How Many Are We?

hi, I was diagnosed stage lV March 17, 2014 mets to hip and rib. Yikes glad I found you!

Hi JourneyOn, I'm pretty new to this as I just joined April 2014 and am still trying to navigate my way through.  On this question there are 18 pages before us that have signed in with stage 4.  And on my home page I listed my first diognose and then listed my new diognose but still haven't figure out how to list all of my treatments of chemo, radiation.... etc etc.

So nice to meet you!  This has helped me so much in the feeling that I am not alone and any question I have I am able to fine or ask.

Always lynette

Count me in too.  Used this site a lot when going through treatment the first time around and then after popped in once in awhile.  I know this site helped so much the first time around and I love that we get the support we do here.  Also have tried to keep up with the latest treatment options or new discoveries.

Hi All! DX stage 4, Aug 2013, 15 years after original dx, stage IIb. Mets to both hips, almost all spine, ribs, neck, skull and lung. On A/A ever since w/Zometa. Tried xgeva, it has sorbitol in it, and I'm allergic.  I'm blogging about it all at http://earthandskylotus.wordpress.com

Is there a "blogger" thread?

Might be too late, but you can count me also. 

I was diagnosed with pretty much stage nothing breast cancer in 2011, but in April 2014 we learned it had metastasized to my spine, left hip, liver and left adrenal gland.

I was diagnosed stage IV Breast HER+ , ER+, PR+ with bone mets in hips, spine and ribs Oct 2012. I had Aridia and 7 rounds of taxol. In May 2013 had nod for 9 blissful months. 

Tumor markers spiked in March of this year ... back with Bone in scull, neck, spine, hips and ribs  and Liver mets and being treated with Kadclya and Zometa . 

My side affects are a little less with Zometa in place of the Aridia. However i am not sure if the steady weight loss, random stabbing pains, tiredness, headaches and 

nausea is due to my Kadclya or the Liver cancer. Had my third treatment today and markers are spiked even higher...with LDH at 3088 and all others in the 100's.

Hi

My name is Rozann and I am Stage IV BC.  I was diagnosed Stage IV last summer.  I was on Faslodex, but have just been  changed to A/A.  I can't remember how to put my treatments on here.

new to the forum.....stage four from the get go.

Hi Rozann - to update your treatments, click on Profile at the top of this page and then on the appropriate tab. :-)

dear ladies, stage iv, dx 3 weeks ago.mets to liver.

Diagnosed first time around stage 2b in August 2011.  Diagnosed stage IV in April 2014 with two small mets in the liver only.   These were found incidentally on a CT scan that was ordered by a urologist for something totally unrelated.  Talk about a surprise!  Oncologist said I probably wouldn't have had symptoms for another 6-12 months!   Had a resection of one lesion in May and SBRT of the other in June. 

Hello Everybody! This is Jabid from Fiji. I mom was diagnosed with lung mets in February this year. Had 5 rounds of chemo in India and is now on oral chemo, Endoxan (50mg) AND levesam. is anyone here on the same medications especially endoxan? I would like to know what the side effects are as my mom gets nausea too often and does not feel like eating most of the time.

Thanks

Jabid

Jabid

Endoxan is a name for cyclophosphamide which is a common chemo drug.  I don't remember the side effects but the doctors ought to be able to prescribe something for nausea.  I think I was given domperidome for anti nausea but you need to speak to your mum's oncologist.

The other drug is anti-seizure medication I think.

Also a member of the club. Diagnosed Stage 4, triple positive, straight off the bat in May, with spread to lymph nodes, sternum, left pelvic bone, and possibly lungs (could also just be nodes). Doing weekly Taxol (just finished round 12) with herceptin and perjeta every 3 weeks. 

I'm stage 4 as of last Tuesday... to the bones (spine)