Starting Chemo in April 2014

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  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    My itching isn't extreme but it seems to get worse at night.  The benedryl makes me sleepy and I think it helps the itiching but either way, if I can sleep, I don't feel it.  Today is day 12 of the last infusion and I don't feel itchy today but it's unpredictable.

    Ativan is very strong for me.  If I take one I'm zonked very quickly.  However, sometimes it feels as though it's difficult to breathe, which is scary.  If it's not one thing it's another.  Xanax isn't as strong but I think it makes me feel better.

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited June 2014

    Thank you Brigadoon…I have to say that sometimes the Bendadryl works and sometimes it doesn't. Ativan definitely helps me sleep. 

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Darn.  Sorry nothing definitive - that seems to be the case with the skin side effects.

    A cortisone cream helps my itching, but I have not had actual hives.  Most of mine occurs around my neck, and is accompanied by a slight "weeping" of a clear fluid.  After 10+ weeks, many of the skin tags and small moles in that same area have disappeared.  I'm guessing we may all have slightly different things going on, but Nana's hives sure sound like an allergic reaction to one of the drugs.

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    I've been reading your posts about itching…that is miserable. Sorry you guys are having issues with this. Hopefully it'll resolve soon. I know you've tried a lot of different things - but I'm wondering if Witch Hazel would help? It sometimes helps with things like bug bites or poison ivy, depending on how bad. I know it's yet another thing, but if you haven't tried it. Plus, I'm not sure how it interacts with everything else, but maybe something to consider.

    It is amazing how we each react so differently. Ativan doesn't do a thing for me. :) When I could enjoy a glass of wine and it didn't burn all the way down, I think that made me sleepier. LOL.

  • nancybel
    nancybel Member Posts: 81
    edited June 2014

    Nana sorry to hear about the hives and continued itching. The prednisone helped me some but I'm still taking Benadryl as well. I hope this goes away for you soon. 

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited June 2014

    It took until day 10 after round 4 to finally be resolved of digestive issues and recognize myself in the mirror again. It's like, "Oh, there you are! Welcome back! :)" At this point I don't even care much about SEs anymore, I'm just wanting to speed up the calendar and get done. With only an 11 day feel good window, I'd rather just get to #5 ASAP. During my sick days this is pretty much all the activity I could muster. Jack on the left is a fetcher while Cali on the right is a tugger. So when I found some energy on those dark days I could be found throwing the ball and wrestling an old garden glove and looking into these two sweet faces.

    image

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    Sorry, LongIsland. Hope your good days are really good. Your pups are just adorable. 

    Here's the face that gets me out to walk…Maddie had gained a ton of weight due to winter and my diagnosis. So since I've been able, we've been walking as much as possible and she's lost 5 pounds. She should be about 70 and she was up to 82 pounds, now back down to 77. She's a fetcher and a chewer at 9. :) 

    image

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    I LOVE seeing your dogs! The little white ones are adorable and the lab is really sleek and handsome. They are such good companions.

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Too cute, Longisland and jhodro.

    We also spent time with the dogs this afternoon.  Went for a swim, while they watched from the sidelines:

    image

  • Firekat
    Firekat Member Posts: 2
    edited June 2014

    Hi ladies,

    I've been reading your posts and many times I think I could have written them myself. It's exactly how I feel too. I started dose dense A/C in April and I felt I did okay. I just started Taxol on Wednesday and it's giving me different side effects. I had hoped Taxol would be easier. Has Taxol been easier for anyone?

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited June 2014

    I love seeing everyone's puppies!!!!!!  Here are my two guys…..they are so sensitive to what I am walking through…..

    image

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    love all the dogs.  Heartwarming!!

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Firekat, It will be interesting to see how the Taxol affects you. Most people think its a lot easier than AC and other combo's. Taxol is all I have ever had, so can't help much. 

    Sharon, Cocker spaniels?? So dear! They must want to swim with you, or don't they? Some dogs can't resist pools. My BIL has a Jack Russell that swims for literally hours in his backyard pool. The little fellow is a machine!!  

    Nana, Your pups are border collies? Aussies? Great faces. They look very empathetic.

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited June 2014

    MameMe they are Aussies! The white one is a toy, and the red one is a mini :)

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Hello, Firecat.  I did a different regimen, but I've seen where some have said taxol is easier - but others say the opposite.  Like everything, we all react differently. Best of luck to you.

    Sweet pups, Nana.

    Yes, Mame - Cocker Spaniels.  They like the ocean, but not the pool - go figure?  We had a Golden who lived in the pool, and would push his tennis balls in so he could dive in and fetch them.

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Oh - almost forgot.  I shared a photo of my bald head with family and friends.  My brother said I looked like a pumpkin with dimples ... LOL.

    And, my insurance company (BC/BS) has invited me to join their Complex Care program, where I will have my own personal nurse coordinator.  Kind of like getting that first AARP invitation ...

    You have to laugh.  Thursday will be my last tx - whew.

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited June 2014

    image

    I love dogs.  Most any dog who captures me with its eyes.  (except the ones who look like they want to eat me.  Which means I love all your dogs - AAUUUJHHHHH! How can  you resist those eyes!!!  It was the eyes on our own that brought them from the rescue facility to our home.  Hannah and Chloe rule the roost.

  • jhodro
    jhodro Member Posts: 240
    edited June 2014

    Sharon! I have BC/BS…they've "invited" me to the same. I also have UHC as a secondary, got the same call from them. Funny thing, they were asking me all kinds of mental health questions and then asking if I have any 'cost' concerns. What? Of course, because they don't pay claims for months and months!! LOL. They say they are there to 'help' me manage costs. Um. I think they are worried about their costs!!! I guess it's just another 'club' no one really wants to join. :)

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited June 2014

    Love the carpet!

  • Lakegirl1
    Lakegirl1 Member Posts: 316
    edited June 2014

    I have BCBS too...they just denied my Oncotype!!!  Also, invited to same program, just haven't called back.

  • clarrn
    clarrn Member Posts: 557
    edited June 2014

    Firekat - I am one of those that did really bad on AC, but way more manageable with Taxol.  I even went to the lake for the day!

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited June 2014

    Ooooooh, I see we are sharing fur baby photos. Excellent. Here's my Perri:

    image

    Love her to PIECES. :)

  • clarrn
    clarrn Member Posts: 557
    edited June 2014

    image

    Ahhh...   First time out with our boler :)  Feeling well enough to enjoy it....priceless.   Got a bit weepy at the campfire,  just so grateful for great days and fantastic weather.   So good.  Where to go next weekend?

  • MomMom
    MomMom Member Posts: 523
    edited June 2014

    Longisland, Your dogs are adorable! What breed?. Love the cockers too- that's the breed we've had-last one was a cocker golden mix. So sweet. Love all the dog pics. We are dogless now but when this is over, want to get another.  Would have been so comforting to have had a dog through this!

    Taxol so far is very tolerable. I did fine on AC too, but more energy on Taxol. Have exercised daily since beginning treatment and think it has helped me tolerate it well. I'm icing hands and feet during infusions to hopefully prevent or lessen neuropathy and nail loss. Big toe nails affected on AC, which is unusual.

    Paula

  • brigadoonbenson
    brigadoonbenson Member Posts: 412
    edited June 2014

    Clarn- Idyllic! 

  • jbokland
    jbokland Member Posts: 890
    edited June 2014

    I did the 4 DD AC then 12 Taxol.  Taxol much easier but the fatigue by treatment 7 kicked my ass!  

    I am about 17 day PFC and my nails are tender, not too bad. However, still retaining water with the left foot and ankle swollen. Finally took a water pill last night and was up all night peeing. Feel much lighter this AM!!! - anyone relate?

  • SharonDe
    SharonDe Member Posts: 222
    edited June 2014

    Brigadoon - it looks like your two love each other.  They are beautiful.

    Cold - Peri puts a smile on my face.  Personality plus, I'm guessing. 

    Clarrn - that photo could be on the cover of a travel magazine.  I'm jealous, but glad you are feeling well enough to enjoy.

  • MameMe
    MameMe Member Posts: 425
    edited June 2014

    Dog heaven, I tell you! Wow! So fun. Little Perri looks like a puppy, but I wonder if she is? Brigadoon's pair are so photogenic, a great domestic image. 

    RE: Camping out, I wish we could meet at a state park somewhere and spend a weekend in our folding chairs, munching good food, taking walks and sharing stories. Of course, I would have to insist on perfect weather like we have right now... and cute little rigs for everyone to sleep in. Clarrn you have the right idea! 

  • MakeLemonade
    MakeLemonade Member Posts: 153
    edited June 2014

    Hi all!  

    Since we are posting pictures of our dogs :-). Love all of the pics' and clarrn that could be a travel magazine shot :-)

    The pic is of my dog Blaze and me when we earned our Agility Dog Championship 1-1/2 years ago.  He is a mostly border collie mix.

    I did 4 dose dense treatments of A/C and started Taxol last week - that will also be dose dense.  So far I feel that it is less harsh than the A/C. My head feels clearer and I am not quite so fatigued. I did have some bad pain, numbing, tingling in my lower legs and feet on Day 3 and 4, but that is mostly gone now.  The MO had recommended a B Complex to take but I didn't have a chance to pick it up before treatment.  Started that and legs feel better. So, either the Vit B's helped, or that is an SE that doesn't last long for me.  Will find out next week I guess!  Hoping it is the Vit B's as couldn't sleep for 2 nights 

    Hoping I don't get itching or hives .... I am allergic to Benedryl! (Break out into hives ironically) 

    Tomorrow is my bloodwork day plus will also be the weekly Herceptin. Taxol is not supposed to be as hard on the blood counts, but I can feel that they have dropped somewhat ... Will be interesting to see if they go as low as they always did on the A/C

    For those going through bad SE, here is hoping they lessen or go away altogether.  

    I try to stay positive but it is hard sometimes.  But, then I realize I only have 3 treatments left so got more than halfway through this somehow!  

    image

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited June 2014

    I LOVE, LOVE all the pup pictures. We have three. Two hound dogs and a corgi who is the BOSS lady. 

    Taxol has been more tolerable for me but my good days are not as good the the after AC days that I felt good. Tomorrow I am in the chair for taxol #3 and herceptin followed by Wednesday back up to the hospital for my echo and onc appt. I am sick of doctors appointments already.   I seem to be more tired but I can't fall asleep. :(

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