February 2014 Starting Chemo Club

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  • Brwneyedgirl
    Brwneyedgirl Member Posts: 113
    edited June 2014

    Congrats lgoldie!

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  • gatorgal89
    gatorgal89 Member Posts: 56
    edited June 2014

    After five months, I broke up with my Power Port today. The only place we ever went was chemo. I know it was good for me, but it's time to move on. In fact, I have a date with Recovery starting tomorrow!Winking

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited June 2014

    nice analogy gatergal! Good for you. Hopefully you'll have a long term relationship with recovery. No future with power port, a thing of your past.

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  • MomMom
    MomMom Member Posts: 523
    edited June 2014

    Gatorgal,  Love it!  Hope to be breaking up with mine soon too:)!

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  • Brwneyedgirl
    Brwneyedgirl Member Posts: 113
    edited June 2014

    Gatorgal, YAY!

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  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    YEAH Gatorgal!   I have been portless for one week.  sleeping a little better on the port side  (actually, it would be starboard)

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    The Deportation begins! My onc wanted me to keep mine in for 2 years. I did. Was handy for blood draws

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  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    alright gatorgal!  

    My port has been out 1 week...it's probably just still swollen, but it feels like it's still in...large bump when I touch it...guess it will go down...had my first rad today....went ok but kind of weird when the techs all walk out of the room! Rosie

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited June 2014

    Rosie, I know it's kind of weird. I want to say...hey you left me in here, what, you don't want to get zapped, but what about me. My port site is still "thick" feels like scar tissue and still tender, 6 wks after. Oh well better than when it was in

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Rosiesride after having my port in for 2 years it took months for me to feel like it wasn't there anymore.

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  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    thanks girls...I wonder if PT has a suggestion for scar tissue...like massage???  But at least I know it's normal to still have a bump!!  Yes,it's still better than having it in!! Rosie

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  • gatorgal89
    gatorgal89 Member Posts: 56
    edited June 2014

    I'm taking off my bandage today from port removal. I fell asleep sitting up yesterday! After-effects of anesthesia I guess. Does anyone else have a hideous amout of white peach fuzz on their face? I do not remember having this before! Still no sign of my eyelashes either. Oh well...if these are my biggest problems, I can deal with it!

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Yes. For most the peach fuzz goes away. Some of mine did but I still have it, and on my upper arms, back etc. No one really notices it but me but I do trim my face with one of those clio type razors. In the sun I have a glow otherwise.

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  • Summerwheat
    Summerwheat Member Posts: 86
    edited June 2014

    Hi ladies, I have been MIA, since I have not had chemo for quite some time, still TCH #5 and 6 missing due to platelet count recovering VERY slowly. For that reason, bone marrow biopsy tomorrow, fun. I am really scared. My MO thinks that the platelet thing is an autoimmune condition, as my other blood counts are back to normal right now, six weeks after chemo #4. Trying to stay positive, but this really sucks. Hope you are all doing well (seems like it). Wish me luck.

    Alexandra

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Summer I hope it's just a fluke and your platelets go up soon.  Everyone reacts differently so you might be a slow one.

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited June 2014

    Alexandra- what did your labs look like when they told you there was a problem? My labs are so weird now that I started AC, haven't had the chance to ask MO if this is normal. I go in tomorrow so hoping for answers. 

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  • Jules_NY
    Jules_NY Member Posts: 276
    edited June 2014

    Alli how is the AC for you? I hope not too bad!

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  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    hi guys...hoping for some insight...I am 3  1/2 weeks out from last TAC treatment and started rads this week.

    My question is about heavy legs, achy  thigh muscles and calves...( I do have mild neoropathy as my balls of feet are a little numb too)...I wonder how long this lasts?  I have started doing walking/ leg exercises in my pool about 3 days a week for 20 minutes...strain could be from that?? As I did NOTHING  pretty much for 6 months....does leg heaviness, aches last awhile after chemo is done??  Thanks for any input...anyone drinking joint juice or glaucosomine supplement??? (Sp??) Rosie 

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  • Summerwheat
    Summerwheat Member Posts: 86
    edited June 2014

    My platelet count was always on the low side of normal (btw. 142,000 and 170,000), I reviewed all my medical records of the last ten years. It is just taking forever to recover after chemo now - it starting coming up too slow after TCH #3, which gave me a week extra, and after TCH#4, I was at 55,000 3 weeks later, 62,000 4 weeks later, and now, 6 weeks later at 87,000, which is still not sufficient for next chemo, and I really want to finish it, not stop with 4 treatments. My RBC and others appear to have come up to pretty normal levels after the last chemo by now. So weird. Well, I am hoping that the Bone Marrow biopsy will give some answers. Just so scared - no sedation, just local (novocain), and two Ativan beforehand, my MO does it at her office, and she said she has done 100s of them. Called hospital, but they also don't do any conscious sedation and only novocain. Suck.

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  • Jules_NY
    Jules_NY Member Posts: 276
    edited June 2014

    Bigs hugs to you Summerwheat!!!!!

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Rosiesride I was so stiff after chemo I couldn't even sit on the floor and put my knees down. At about 5 weeks all of a sudden it seemed to get better. I never thought it would. OMG I remember walking up stairs was hell. For many the nueropathy starts to improve around then but it can take up to 2 years. After that if it doesn't improve it won't.

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  • MomMom
    MomMom Member Posts: 523
    edited June 2014

    Summerwheat,  Yes, huge, huge hugs to you!  Will be thinking of you. 

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  • Rosiesride
    Rosiesride Member Posts: 513
    edited June 2014

    thanks lago...hoping it gets better!!  Wow...we sure are a patient bunch of gals!!  

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  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    summerwheat- ugh! So sorry. I know you are frustrated but hang in there!   Sending you positive thoughts and healing light. 

    I had such heavy legs after finishing chemo.  I live in a townhouse and hated those stairs some days. 

    My friends through us a little pre wedding party and had this cake made. ... My little fondant head is even blinged with my sassyhead!  

    image

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Love the bling-headed cake! How nice of them.

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  • 3doglady
    3doglady Member Posts: 50
    edited June 2014

    Nice cake, jb.  Planning a post chemo/pre surgery party and am trying to think of a cake.  My theme is "say good-bye to the ta-ta's" and Im trying to think of a G-rated cake.... 

    Rosie, Im pretty sore, right side especially, in my muscles, my joints and my feet.  Feet started swelling last weekend, but I was working in a horse arena with NO air conditioning,  so I attribute *that* to the heat.  But still getting some ankle swelling.  Also, get swelling all over, but not terrible.  I can tell when my hands are and when my chest/breast is seamingly filling with fluid.  See Onc July 9 with a lot of questions.  See surgeon next Wed to likely schedule my BMX.  


    Yes, I agree with every one else: stairs suck!  Heart palpitations finally subsided.  That yucky taste came back this week, but its manageable.  If it weren't for you ladies, I would be worried sick about these silly symptoms.  They dont tell you all these things.  My clinic had a pre-chemo education meeting.  They should also have a post chemo mtg.  Geez!

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  • lago
    lago Member Posts: 17,186
    edited June 2014

    Party ideas:

    mamograms cookies

    boob in bra cookies (upside down hearts) You can perform your own MX and BMX at the party

    boobie prizes

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  • Summerwheat
    Summerwheat Member Posts: 86
    edited June 2014

    Bone marrow biopsy over, thanks for the hugs, it was bad enough, but not horrible (and it was quick), still a little sore today from it today. Took 2 Ativan, did not help the pain, but made me sleep for about 16 hours afterwards (not kidding).  Let's see what comes out of it. My blood platelets are playing games with me: 87,000 on Monday, 101,000 yesterday. Thus, chemo in beginning of next week. WTF. Have a nice weekend everyone.

    Jeanette: LOVE that cake, especially the little bling-head! Congratulations to you.

    Alexandra

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  • 3doglady
    3doglady Member Posts: 50
    edited June 2014

    Lago, on the third link, really scroll down for the pic.  Now to work it into the party!  I do intend to have at least one game: draw the eyebrows (giving out pic of my head, with no make-up, and asking for them to try to draw the eyebrows!) 

    The others are great!  Thanks!


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  • lago
    lago Member Posts: 17,186
    edited June 2014

    3doglady I fixed it to link to my pinterest page. Love the game. Former game designer here.

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