Papillomas?

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bluewillowskys
bluewillowskys Member Posts: 365
edited February 2015 in Benign Breast Conditions

Got my biopsy results. I have no cancer, but have a papilloma....anyone familiar with these and what treatment is typical? Does it increase my chance for a cancer recurrence or new cancer?

Comments

  • Janet456
    Janet456 Member Posts: 507
    edited June 2014

    Congrats on the benign result.  When I had all my testing done I was told I also have papillomatosis, it was passed off to me as something not to worry about, and to be honest I had enough to worry about at the time so I've forgotten about it.  I am due a check up in a couple of weeks so I will make sure to ask the question. xx

  • Ridley
    Ridley Member Posts: 634
    edited June 2014

    During my diagnosis, we thought I had a papilloma at first.  I was told it would removed as it can hide cancer cells.  Turned out to have IDC from the biopsy.

    Ridley

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2014

    Most papilomas are benign but they are removed most of the time because they grow and cause discharge and other annoying symptoms. The duct excision to remove them is a minor procedure & most women here report back that they had minimal discomfort from the removal surgery.

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited June 2014

    Thanks ladies:) the more info i get the better i will be at deciding what to do...im leaning towards removal just because of the peace of mind factor for me.

  • WolfsLady
    WolfsLady Member Posts: 111
    edited June 2014

    Papilloma was my Dx.  I had planned to leave it and do 6 month follow ups like I do on my fibroadnomias, but I was having pain after over 6 weeks after my core biopsy.  I ended up having it removed.  They are such a hard one to decide on because there is so much controversy.  However with a history of anything worrisome I'd think that the doctors would say, it's best to remove it because it can hide other things.   The chances that it is benign are very high for single papillomas that are in the large ducts.  Multiple papillomas, especially in the smaller outer ducts, are riskier.   I think they always recommend removing those.

    You can read some of my posts to see my story.  I'm doing well and so far the shooting pains I was having seem to be gone, at about 2 1/2 weeks out.  So I feel like I made the right choice.  At least for me.  But before I realized the pain wasn't going away, I was OK with the wait and watch plan.  Every woman has to do what is comfortable for her, given her history and her temperament.    

    Good luck. 

  • Momofbandl
    Momofbandl Member Posts: 1
    edited June 2014

    Hello everyone! Almost 2 weeks ago (Father's Day) I woke up and saw a small, brown spot on PJ top. Didn't think anything of it at first. However due to the location of the spot I decided to squeeze my nipple and sure enough I had some brownish discharge. I nearly passed out from seeing this knowing that this can sometimes be related to BC.

    However since I'd just had a normal, 3D mammogram just 3 months prior (just turned 40) I didn't go into complete panic mode. I called my GYN the next day and they suggested I see a breast specialist because this wasn't "normal". At that point I began to worry a bit more.

    Thankfully I was able to see a breast specialist (which I saw today) and had an US done this past Friday which also came back normal. At my appt the Dr performed an exam and said that everything felt completely normal. She squeezed the right nipple and sure enough there was some brown discharge. It was tested and sure enough there was some blood. She said that since everything looked and felt normal (except discharge and sensitive nipple) that it was a intraductal papilloma. My discharge was spontaneous and unilateral.

    So I'm set to have a ductal incision next Thursday.  I'm actually not to concerned about the procedure. I'm actually wondering how many other women had similar symptoms and how everything turned out. I'm feeling a bit anxious & would really appreciate some feedback.

    Thank you!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2014

    After seeing some spontaneous bleeding from my left nipple, my breast surgeon (without any test results to go on) initially said it was a papilloma, which was benign, but would have to be surgically removed, or it would continue to grow and cause more bleeding. She said the procedure was an easy one.

    Unfortunately, in my case, further diagnostic testing revealed DCIS and IDC, but I am SO HAPPY for you, bluewillowskys..... benign is always good to hear!!!!

  • Delilahbear
    Delilahbear Member Posts: 466
    edited June 2014

    Momofbandl and Blessings, I hope your ductal excisions were or will be easy procedures.

    Bluewillowskys, I hope you can get your papilloma resolved with little discomfort.

    I was diagnosed with severe papillomatosis after having a ductal excision in 2008 for left nipple discharge and then almost a year to the day of the 2008 surgery, the right nipple started a discharge mess as well. I had also had a sclerosed adenoma and papilloma removed in 2005. When the ultrasound was done at the time of the right discharge they found that both breasts contained multiple papillomas that could not be removed as there were so many. A MRI was BiRads class 4 suspicious with multiple micro calcifications. A wire guided biopsy (bi-lateral) was performed and based on the pathology of those and the ultrasound and family history, I decided to undergo a prophylactic bi-lat mastectomy and have no regrets.

    With one papilloma, you should be fine with just and excision.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2014

    Delilahbear - gosh, that was so long ago... I was dx'd in 2011, and within days they had discovered the IDC, leading to a BMX and recon. I never had any duct excision done, since they were removing everything anyway. But thank you for thinking of me!

    Sounds like you went through the wringer first! Hopefully, Bluewillowskys will have a very easy time of it!

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited October 2014

    I got busy with life and havent been back here in quite awhile. I found out Im in perimenopause...yay ! sort of....lol Its apparenttly has been the causing my lack of libido issues. Im still considering a bmx if i have anything at all messed up on my next mri and mammo. If I have to go through the whole biopsy scare and repeated tests again I think highly I will just do the BMX and be done with the girls. I have anxiety issues and having all the worry for the rest of my life is not conducive to a happy life. I am wondering if anyone can direct me to info about the recurrence risks after a MX? I had read that some women have had recurrences because breast tissue extends up into the collarbone areas ?

  • Tia777
    Tia777 Member Posts: 16
    edited October 2014

    Hi. I had my papilloma removed a month ago and it is still discharging brown fluid. Have any of you had this?

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Tia - I had a duct excision due to discharge and the discharge never stopped.  I went for a second opinion and this radiologist did a ductogram right then and there and showed me the papilloma on his computer screen.  The consensus was that the first surgeon missed the offending duct. The second duct excision was wire guided and the discharge stopped immediately. You could be still healing. I let it go another two years. I know the thought of another surgery really really sucks but you should follow up if it doesn't go away in a couple months.

    BTW neither one of my excisional biopsies found cancer. Good luck!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited October 2014

    bluewillowskys - unfortunately, recurrence is kind of a crap shoot. There are many studies that show that lumpectomies with radiation have the same survival rates as bilateral mastectomies (which is not the same as "recurrence rates") but I'm sure you can look it up.

    I chose BMX because of my history (Mom had BC) and the fact that my Original Girls were huge, droopy, fibrocystic, painful, and hung to my waist. My Radiologist could not assure me that my right side was clear, and like you, I didn't want the annual anxiety of wondering if this were the year that something was going to show up on the other side. (Ironically, my lump was never palpable, or discovered through mammogram.)

    My choice (BMX with reconstruction) made total sense for me, but it's a hugely individual choice. Mastectomy - especially with reconstruction - is a serious surgery.

    I went into it knowing that 1) I could still need chemo; 2) I could still need radiation; and 3) I still faced the risk of recurrence, even though the final pathology report showed that the cancer was tiny and detected early.

    There is no way that any surgeon can remove every single cell of breast tissue during MX, and the possibility exists that a rogue cancer cell could be floating around somewhere inside the body. It could be a new cancer, a recurrence of the same cancer, or it could be a metastasis to a distant location.

    We do the best we can with what we know. We research our options, gather as much information as we can, then trust the medical professional we choose. We go through treatments that are suggested, and hope for the best.

    As far as I'm concerned, I was healed of BC the day I had my mastectomy. That's my story and I'm sticking to it until someone tells me differently. 

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    well my next mammo is coming up February 10...so i have the "is it still clear?" thoughts going through my head. I am still interested in recon with a lift and small implant(half cup to full cup size...not sure how many ccs that would be). Im also considering wrist surgery so im not sure which surgery i would or should do first. If i end up having another biopsy done like last eyar i still am thinking of the BMX....but i have anxiety over the thougt of having no nipple sensation :/

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited February 2015

    i went to my online medical chart at my hospital....the following is what was written about my MRI and papilloma last June....

    MRI RESULTS:

    Left breast: Non-mass enhancement at 3 o'clock middle depth spanning 14 mm

    in AP dimension. MRI findings are suspicious for malignancy. BI-RADS Category

    4b. MRI-guided biopsy is recommended.

    FINAL PATH DIAGNOSIS:

    Breast, Left, 3 o'clock: MRI-guided Needle Core Biopsy:

    - Intraductal papilloma with usual ductal hyperplasia, measuring 0.4 cm in

    greatest dimension


    i had been told by my onco that the "something" they saw on MRI was 1.4 cm in size....but the biopsy above says 0.4cm,. She had also said most of it had been removed with the biopsy. Can these re-grow again in the same place or nearby ? Is it possible there is still some of it in there?

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