, but wanted to let you all know in case you're going in for surgery or something--I wouldn't want to take a chance on losing any painkilling power!
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Thanks for the info, piper. I've been thinking about having my last amalgam removed. I had two removed from my regular dentist right before I was dx - he claimed to know what he was doing but I often wonder if mercury spilled into my body. I too get thirsty during and after my infusions - I drink and eat through out the 3 hours.
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Peace, the biggest part of my holistic cancer tx is getting those amalgams removed. My doc said that it often happens that as soon as the last amalgam is removed, the tumor will spontaneously disappear. Of course you want to find a biological dentist to do this and you can find one thru the IAOMT. My chelation regimen includes all the minerals, megadoses of C, alpha lipoic acid, B vitamins, and DMSA which is highly sulfuric. Doc also cleared out my intestines, liver,and kidneys before starting the regimen b/c those are your main detox organs and the dentist uses a special hood to shunt away mercury vapors (also protects him) and a rubber dam to keep pieces from falling back in my mouth. It's quite an ordeal but I'm glad to be getting it done.
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gary null said recently that vitamin c didn't work for liunus pauling because he took massive doses throughout, that the best way is to gear up with the dose then gear down then repeat
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Abigal48 - is this something Gary Null has posted and can be read? I tried searching the internet for this and didn't find this.
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about gear up then down? just something he said on a recent broadcast, makes sense to me & I recall someone here saying she did just that. this with not just supplements but food & juices I guess that too.
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Yes, increasing and then decreasing dose. For me, we are gradually increasing the dosage for total of 15 treatments, then a much reduced maintenance dose thereafter.
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when i first listened to gary, more than 30 years ago now, I recall him saying if you use something every day you'll get addicted to it.
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no, he said you'll get allergic to it. was a long time ago
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That makes more sense to me - before IV C, one has to be tested for this. If one has a sensitivity to IV C - then no IV treatment.
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Hi girls I did 50g IVC before all my chemo treatments and I have it before I fly overseas and every winter. My intergrated Gp that did them for me in aus now does 100g for me. I could have had it during chemo but 6 years ago that research wasn't available and she wasn't sure. She says it helps build the immune system and strengthens the veins after chemo. In aus it cost $110 for a treatment. I try to have it twice a year I use it as part of my treatment plan as well as taking DIM vit D and zinc ,meletonin and selenium and magnesium. My intergrated dr has a compounded chemist make up these vitamins ( extra 800mg vit C) I have full blood tests every 3 months. It cost me about $30 per week but I do work so that helps pay for it.
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Last year I had missed having my IVC for 12 months and ended up with a cold/flu that hung around for months. I went and had IVC and Zinc combined and within a week it had gone. I have been around very sick people at work. ( I also work with the public) and this year have escaped it. I hope this helps you. It is interesting to read the different things that people in other countries do. It is such a frustrating horrible disease and we can only do the best with what we research and learn from others. Every persons BC story is different some are ned with very advanced cancers and others end up stage 4 with low grade no lymph involvement at least if we do alternative and medical treatments we feel like we have a little more control with a disease that can make us feel so out of control
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Delvzy - I so appreciate you sharing your story. You mention that you did IV C before your chemo - how many total treatments of C did you have during this time? When you said:
"is such a frustrating horrible disease and we can only do the best with what we research and learn from others. Every persons BC story is different some are ned with very advanced cancers and others end up stage 4 with low grade no lymph involvement at least if we do alternative and medical treatments we feel like we have a little more control with a disease that can make us feel so out of control"
Well said and I agree deeply with you. To me, it is important that we learn from each other - and receive what information is best for our specific situation. I read recently that for every 100 breast cancers, it's like treating 100 different cancers. I think there is some merit in that - we are all different - I do what I feel is best for me. And yes, it helps me to feel like I have a sense of positive contol, which helps my mind and spirit.
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I received another 50 grams on Wednesday. Was suppose to have another round today but compounding pharmacy is having issues - hopefully it will come in and I'll still receive it today. Otherwise I'm scheduled for Monday.
Peace everyone.
Update: I did receive 75 grams of IV C on Friday - it came in at the lunch hour.
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Hi christineathon, sorry I took so long to get back to you! I have decided to wait until after chemo as my onc is really against them, but I will do them afterwards to boost up my immune system! Thanks for your info. It was very helpful and I'm sure the Vit C would be beneficial but I'm trying to keep my onc happy...not thrilled with her and was going to get a second opinion but my surgeon said no way should I delay treatment for another opinion so there it is...instead I am changing diet and fasting before each chemo (this seems to help with SE's).
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After being on vacation, I received 75 grams today and will again on Friday. Haven't reached the optimal theraputic blood levels yet.
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Thanks everyone for the discussion on this thread! I have completed IV C
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Please forgive as I am new but where do you go to get IV Vitamin C infusions? Do you have to find a holistic doctor? I'd appreciate whatever info you can give. Thanks.
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Wrsmith2x - I have a family dr who blends conventional medicine with natural but I believe you are looking for a naturopathic dr. They are not all created equal, so make sure they actually have medical training, like an md. I am in Canada though...if u are in the USA it may be different.
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I received my IV C infusions through my naturopathic doctor(s).
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Yes, I have. It is fabulous!. However, I got sicker on it. I found out that my methylation process wasn't working. A lot of cancer patients it isnt. There is a blood test that you can find out. Your liver has a phase 1 and phase 2 detox. Its the phase 2 that doesn't work. So, toxins can build up inside. I found that out too late. A lot of research on ivc treatment. A lot of Dr. Don't even know what the methylation process is. Defnjtely do it, just beware if you get sicker, that's what it could be. I want to start them again at a lower dose. My mobility isn't the best right now. So, I am taking poly mva instead. IVC rocksa
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Hi I have don IV C 18 times since diag stage 3. Did all the nasty conventional route first, butchered, poisoned and fried. Refuse to do any more of that. Made me wish I were dead. Now I do several evidence based alternative/complementary treatments as recommended by my Naturopath. No problem with the Vit C. Limiting factor is the money, costs 180 dollars per tx. Have also had great success using it to treat infections after my many reconstruction surgeries. The antibiotics didn't work well and got a huge infection last year for my 3rd reconstruction surgery. Didn't yet know about the Vit C iv at that time, wish I had as would have saved me much grief and pain. Ping mef anyone wants more detailed info
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