Really struggling need your prayers

katz03
katz03 Member Posts: 94
edited June 2014 in Prayers and Spiritual Support
Dear All

Feeling quite overwhelmed please pray for myself, my husband and all our four children.

Sarah has/had BC diagnosed nine months ago - thank you God no signs of a recurrence but she is really going through alot of menopausal symptoms with the Tamoxifen and as she is unable to speak with behavourial problems she screams quite a lot.

This is an ongoing situation which was there before breast cancer but just added to now bless her. My husband has chrons disease which is really bad at the moment, he has had several deep vein thombosis and two pulmonary embolisms and is suffering from a lot of stress. I am sufferinga lot from stress at the moment even though I believe God has us all in the palm of His hand and is in control.

Tonight one of my neighbours seriously complained about Sarah`s screaming. Sometimes other neighbours in the street scream when Sarah screams I never know who they are. I am so hurt that people can be so hard and not show compassion. It seems a small thing in comparison to the major things we are dealing with but it has still hurt a lot.

Please pray for strength and healing and pray for our neighbours too.

Katz and Sarah
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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
    Katz,


    You have " such " a very full plate .

    It is distrubing enough to go through cancer but to see one of our children have to endure this is heartbreaking, but whith Sarah's additional challenges, I seriously dont know how you can handle this.

    How terribly freightening it must be for her, not being able to understand what is going on, but more than that frustrating she is unable to communicate the fear and anger. I simply can't imagine her fear and probable anger.

    Although the neighbors should " not " in my opinion, be doing what they are, I can also see how it could be nerve wracking depending on the frequency, duration and the time it happens.

    Is there "any" medication available to Sarah to help control the screaming?



    sending healing love and light to you and your family.


    gentle hugssssssssssss


    rhymeee
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
    Sending lots of thoughts and prayers across the ocean to you...your own stress level sounds like it's about to burst and there is only so much one can stand. I do feel for you, and your neighbours are having their own hard time with this and resorting to their own method of coping...and you are trying to juggle it all.

    Rhymeee's suggestion/question is a good one..perhaps the doctor can prescribe something to help Sarah with her symptoms...I'm sure you've discussed this but a chat with the doctor (as well about your own stress) might be the thing right now...hoping for a better tomorrow...

    image
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  • katz03
    katz03 Member Posts: 94
    edited August 2006
    Dear Rhymee

    Some days we give her tiazapen to try and calm her down when she is the most on edge but Sarah is fairly drug resistant it seems they don`t always work.

    We give her painkillers three times a day just to make sure she doesn`t have pain. She definitely has hot flushes and that doesn`t help as she can`t talk about her feelings.

    She doesn`t scream all the time often she is very happy and laughs a lot but as screaming tends to be a form of communication - objection to anything most days she will scream at something sometimes for half an hour or more.

    Added to this Sarah loves sitting in the front garden with the gate locked and usually us or a carer with her. She just loves to watch the world go by which means when she does object or want something whbich we don`t grasp straight away or is unhappy about anything she screams outside the house - hence the neighbours hearing.

    Some of the neigbours are kind.

    On Wednesday we are going to have a week`s respite Sarah will be away at a short stay centre. This is the first time she has been for a week since last September so maybe a week from now we will be feeling stronger and the nice neighbours and the not so nice neighbours will have had a break.

    Seriously I do feel some compassion for them but it is not Sarah`s fault or ours and we have looked after Sarah for thirty years and know what a wonderful, brave, courageous girl she is. I think if I was totally unable to speak or write or anything and had so much going on I think I would be much worse than Sarah. Obviously we love her to bits.

    Thanks for listening.

    Kathy
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  • katz03
    katz03 Member Posts: 94
    edited August 2006
    Thanks Sherry

    God bless you too

    Going to get some support for me in two weeks. See previous post about medication.

    Kathy
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
    Kathy I just read this and see that you are all going to have a rest, which I think is wonderful. We all need a holiday every now and then (my best friend and I were just talking about this on the phone ~ she started a new job in Feb. and hasn't had a holiday since last June and is beginning to feel it) to recharge ourselves.

    Hopefully it will restore some peace and renewed strength within all of you. Everyone needs that from time to time.

    And bless you for the love you have for your daughter...she sounds a delight to you and the light she has brought to your life..and you to hers.
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  • suzie14
    suzie14 Member Posts: 344
    edited August 2006
    Kathy, my prayers and positive thoughts are with you, Sarah and your family. Hopefully the week's respite will replenish everyone's patience, compassion and kindness.

    Gentle hugs to you all with an extra squeeze for you and your husband.

    ~suzie~
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  • linny
    linny Member Posts: 204
    edited August 2006
    Kathy, thinking of you and your daughter - you sound like a very brave person, and so does she. I am having very bad hot flashes from tamoxifen - I find having small fans around the house very helpful - I stand in front of them or hold them to my face when I get a hot flash.

    My daughter-in-law (23) suffers from Crohn's disease - she is such a wonderful girl and has had a couple of bad flare ups the last year.

    Linda
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
    Quote:

    Katz,


    I seriously dont know how you can handle this.







    Katz,


    PLEASE accept my appology.....that statement was written VERY awkardly !

    What I was trying to say and mean was your courage and strength. I cant imagine the reserves of both it must take to be faced with such a heartbreaking challenge as you are faced with.


    hugsssssssss


    rhymeee
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  • csp
    csp Member Posts: 2,765
    edited August 2006
    Kathy,
    Hugs and prayers going out to you and Sarah.
    Praying you all will feel rested , energized and able to push forward again.Praying that Sarah will find relief of from her side effects and frustrations.

    hugs,
    Carrie
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  • susanmcm
    susanmcm Member Posts: 1,324
    edited August 2006
    Dear Katz,
    I pray for multiple bountiful blessings for you and your family. We all do what we have to do in difficult situations. You are finding joy in that. That is so precious.

    I hope the rest reduces the stress levels for you and your husband. And the neighbors. I would think that a screaming girl might cause some concern to someone who doesn't know why but once they understand I would think it would be a small thing to overlook. I'm sorry they are adding to your stress. My best to you and your family.

    God Bless,
    Susan
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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited August 2006
    Prayers for you and yours going up....

    May God continue to bless your family. You seem to be so filled with love.

    Deb C.
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  • nosurrender
    nosurrender Member Posts: 2,019
    edited August 2006
    katz, what an amazing person you are...
    My heart goes out to you and your family.
    Your husband's crohns is a terrible terrible disease and I am so sorry he is suffering from it. It is so debilitating, I am certain he wants to help you more, but Crohns has a mind of its own sometimes.

    Your dear daughter...
    I have to share this with you, to show you how wonderful you are...
    I have a neighbor who lives across the street from me. She is in her 40s and has some sort of mental problem that is made worse by the fact that her family leaves her alone all day for us neighbors to care for her. She is very angry, and she self medicates and has made her self worse.
    She does frigthen the small children and has been known to burst into our houses if we aren't diligent about keeping our doors locked. But on other days, we help her find her way home and try to calm her down when she completely loses control of herself.
    Her family doesn't care.
    And they only send her to a care center during the colder months because that way she won't be inside the house with them. Now, during the summer, they leave her out for us to keep an eye on her.
    Every neighbor is angry or has a problem with her family... NOT HER. Because they so obviously do not care for her one whit. There are two brothers, and one sister and the mother who all live there and who all leave the house as fast as possible in the morning.

    Your DD has YOU. You care for her or you have people tending to her. She is struggling with terrible side effects and she screams... BUT it is not as if you leave her alone to scream or become upset. Your neighbors should have more compassion. Even we here in jaded New York have compassion for this girl who is menacing - not someone sweet like your DD.
    HOW they can scream when she does is the cruelest thing I can think of. We do everything we can to make this neighbor calm and we put up with a lot- but it ISN'T HER FAULT. It is her family's fault for neglecting her.
    Imagine if she had a mom like you- someone to care for her? I would wager that she has never had a moment of tenderness in that house of hers and I believe she is better off when she is in the extended care place where she can be medicated properly and given the right attention.

    You are an angel to care for your DD like this. Don't let the neighbors get to you. If they do think of that horrid family here who do not even care where this girl wanders off to.

    You need a break. I am glad you are getting two weeks off.

    You have asked us here for prayers. I think about God. I think about Him looking down on these neighbors of mine and then Him looking down upon YOU. You will be rewarded for your love and care and compassion. All our prayers for you will be heard because you are such a good person.

    I see everyday what an uncaring family is. How blessed Sarah is to have you.

    May things start to ease and your husband's health improve, and perhaps a medication that can help the flushes will help to make Sarah more comfortable.

    God bless your whole family.

    If only there were more people like you.
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  • AnnaM
    AnnaM Member Posts: 1,387
    edited August 2006
    Katz, Sarah is so lucky to have you. You sound a wonderful mother, wife, human being. May blessings shower upon you and your kindness. I hope you have a restful break and I will send vibes promoting generous understanding to your neighbors.

    Anna
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited August 2006
    Katz.....
    Just wanted you to know that you are in my thoughts. What a strong person you are and so compassionate. You even feel badly for the "bad" neighbors.

    We have a neighbor on our block who screams throughout the day and even when he is driving down the street. He apparently screams at no one. We don't know. None of us have complained and only admire his wife who takes care of him, the kids and herself...she is NED after a brain tumor.

    So.............. I know how tough it is for you.

    You are in my thoughts.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
    kathy,
    so glad that you will get some respite time...
    SO IMPORTANT for caregivers...

    i pray for you and your strength for your dd's comfort and for your neighbors compassion...

    may your husband also benefit from the respite time and get a handle on his symptoms...

    i pray for this too...

    will you still be over for the star trek convention in vegas?
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  • katz03
    katz03 Member Posts: 94
    edited August 2006
    Sarah went away today for the week`s respite I was mentioning. First week`s respite that we have had since last September. We do miss her but tonight we feel like coils slowly unwinding.

    Thanks so much ladies for your support you really touched my heart. Alaska deb - your pic with the funny hat on was therapeutic thankyou for that.

    Rymee no apology needed for anything you said I could feel your love and compassion and didn`t take anything you sadi badly. Thank you for your sensitivity.

    laurap - I am amazed someone remembered that was a possibility - Startrek Convention for my son`s birthday. My husband and Sarah are not well enough for me to leave them so we didn`t go but the idea was dropped a while ago but Adam doesn`t mind and has made a new plan for something else in the future.

    no surrender - so sad for the girl who lives near you with not enough love or care in her life we must all pray for her maybe she would be better in a small group home permanently but would her family organise it? Not so sure from what you say.

    designing diva, linny, csp, suzie 14, susan mcm, ravdeb - what sweethearts you are thank you for your kind words and support.

    Monday when I wrote that first post I was so low. I am glad to say thanks for your prayers and good thoughts I am regaining some mental and spiritual stength and over the next week will regain some physical strength.

    What a great support network.

    Blessings

    Katz and Sarah
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  • cowgirl
    cowgirl Member Posts: 777
    edited August 2006
    Katz,
    I pray for Sarah everyday. I know she must be frustrated that her body is changing and unaware of why. I have held your family up in prayer also. You are a warrior Kathy! Praise God Sarah has you as a mom, she is truly blessed!
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  • maryannecb
    maryannecb Member Posts: 1,453
    edited August 2006
    Thinking of you and Sarah. Hoping the neighbors will some day get the picture. Life is hard enough without people being angry for something we can not control.

    Blessings to Sarah.

    Fists up!
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  • christineK
    christineK Member Posts: 1,265
    edited August 2006

    Kathy - prayers for you and Sarah, while she is away. I know you will both be missing each other, you'll probably even miss those screams. Please get some deserved rest. I continue to pray for Sarah's comfort.

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  • Sandra1957
    Sandra1957 Member Posts: 1,701
    edited August 2006
    Get some rest and do something just for you. Prayers to you, Sarah, and family.

    lini
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  • DebraLynn
    DebraLynn Member Posts: 228
    edited August 2006
    Kathy,
    Prayers for you and your entire family. I am sure they all feel the same way.... how lucky they are to have you.

    Hope you have a restful weekend.

    xxxooo
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  • csp
    csp Member Posts: 2,765
    edited August 2006
    Prayers for you , Sarah and your family ~

    image
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  • csp
    csp Member Posts: 2,765
    edited August 2006
    Prayers going up for Katz and Sarah

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
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  • PuppyFive
    PuppyFive Member Posts: 2,808
    edited August 2006

    GODS SPEED, SWEET LITTLE ONE. my prayers are with you both, and ALL in your family. debbyfive

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  • susanmcm
    susanmcm Member Posts: 1,324
    edited August 2006
    Hi Kathy,
    Glad to hear you are uncoiling. Rest, enjoy yourself, have fun, recharge your batteries.

    Prayers to you and your family.
    Susan
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2006
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  • DebraLynn
    DebraLynn Member Posts: 228
    edited August 2006
    image

    Kathy, for you and your family, blessings to you
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  • csp
    csp Member Posts: 2,765
    edited August 2006
    Prayers being said for Katz and Sarah ~

    image
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  • PuppyFive
    PuppyFive Member Posts: 2,808
    edited August 2006
    Quote:

    image

    praying for you kathy(((((((GODS SPEED)))))))love,debbyfive
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